scholarly journals Optimism despite profound uncertainty: school and social relationships in adolescents with single ventricle heart disease

2020 ◽  
pp. 1-8
Author(s):  
Jennifer K. Peterson ◽  
Ellen F. Olshansky ◽  
Yuqing Guo ◽  
Lorraine S. Evangelista ◽  
Nancy A. Pike
Keyword(s):  
Heart Disease ◽  
Social Relationships ◽  
Single Ventricle ◽  
Structured Interviews ◽  
Psychosocial Sequelae ◽  
Health Related ◽  
The Face ◽  
Phenomenological Methodology ◽  
Physical Limitations ◽  
Uncertain Future

Abstract Background: Survivors of single ventricle heart disease must cope with the physical, neurodevelopmental, and psychosocial sequelae of their cardiac disease, which may also affect academic achievement and social relationships. The purpose of this study was to qualitatively examine the experiences of school and social relationships in adolescents with single ventricle heart disease. Methods: A descriptive phenomenological methodology was employed, utilising semi-structured interviews. Demographic and clinical characteristics were obtained via chart review. Results: Fourteen adolescents (aged 14 to 19 years) with single ventricle heart disease participated. Interviews ranged from 25 to 80 minutes in duration. Four themes emerged from the interviews, including “Don’t assume”: Pervasive ableism; “The elephant in the room”: Uncertain future; “Everyone finds something to pick on”: Bullying at school; “They know what I have been through”: Social support. The overall essence generated from the data was “optimism despite profound uncertainty.” Conclusions: Adolescents with single ventricle heart disease identified physical limitations and school challenges in the face of an uncertain health-related future. Despite physical and psychosocial limitations, most remained optimistic for the future and found activities that were congruent with their abilities. These experiences reflect “optimism despite profound uncertainty.”

scholarly journals Striving for balance: women entrepreneurs in Brazil, their multiple gendered roles and Covid-19

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Sukanya Ayatakshi-Endow ◽  
Jiselle Steele
Keyword(s):  
Social Relationships ◽  
Women Entrepreneurs ◽  
Design Methodology ◽  
Role Expectations ◽  
Structured Interviews ◽  
Content Type ◽  
The Family ◽  
The Face ◽  
Gendered Roles ◽  
Business Family

Purpose This paper aims to explore how women entrepreneurs in Brazil are managing their businesses and gendered role expectations at home in the context of Covid-19. Using the lenses of business-family interface theoretical construct, the paper seeks to explain how women are navigating the business and family commitments in the pandemic context. Design/methodology/approach This paper adopts the interpretivist approach using Gioia methodology and 13 individual semi-structured interviews with women entrepreneurs in Rio De Janeiro, Brazil. Findings The findings demonstrate that women implement numerous strategies including reliance on social relationships within the family, and externally, to manage the home-business expectations. The findings also reveal entrepreneurial resilience and adaptability in the face of a crisis that marks how women entrepreneurs navigate challenges in their entrepreneurial journeys. Originality/value This paper contributes to the gender and entrepreneurship literature by giving greater visibility to women entrepreneurs in developing society in the context of the pandemic. This paper also demonstrates how negotiating gender roles can empower women entrepreneurs to challenge gendered norms.

scholarly journals AGE DIFFERENCES IN PSYCHOSOCIAL AND HEALTH OUTCOMES AMONG ADULTS EXPERIENCING HOMELESSNESS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S978-S978
Author(s):  
Carolyn L Turturro ◽  
Rosalie Otters ◽  
Zeferin Turturro
Keyword(s):  
Heart Disease ◽  
Anxiety And Depression ◽  
Structured Interviews ◽  
Related Data ◽  
Adequate Food ◽  
Behavioral Variables ◽  
Veteran Status ◽  
Health Related ◽  
The Mean ◽  
Age Of Death

