scholarly journals P.084 Pilot Program to Determine Impact of an Orthoptic Clinic on Patient Perceived Quality of Life of Stroke Patients

2021 ◽  
Vol 48 (s3) ◽  
pp. S43-S44
Author(s):  
J Hyndman ◽  
K Whelan ◽  
G Hunter ◽  
M Racine ◽  
C Catton ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Visual Impairment ◽  
Visual Assessment ◽  
Perceived Quality ◽  
Quality Improvement Initiative ◽  
Post Stroke ◽  
Assessment Scores ◽  
Perceived Quality Of Life ◽  
Before And After

Background: Visual impairment exists for an estimated 70% of individuals who have experienced a stroke. Identification and remediation of visual impairments can improve overall function and perceived quality of life. Our project aims to improve visual assessment and timely intervention for patients with post-stroke visual impairment (PSVI). Methods: We conducted a quality improvement initiative to create a standardized screening and referral process for patients with PSVI to access an orthoptist. Post-stroke visual impairment was assessed by way of the Visual Screen Assessment (VISA) tool, administered by an occupational therapist. Patients filled out a VFQ-25 questionnaire before and after orthoptic assessment and intervention. The VFQ-25 is a validated post-stroke survey assessing a patient’s perceived quality of life. Differences between pre- and post-orthoptic assessment scores will be evaluated. Results: Data collection currently ongoing.The benefits of a standardized screen for PSVI, standardized referral to, and experience with an orthoptist assessment will be determined. Learnings gained will also inform how we can expand the program to benefit a wider demographic of patients. Conclusions: The data gathered and the subsequent analysis will be instrumental in guiding ongoing improvement initiatives for patients with PSVI.

Perceived quality of life before and after implantation of an internal cardioverter defibrillator

1995 ◽  
Vol 4 (1) ◽  
pp. 36-43 ◽  
Author(s):  
EM Bainger ◽  
JI Fernsler
Keyword(s):  
Quality Of Life ◽  
Perceived Quality ◽  
Convenience Sample ◽  
Cardioverter Defibrillator ◽  
Perceived Quality Of Life ◽  
Increased Risk ◽  
Significant Difference ◽  
Before And After ◽  
Internal Cardioverter Defibrillator

BACKGROUND: Although use of the internal cardioverter defibrillator in selected high-risk patient groups has significantly improved survival, questions have arisen regarding its impact on psychological adjustment and quality of life. OBJECTIVES: To determine whether there was a difference in perceived quality of life of internal cardioverter defibrillator recipients before implantation, reported retrospectively, and after implantation. METHODS: Survey packets containing a demographic data form, a modified version of the Ferrans and Powers Quality of Life Index: Cardiac Version, and a consent form were mailed to internal cardioverter defibrillator recipients accrued from two hospitals; 70 patients comprised the convenience sample. RESULTS: No significant difference in perceived overall quality of life was revealed by before and after implantation scores of t tests or analyses of variance. Young, unemployed patients with multiple health problems were most at risk for quality of life deficits. Overall, recipients in this study appeared to adapt effectively to the stresses associated with the device. CONCLUSIONS: Our results suggest that the internal cardioverter defibrillator did not prolong life at a sacrifice to quality of life. These findings can help identify patients at increased risk for quality of life deficits.

scholarly journals Prospective analysis of self-perceived quality of life before and after posterior fossa decompression in 112 patients with Chiari malformation with or without syringomyelia

2005 ◽  
Vol 18 (2) ◽  
pp. 1-6 ◽  
Author(s):  
Diane Mueller ◽  
John J. Oro'
Keyword(s):  
Quality Of Life ◽  
Posterior Fossa ◽  
Perceived Quality ◽  
Chiari I Malformation ◽  
Decompression Surgery ◽  
Posterior Fossa Decompression ◽  
Perceived Quality Of Life ◽  
Before And After ◽  
Chiari I

Object The purpose of this prospective study was to determine if there was a difference in the self-perceived quality of life (QOL) before and after surgery among patients with Chiari I malformations with or without syringomyelia. Most patients with Chiari I malformations report improvement in their QOL after decompression surgery; however, specific outcome data have not been empirically studied in this patient population. Methods One hundred seventy-two consecutive patients who underwent posterior fossa decompression based on neuroimaging evidence of a Chiari I malformation with or without syringomyelia were prospectively offered participation in the study. The Sickness Impact Profile (SIP) was chosen as the instrument for data collection. Completed questionnaires were returned by 112 patients. A statistically significant improvement (p < 0.0001) in SIP scores (self-reported QOL) was noted in 84% of participants after decompression surgery. Patient age, amount of tonsillar herniation, and evidence of syringomyelia before surgery did not correlate with or adversely affect outcomes. Among 16 participants who reported worsening in their QOL, anecdotal information revealed extraneous factors unrelated to the Chiari I malformation that they perceived as negatively influencing their outcome. Among the extraneous variables noted by the participants were general health status, unrelated injury, other illnesses, and significant stress. Conclusions The majority of participants who underwent posterior fossa surgery for a Chiari I malformation reported significant improvement in their QOL after surgery.

