Assessing open science and citizen science in addictions and substance use research: A scoping review

IntroductionSubstance use disorders are chronic conditions that require a multidimensional treatment approach. Despite ongoing efforts to diversify such treatments, evidence continues to illuminate modest rates of treatment engagement and perceived barriers to treatment. Patient-centred care (PCC) is one approach that may strengthen the responsiveness of treatments for people with problematic substance use. The aim of this scoping review is to explore how the principles of PCC have been implemented and operationalised in healthcare settings for people with problematic substance use.Methods and analysisThis scoping review follows the iterative stages of the Arksey and O’Malley framework. Both empirical (from Medline, Embase, PsycINFO, CINAHL and ISI Web of Science) and grey literature references will be considered if they focused on populations with problematic substance use and described or measured PCC or one of its principles in a health-oriented context. Two reviewers will independently screen references in two successive stages of title/abstract screening and then full-text screening for references meeting title/abstract criteria. A descriptive overview, tabular and/or graphical summaries, and a directed content analysis will be carried out on extracted data. This scoping review has been registered with Open Science Framework (https://osf.io/5swvd/).Ethics and disseminationThis review will systematically examine the extent and nature of existing evidence of PCC in addiction research and clinical practice. Such evidence will contribute to the operationalisation of PCC for people with problematic substance use. A multidisciplinary team has been gathered to represent the needs of people with problematic substance use, healthcare providers and decision-makers. The team’s knowledge users will be engaged throughout this review and will participate in dissemination activities (eg, workshops, presentations, publications, reports).

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A commentary on Leza et al. (2021), Adverse childhood experiences (ACEs) and substance use disorder (SUD): A scoping review

Drug and Alcohol Dependence ◽

10.1016/j.drugalcdep.2021.108782 ◽

2021 ◽

pp. 108782

Author(s):

Michael T. McKay ◽

Mary C. Clarke

Keyword(s):

Substance Use ◽

Substance Use Disorder ◽

Scoping Review ◽

Adverse Childhood Experiences ◽

Childhood Experiences ◽

Adverse Childhood

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Mapping the current knowledge in syndemic research applied to men who have sex with men: a scoping review protocol

BMJ Open ◽

10.1136/bmjopen-2020-041238 ◽

2020 ◽

Vol 10 (11) ◽

pp. e041238

Author(s):

Maxence Ouafik ◽

Laetitia Buret ◽

Jean-Luc Belche ◽

Beatrice Scholtes

Keyword(s):

Scoping Review ◽

Current Knowledge ◽

Healthcare Access ◽

Open Science ◽

Health Conditions ◽

Manuscript Submission ◽

Cochrane Central Register ◽

Evidence Map ◽

Sex With Men ◽

Syndemic Theory

IntroductionMen who have sex with men (MSM) are disproportionally affected by a number of health conditions that are associated with violence, stigma, discrimination, poverty, unemployment or poor healthcare access. In recent years, syndemic theory provided a framework to explore the interactions of these health disparities on the biological and social levels. Research in this field has been increasing for the past 10 years, but methodologies have evolved and sometimes differed from the original concept. The aim of this paper is to provide an overview of the existing literature on syndemic theory applied to MSM in order to identify knowledge gaps, inform future investigations and expand our understanding of the complex interactions between avoidable health conditions in a vulnerable population.Methods and analysisThe proposed scoping review will follow the methodological framework developed by Arksey and O’Malley with subsequent enhancements by Levac et al, Colquhoun et al and Peters et al as well as the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping review. A systematic search of MEDLINE, PsycInfo, Scopus, Cochrane Central Register of Controlled Trials and ProQuest Sociological Abstracts will be conducted. Reference lists of the included studies will be hand-searched for additional studies. Screening and data charting will be achieved using DistillerSR. Data collating, summarising and reporting will be performed using R and RStudio. Tabular and graphical summaries will be presented, alongside an evidence map and a descriptive overview of the main results.Ethics and disseminationThis scoping review does not require ethical approval. Data and code will be made accessible after manuscript submission. Final results will be disseminated through publication in a peer-reviewed journal and collaboration with grassroots Lesbian, Gay, Bisexual, Transgender, Queer, Intersex and Asexual (LGBTQIA+) organisations.RegistrationThis protocol was registered on manuscript submission on the Open Science Framework at the following address: https://osf.io/jwxtd; DOI: 10.17605/OSF.IO/JWXTD.

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Scoping review of stepped care interventions for mental health and substance use service delivery to youth and young adults

Early Intervention in Psychiatry ◽

10.1111/eip.13180 ◽

2021 ◽

Author(s):

Mai Berger ◽

Saranee Fernando ◽

AnnMarie Churchill ◽

Peter Cornish ◽

Joanna Henderson ◽

...

