scholarly journals Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

2019 ◽  
Vol 28 (4) ◽  
pp. 424-434 ◽  
Author(s):  
Anna Middleton ◽  
◽  
Richard Milne ◽  
Heidi Howard ◽  
Emilia Niemiec ◽  
...  
Keyword(s):  
Personal Experience ◽  
Medical Information ◽  
Personal Data ◽  
Genomic Data ◽  
Future Research ◽  
Clinical Value ◽  
The Public ◽  
The Usa ◽  
The Uk ◽  
Scientific Value

AbstractPublic acceptance is critical for sharing of genomic data at scale. This paper examines how acceptance of data sharing pertains to the perceived similarities and differences between DNA and other forms of personal data. It explores the perceptions of representative publics from the USA, Canada, the UK and Australia (n = 8967) towards the donation of DNA and health data. Fifty-two percent of this public held ‘exceptionalist’ views about genetics (i.e., believed DNA is different or ‘special’ compared to other types of medical information). This group was more likely to be familiar with or have had personal experience with genomics and to perceive DNA information as having personal as well as clinical and scientific value. Those with personal experience with genetics and genetic exceptionalist views were nearly six times more likely to be willing to donate their anonymous DNA and medical information for research than other respondents. Perceived harms from re-identification did not appear to dissuade publics from being willing to participate in research. The interplay between exceptionalist views about genetics and the personal, scientific and clinical value attributed to data would be a valuable focus for future research.

scholarly journals Economic cost of congenital CMV in the UK

2018 ◽  
Vol 104 (6) ◽  
pp. 559-563 ◽  
Author(s):  
Jenny Retzler ◽  
Nick Hex ◽  
Chris Bartlett ◽  
Anne Webb ◽  
Sharon Wood ◽  
...  
Keyword(s):  
Public Sector ◽  
Vaccine Development ◽  
Cost Model ◽  
Financial Burden ◽  
Secondary Data ◽  
Economic Cost ◽  
Future Research ◽  
The Public ◽  
The Uk

ObjectiveCongenital cytomegalovirus (cCMV) is the most common infectious cause of congenital disability. It can disrupt neurodevelopment, causing lifelong impairments including sensorineural hearing loss and developmental delay. This study aimed, for the first time, to estimate the annual economic burden of managing cCMV and its sequelae in the UK.DesignThe study collated available secondary data to develop a static cost model.SettingThe model aimed to estimate costs of cCMV in the UK for the year 2016.PatientsIndividuals of all ages with cCMV.Main outcome measuresDirect (incurred by the public sector) and indirect (incurred personally or by society) costs associated with management of cCMV and its sequelae.ResultsThe model estimated that the total cost of cCMV to the UK in 2016 was £732 million (lower and upper estimates were between £495 and £942 million). Approximately 40% of the costs were directly incurred by the public sector, with the remaining 60% being indirect costs, including lost productivity. Long-term impairments caused by the virus had a higher financial burden than the acute management of cCMV.ConclusionsThe cost of cCMV is substantial, predominantly stemming from long-term impairments. Costs should be compared against investment in educational strategies and vaccine development programmes that aim to prevent virus transmission, as well as the value of introducing universal screening for cCMV to both increase detection of children who would benefit from treatment, and to build a more robust evidence base for future research.

scholarly journals Development of Personal Information Privacy Concerns Evaluation

2018 ◽  
pp. 4862-4871
Author(s):  
Anna Rohunen ◽  
Jouni Markkula
Keyword(s):  
Service Providers ◽  
Personal Information ◽  
Personal Data ◽  
Future Research ◽  
Privacy Concerns ◽  
The Public ◽  
Data Intensive ◽  
Information Privacy Concerns ◽  
Evaluation Instruments ◽  
Information And Communication

Personal data is increasingly collected with the support of rapidly advancing information and communication technology, which raises privacy concerns among data subjects. In order to address these concerns and offer the full benefits of personal data intensive services to the public, service providers need to understand how to evaluate privacy concerns in evolving service contexts. By analyzing the earlier used privacy concerns evaluation instruments, we can learn how to adapt them to new contexts. In this article, the historical development of the most widely used privacy concerns evaluation instruments is presented and analyzed regarding privacy concerns' dimensions. Privacy concerns' core dimensions, and the types of context dependent dimensions, to be incorporated into evaluation instruments are identified. Following this, recommendations on how to utilize the existing evaluation instruments are given, as well as suggestions for future research dealing with validation and standardization of the instruments.

