Breaking Down Communication Barriers: Assessing the Need for Audiologists to Have Access to Clinically Relevant Sign Language

2021 ◽  
Author(s):  
Samantha Panning ◽  
Rachel L. Lee ◽  
Sara M. Misurelli
Keyword(s):  
American Sign Language ◽  
Sign Language ◽  
Health Care Providers ◽  
Clinical Signs ◽  
Communication Barriers ◽  
Deaf Culture ◽  
Care Providers ◽  
Quality Patient Care ◽  
Study Results ◽  
Survey Responses

Abstract Background Research suggests Deaf individuals have longstanding negative perceptions of their interactions with health care providers, primarily due to communication barriers. One way to improve relations would be for audiologists to learn clinically relevant sign language. Purpose The aim of the study is to gain a better understanding of audiologists' knowledge of Deaf culture and American Sign Language (ASL) and evaluate motivation for instruction in signing abilities. Research Design A 21-question survey was emailed and advertised in a social media group for audiologists. The survey was divided into four sections: (1) demographics, (2) education of ASL and Deaf culture, (3) experience with ASL and Deaf culture, and (4) motivation to learn clinical signs. Data Analysis Descriptive statistics were analyzed for quantitative analysis of survey responses. Results A total of 489 responses were obtained and analyzed. Majority of respondents (82.6%) completed a manual ASL course, though only a third reported exposure to clinically relevant signs (37.4%). The majority of respondents rated their signing abilities at the word level, and knowing somewhere between 5 and 20 signs, expressively (50.5%) and receptively (53.9%). Results illustrate the majority of audiologists (54.5%) feel their clinical signing abilities need to be improved and were either highly (30.9%) or somewhat motivated (42.1%) to do so. Conclusion Study results suggest that although participants are enrolling in and completing ASL courses, clinical signs are not routinely included. This omission leads to reduced signing ability, potentially harming the provider–patient relationship. The majority of survey respondents reported that they are strongly motivated to improve their signing abilities. Results of the present study suggest there is need for a comprehensive clinical signs resource for audiologists to provide quality patient care to their Deaf patients. At present, there is no known, available tool to help accomplish this need.

110 Interim Federal Health Program (IFHP): Survey of Access & Utilization by Pediatric Health Care Providers

2021 ◽  
Vol 26 (Supplement_1) ◽  
pp. e79-e80
Author(s):  
Caroline Leps ◽  
Jessica Monteiro ◽  
Tony Barozzino ◽  
Ashna Bowry ◽  
Meb Rashid ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Access To Health Care ◽  
Health Program ◽  
Subject Area ◽  
Refugee Children ◽  
Surveillance Program ◽  
Care Providers ◽  
Survey Responses ◽  
Interim Federal Health Program

Abstract Primary Subject area Public Health and Preventive Medicine Background Canada is currently facing an increasing number of refugees and refugee claimants, yet Canadian health professionals are underutilizing the system intended to provide these individuals with healthcare. The Interim Federal Health Program (IFHP) provides temporary healthcare coverage for those who are ineligible for provincial or territorial insurance, including resettled refugees and asylum seekers. Research suggests there are ongoing challenges around the program such as who is covered and what services are covered. Objectives The objective of this study was to assess Canadian pediatricians’ current understanding and utilization of the IFHP, and perceived barriers to its utilization. Design/Methods A one-time survey was administered via the Canadian Paediatric Surveillance Program. The ten question adaptive survey was available in English or French, in either paper or electronic format. Survey responses were collected for 6 weeks in early 2020 with two reminders sent prior to survey closing. In addition to descriptive statistics, multinomial logistic regressions were built to examine pediatrician use of the IFHP, work with IFHP-covered patients, and provider characteristics associated with registration and use. Results Of the 2,753 pediatricians and pediatric subspecialists surveyed, there were 1006 respondents (36.5% response rate). 52.2% of respondents had provided care to the IFHP-eligible patients in the previous 6 months. Of those participants, only 26.4% were registered IFHP providers, and just 10% could identify all services covered by the IFHP (Figure 1). Knowledge of 80% or more of supplemental benefits was associated with registration status (adjusted odds ratio [aOR] 1.92; 95% CI 1.09 - 3.37). Amongst those who knew they were not registered, 70.2% indicated they did not know they had to register. aOR demonstrated that those with fewer years of practice had higher odds of not knowing that they had to register (aOR 1.22; 95% CI 1.01 - 1.49) Conclusion We demonstrate that the IFHP is poorly utilized by pediatric providers, with low registration rates and poor understanding of the IFHP-covered supplemental services, even among those who have recently provided care to the IFHP-eligible patients. Efforts to improve registration and knowledge of the IFHP are essential to improving access to health care for refugee children and youth. Funding: Study funded by the CPSP Resident Research Grant

scholarly journals The impact of vlogging on deaf culture, communication and identity

