The Relationship Between the Use of Adult Dementia Day Care and Caregiver Quality of Life

2015 ◽  
Vol 20 (3) ◽  
pp. 104-115
Author(s):  
Cathleen Carney Thomas ◽  
Lisa Wallace ◽  
Jeff Alexander ◽  
Aparna Vijayan

Purpose To qualify the use of adult dementia day care services as an appropriate respite opportunity to improve the quality of life of the caregiver. Design and Methods Thirty familial caregivers from the Alzheimer's Association were recruited and divided into three groups based on number of days of use of day care services (non-use, 1–2 day use, and 3–5 day use). Survey data was self-report and measured using scores from the Evaluations Scale of Caregiver's Quality of Life. Quantitative results from the 20-item questionnaire were analyzed with Kruskal-Wallis and Mann Whitney U tests. Results The analysis showed statistically significant difference in the perception of burden for the group using day care 1–2 days per week than those that did not use the service at all. These findings were not seen in the group using the services 3–5 days per week. Implications Results lead toward the use of an adult day care program attended 3–5 days a week, incorporation of a support group with day care services, and the implementation of a structured home program for all participants to reduce caregiver level of burden.

2020 ◽  
Vol 8 (2) ◽  
pp. e001268
Author(s):  
Angela Koipuram ◽  
Sandra Carroll ◽  
Zubin Punthakee ◽  
Diana Sherifali

IntroductionPersons of South Asian descent have a higher prevalence of type 2 diabetes mellitus (T2DM). The management of T2DM in the South Asian community has required the support of adult children, potentially impacting the quality of life, diabetes-related knowledge, and risk perception among these caregivers.Research design and methodsTo investigate diabetes-related knowledge, quality of life, risk perception, and actual risk of developing diabetes among South Asian young adults whose parents are living with T2DM. A cross-sectional study was conducted (n=150). An online survey was administered. Data were analyzed with descriptive and inferential statistics.ResultsThere was a statistically significant difference in diabetes-related knowledge between males and females (p<0.001). Males (in comparison to females) had a lower risk perception of developing diabetes (p=0.06). Further, risk perception and diabetes-related knowledge were positively associated with caregiver’s physical health (p=0.002).ConclusionFindings highlight the importance of providing gender-specific and culturally tailored diabetes educational interventions.


2020 ◽  
pp. 089198872091552
Author(s):  
Marcela Moreira Lima Nogueira ◽  
Jose Pedro Simões Neto ◽  
Marcia Cristina Nascimento Dourado

The quality of life (QoL) of people with Alzheimer disease (PwAD) may be influenced by the type of relationship between carer and the PwAD. Dyads of 98 PwAD/carers (N = 49 spouse-carers; N = 49 nonspouses carers) were measured about QoL, cognition, dementia severity, awareness of disease, functionality, depression, anxiety, and burden of care. Univariate and multivariate regression analyses were conducted to identify the factors that influenced the spouse and nonspouse self-report PwAD QoL (PQOL) and to compare carers’ ratings of PwAD QoL (C-PQOL). The total score of QoL for spouse and nonspouse PwAD showed no significant difference ( P = .29). The linear regression demonstrated that higher awareness of disease was significantly related to spouse PQOL ( P = .001). Nonspouse PQOL was negatively related to lower depression ( P = .007). The total score of QoL for spouse and nonspouse C-PQOL showed no significant difference ( P = .14). The linear regression demonstrated that depression of spouse-PwAD ( P < .001) and burden of care ( P = .001) were negatively related to spouse-dyads’ C-PQOL. The nonspouse-dyads C-PQOL was negatively related to depression of nonspouse-PwAD ( P < .001), awareness of disease ( P = .001), and the mood of the carer ( P = .01). Spouse and nonspouse PwAD evaluate PQOL better than carers (C-PQOL). No significant difference was found in the total PQOL and C-PQOL of spouse and nonspouse, but dyads evaluated differently about what is important to assess QoL.


2021 ◽  
Author(s):  
Cassandra Alighieri ◽  
Evelien D'haeseleer ◽  
Kim Bettens ◽  
Katrien Bonte ◽  
Hubert Vermeersch ◽  
...  

