scholarly journals The meaning and experience of well-being in dementia for psychiatrists involved in diagnostic disclosure: a qualitative study

2016 ◽  
Vol 29 (1) ◽  
pp. 93-104 ◽  
Author(s):  
A. Vince ◽  
C. Clarke ◽  
E. L. Wolverson

ABSTRACTBackground:Literature indicates that people's experiences of receiving a diagnosis of dementia can have a lasting impact on well-being. Psychiatrists frequently lead in communicating a diagnosis but little is known about the factors that could contribute to potential disparities between actual and best practice with regard to diagnostic disclosure. A clearer understanding of psychiatrists’ subjective experiences of disclosure is therefore needed to improve adherence to best practice guidelines and ensure that diagnostic disclosure facilitates living well with dementia.Methods:This study utilized qualitative methodology. Semi-structured interviews conducted with 11 psychiatrists were analyzed using Interpretive Phenomenological Analysis (IPA).Results:Three superordinate and nine subordinate themes emerged from the data analysis. These included the following: (i) “The levels of well-being” (Continuing with life, Keeping a sense of who they are, Acceptance of the self), (ii) “Living well is a process” (Disclosure can set the scene for well-being, Positive but realistic messages, Whose role it is to support well-being?), and (iii) Ideal care versus real care (Supporting well-being is not prioritized, There isn't time, The fragmentation of care).Conclusions:Findings indicate that psychiatrists frame well-being in dementia as a multi-faceted biopsychosocial construct but that certain nihilistic attitudes may affect how well-being is integrated into diagnostic communication. Such attitudes were linked with the perceived threat of dementia and limitations of post-diagnostic care. Behaviors used to manage the negative affect associated with ethical and clinical tensions triggered by attempts to facilitate well-being at the point of diagnosis, and their impact on adherence to best practice disclosure, are discussed.

Author(s):  
Ayooluwa Oke ◽  
Judith Butler ◽  
Cian O'Neill

There is a general disquiet in the Irish Early Childhood Care and Education (ECCE) sector about the sustainability of initiatives and best practice guidelines in the context of low status, pay and investment. The ECCE Scheme (2010; DCYA, 2018b) provided access to three hours of “free” ECCE for children aged 2.8 years who could continue to avail of the ECCE until they reached 5.6 years old (DCYA, 2018b). Ireland, under the Barcelona Summit (2002), was obliged to provide increased access to ECCE to (European Commission, 2008) to increase women’s participation in the labour market (European Commission, 2008). However, the introduction of the ECCE scheme (2010) contributed to already existing structural and financial challenges in the provision of quality ECCE. To explore parental and practitioners’ experiences of the scheme, semi-structured interviews were conducted with 18 practitioners and 15 parents. Findings reveal that the scheme seems to have been unsuccessful in supporting practitioners in meeting quality standards, the costs associated with the introduction of the scheme as well as in meeting the needs of working parents for accessible ECCE.


2011 ◽  
Vol 6 (1) ◽  
pp. 132
Author(s):  
Gabriela Silveira de Paula ◽  
Patrícia Do Socorro Magalhães Franco Espírito-Santo