Keyword(s):

Mental Health ◽

Substance Use ◽

Young Adults ◽

Service Delivery ◽

Scoping Review ◽

Stepped Care ◽

Youth And Young Adults

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Overview of current legislation, experiences and existing scenarios on allowing the sale of tobacco products only in tobacco stores: a scoping review protocol

Research Society and Development ◽

10.33448/rsd-v10i16.21884 ◽

2021 ◽

Vol 10 (16) ◽

pp. e402101621884

Author(s):

Lucas Manoel da Silva Cabral ◽

Fernando Nagib Jardim ◽

Maria José Domingues da Silva Giongo ◽

Andréa Ramalho Reis Cardoso ◽

Maria Raquel Fernandes da Silva ◽

...

Keyword(s):

Scoping Review ◽

Passive Smoking ◽

Smoking Prevalence ◽

Methodological Approach ◽

Open Science ◽

Tobacco Products ◽

Scoping Reviews ◽

Review Protocol ◽

Science Framework

This article presents the scoping review protocol on allowing the sale of tobacco products only in tobacco stores in Brazil. It is based on the hypothesis that limiting the sale of tobacco products only in tobacco shops would significantly prevent initiation and encourage cessation, thus reducing smoking prevalence and passive smoking in Brazil. The protocol aims to document the processes involved in the planning and methodological approach of an extensive scoping review, guided by Joanna Briggs Institute’s manual. The review protocol was prepared following PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation. It was registered in the Open Science Framework.

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Intersectoral approaches and integrated services in achieving the right to health for refugees upon resettlement: a scoping review protocol

BMJ Open ◽

10.1136/bmjopen-2017-016638 ◽

2017 ◽

Vol 7 (8) ◽

pp. e016638 ◽

Cited By ~ 3

Author(s):

Dena Javadi ◽

Etienne V Langlois ◽

Shirley Ho ◽

Peter Friberg ◽

Göran Tomson

Keyword(s):

Scoping Review ◽

Human Subjects ◽

Grey Literature ◽

Open Science ◽

Right To Health ◽

Refugee Health ◽

International Standards ◽

Vulnerable Groups ◽

Physical And Mental Health ◽

The Right

IntroductionGlobal insecurity and climate change are exacerbating the need for improved management of refugee resettlement services. International standards hold states responsible for the protection of the right of non-citizens to an adequate standard of physical and mental health while recognising the importance of social determinants of health. However, programmes to protect refugees’ right to health often lack coordination and monitoring. This paper describes the protocol for a scoping review to explore barriers and facilitators to the integration of health services for refugees; the content, process and actors involved in protecting refugee health; and the extent to which intersectoral approaches are leveraged to protect refugees’ right to health on resettlement, especially for vulnerable groups such as women and children.Methods and analysisPeer-reviewed (through four databases including MEDLINE, Web of Science, Global Health and PsycINFO) and grey literature were searched to identify programmes and interventions designed to promote refugee health in receiving countries. Two reviewers will screen articles and abstract data. Two frameworks for integration and intersectoral action will be applied to understand how and why certain approaches work while others do not and to identify the actors involved in achieving success at different levels of integration as defined by these frameworks.Ethics and disseminationFindings from the scoping review will be shared in relevant conferences and meetings. A brief will be created with lessons learnt from successful programmes to inform decision making in design of refugee programmes and services. Ethical approval is not required as human subjects are not involved.Trial registration numberRegistered on Open Science Framework athttps://osf.io/gt9ck/.

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Dysphagia rehabilitation following acquired brain injury, including cerebral palsy, across the lifespan: a scoping review protocol

Systematic Reviews ◽

10.1186/s13643-021-01861-9 ◽

2021 ◽

Vol 10 (1) ◽

Author(s):

Rhiannon Halfpenny ◽

Alexandra Stewart ◽

Paula Kelly ◽

Eleanor Conway ◽

Christina Smith

Keyword(s):

Brain Injury ◽

Systematic Reviews ◽

Scoping Review ◽

Grey Literature ◽

Acquired Brain Injury ◽

Paediatric Population ◽

Open Science ◽

Language Therapy ◽

Dysphagia Rehabilitation ◽

Swallowing Exercises

Abstract Background Swallowing impairment (dysphagia) following brain injury can lead to life-threatening complications such as dehydration, aspiration pneumonia and acute choking episodes. In adult therapeutic practice, there is research and clinical evidence to support the use of swallowing exercises to improve swallowing physiology in dysphagia; however, the use of these exercises in treating children with dysphagia is largely unexplored. Fundamental questions remain regarding the feasibility and effectiveness of using swallowing exercises with children. This review aims to outline the published literature on exercise-based treatment methods used in the rehabilitation of dysphagia secondary to an acquired brain injury across the lifespan. This will allow the range and effects of interventions utilised to be mapped alongside differential practices between adult and child populations to be formally documented, providing the potential for discussions with clinicians about which rehabilitative interventions might be appropriate for further trial in paediatrics. Methods This study will use a scoping review framework to identify and systematically review the existing literature using Joanna Briggs Institute (JBI) and Preferred Reporting Items for Systematic Reviews (PRISMA) scoping review guidelines. Electronic databases (MEDLINE, PubMed, Cumulative Index to Nursing and Allied Health Literature (CINAHL) and Allied and Complementary Medicine Database (AMED)), grey literature and the reference lists of key texts including systematic reviews will be searched. Information about the rehabilitation design, dosage and intensity of exercise programmes used as well as demographic information such as the age of participants and aetiology of dysphagia will be extracted. The number of articles in each area and the type of data source will be presented in a written and visual format. Comparison between the literature in adult and child populations will be discussed. Discussion This review is unique as it directly compares dysphagia rehabilitation in adults with that of a paediatric population in order to formally identify and discuss the therapeutic gaps in child dysphagia rehabilitation. The results will inform the next stage of research, looking into the current UK-based speech and language therapy practices when working with children with acquired dysphagia. Systematic review registration Open science framework osf.io/ja4dr

