A mobile education and social support group intervention for improving postpartum health in northern India: Development and Usability Study (Preprint)

2021 ◽  
Author(s):  
Alison M. El Ayadi ◽  
Nadia G. Diamond-Smith ◽  
Alka Ahuja ◽  
Darshan Hosapatna Basavarajappa ◽  
Pushpendra Singh ◽  
...  

BACKGROUND Structural and cultural barriers limit Indian women’s access to adequate postnatal care and support despite its importance for maternal and neonatal health. Targeted postnatal education and support through an mHealth intervention may improve postnatal recovery, neonatal care practices, nutritional status, knowledge and care seeking, and mental health. OBJECTIVE We sought to understand feasibility and acceptability of our first pilot phase, a flexible six-week postnatal mHealth intervention delivered to three groups of women in Punjab, India, and integrate these findings into the intervention for our next pilot phase which will formally assess intervention feasibility, acceptability, and preliminary effectiveness. METHODS Our intervention prototype was designed to deliver culturally tailored educational programming via a provider-moderated, voice and text-based, group approach to connect new mothers with a virtual social support group of other new mothers, increase their health-related communication with providers, and refer them as needed. We targeted deployment for feature phones to include diverse socioeconomic participants. We held moderated group calls weekly, disseminated educational audios, and created mobile text groups. We varied content delivery, group discussion participation, and text chat moderation. Three groups of postpartum women from Punjab, India were recruited for the 6-week pilot through community health workers. Sociodemographic data were collected at baseline. Intervention feasibility and acceptability were assessed through weekly participant check-ins (n=29), weekly moderator reports, structured endline in-depth interviews (IDIs) among some participants (n=15), and backend data from the technologies used. RESULTS Our 29 participants were 24-28 years and 1-3 months postpartum with parity 0-1. Half had their own phone. Half of participants attended 3 or more of the 6 calls; main barriers were childcare and household responsibilities, and network or phone issues. Most participants were very satisfied with the intervention and found the educational content and group discussion beneficial. Participants utilized the text chat, particularly where facilitator-moderated. Sustaining participation and fostering group interactions was limited by technological and socio-cultural challenges. CONCLUSIONS The intervention was considered generally feasible and acceptable, and protocol adjustments were identified to improve intervention delivery and engagement. To address technological issues, we engaged a cloud-based service provider for group calls and an interactive voice response service provider for educational recordings, and developed a smartphone application for participants. We seek to overcome socio-cultural challenges through new strategies for increasing group engagement, including targeting mid-level female Community health Officers as moderators. Our second pilot will assess intervention feasibility, acceptability, and preliminary effectiveness at six months. Ultimately, we seek to support the health and wellbeing of postpartum women and their infants in South Asia and beyond through the development of efficient, acceptable, and effective intervention strategies. CLINICALTRIAL NCT04636398