A systematic review of Lean in healthcare: a global prospective

2019 ◽  
Vol 36 (8) ◽  
pp. 1370-1391 ◽  
Author(s):  
Jiju Antony ◽  
Vijaya Sunder M. ◽  
Raja Sreedharan ◽  
Ayon Chakraborty ◽  
Angappa Gunasekaran
Keyword(s):  
Systematic Review ◽  
Manufacturing Sector ◽  
Secondary Data ◽  
Healthcare Sector ◽  
Future Research ◽  
Motivating Factors ◽  
Healthcare Organizations ◽  
Content Type ◽  
The Usa ◽  
The Uk

Purpose Fostered by a rapid spread beyond the manufacturing sector, Lean philosophy for continuous improvement has been widely used in service organizations, primarily in the healthcare sector. However, there is a limited research on the motivating factors, challenges and benefits of implementing Lean in healthcare. Taking this as a valuable opportunity, the purpose of this paper is to present the key motivating factors, limitations or challenges of Lean deployment, benefits of Lean in healthcare and key gaps in the literature as an agenda for future research. Design/methodology/approach The authors used the secondary data from the literature (peer-reviewed journal articles) published between 2000 and 2016 to understand the state of the art. The systematic review identified 101 articles across 88 journals recognized by the Association of Business Schools ranking guide 2015. Findings The systematic review helped the authors to identify the evolution, current trends, research gaps and an agenda for future research for Lean in healthcare. A bouquet of motivating factors, challenges/limitations and benefits of Lean in healthcare are presented. Practical implications The implications of this work include directions for managers and healthcare professionals in healthcare organizations to embark on a focused Lean journey aligned with the strategic objectives. This work could serve as a valuable resource to both practitioners and researchers for learning, investigating and rightly adapting the Lean in the healthcare sector. Originality/value This study is perhaps one of the comprehensive systematic literature reviews covering an important agenda of Lean in Healthcare. All the text, figures and tables featured here are original work carried by five authors in collaboration (from three countries, namely, India, the USA and the UK).

scholarly journals Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

2019 ◽  
Vol 138 (11-12) ◽  
pp. 1237-1246 ◽  
Author(s):  
Richard Milne ◽  
◽  
Katherine I. Morley ◽  
Heidi Howard ◽  
Emilia Niemiec ◽  
...  
Keyword(s):  
Data Sharing ◽  
General Public ◽  
Personal Experience ◽  
Online Survey ◽  
Latent Class ◽  
Public Attitudes ◽  
Genomic Medicine ◽  
Genomic Data ◽  
Cross Sectional ◽  
The Usa

Abstract Trust may be important in shaping public attitudes to genetics and intentions to participate in genomics research and big data initiatives. As such, we examined trust in data sharing among the general public. A cross-sectional online survey collected responses from representative publics in the USA, Canada, UK and Australia (n = 8967). Participants were most likely to trust their medical doctor and less likely to trust other entities named. Company researchers were least likely to be trusted. Low, Variable and High Trust classes were defined using latent class analysis. Members of the High Trust class were more likely to be under 50 years, male, with children, hold religious beliefs, have personal experience of genetics and be from the USA. They were most likely to be willing to donate their genomic and health data for clinical and research uses. The Low Trust class were less reassured than other respondents by laws preventing exploitation of donated information. Variation in trust, its relation to areas of concern about the use of genomic data and potential of legislation are considered. These findings have relevance for efforts to expand genomic medicine and data sharing beyond those with personal experience of genetics or research participants.

Reactions to unethical consumer behavior across six countries

2004 ◽  
Vol 21 (4) ◽  
pp. 254-263 ◽  
Author(s):  
Emin Babakus ◽  
T. Bettina Cornwell ◽  
Vince Mitchell ◽  
Bodo Schlegelmilch
Keyword(s):  
Consumer Behavior ◽  
Unethical Behavior ◽  
Religious Affiliation ◽  
Future Research ◽  
Research Directions ◽  
Unethical Consumer Behavior ◽  
Sample Data ◽  
The Usa ◽  
Future Research Directions ◽  
The Uk

Examining individual tolerance for unethical consumer behavior provides a key insight to how people behave as consumers worldwide. In this study, consumer reactions to 11 unethical consumer behavior scenarios are investigated using sample data from Austria, Brunei, France, Hong Kong, the UK, and the USA. Nationality is found to be a significant predictor of how consumers view various questionable behaviors. Gender is not a significant predictor, while age and religious affiliation are found to be significant predictors of consumer ethical perceptions. The study identifies distinct consumer clusters based on their perceptions of consumer unethical behavior. Implications of the findings are discussed and future research directions are provided.

scholarly journals Dietary strategies for the management of cardiovascular risk: role of dietary carbohydrates

2014 ◽  
Vol 73 (2) ◽  
pp. 167-171 ◽  
Author(s):  
Ian A. Macdonald
Keyword(s):  
Glycaemic Index ◽  
Normal Function ◽  
The Body ◽  
Dietary Carbohydrates ◽  
Scientific Advisory Committee ◽  
The Public ◽  
The Usa ◽  
The Uk ◽  
Dietary Strategies

Carbohydrate-rich foods are an essential component of the diet, providing the glucose that is continuously required by the nervous system and some other cells and tissues in the body for normal function. There is some concern that too much carbohydrate or certain types of carbohydrate such as fructose or the high glycaemic index carbohydrate foods that produce large, rapid increases in blood glucose may be detrimental to health. This review considers these issues and also summarises the public health advice currently available in Europe and the USA concerning dietary carbohydrates. The UK Scientific Advisory Committee on Nutrition is currently reviewing carbohydrates and health, and the subsequent report should help clarify some of the concerns regarding carbohydrates and health.