ABSTRACT Objective: to understand the social representations of the elderly on aging and experiences related to health involved in this process. Methodology: the qualitative methodology was applied; data collection was carried out through participant observation, semi-structured interviews and field journal. The interviews were recorded, and a signed a free and clear consent form was obtained, with seven elderly volunteers in Franca – São Paulo, Brazil. The study was approved by Uni-FACEF´s Research Ethics Committee (035/2009). Results: from the analyses of the interviews, three social representations were found among which health constituted the center of discussion: (1) Life silencing: a stigmatized old age where health is determined by declining physical and mental capacities; (2) New identity: an active old age where health is what provides freedom and independence; (3) A natural process: old age is an expected stage and health is spiritual well-being. Conclusions: these results show that social representations of old age are associated to the current redefinition of health; to a positive concept of health; and to the individual’s responsibility for health, that is associated with the aging reprivatization. Key words: Aging; health; social representations; contemporaneity. RESUMO Objetivo: compreender as representações sociais do idoso acerca do envelhecer e das vivências relativas à saúde implicadas neste processo. Metodologia: utilizou-se a metodologia qualitativa, a coleta de dados foi realizada por meio da observação participante, entrevistas semi-estruturadas, e diário de campo. Após a assinatura dos termos de consentimento livre e esclarecido, as entrevistas foram gravadas com sete idosos voluntários na cidade de Franca – SP. Para preservar a identidade dos participantes, todos os nomes utilizados neste artigo são fictícios. O projeto de pesquisa foi aprovado pelo Comitê de Ética em Pesquisa do Centro Universitário de Franca (protocolo 035/2009). Resultados: a partir das análises das entrevistas, emergiram três RS acerca da velhice, nas quais a saúde constituiu-se em eixo de discussão: (1) A vida silenciando: uma velhice estigmatizada, em que a saúde é marcada por declínios nas capacidades físicas e mentais; (2) A Nova identidade: uma velhice ativa em que a saúde é aquilo que dá liberdade e independência; (3) Um Processo natural: a velhice é uma etapa esperada, e a saúde é o bem-estar espiritual. Conclusões: tais resultados demonstram que as RS da velhice estão associadas à atual ressignificação da saúde; a um conceito positivo de saúde; e à responsabilização individual pela saúde, a qual se associa à reprivatização do envelhecimento. Descritores: envelhecimento; saúde; representações sociais; contemporaneidade. RESUMEN Objetivo: comprender las representaciones sociales de las personas mayores sobre el envejecimiento y las experiencias relacionadas con la salud implicada en este proceso. Metodología: se utilizó una metodología cualitativa, la recolección de datos fue realizada por medio de la observación participante, entrevistas semi-estructuradas y diario de campo. Las entrevistas fueron grabadas, firmados los términos del consentimiento libre e informado, con siete voluntarios de la ciudad de Franca – São Paulo, Brasil. El estudio fue aprobado por el Comité de Ética en Investigación de la Uni-FACEF. Resultados: a partir del análisis de las entrevistas, reveló tres representaciones sociales sobre la vejez, donde la salud se constituyó en un eje de discusión: (1) La vida silenciando: una vejez estigmatizada, donde la salud se caracteriza por la disminución de la capacidad física y mental, (2) La nueva identidad: una vejez activa, donde la salud es lo que concede libertad e independencia, (3) Un proceso natural: el envejecimiento es un paso esperado y la salud es el bienestar espiritual.  Conclusiones: Estos resultados demuestran que las representaciones sociales de la edad están asociadas con la actual resignificación de la salud; con un concepto positivo de la salud, que se asocia con la reprivatización del envejecimiento. Descriptores: Envejecimiento; salud; representaciones sociales; contemporaneidad.


2017 ◽  
Vol 29 (12) ◽  
pp. 2033-2046 ◽  
Author(s):  
Ye In (Jane) Hwang ◽  
Kitty-Rose Foley ◽  
Julian N. Trollor

ABSTRACTBackground:“Aging well” is an increasingly popular concept in gerontology. Adults with disabilities such as autism spectrum disorder represent a demographically substantial population, yet remain excluded from existing conceptualizations of aging well. This qualitative study aimed to explore what it means for autistic adults to “age well” from the perspectives of autistic adults and carers.Methods:Twenty-four semi-structured interviews were conducted with 15 autistic adults (mean age 50.3 years) and 9 carers of autistic adults. Interviews were offered in four formats: email, telephone, Skype, and face-to-face and included three questions exploring what it means for autistic adults to age well as well as what might help or hinder them from aging well.Results:Aging well was found to be a multifaceted concept that encompassed the autistic individual, others, the world they live in, and relational issues connecting these domains. Thematic analysis revealed eight themes to be common across participants’ responses: “myself,” “being autistic,” “others,” “lifestyle and living well,” “being supported,” “relating to others,” “life environment,” and “societal attitudes and acceptance.”Conclusions:In line with previous studies, a more diverse range of personal and environmental factors should be included in conceptualizing aging well. In contrast to dominant perspectives, being autistic was not considered a hindrance to aging well. Rather, social and relational issues were central and unique to aging well for autistic adults. Implications include the need to address societal attitudes towards autism and building capacity and understanding in those who are both formally and informally involved in the lives of autistic adults.


Retos ◽  
2020 ◽  
pp. 556-564
Author(s):  
Felipe Nicolás Mujica Johnson ◽  
Ana Concepción Jiménez Sánchez