2021 ◽  
Author(s):  
Ellen S. Hibbard
Keyword(s):  
American Sign Language ◽  
Sign Language ◽  
Asynchronous Communication ◽  
Deaf Culture ◽  
Spatial Modulation ◽  
Online Video ◽  
Deaf People ◽  
Structured Interviews ◽  
The Impact ◽  
Culture And Communication

This thesis presents a framework representing research conducted to examine the impact of website based online video technology for Deaf people, their culture, and their communication. This technology enables American Sign Language (ASL) asynchronous communication, called vlogging, for Deaf people. The thesis provides new insights and implications for Deaf culture and communication as a result of studying the practices, opinions and attitudes of vlogging. Typical asynchronous communication media such as blogs, books, e-mails, or movies have been dependent on use of spoken language or text, not incorporating sign language content. Online video and website technologies make it possible for Deaf people to share signed content through video blogs (vlogs), and to have a permanent record of that content. Signed content is typically 3-D, shared during face-to-face gatherings, and ephemeral in nature. Websites are typically textual and video display is 2-D, placing constraints on the spatial modulation required for ASL communication. There have been few academic studies to date examining signed asynchronous communication use by Deaf people and the implications for Deaf culture and communication. In this research, 130 vlogs by Deaf vloggers on the mainstream website YouTube, and specialized website Deafvideo.TV were examined to discover strategies employed by Deaf users as a result of the technology’s spatial limitations, and to explore similarities and differences between the two websites. Semi-structured interviews were conducted with 26 Deaf people as follow up. The main findings from this research include register of vlogging formality depending on website type, informal on Deafvideo.TV while formal on YouTube. In addition, vlogs had flaming behaviour while unexpected findings of lack of ASL literature and use of technical elements that obscured ASL content in vlogs. Questions regarding the space changes and narrative elements observed have arisen, providing avenues for additional research. This study and more research could lead to a fuller understanding the impact of vlogging and vlogging technology on Deaf culture and identify potential improvements or new services that could offered.

scholarly journals Impact of COVID-19 Pandemic among Health Care Providers in Bangladesh: A Systematic Review

2020 ◽  
pp. S8-S15
Author(s):  
Md Jamal Hossain
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Healthcare Workers ◽  
Health Workers ◽  
Critical Time ◽  
Social Effects ◽  
Care Providers ◽  
Study Results ◽  
The World ◽  
Numerous People

Background: The world has been passing the most critical time of the century with the COVID-19 pandemic since late December 2019, and numerous people, including a significant portion of health care providers, got the infection and are still sacrificing their lives. Objective: The study was aimed systematically to assess the severity of the SARS-CoV-2 infection, especially in health care sectors, and to appraise the physical, psychological, and social effects of the COVID-19 epidemic among frontline fighters in Bangladesh. Methodology: The keywords: “COVID-19”, “SARS-CoV-2”, “health care system in Bangladesh”, “health care providers”, etc. were searched to collect the desired articles by utilizing various search engines like google, google scholar, pub med, and science direct journals. Data were extracted and finally, were summarized, discussed, analysed, and reported the study results. Result: Numerous specialist doctors, nurses, and all other healthcare workers are immolating their lives to save human entities amid the current coronavirus pandemic, 2019 (COVID-19). In Bangladesh, till August 9, 2020, 73 doctors, including some senior specialists, died of COVID-19 infection reported by various national newspapers. At the early phase of this epidemic in Bangladesh, around 10% of the total infection was found among health workers, alarmingly reported by the Bangladesh Medical Association (BMA). These frontline fighters are additionally confronting numerous challenges, including psychological sufferings, and furthermore, they are assaulted by the society. Conclusion: Since these fighters are relinquishing their beloved lives to protect us from this brutal virus, we are trying to show our profound gratitude, appreciation, thousands of salutes, and undying tribute to these health care fighters with this publication. Bangladesh Journal of Infectious Diseases, October 2020;7(suppl_2):S8-S15