Dharmakarya ◽  
2018 ◽  
Vol 7 (2) ◽  
Author(s):  
Ikeu Nurhidayah

Kanker merupakan salah satu masalah kesehatan kronis pada anak yang semakin meningkat, termasuk di Jawa Barat. Kota Bandung merupaka kota tempat dimana terdapat rumah sakit rujukan pelayanan kanker anak di Jawa Barat, sehingga jumlah orangtua dengan anak kanker yang bermukim di Kota Bandung semakin meningkat terutama di area sekitar fasilitas rujukan. bupaten Bandung. Kanker anak memerlukan proses pengobatan yang panjang, yang akan berdampak bukan hanya pada anak, namun juga pada orangtua dan keluarga. Keluarga dengan anggota keluarga yang mengalami sakit kanker akan mengalami berbagai perubahan yang dipandang sebagai situasi krisis yang dapat mengganggu keseimbangan kehidupan keluarga. Fokus grup diskusi dengan orangtua  anak dengan kanker menunjukkan bahwa stres yang sangat luar biasa dirasakan semua orangtua pada saat mendapati kabar bahwa anaknya mengalami penyakit yang membutuhkan pengobatan sepanjang waktu, dan mengganggu keseimbangan keluarga, baik dari segi fisik, psikologis, sosial, spiritual, dan ekonomi. Orangtua harus dapat melakukan berbagai penyesuaian serta membantu anak untuk beradaptasi dengan penyakitnya. Normalisasi merupakan suatu proses dimana keluarga mencoba untuk menormalkan kehidupan sehari-hari walaupun memiliki anak dengan penyakit kronis, melalui proses adaptasi. Proses normalisasi keluarga dipengaruhi oleh berbagai faktor, salah satunya adalah dukungan melalui social support group yang bisa didapatkan oleh keluarga dari peer group, tenaga profesional dan kader kesehatan. Kegiatan ini berupa pemberdayaan social support group dalam adaptasi dan normalisasi keluarga dengan kanker di rumah singgah Yayasan Kasih Anak Kanker Indonesia cabang Bandung. Khalayak sasaran pada kegiatan ini adalah peer group (sesama orangta dengan anak penyandang kanker), volunteer yayasa dan kader kesehatan sejumlah 38 orang. Luaran kegiatan ini adalah peningkatan kemampuan kognitif dan psikomotor orangtua, kader kesehatan dan volunteer dalam memberikan dukungan keluarga dengan kanker untuk melakukan adaptasi dan proses normalisasi. Metode kegiatan ini dilakukan dengan ceramah, simulasi, small group discussion dan praktikum. Hasil kegiatan menunjukkan bahwa rata-rata skor pengetahuan partisipan sebelum dilakukan kegiatan pemberdayaan adalah 65,20 (SD: 0,2), dan rata-rata skor pengetahuan setelah dilakukan kegiatan adalah 87,4 (SD: 0,2), dengan rata-rata peningkatan skor 22,2 (SD: 0,12), dan kemampuan psikomotor peserta 100% dalam kategori baik. Hasil kegiatan ini merekomendasikan yayasan YKAKI untuk membentuk social support group untuk mendukung orantua dan keluarga dengan anak kanker. 


1996 ◽  
Vol 34 (4) ◽  
pp. 279-300 ◽  
Author(s):  
Karl Goodkin ◽  
Jack E. Burkhalter ◽  
Raymond S. Tuttle ◽  
Nancy T. Blaney ◽  
Daniel J. Feaster ◽  
...  

A brief, semi-structured, bereavement support group for HIV seropositive and at risk homosexual men suffering a recent loss of a close friend or lover is described. The intervention employed a set of topics to stimulate group discussion. These topics were organized into three phases: making contact, venting of emotion, and “moving on.” Our predictive theoretical model integrating life stressor appraisal, social support availability, and active coping was incorporated. Therapeutic foci are active monitoring of stressor load; accurate stressor appraisal; extending, using and evaluating one's social support network; and selection of adaptive coping strategies. Three vignettes illustrate the integration of the research protocol with clinical issues. Implications for clinical care are discussed.


1994 ◽  
Vol 88 (2) ◽  
pp. 152-156 ◽  
Author(s):  
K.J. McCulloh ◽  
I. Crawford ◽  
J.D. Resnick

This article describes an eight-week structured social support group for midlife and older adults who are adventitiously visually impaired. The group objectives, topics covered, and issues encountered are presented, along with recommendations for developing future support groups for this population.


2020 ◽  
Vol 8 (1) ◽  
pp. e001018
Author(s):  
Qingping Yun ◽  
Ying Ji ◽  
Shenglan Liu ◽  
Yang Shen ◽  
Xuewen Jiang ◽  
...  

