Health-care Transition: A Vital Part of Care, Growth, and Change for Pediatric Patients

2021 ◽  
Vol 42 (12) ◽  
pp. 684-693
Author(s):  
Lynn F. Davidson ◽  
Maya H. Doyle
Keyword(s):  
Health Care ◽  
Transition Process ◽  
Smooth Transition ◽  
Pediatric Care ◽  
Care Transition ◽  
Care Needs ◽  
Adult Care ◽  
Health Care Transition ◽  
Care Gaps ◽  
Growth And Change

Preparing all youth for the transition to adult-oriented care, adulthood itself, and a greater responsibility for their own health and health-care is an essential part of pediatric care. This process, typically described as health-care transition, can occur throughout ongoing pediatric health-care to prepare patients for transfer to an adult clinician and integration into adult care. Gaps remain in practice and in outcomes research regarding health-care transition. This review discusses recent literature, details best practices, and recommends guidance and tools to assist pediatric clinicians in providing a smooth transition process and a successful transfer to adult care for youth with and without special health-care needs.

A Clinical Tool to Measure the Components of Health-Care Transition from Pediatric Care to Adult Care: TheUNC TRxANSITION Scale

Renal Failure ◽  
2012 ◽  
Vol 34 (6) ◽  
pp. 744-753 ◽  
Author(s):  
Maria E Ferris ◽  
Donna H Harward ◽  
Kristi Bickford ◽  
J. Bradley Layton ◽  
M. Ted Ferris ◽  
...  
Keyword(s):  
Health Care ◽  
Pediatric Care ◽  
Care Transition ◽  
Clinical Tool ◽  
Adult Care ◽  
Health Care Transition

scholarly journals Health Care Transition From Pediatric to Adult Care: an Evidence Based Guideline

2021 ◽  
Author(s):  
Lars Pape ◽  
Gundula Ernst
Keyword(s):  
Health Care ◽  
Young People ◽  
Young Person ◽  
Care Transition ◽  
Evidence Based ◽  
Care Needs ◽  
Adult Care ◽  
Health Care Transition ◽  
Delphi Approach ◽  
Randomized Controlled Studies

Abstract PurposeFor consistent quality of treatment of young people with chronic health care needs, a structured transition from pediatric medicine to adult medical care is essential. Currently, most countries have no guidelines on health care transition (HCT) based on systematic evidence research. To close this gap guidance to support the transition was developed in Germany.MethodsTwenty-five experts in the management of adolescents and young adults with different chronic conditions were invited to take part in the guideline group. Based on a systematic literature search recommendations for transition were drafted. Where evidence was lacking, recommendations were developed using collective expert consensus. The consensus process was independently moderated using a Delphi approach. The final draft was reviewed and endorsed by all major German medical societies.ResultsThe clinical recommendations provide guidance for all chronic somatic diseases. After assessment of transition readiness, an individualized plan for transition should be drawn up. Key elements here are a responsible coordinator, age-adapted patient education, involvement of parents, web-based interventions, joint visits and a structured summary for the receiving physician. The aim is the gradual transfer of responsibility for disease management to the young person themselves.ConclusionAs only a few randomized controlled studies on HCT are available, evidence-based statements are possible for some but not all areas of transition. However, this guideline may help to develop globally accepted standards. These standards should be established, implemented and financed by individual national health systems to allow appropriate support for young people.

Teaching Adolescents to Manage Their Own Health Care

2019 ◽  
pp. 105984051986736
Author(s):  
Chelsea J. Aeschbach ◽  
William B. Burrough ◽  
Amy B. Olejniczak ◽  
Erica R. Koepsel
Keyword(s):  
Health Care ◽  
High School Students ◽  
Health Care Providers ◽  
Health Care Services ◽  
Transition Process ◽  
Care Transition ◽  
Care Providers ◽  
School Students ◽  
Health Care Transition ◽  
Care Services

Many factors impact an adolescent’s willingness to appropriately use health-care services and intent to begin the health-care transition process. Published literature continues to show that the way adolescents experience and utilize health-care services is ineffective and has long-term impacts on individuals and systems. Building upon the success of an existing peer-to-peer workshop, a Toolkit was created to provide school-based health professionals the information and resources needed to deliver pertinent information to high school students in one lesson. Of 416 students, over two thirds reported that they plan to be more involved in their health care (69.8%), advocate for themselves in health-care settings (68.0%), talk openly and honestly with health-care providers (71.9%), and learn more about managing their own health care (68.6%). Integrating this information into existing health curricula provided a broader reach with minimal work and promising results that could improve overall health-care transition efforts.

scholarly journals Falling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease

2021 ◽  
Author(s):  
Nagib Dahdah ◽  
Samuel C. Kung ◽  
Kevin G. Friedman ◽  
Ariane Marelli ◽  
John B. Gordon ◽  
...  
Keyword(s):  
Health Care ◽  
Coronary Artery ◽  
Kawasaki Disease ◽  
American Academy ◽  
Care Transition ◽  
Adult Care ◽  
Term Care ◽  
Health Care Transition ◽  
Number Of Patients ◽  
Structured Intervention