scholarly journals Number needed to treat: A primer for neurointerventionalists

2019 ◽  
Vol 25 (6) ◽  
pp. 613-618 ◽  
Author(s):  
Juan Carlos Martinez-Gutierrez ◽  
Thabele Leslie-Mazwi ◽  
Ronil V Chandra ◽  
Kevin L Ong ◽  
Raul G Nogueira ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Mechanical Thrombectomy ◽  
Clinical Trial Data ◽  
Number Needed To Treat ◽  
Care Providers ◽  
Key Stakeholders ◽  
Number Of Patients ◽  
Study Results ◽  
Statin Drugs

Background The number needed to treat is a commonly used statistical term in modern neurointerventional practice. It represents the number of patients that need to be treated for one patient to benefit from an intervention. Given its growing popularity in reflecting study results, understanding the basics behind this statistic is of practical value to the neurointerventionalist. Methods Here, we review the basic theory and calculation of the number needed to treat, its application to stroke interventions, and its limitations. In addition, we demonstrate several simple methods of calculating the number needed to treat utilizing recent thrombectomy trial results. By presenting the number needed to treat as a universal metric, we provide a comprehensive comparative of the number needed to treat for key stroke therapies, including mechanical thrombectomy, tissue plasminogen activator, carotid endarterectomy, and prevention with antiplatelet and statin drugs. Conclusions In comparison with available stroke therapies, mechanical thrombectomy stands out as the most effective acute intervention in patients with emergent large-vessel occlusions. Understanding how the number needed to treat is derived and its implications helps provide perspective to clinical trial data, identify health-care resource priorities, and improve communication with patients, health-care providers, and additional key stakeholders.

scholarly journals Localized Provoked Vulvodynia-An Ignored Vulvar Pain Syndrome

2021 ◽  
Vol 11 ◽  
Author(s):  
Jorma Paavonen ◽  
David A. Eschenbach
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Randomized Clinical Trials ◽  
Clinical Signs ◽  
Pain Syndrome ◽  
Health Care Research ◽  
Treatment Modalities ◽  
Care Providers ◽  
Susceptible Host ◽  
Reproductive Aged Women

Localized provoked vulvodynia (LPV) causes dyspareunia among reproductive aged women. We review the pathogenesis of LPV and suggest that LPV is an inflammatory pain syndrome of the vestibular mucosa triggered by microbial antigens in a susceptible host. Tissue inflammation and hyperinnervation are characteristic findings which explain symptoms and clinical signs. Education of health care providers of LPV is important since this condition is common, often unrecognized, and patients often become frustrated users of health care. Research is needed on the antigen triggers of the syndrome. Randomized clinical trials are needed to evaluate treatment modalities.

Exploring online access of an immuno-oncology wallet card among oncology providers.

2020 ◽  
Vol 38 (5_suppl) ◽  
pp. 93-93
Author(s):  
Janelle Schrag ◽  
Latha Shivakumar ◽  
Monique Dawkins ◽  
Leigh Boehmer ◽  
Lorna Lucas
Keyword(s):  
Patient Education ◽  
Health Care Providers ◽  
Professional Organization ◽  
Care Providers ◽  
Data Set ◽  
Program Administrators ◽  
Cancer Program ◽  
Drug Companies ◽  
Survey Responses ◽  
Oncology Providers

93 Background: In 2019, the Association of Community Cancer Centers (ACCC) developed an immuno-oncology (IO) wallet card to address the continuous need for immune-related adverse event education and resources, particularly for IO patients and the non-oncology providers from whom they receive care. The wallet card was distributed to ACCC’s membership of cancer programs via mailings and online, which included a short survey for users to complete at time of download. Methods: To better understand the demographics and motivations of individuals who access the IO wallet card, an exploratory analysis was performed on data collected through the download survey. Data included the survey responses from all downloads between March and September 2019 (n = 141), which was then cleaned to remove duplicates, incomplete responses, and responses from ACCC staff, international users, pharmaceutical representatives, consultants, and patients. Analysis was then performed on the resulting data set of downloads from US-based health care providers (n = 86). Results: Cancer program administrators and nurses accounted for the majority of downloads (30% and 20%, respectively), as well as individuals from comprehensive community cancer programs (44%) and NCI-designated comprehensive cancer programs (16%). Fewer downloads came from other oncology disciplines (2-9%) and small practices (2-6%). Survey responses indicated that the majority of downloads were due to the cancer program not already having the resource (47%), or for comparison with a wallet card developed by the cancer program (15%) or another organization (10%). Patient education materials provided by these institutions included wallet cards (45%), as well as print materials developed by the cancer program (16%), another professional organization (7%), or distributed by drug companies (5%). Conclusions: These finding shed light on the primary audiences accessing the IO wallet card, how this resource may complement other IO patient education materials, and areas where additional education may be needed. Specifically, IO wallet card dissemination or related education may need to be tailored to better reach specific oncology disciplines as well as those practicing in smaller clinics.