Internet search query analysis can be used to demonstrate the rapidly increasing public awareness of palliative care in the USA

2017 ◽  
Vol 9 (1) ◽  
pp. 40-44 ◽  
Author(s):  
Sarah McLean ◽  
Paul Lennon ◽  
Paul Glare
Keyword(s):  
Palliative Care ◽  
Public Awareness ◽  
Search Term ◽  
Internet Search ◽  
Search Query ◽  
Health Seeking ◽  
The Public ◽  
Health Related ◽  
The Usa ◽  
The Uk

BackgroundA lack of public awareness of palliative care (PC) has been identified as one of the main barriers to appropriate PC access. Internet search query analysis is a novel methodology, which has been effectively used in surveillance of infectious diseases, and can be used to monitor public awareness of health-related topics.ObjectivesWe aimed to demonstrate the utility of internet search query analysis to evaluate changes in public awareness of PC in the USA between 2005 and 2015.MethodsGoogle Trends provides a referenced score for the popularity of a search term, for defined regions over defined time periods. The popularity of the search term ‘palliative care’ was measured monthly between 1/1/2005 and 31/12/2015 in the USA and in the UK.ResultsResults were analysed using independent t-tests and joinpoint analysis. The mean monthly popularity of the search term increased between 2008–2009 (p<0.001), 2011–2012 (p<0.001), 2013–2014 (p=0.004) and 2014–2015 (p=0.002) in the USA. Joinpoint analysis was used to evaluate the monthly percentage change (MPC) in the popularity of the search term. In the USA, the MPC increase was 0.6%/month (p<0.05); in the UK the MPC of 0.05% was non-significant.DiscussionAlthough internet search query surveillance is a novel methodology, it is freely accessible and has significant potential to monitor health-seeking behaviour among the public. PC is rapidly growing in the USA, and the rapidly increasing public awareness of PC as demonstrated in this study, in comparison with the UK, where PC is relatively well established is encouraging in increasingly ensuring appropriate PC access for all.

scholarly journals Media coverage of mental health care in the UK, USA and Australia

2003 ◽  
Vol 27 (9) ◽  
pp. 331-333 ◽  
Author(s):  
Beatrice Huang ◽  
Stefan Priebe
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Health Care ◽  
Media Coverage ◽  
Mental Illnesses ◽  
The Public ◽  
The Usa ◽  
Research Findings ◽  
The Media ◽  
The Uk

Aims and MethodWe aimed to assess the contents and tone of articles on mental health care in the UK print media by comparing them with reporting in the USA and Australia. Two broadsheets from each country were analysed using the Internet for a random 4 months over a 1-year period. The number of articles, their content and the views expressed in them were identified and compared.ResultsA total of 118 articles on mental health care issues were found. The predominant tone of the articles in all three countries was negative, though there were slightly more positive articles in the USA and Australian media. Positive articles highlighted in the UK media covered mostly medical conferences and research findings.Clinical ImplicationsEfforts to achieve a more positive attitude towards people with mental illnesses in the public, such as anti-stigma campaigns, operate against a background of predominantly negative coverage of mental health care issues in broadsheets. The coverage in the UK may tend to be even less positive than in the USA and Australia. Medical conferences and research findings can, however, be used to promote positive views of mental health care in the media.

scholarly journals 'Academic literacies approaches to genre'?

2010 ◽  
Vol 10 (2) ◽  
pp. 347-361 ◽  
Author(s):  
Brian Street
Keyword(s):  
Case Studies ◽  
Future Research ◽  
Student Writing ◽  
Academic Literacies ◽  
Literacy Studies ◽  
New Literacy ◽  
New Literacy Studies ◽  
The Usa ◽  
The Uk ◽  
The University

I provide an overview of approaches to writing referred to as 'academic literacies' building on broader traditions, such as New Literacy Studies, and I draw out the relevance of such traditions for the ways in which lecturers provide support to their students with regard to the writing requirements of the University. I offer three case studies of the application of academic literacies approaches to programmes concerned with supporting student writing, in the UK and the USA. I briefly conclude by asking how far these accounts and this work can be seen to bring together many of the themes raised at SIGET conferences - including academic literacies and its relation to genre theories - and express the hope that it opens up trajectories for future research and collaboration of the kind they were founded to develop.

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