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Innovation in open science, society and policy – setting the agenda for citizen science

Citizen Science ◽

10.2307/j.ctv550cf2.8 ◽

2018 ◽

pp. 1-24 ◽

Cited By ~ 4

Author(s):

Susanne Hecker ◽

Muki Haklay ◽

Anne Bowser ◽

Zen Makuch ◽

Johannes Vogel ◽

...

Keyword(s):

Citizen Science ◽

Open Science ◽

Science Society ◽

Policy Setting

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TrIAS, leveraging citizen science data to monitor invasive species in Belgium

Biodiversity Information Science and Standards ◽

10.3897/biss.2.24749 ◽

2018 ◽

Vol 2 ◽

pp. e24749

Author(s):

Quentin Groom ◽

Tim Adriaens ◽

Damiano Oldoni ◽

Lien Reyserhove ◽

Diederik Strubbe ◽

...

Keyword(s):

Invasive Species ◽

Alien Species ◽

Citizen Science ◽

Invasive Alien Species ◽

Science Research ◽

Open Science ◽

Policy Support ◽

Science Data ◽

Common View ◽

Indispensable Tool

Reducing the damage caused by invasive species requires a community approach informed by rapidly mobilized data. Even if local stakeholders work together, invasive species do not respect borders, and national, continental and global policies are required. Yet, in general, data on invasive species are slow to be mobilized, often of insufficient quality for their intended application and distributed among many stakeholders and their organizations, including scientists, land managers, and citizen scientists. The Belgian situation is typical. We struggle with the fragmentation of data sources and restrictions to data mobility. Nevertheless, there is a common view that the issue of invasive alien species needs to be addressed. In 2017 we launched the Tracking Invasive Alien Species (TrIAS) project, which envisages a future where alien species data are rapidly mobilized, the spread of exotic species is regularly monitored, and potential impacts and risks are rapidly evaluated in support of policy decisions (Vanderhoeven et al. 2017). TrIAS is building a seamless, data-driven workflow, from raw data to policy support documentation. TrIAS brings together 21 different stakeholder organizations that covering all organisms in the terrestrial, freshwater and marine environments. These organizations also include those involved in citizen science, research and wildlife management. TrIAS is an Open Science project and all the software, data and documentation are being shared openly (Groom et al. 2018). This means that the workflow can be reused as a whole or in part, either after the project or in different countries. We hope to prove that rapid data workflows are not only an indispensable tool in the control of invasive species, but also for integrating and motivating the citizens and organizations involved.

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Citizen Science in Human Medicine and the Use of Software-Systems: A Rapid Scoping Review

10.3233/shti210557 ◽

2021 ◽

Author(s):

Jannik Schaaf ◽

Michaela Neff ◽

Joerg Scheidt ◽

Michael Steglich ◽

Holger Storf

Keyword(s):

Citizen Science ◽

Rare Diseases ◽

Scoping Review ◽

Genetic Research ◽

Research Process ◽

Human Medicine ◽

Software Systems ◽

Ministry Of Education ◽

Research Areas ◽

Science Projects

Citizen science allows involving interested citizen in the entire research process in science. In the past, various citizen science projects have been performed in different research fields, especially in human medicine. We conducted a rapid scoping review to determine which citizen projects in human medicine already used software-based systems to engage citizens in the research process. Furthermore, we analysed which of the software-systems are publicly available, especially in the field of rare diseases, how citizens can participate using those tools and whether the usability was rated by the participants. To get insights for our project “SelEe (Seltene Erkrankungen bürgerwissenschaftlich erforschen)”, which is a citizen science project in rare diseases funded by the Federal Ministry of Education and Research (BMBF), we aimed to identify projects in this research area. We searched PubMed for articles between 2011 and 2021 and performed a title- and abstract screening, as well as a full-text screening. Finally, 12 studies were identified in different research areas like public health, genetic research and infectious diseases. We could not identify any study directly associated with rare diseases. None of the studies investigated usability of those systems. Furthermore, five publicly available citizen science software-systems were identified. Three of them are general systems that allow creating, operating, managing citizen science projects and including citizens in the research process. In further investigations, we will check and compare these systems, if they are appropriate for use in our SelEe-project.

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