A qualitative thematic analysis of online UK diabetes health forums to assess experiences and perspectives of insulin therapy in Type 2 Diabetes (Preprint)

2021 ◽  
Author(s):  
Maya Allen-Taylor ◽  
Laura Ryan ◽  
Rebecca Upsher ◽  
Kirsty Winkley-Bryant
Keyword(s):  
Type 2 Diabetes ◽  
Health Care ◽  
Insulin Therapy ◽  
Health Care Providers ◽  
Thematic Analysis ◽  
Self Management ◽  
Search Term ◽  
Care Providers ◽  
Study Results

BACKGROUND Despite the advent of newer therapeutic agents, many individuals with T2D will require insulin treatment. Insulin refusal and cessation of treatment in this group is common and their needs under explored. OBJECTIVE To understand the experiences and perspectives of individuals with type 2 diabetes who have been recommended or prescribed insulin therapy, expressed on online health forums. METHODS Setting: Retrospective archived forum threads from the two largest, freely and publicly accessible diabetes health forums in the UK were screened over a 12-month period (August 2019-20). Design: Within the Diabetes UK forum, the search term ‘insulin (title only)’ was employed to identify relevant threads. Within Diabetes.co.uk, threads were screened within an existing ‘Type 2 with insulin’ message board. Three independent researchers coded the forum threads and posts. Pertinent themes and subthemes were identified and have been illustrated by paraphrasing of members quotes, to ensure anonymity. Participants: n=299 posts from 29 threads from Diabetes UK and n=295 posts from 28 threads from Diabetes.co.uk, were analysed over the study period. Fifty-seven threads in total met the inclusion criteria and were included in the thematic analysis. RESULTS Four overarching themes with subthemes were generated to illustrate the unmet needs that had prompted members to seek information, advice and support outside of their usual care provision, via the forums: (1) unmet practical needs and self-management support; including insulin injection technique, titration, travel, driving with insulin and utilising new technology, (2) psychological and peer support; advice, encouragement and empathy, which was readily offered and well received, (3) seeking and providing extended lifestyle advice; discussions around alternative diet strategies, types of activity and their effects on glycaemia and body weight, and (4) relationships with health care professionals (HCPs); including recounting of problematic experiences such as paternalism, lack of HCP knowledge and inadequate provision of effective insulin focused diabetes self-management education. CONCLUSIONS This is the first study to utilise data from online health forums, to characterise the experiences and perspectives of people with T2D who are recommended or prescribed insulin therapy. The observed naturalistic conversations have generated useful insights. Our findings suggest there are additional needs that are not being currently met by health care providers. They also suggest that problematic relationships with HCPs remain a barrier to effective insulin therapy. The study results will help to directly inform insulin focused diabetes self-management and support strategies, in order to enable individuals to achieve their best outcomes.

Legal and Ethical Imperatives for Using Certified Sign Language Interpreters in Health Care Settings: How to “Do No Harm” When “It’s (All) Greek” (Sign Language) to You

2016 ◽  
Vol 17 (3) ◽  
pp. 114-128 ◽  
Author(s):  
Angela M. Nonaka
Keyword(s):  
Health Care ◽  
Sign Language ◽  
Health Care Providers ◽  
Limited English Proficiency ◽  
Ethical Issues ◽  
The United States ◽  
Care Providers ◽  
Sign Language Interpreters ◽  
Health Care Settings ◽  
Sign Language Interpreting