Background Health care transition (HCT) is a period of high vulnerability for patients with chronic childhood diseases, particularly when patients shift from a pediatric to an adult care setting. An increasing number of patients with Kawasaki disease (KD) who develop medium and large coronary artery aneurysms (classified by the American Heart Association according to maximal internal coronary artery diameter Z‐scores ≥5 and ≥10, respectively) are becoming adults and thus undergoing an HCT. However, a poor transition to an adult provider represents a risk of loss to follow‐up, which can result in increasing morbidity and mortality. Methods and Results This scientific statement provides a summary of available literature and expert opinion pertaining to KD and HCT of children as they reach adulthood. The statement reviews the existing life‐long risks for patients with KD, explains current guidelines for long‐term care of patients with KD, and offers guidance on assessment and preparation of patients with KD for HCT. The key element to a successful HCT, enabling successful transition outcomes, is having a structured intervention that incorporates the components of planning, transfer, and integration into adult care. This structured intervention can be accomplished by using the Six Core Elements approach that is recommended by the American Academy of Pediatrics, the American Academy of Family Physicians, and the American College of Physicians. Conclusions Formal HCT programs for patients with KD who develop aneurysms should be established to ensure a smooth transition with uninterrupted medical care as these youths become adults.

scholarly journals Health care transition in pediatric neurosurgery: a consensus statement from the American Society of Pediatric Neurosurgeons

2020 ◽  
Vol 25 (5) ◽  
pp. 555-563
Author(s):  
Brandon G. Rocque ◽  
Bradley E. Weprin ◽  
Jeffrey P. Blount ◽  
Betsy D. Hopson ◽  
James M. Drake ◽  
...  
Keyword(s):  
Health Care ◽  
Best Practice ◽  
Pediatric Neurosurgery ◽  
Transition To Adult Care ◽  
Care Transition ◽  
Care Needs ◽  
Health Maintenance ◽  
Health Care Transition ◽  
Practice Recommendations ◽  
American Society

OBJECTIVEThe number of children with complex medical conditions surviving to adulthood is increasing. A planned transition to adult care systems is essential to the health maintenance of these patients. Guidance has been established for the general health care transition (HCT) from adolescence to adulthood. No formal assessment of the performance of pediatric neurosurgeons in HCT has been previously performed. No “best practice” for this process in pediatric neurosurgery currently exists. The authors pursued two goals in this paper: 1) define the current state of HCT in pediatric neurosurgery through a survey of the membership of the American Society of Pediatric Neurosurgeons (ASPN) on current methods of HCT, and 2) develop leadership-endorsed best-practice guidelines for HCT from pediatric to adult neurosurgical health care.METHODSCompletion of the Current Assessment of Health Care Transition Activities survey was requested of 178 North American pediatric neurosurgeons by using a web-based questionnaire to capture HCT practices of the ASPN membership. The authors concurrently conducted a PubMed/MEDLINE–based literature review of HCT for young adults with special health care needs, surgical conditions, and/or neurological conditions for the period from 1990 to 2018. Selected articles were assembled and reviewed by subject matter experts and members of the ASPN Quality, Safety, and Advocacy Committee. Best-practice recommendations were developed and subjected to peer review by external expert groups.RESULTSSeventy-six responses to the survey (43%) were received, and 62 respondents (82%) answered all 12 questions. Scores of 1 (lowest possible score) were recorded by nearly 60% of respondents on transition policy, by almost 70% on transition tracking, by 85% on transition readiness, by at least 40% on transition planning as well as transfer of care, and by 53% on transition completion. Average responses on all core elements were < 2 on the established 4-point scale. Seven best-practice recommendations were developed and endorsed by the ASPN leadership.CONCLUSIONSThe majority of pediatric neurosurgeons have transition practices that are poor, do not meet the needs of patients and families, and should be improved. A structured approach to transition, local engagement with adult neurosurgical providers, and national partnerships between pediatric and adult neurosurgery organizations are suggested to address current gaps in HCT for patients served by pediatric neurosurgeons.

Health Care Transition for Adolescents With CKD—The Journey From Pediatric to Adult Care

2011 ◽  
Vol 18 (5) ◽  
pp. 384-390 ◽  
Author(s):  
Lorraine E. Bell ◽  
Maria E. Ferris ◽  
Nicole Fenton ◽  
Stephen R. Hooper
Keyword(s):  
Health Care ◽  
Care Transition ◽  
Adult Care ◽  
Health Care Transition

Health Care Transition for Youth With Special Health Care Needs

2012 ◽  
Vol 51 (3) ◽  
pp. 213-219 ◽  
Author(s):  
Sheila R. Bloom ◽  
Karen Kuhlthau ◽  
Jeanne Van Cleave ◽  
Alixandra A. Knapp ◽  
Paul Newacheck ◽  
...  
Keyword(s):  
Health Care ◽  
Special Health Care Needs ◽  
Care Transition ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Health Care Transition ◽  
Special Health
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