  La investigación de las emociones en Educación Física se debe a la necesidad de comprender los diferentes significados que dichos estados psicológicos pueden representar. El objetivo de esta investigación fue interpretar la percepción y atribución del alumnado sobre las emociones positivas para el bienestar subjetivo durante la práctica de baloncesto en Educación Física, en función del tipo de tarea motriz, el género y el centro educativo. Para aproximarse al fenómeno emocional, se ha decidido utilizar una metodología cualitativa. Participaron 20 alumnas y 24 alumnos pertenecientes a dos centros educativos de la Comunidad de Madrid. Los datos fueron recogidos por medio de entrevistas semi-estructuradas y diarios personales, los cuales se sometieron a un análisis de contenido deductivo-inductivo con ayuda del programa informático Atlas.ti 7.5. Los resultados muestran 18 códigos o atribuciones emocionales que se refieren a la alegría, el entusiasmo, la seguridad y la diversión. Según el tipo de tarea motriz, el género y el centro educativo se identificaron diferencias y similitudes, destacando el rol de la competencia y la relación con una cultura deportiva de baloncesto en cada centro educativo. Se concluye que, para promover el bienestar subjetivo del alumnado en las prácticas de baloncesto en Educación Física, podría ser adecuado aplicar modelos de enseñanza alternativos del deporte, estrategias adaptativas y un clima de logro orientado a la tarea. Abstract: Investigation of emotions in Physical Education is due to the need to understand the different meanings that these psychological states can represent. The objective of this research was to interpret the perception and attribution of the students about the positive emotions for the subjective well-being during the practice of basketball in Physical Education, depending on the type of motor task, gender and educational center. To approach the emotional phenomenon, it has been decided to use a qualitative methodology. 20 girls and 24 boys from two educational centers in the Community of Madrid participated. The data was collected through semi-structured interviews and personal diaries, which have been subjected to a deductive-inductive content analysis with the help of the Atlas.ti 7.5 software. The results indicated 18 emotional codes or attributions found for joy, enthusiasm, security and fun. According to the type of motor task, gender and educational center, differences and similarities are identified, highlighting the role of competition and the relationship with a basketball sports culture in each educational center. It is concluded that, to promote the subjective well-being of the students in the practices of basketball in Physical Education, it could be appropriate to apply alternative teaching models of sport, adaptive strategies and a climate of achievement oriented to the task.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Dermot O’Callaghan ◽  
Emma O’Riordan ◽  
Yvonne Pennisi

Purpose Current domestic and international research predominantly examines the past experiences of people seeking asylum and the negative influences such experiences have on health and well-being. However, few studies address the future needs of people seeking asylum, as they transition from Direct Provision. This study aims to address this gap in knowledge by exploring the perspectives of women seeking asylum in Ireland on the skills they think they will need, as they transition from Direct Provision to life in Ireland. Design/methodology/approach A qualitative methodology using a community-based participatory research (CBPR) approach was used, to collect data collaboratively and sensitively with a vulnerable population group. Convenience sampling was used to recruit six women seeking asylum in Ireland, to participate in focus groups and semi-structured interviews. Data were transcribed and analysed using thematic analysis. Findings Women seeking asylum identified four themes of skills for doing, skills for being, skills for becoming and skills for belonging that are necessary for life in Ireland after Direct Provision. Barriers and opportunities to develop these skills were documented as sub-themes. The skills identified under these themes and sub-themes included work, education, driving, childcare, social integration, money management, home management, health management and leisure. Originality/value Using participatory methodologies, future research should further explore the skills required for transition from Direct Provision, to continue to raise awareness of the potential for occupational injustice and the role occupational therapists could play in this transitional period.


2021 ◽  
Vol 26 ◽  
Author(s):  
Allison H. Du Plessis ◽  
Dalena Van Rooyen ◽  
Wilma Ten Ham-Baloyi

Background: Screening for chorioamnionitis, or the risk thereof, by midwives is largely lacking during antenatal care and no best practice guidelines for chorioamnionitis in South Africa was noted.Aim: To explore and describe midwives’ knowledge and practices related to the screening and management of women who are at risk of or diagnosed with chorioamnionitis.Setting: Public healthcare institutions in a health district in the Eastern Cape province of South Africa.Methods: A qualitative, exploratory, descriptive and contextual research design was used. Ten midwives were purposively included in this study, and semi-structured interviews were conducted with them. The data were analysed using an adapted version of Tesch’s eight steps for data analysis.Results: The main theme revealed that midwives lack knowledge regarding chorioamnionitis, resulting in incorrect practices including a lack of screening, misdiagnosis and mismanagement of the infectious condition.Conclusions: Findings of this research showed that midwives lacked knowledge regarding the screening and management of women with chorioamnionitis resulting in incorrect practices in this regard. There is thus a need for midwives to update their knowledge regarding the screening and management of chorioamnionitis and training (e.g. through a short learning programme).Contribution: Findings of this study could be used by midwives to update their knowledge regarding screening and managing women with chorioamnionitis, which is expected to translate to better practices. Moreover, study findings were synthesised with the results of a literature review study to form the basis for the development of a best practice guideline for screening and managing women with chorioamnionitis.


Author(s):  
Borrego A. ◽  
Ibarra-Michel J. P. ◽  
Soto-Karass J. G.