Communication obstacles in health care settings adversely impact patient–practitioner interactions by impeding service efficiency, reducing mutual trust and satisfaction, or even endangering health outcomes. When interlocutors are separated by language, interpreters are required. The efficacy of interpreting, however, is constrained not just by interpreters’ competence but also by health care providers’ facility working with interpreters. Deaf individuals whose preferred form of communication is a signed language often encounter communicative barriers in health care settings. In those environments, signing Deaf people are entitled to equal communicative access via sign language interpreting services according to the Americans with Disabilities Act and Executive Order 13166, the Limited English Proficiency Initiative. Yet, litigation in states across the United States suggests that individual and institutional providers remain uncertain about their legal obligations to provide equal communicative access. This article discusses the legal and ethical imperatives for using professionally certified (vs. ad hoc) sign language interpreters in health care settings. First outlining the legal terrain governing provision of sign language interpreting services, the article then describes different types of “sign language” (e.g., American Sign Language vs. manually coded English) and different forms of “sign language interpreting” (e.g., interpretation vs. transliteration vs. translation; simultaneous vs. consecutive interpreting; individual vs. team interpreting). This is followed by reviews of the formal credentialing process and of specialized forms of sign language interpreting—that is, certified deaf interpreting, trilingual interpreting, and court interpreting. After discussing practical steps for contracting professional sign language interpreters and addressing ethical issues of confidentiality, this article concludes by offering suggestions for working more effectively with Deaf clients via professional sign language interpreters.

Attitudes About Prenatal Hiv Testing in Turkey

2008 ◽  
Vol 15 (2) ◽  
pp. 222-233 ◽  
Author(s):  
Nermin Ersoy ◽  
Aslıhan Akpınar
Keyword(s):  
Health Care ◽  
Pregnant Women ◽  
Hiv Testing ◽  
Health Care Providers ◽  
Care Providers ◽  
Unethical Practices ◽  
Study Results ◽  
Chi Squared ◽  
Prenatal Care Providers ◽  
Testing Policies

The aim of this study was to assess the attitudes of Turkish pregnant women and antenatal health care providers towards prenatal HIV testing. A self-administered questionnaire was used. The relationships between the different groups' knowledge and attitudes were analysed by using the chi-squared statistic. A total of 494 pregnant women and 181 care providers participated. Forty-four per cent of the pregnant women thought that prenatal HIV testing should be mandatory, and 84% of the health care providers thought it should be performed routinely or be mandatory. The majority of the pregnant women (74%) and half of the care providers agreed that the test results should be disclosed first to the pregnant woman. The study results also revealed that most of the prenatal care providers would not protect pregnant women's autonomy and privacy, contrary to the pregnant women's own preferences. It is essential to establish national prenatal HIV testing policies in order to prevent unethical practices and ensure satisfaction for pregnant women and health care providers.

scholarly journals General Practitioners’ Experiences of Digital Written Patient Dialogues: A Pilot Study Using a Mixed Method

2020 ◽  
Vol 11 ◽  
pp. 215013272090965
Author(s):  
Anders Johansson ◽  
Monica Larsson ◽  
Bodil Ivarsson
Keyword(s):  
Health Care ◽  
Primary Health Care ◽  
General Practitioners ◽  
Health Care Providers ◽  
Mixed Method ◽  
Critical Incident ◽  
Care Providers ◽  
Response Options ◽  
Primary Health ◽  
Study Results

Background: The path between patients and health care providers has adopted new advanced information technologies. However, opinions vary about the digital care meeting. Physicians have expressed concerns about increased workload, changes in working methods, and information security. Purpose: To explore physicians’ experiences and satisfaction of digital primary health care. Method: A convergent mixed method was used. First, participants completed a quantitative questionnaire survey with fixed response options described as index values (IV, 0-1.0), supplemented with a 10-point Likert-type scale, estimating satisfaction. Second, a qualitative interview used critical incident technique (CIT) to offer more complete context. Data were collected during 2 months in 2019; 6 general practitioners (GPs) participated. Results: The GPs described good experiences of the concept (IV 0.65), corresponding to a median satisfaction value of 6.5 (interquartile range 5-9,). CIT emerged into 2 main areas; “Hovering between traditional and digital primary health care” and “Using active strategies to handle the digital care system.” GPs experienced that the concept offered a good flow, an asynchronous working approach was used. GPs also stated present chat design was a good complement to traditional forms of primary health care, and the benefits of being able to read patients’ self-described history were considered a significant patient safety factor. However, the GPs felt that a predetermined symptom list were not suitable for all patients. Conclusion: Study results suggest the present design using digital written patient dialogues complements traditional primary healthcare. GPs described satisfaction and expressed good experiences of the concept, although further development of the design is needed.

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