Prenatal counseling for neurodevelopmental delay in congenital heart disease: results of a worldwide survey of experts' attitudes advise caution

2016 ◽  
Vol 47 (6) ◽  
pp. 667-671 ◽  
Author(s):  
D. Paladini ◽  
Z. Alfirevic ◽  
J. S. Carvalho ◽  
A. Khalil ◽  
G. Malinger ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Prenatal Counseling ◽  
Neurodevelopmental Delay

OP04.02: Serial prenatal counseling reduces traumatic stress in mothers carrying a fetus with congenital heart disease

2012 ◽  
Vol 40 (S1) ◽  
pp. 64-65
Author(s):  
J. Rychik ◽  
D. Donaghue ◽  
S. Levy ◽  
C. Fajardo ◽  
J. Combs ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Traumatic Stress ◽  
Congenital Heart ◽  
Prenatal Counseling

scholarly journals Perception of parental understanding and parental knowledge acquisition following prenatal counseling for congenital heart disease

2022 ◽  
Vol 226 (1) ◽  
pp. S68-S69
Author(s):  
Katherine J. DeWeert ◽  
Sarah Gelehrter ◽  
Sunkyung Yu ◽  
Melissa Cousino Hood ◽  
Ray Lowery ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Knowledge Acquisition ◽  
Congenital Heart ◽  
Parental Knowledge ◽  
Prenatal Counseling

Epidemiology and incidence

ESC CardioMed ◽  
2018 ◽  
pp. 740-742
Author(s):  
John Deanfield ◽  
Bernard Keavney
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Aortic Valve ◽  
Congenital Heart ◽  
Neurodevelopmental Delay ◽  
Live Births ◽  
Genetic Abnormalities ◽  
Impact On Survival ◽  
Ongoing Surveillance ◽  
Extracardiac Abnormalities

Congenital heart disease is present in up to 8:1000 live births (excluding ‘common’ lesions such as bicuspid aortic valve, which are often diagnosed later). This incidence may be falling in Western countries, which has important implications for healthcare planning. Congenital heart disease often occurs with extracardiac abnormalities such as neurodevelopmental delay and this has an impact on survival. Some occur in recognized syndromes, with identified genetic abnormalities, and more are likely to be described. With improved care, most patients now survive into adulthood and require not only ongoing surveillance, but often medical and surgical intervention as adults.

Prenatal Counseling and Care for Single-Ventricle Heart Disease: One Center’s Model for Care

2015 ◽  
Vol 35 (5) ◽  
pp. 53-61 ◽  
Author(s):  
Terra Lafranchi ◽  
Patricia Lincoln
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Single Ventricle ◽  
Care Center ◽  
Prenatal Counseling ◽  
Term Care ◽  
Key Points ◽  
Care Family ◽  
Prenatal Imaging

Advances in prenatal imaging allow early detection of single-ventricle congenital heart disease, which may enhance prenatal care and maximize care options and decision making. Boston Children’s Hospital’s Advanced Fetal Care Center and fetal cardiology program provide prenatal counseling and care for single-ventricle congenital heart disease. Key points for optimal prenatal counseling and education include explanation of the diagnosis, delivery, the first surgery, cardiac neurodevelopmental issues, feeding and growth issues, quality of life and long-term care, family stressors, and fetal cardiac intervention. Such counseling and education help families make the difficult decisions required in this situation.

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