Abstract Background. To date, there seems to be no consensus on the long-term quality of life outcomes in patients living with a cleft of the lip and/or palate (CL/P) with regard to well-being and functioning. Some studies report a substantial influence of having a cleft while other studies report no influence of living with a cleft. The purpose of this study was to investigate the impact of living with a CL/P on esthetics, employment and functioning in Dutch-speaking adolescents and adults with a CL/P. Methods. 30 Patients with a CL/P (19 men and 11 women) were included in the study. The mean age of the participants was 26.93 years (SD = 11.688 years, range = 15 – 66 years). An age and gender matched control group was included consisting of 30 participants (19 men and 11 women) without a CL/P with a mean age of 26.87 years (SD = 11.729 years, range = 16-67 years). Esthetics, employment and functioning were assessed using different standardized self-report questionnaires. Results. No statistically significant difference in educational level, employment, monthly net income, marital status and having children was found between participants with and without a CL/P. In addition, the quality of life scores did not differ between the two groups. Within the group of individuals with a CL/P, the findings revealed that the proportion of participants who reported an influence of the CL/P on daily functioning, general well-being, social contacts, family life, applying for a job, work, education and leisure time differed by age. Older individuals experienced more influence of their CL/P compared to younger individuals. With regard to esthetics, the findings revealed that participants without a CL/P were less satisfied with the appearance of their jaws compared to participants with a CL/P. Conclusion. In general, the findings of our study revealed no significant differences between adolescents and adults with and without a CL/P with regard to employment and functioning. Considering age within the group of participants with a CL/P, however, the results demonstrated that older individuals were more likely to experience a negative impact of their cleft on well-being and functioning. These findings suggest that older individuals with a CL/P might benefit from additional socio-emotional support, for example peer contacts and support groups or psychological guidance. Longitudinal research on this topic is highly needed to determine possible fluctuations in the impact of living with a CL/P.


2016 ◽  
Vol 4 (1) ◽  
Author(s):  
Geeta Sunkarapalli ◽  
Apeksha Agarwal ◽  
Swati Agarwal

Hope as conceptualized by Dufault and Martocchio (1985) “is a multidimensional dynamic life force characterized by a confident yet uncertain expectation of achieving a future good.”Quality of Life is defined by Lehto, Ojanen and Kellokumpu-Lehtinen (2005) “as appraisal of and satisfaction with their current level of functioning as compared to what they perceive to be possible or ideal.”The objective of this study was to determine the relationship between Hope, its dimensions and Quality of Life in Caregivers of Cancer Patients. A non-probability purposive sampling method was used to draw the sample of 40 Caregivers of patients with Breast and Ovarian Cancer belonging to lower middle class and upper lower class. The Herth Hope Index (HHI) (Herth, 1992) and the Caregiver Quality Of Life Index- Cancer (CQOLC) (Weitzner, Jacobsen, Wagner, Friedland & Cox, 1999) were administered. There was significant difference in the levels of Positive Readiness & Expectancy among caregivers based on their socio-economic status. Positive Readiness & Expectancy and Interconnectedness were found to be negatively correlated with quality of life. Results indicated no significant difference in the levels of Hope and Quality of Life based on age and type of cancer.


2021 ◽  
pp. 026921552110227
Author(s):  
María Granados Santiago ◽  
Marie Carmen Valenza ◽  
Esther Prados Román ◽  
Laura López López ◽  
Natalia Muñoz Vigueras ◽  
...  