The family business in the field of social economy represents the actions and commitments it has with its members and the community, according to the philosophy and principles of the cooperative as a business organization; it also helps to strengthen its social capital and promote family integration.The objective of the study was to analyze the family business as a boost to the social economy from the organizational figure of the cooperative, taking as a case study a tourist cooperative in northern Sinaloa, Mexico. This business has more than 30 years’ operating as a cooperative society and is in its third generation, is made up of 15 members, members of the same family who in turn hold the main positions at the general assembly. The research was conducted as a case studywith a qualitative methodology approach, collecting data through observation, review of documents and semi-structured interviews to key family members.The results indicate that the family and cooperative business, share decision-making and collective well-being, promoting the social economy by working together and distributing goods fairly; allowing the continuity of the company for the next generation.


2020 ◽  
Vol 15 (4) ◽  
pp. 36-48
Author(s):  
Hanan Al Madani ◽  
Khaled O. Alotaibi ◽  
Salah Alhammadi

The purpose of this study is to examine the compliance of Islamic Development Bank (IDB) Sukuk with Maqasid Al-Shari’ah (objectives of Islamic law) in relation to human development and well-being. The paper provides a theoretical model explaining how Sukuk can achieve Maqasid Al-Shari’ah by assessing the role of Sukuk in the circulation, development, and preservation of wealth to attain social justice. This study employs a qualitative methodology using an empirical case study. The primary data are collected through elite semi-structured interviews. The secondary data are obtained using a content analysis method from Sukuk’s Principle Terms and Conditions, Information Memorandum and IDB’s annual reports for the period 2007–2017 to explain the structures and features of the Sukuk and examine their compliance with the developed model. The findings indicate that the Medium Term Note (MTN) Sukuk program positively serves the elements of hifth al-mal (safeguarding wealth), showing a direct relationship between the shift of wealth among parties and the compliance of Maqasid Al-Shari’ah. This implies that the investments made by Sukuk would benefit everyone, including individuals, institutions, societies, and the whole country, to achieve human well-being and sustainable development. Nonetheless, the analysis suggests that Shari’ah supervisory boards need to focus more on the substance when structuring Sukuk to help Islamic finance benefit in terms of moving towards the achievement of Maqasid Al-Shari’ah.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Mohd Nasir Hazira ◽  
Elangkovan Narayanan Alagas ◽  
Muslim Amin ◽  
Norol Hamiza Zamzuri ◽  
Mohd Mohd Zairul

PurposeThis paper aims to explore the best practices in marketing strategies for the Malaysian business event industry.Design/methodology/approachA qualitative methodology was adopted to collect primary data from semi-structured interviews. The informants included ten experts from the Malaysian business event industry. The data collected were then grouped using the ATLAS.ti (v.8) software for thematic analysis. A trustworthiness assessment was applied to increase the credibility and ensure the rigour of the qualitative findings.FindingsThe qualitative results revealed the following final themes: event marketing, the marketing plan, the 7 Ps of the marketing mix, strength, weaknesses, opportunities and threats (SWOT) analysis and traditional and digital marketing. Interestingly, three inductive themes were also emerged as follows: relationship marketing, unique selling points (USPs) and key opinion leaders.Research limitations/implicationsThis study looked at Malaysian business events and focused only on findings from the industry expert's perspective. In the future, further investigation may concentrate on other business event industry players such as destination marketing companies, airline operators, travel intermediaries, clients, suppliers, universities and the government.Practical implicationsThe findings offer a holistic approach to increase Malaysia's competitiveness among other primary business event host destinations in the Asian-Pacific, improve its worldwide and Asian-Pacific rankings and better position the country as a preferred business event destination during the coronavirus disease 2019 (COVID-19) pandemic.Originality/valueThis is the first such study to date, which has never been explored in qualitative academic research. This study has substantial implications for various business event industry stakeholders in Malaysia.


Author(s):  
Kathryn Fraser ◽  
Jennifer Brady ◽  
Daphne Lordly

The purpose of this exploratory research was to understand the experiences and learnings of dietetic and nutrition students following a 3-week intensive summer course designed to enhance students’ understandings of compassion, creativity, and sense of coherence as they apply to personal growth and socially just professional practice. Seven of 15 students participated in one-on-one, semi-structured interviews. Data analysis was conducted using inductive thematic analysis, resulting in 3 meta-themes: (i) personal meaning and sense making, (ii) relational and power dynamics, and (iii) disruption; participants contextualized these themes via a dynamic interplay within and among the domains of self, pedagogy, and practice. As a result of taking this course, participants developed an enhanced sense of coherence, self-compassion, well-being, and a more equity-focused understanding of health. Student development may have been achieved through attending to student experience and a relational pedagogical epistemology that allowed students to make personal, interpersonal, and systemic connections among their own subjective experiences, the experiences of peers, and broader social impacts on health. Given nutrition classrooms are largely positivist, it is important to consider how these environments as relational contexts may support or undermine compassion, sense of coherence, and ultimately the health and well-being of students.


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