Physical Activity, Body Composition, and Perceived Quality of Life in Adults with Visual Impairment

2008 ◽  
Vol 40 (Supplement) ◽  
pp. S64
Author(s):  
Elizabeth A. Holbrook ◽  
Jennifer L. Caputo ◽  
Dana K. Fuller ◽  
Tara L. Perry ◽  
Don W. Morgan
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Body Composition ◽  
Visual Impairment ◽  
Perceived Quality ◽  
Perceived Quality Of Life

scholarly journals Mobile therapeutic attention for treatment-resistant schizophrenia (m-RESIST): a prospective multicentre feasibility study protocol in patients and their caregivers

BMJ Open ◽  
2018 ◽  
Vol 8 (7) ◽  
pp. e021346 ◽  
Author(s):  
Anna Alonso-Solís ◽  
Katya Rubinstein ◽  
Iluminada Corripio ◽  
Erika Jaaskelainen ◽  
Annika Seppälä ◽  
...  
Keyword(s):  
Quality Of Life ◽  
European Union ◽  
Feasibility Study ◽  
Study Protocol ◽  
Preliminary Data ◽  
Perceived Quality ◽  
The European Union ◽  
Treatment Resistant ◽  
Perceived Quality Of Life

IntroductionTreatment-resistant schizophrenia (TRS) is a severe form of schizophrenia. In the European Union, approximately 40% of people with schizophrenia have TRS. Factors such as the persistence of positive symptoms or higher risk of comorbidities leave clinicians with a complex scenario when treating these patients. Intervention strategies based on mHealth have demonstrated their ability to support and promote self-management-based strategies. Mobile therapeutic attention for treatment-resistant schizophrenia(m-RESIST), an innovative mHealth solution based on novel technology and offering high modular and flexible functioning, has been developed specifically for patients with TRS and their caregivers. As intervention in TRS is a challenge, it is necessary to perform a feasibility study before the cost-effectiveness testing stage.Methods and analysisThis manuscript describes the protocol for a prospective multicentre feasibility study in 45 patients with TRS and their caregivers who will be attended in the public health system of three localities: Hospital Santa Creu Sant Pau (Spain), Semmelweis University (Hungary) and Gertner Institute & Sheba Medical Center (Israel). The primary aim is to investigate the feasibility and acceptability of the m-RESIST solution, configured by three mHealth tools: an app, wearable and a web-based platform. The solution collects data about acceptability, usability and satisfaction, together with preliminary data on perceived quality of life, symptoms and economic variables. The secondary aim is to collect preliminary data on perceived quality of life, symptoms and economic variables.Ethics and disseminationThis study protocol, funded by the Horizon 2020 Programme of the European Union, has the approval of the ethics committees of the participating institutions. Participants will be fully informed of the purpose and procedures of the study, and signed inform consents will be obtained. The results will be published in peer-reviewed journals and presented in scientific conferences to ensure widespread dissemination.Trial registration numberNCT03064776; Pre-results.

scholarly journals Comparing the self-perceived quality of life of multimorbid patients and the general population using the EQ-5D-3L

PLoS ONE ◽  
2017 ◽  
Vol 12 (12) ◽  
pp. e0188499 ◽  
Author(s):  
Alexandra A. N’Goran ◽  
Anouk Déruaz-Luyet ◽  
Dagmar M. Haller ◽  
Andreas Zeller ◽  
Thomas Rosemann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
General Population ◽  
Perceived Quality ◽  
The Self ◽  
Perceived Quality Of Life ◽  
Multimorbid Patients

scholarly journals Factors related to perceived quality of life in patients with Alzheimer's disease: the patient's perception compared with that of caregivers

2009 ◽  
Vol 24 (6) ◽  
pp. 585-594 ◽  
Author(s):  
Josep Lluís Conde-Sala ◽  
Josep Garre-Olmo ◽  
Oriol Turró-Garriga ◽  
Secundino López-Pousa ◽  
Joan Vilalta-Franch
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Perceived Quality ◽  
Perceived Quality Of Life ◽  
Patient’S Perception
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