Objectives: We aimed to analyze the effects of a tailored rehabilitation nursing care program on functional ability and quality of life in patients with conservative treatment for rib fractures. Design: Randomized controlled trial. Setting: Inpatient rehabilitation hospital. Subjects: Rib fracture patients treated conservatively were randomized into two groups (experimental and control group). Interventions: Patients in control group received Treatment as Usual (TAU) and patients included in experimental group received TAU and an added tailored rehabilitation nursing care program (RNT). Main measures: At baseline, and end of hospitalization treatment, the functional ability was assessed with the Barthel Index, and the quality of life was evaluated with the EuroQol-5D. Additionally, the outcomes were assessed at six-month follow-up. Results: A total of 80 patients were included in the study, whose mean age was 77.19 SD 7.71 in the RNT group and 75.55 SD 9.46 in the TAU group. Our data showed a significant difference in the post-treatment gains in overall quality of life (74.25 SD 20.62 vs 60.28 SD 20.54), and functional ability (71.79 SD 23.85 vs 69.41 SD 24.30) between the RNT group and the TAU group ( P < 0.05). Compared to the TAU group, the RNT group also showed a significant improvement in functional ability and quality of life at six-month follow-up. Conclusions: A tailored rehabilitation nursing care program added to the conservative treatment during hospitalization can improve the functional ability and quality of life of patients after rib fractures at discharge and at six-month follow-up. Trial registration: ClinicalTrial.gov Identifier: NCT04168996


Author(s):  
R. Rokkaku ◽  
A. Homma ◽  
S. Kobayashi ◽  
Y. Seki

This article summarizes the impact of inter-generational cooperation on the quality of life of elderly Alzheimer’s sufferers. The study is a continuing, two-year intervention and reports the results of the first year. It consists of an intervention and a control group of eight and six sufferers, respectively, who have been diagnosed with Alzheimer's disease. Both groups attend day care services. The intervention group participates in the inter-generational program with children, while the control group does not. On the Philadelphia Geriatric Center Affect Rating Scale, three items have been proved statistically significant. Pleasure, Interest, and Contentment have increased with inter-generational cooperation. The magnitude of the change was not so remarkable as to influence QOL-AD at home. However, the present results may imply a reduction on the burden of the day care service staff and family carers. Another advantage may be in the educating of the children’s parents, whose understanding of dementia was poor.


2020 ◽  
Vol 34 (1) ◽  
pp. 27-35
Author(s):  
Tanja Grahovac Juretić ◽  
Marina Letica-Crepulja ◽  
Aleksandra Stevanović ◽  
Klementina Ružić ◽  
Ika Rončević-Gržeta ◽  
...  

2021 ◽  
Vol 27 (2) ◽  
pp. 86-97
Author(s):  
Jacqueline Reed ◽  
Mary O'Hara ◽  
Elizabeth O'Sullivan ◽  
Sinead Cobbe ◽  
Martina O’ Reilly

Background: Specialist palliative day care is an area of palliative care which has a notable scarcity of research. Evidence is needed on the role of palliative day care to improve patients' quality of life and symptom management, while recognising the different patient cohorts that use the service. Aim: To determine the symptoms and quality of life of the patient cohort that are affected by the completion of a full therapeutic cycle (8 to 9 weeks) at a specialist palliative care day unit (SPCDU). Method: A retrospective cohort study was carried out from January 2016 to December 2017. Patient related outcome measures (PROMs) were collected as part of routine clinical paperwork at admission and discharge, and these were used to determine symptoms and quality of life pre-attendance and on completion of an 8 to 9 week therapeutic cycle at the SPCDU. Results: Descriptive analysis demonstrated improvement across the many symptoms that were analysed. Quality of life analysis also established improvement. Statistically significant difference was achieved in several areas. Total physical symptoms (p value=.009) confirmed the positive impact attendance at SPCDU has on physical symptoms. Specific symptoms which displayed a statistically significant difference included: poor appetite (p value=.002), weakness (p value=.03) and the anxiety felt by family/friends (p value=.029). The quality of a patient's life also displayed statistically significant difference (p value=.000). Conclusion: This study demonstrates that attendance at a SPCDU may positively impact a patients' symptoms and quality of life. A more uniform national approach to specialist palliative day care delivery, alongside multi-setting research, may further bolster the image of palliative day care. This will improve referrals to and occupancy of SPDCUs and benefit the palliative patient in the community.


2012 ◽  
Vol 27 (1) ◽  
pp. 61-66
Author(s):  
Seiichi TAKEMASA ◽  
Ryoma NAKAGOSHI ◽  
Masahito MURAKAMI ◽  
Masayuki UESUGI ◽  
Yuri INOUE ◽  
...  

Sign in / Sign up

Export Citation Format

Share Document