scholarly journals What explains high life satisfaction in men living with Duchenne muscular dystrophy? A preliminary study to inform psychological intervention

2017 ◽  
Vol 56 (1) ◽  
pp. 163-166 ◽  
Author(s):  
Christopher D. Graham ◽  
Michael R. Rose
Keyword(s):  
Life Satisfaction ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Psychological Intervention ◽  
High Life Satisfaction ◽  
Preliminary Study

Life Satisfaction of Parents of Adolescents with Duchenne Muscular Dystrophy: Validation of a New Instrument

1992 ◽  
Vol 12 (5) ◽  
pp. 296-312 ◽  
Author(s):  
Rebecca M. Renwick ◽  
Denise T. Reid
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Discriminant Validity ◽  
Generation Process ◽  
Satisfaction Index ◽  
Care Givers ◽  
New Instrument

Individuals with Duchenne muscular dystrophy typically experience some of the most severe physical effects of this chronic, progressive disorder during their teenage years. This can impact significantly on their quality of life, particularly because they are simultaneously grappling with the complex, identity-related developmental tasks associated with this stage in life. In turn, these circumstances are very likely to affect the quality of life of their parents, who are also usually their care givers. To date, no attempt has been made to actually measure the quality of life of these parents, perhaps due in part to the lack of instruments designed to do this. Accordingly, this paper outlines the conceptual basis, the item generation process, and the content validation of a new instrument, the Life Satisfaction Index for Parents (LSI-P), developed to assess one aspect of quality of life, namely, life satisfaction, in this population. The results of a study examining construct, concurrent, and discriminant validity and internal consistency of the LSI-P are also presented. Potential applications of the instrument and future directions for research are discussed.

scholarly journals Duchenne muscular dystrophy: quality of life among 95 patients evaluated using the Life Satisfaction Index for Adolescents

2011 ◽  
Vol 69 (1) ◽  
pp. 19-22 ◽  
Author(s):  
Valdecir A. Simon ◽  
Maria Bernardete Dutra Resende ◽  
Margarete A.V.P. Simon ◽  
Edmar Zanoteli ◽  
Umbertina Conti Reed
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Age Groups ◽  
Good Alternative ◽  
Clinical Aspects ◽  
Satisfaction Index ◽  
Life Satisfaction Index

The purpose of this study was to evaluate the quality of life (QoL) of patients with Duchenne muscular dystrophy (DMD) in different stages of the disease, by means of the Life Satisfaction Index for Adolescents (LSI-A). The practicality of this scale was also verified. The LSI-A was applied four times to 95 patients with DMD who were undergoing steroid therapy, at three-month intervals. The patients were divided into four groups according to age. The results from the four applications and the inter and intra-examiner concordance were treated statistically. Comparing the different age groups, patients with DMD did not lose QoL, even with disease progression. We concluded that, in spite of the progressive course of the disease, the QoL in patients with DMD does not get worse. The use of a scale that embraces a great diversity of circumstances in patients' lives, without considering clinical aspects excessively, is a good alternative for assessing the QoL of these patients.

Effectiveness of diffusion tensor imaging in assessing disease severity in Duchenne muscular dystrophy: preliminary study

2014 ◽  
Vol 45 (4) ◽  
pp. 582-589 ◽  
Author(s):  
Skorn Ponrartana ◽  
Leigh Ramos-Platt ◽  
Tishya Anne Leong Wren ◽  
Houchun Harry Hu ◽  
Thomas Gardner Perkins ◽  
...  
Keyword(s):  
Diffusion Tensor Imaging ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Disease Severity ◽  
Diffusion Tensor ◽  
Preliminary Study
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