Abstract Homelessness is a critical social problem for this nation. It takes a tremendous toll on individuals and families who live without stable shelter, adequate food, and personal security, as well as strains the societal resources. The mean age of death for people experiencing homelessness has been reported to be age 50, far less than the 76 years that is the average for Arkansas. This study investigates the sociodemographic, behavioral and health-related data of 331 adults experiencing homelessness in Central Arkansas. Data was collected by structured interviews during recent homeless counts. Participants ranged in age from 18 to 70, with quartiles established for ages 18-35, 36-45, 46-55 and 56 –70. Sociodemographic comparisons of the groups included education, income, months homeless, work and veteran status, behavioral variables included alcohol use and drug abuse, whereas health-related comparisons included reported diabetes, heart disease, diabetes, high blood pressure, heart disease, problems with hearing, vision, walking as well as mental health including anxiety and depression; in addition, medication procurement and available assistance from family and friends were compared. Preliminary results suggest significant differences, as well as some similarities, among the four age quartiles. Analyses are on-going.

scholarly journals Looking ahead to a future with Alzheimer's disease: coping with the unknown

2019 ◽  
Vol 40 (8) ◽  
pp. 1647-1668
Author(s):  
Rosalie Marie Ashworth
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Late Onset ◽  
Structured Interviews ◽  
Future Planning ◽  
Future Outlook ◽  
Look Ahead ◽  
The Future ◽  
The Face ◽  
Uncertain Future

AbstractThe conceptualisation of Alzheimer's disease as an illness with ‘no future’ exposes people with the condition to significant fear and stress. Therefore, exploring how people look ahead to the future in the face of Alzheimer's disease is of foremost importance. Semi-structured interviews (N = 14) explored the future outlook of people with early (N = 5) and late-onset (N = 7) Alzheimer's disease and those who support them (N = 14). Thematic analysis identified how participants managed their changing futures through focusing on positive information, and taking ‘one day at a time’. Younger and older people shared similar future outlook and subsequent coping strategies, as predicted by Carstensen's Socioemotional Selectivity Theory. Both people with Alzheimer's disease and those who support them avoided looking far ahead as a way of managing the uncertain future, and had little awareness of future planning in the context of current policies. Such avoidance suggests that policy which encourages future planning should consider its utility and explore ways of helping people to plan, whilst focusing on daily living.

Psychological Impact of Coronavirus (COVID-19) Disease on Cancer Patients

Coronaviruses ◽  
2021 ◽  
Vol 01 ◽  
Author(s):  
Gaurav Dhiman
Keyword(s):  
Cancer Patients ◽  
Related Problem ◽  
Preventive Measures ◽  
Psychological Impact ◽  
Vulnerable Group ◽  
Recommended Care ◽  
Health Related ◽  
The Face ◽  
Mental Trauma ◽  
The Cost

: In this letter, the psychological impact of COVID-19 on cancer infected patients is discussed. Cancer is a serious health-related problem in the human body nowadays. The 2019 pandemic of coronavirus disease has developed into an unheard-of pandemic. Given the havoc wreaked by this pathogen worldwide, many countries have implemented a severe, legally enforced method of social distancing, in the form of a lockdown. Unless adequate preventive measures are taken, the cost of the pandemic and subsequent lockdown can prove to be irreparable. The obvious consequences of this lockout, such as the escalating levels of unemployment, imminent economic crisis, and extreme food scarcity faced by the sudden unemployed migrant labour population, have been widely reported. Cancer patients are a highly vulnerable group even during non-pandemic periods, often presenting late in the course of their illness, without the services required to avail recommended care. The incidence of psychological complications and emotional distress is considerably higher than in the general population, and the trauma of both the pandemic and subsequent lockdown contributes significantly to their mental trauma. This analysis is geared at solving the challenges faced by cancer patients in the face of this pandemic and subsequent lockdown, with a look at potential solutions that can be enforced.

Sign in / Sign up

Export Citation Format

Share Document