ObjectivesTo assess whether social support or autonomy support intervention for patients with type 2 diabetes can achieve glycemic control at the end of intervention, and to test whether the glycemic control effect can be maintained for a long time.Research design and methodsIn this cluster randomized controlled trial, 18 community healthcare stations (CHSs) were randomized to the following: (1) usual care group (UCG) offering regular public health management services, (2) social support group (SSG) providing 3-month social support intervention based on problem solving principles, and (3) autonomy support group (ASG) offering 3-month autonomy support intervention based on self-determination theory. A total of 364 patients registered in the CHSs were enrolled into either of the three groups. The primary outcome was hemoglobin A1c (HbA1c), and secondary outcomes were diabetes self-management (DSM) behaviors. Assessment was conducted at baseline and at 3 and 6 months.ResultsPatients in ASG achieved better HbA1c reduction at the end of intervention (0.53% or 7.23 mmol/mol, p<0.001) than those in the UCG and successfully maintained it up to 6 months (0.42% or 5.41 mmol/mol, p<0.001). However, patients in SSG did not experience significant change in HbA1c at 3 or 6 months when compared with patients in UCG. Besides, patients in both the SSG (0.12, p<0.05) and ASG (0.22, p<0.001) experienced improvement in exercise at 3 months. Patients in ASG sustained improvement in exercise up to 6 months (0.21, p<0.001), but those in the SSG did not.ConclusionsAutonomy support for patients with type 2 diabetes could help achieve glycemic control at the end of intervention and successfully maintain it up to 6 months. These findings indicate that autonomy support has positive long-term effects on DSM behaviors and glycemic control and can be recommended in future diabetes intervention programs.Trial registration numberChiCTR1900024354.


2019 ◽  
Vol 4 (3) ◽  
pp. 173-186 ◽  
Author(s):  
Mia Pépin ◽  
Linda Kwakkenbos ◽  
Marie-Eve Carrier ◽  
Sandra Peláez ◽  
Ghassan El-Baalbaki ◽  
...  

Peer-facilitated support groups are an important source for receiving disease-related information and support for people with systemic sclerosis (or scleroderma). A recent survey explored reasons for attending systemic sclerosis support groups in Europe and Australia and used exploratory factor analysis to group reasons for attendance into three main themes: (1) interpersonal and social support, (2) disease treatment and symptom management strategies, and (3) other aspects of living with systemic sclerosis. The objective of the present study was to replicate this study in a sample of patients from North America using confirmatory factor analysis. A 30-item survey was used to assess reasons for attendance and organizational preferences among systemic sclerosis patients in Canada and the United States. In total, 171 members completed the survey. In the confirmatory factor analysis, the three-factor model showed good fit to the data (χ2(399) = 646.0, p < 0.001, Tucker–Lewis index = 0.97, comparative fit index = 0.97, root mean square error approximation = 0.06). On average, respondents rated 22 (73%) of 30 items as “important” or “very important” reasons for attending support groups. Among organizational preferences, respondents emphasized the importance of the ability to share feelings and concerns, as well as educational aspects. Findings of our study suggest that reasons for attending support groups are similar for patients from Europe, Australia, and North America and that support groups should facilitate social support as well as disease education. These results inform the development of training programs for current and future systemic sclerosis support group leaders across the globe.


2018 ◽  
Vol 168 (1) ◽  
pp. 122-139 ◽  
Author(s):  
Catherine Archer ◽  
Kai-Ti Kao

Many mothers can find themselves increasingly isolated and overwhelmed after giving birth to a new baby. This period can be a source of extreme stress, anxiety and depression, which can not only have an economic impact on national health services, but can also have long-term effects on the development of the child. At the same time, social media use among most new mothers has become ubiquitous. This research investigates the role of social media, potentially as a mechanism for social support, among Australian mothers of young children aged from birth to 4 years. The findings indicate that participants had mixed responses to their social media use. While social support was deemed a benefit, there were also some negative aspects to social media use identified. The findings highlight the need to critically interrogate social media’s ability to act as a source of social support for new mothers.


2011 ◽  
Vol 23 (XIV) ◽  
pp. 52-57
Author(s):  
Iriani Indri Hapsari ◽  
Herdiyan Maulana

The aim of this research was to analyse the differences between the self acceptence of parents with handicapped children based on their involvment in the support group compared to those without any involvement. In this research, 64 parents with handicapped children were selected using nonprobability sampling with incidental sampling type. The samples comprised of 32 parents with involvement in support group and the remaining were without any involvement. Adapted Berger Self Acceptance Scale was used for the measurement of the research. Independent sample T-Test was the statistical analysis method used for the research. The result showed that t = 0, 267 with df = 62 ; t < t able (2) and p = 0,79 ; p > 0,05, meaning Ho was accepted and H1 was rejected. The result showed that there is no significance different between self acceptence of parents with handicaped children who join the support group with those who have not joined the group. Discussion of this research concluded there are several factors influencing this finding, such as family, cultural problems, and religious view, beside social and economic status.


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