scholarly journals Reconciling fragmented sectors of health research regulation: toward an ecosystem of processual regulation

2022 ◽  
Vol 9 (1) ◽  
Author(s):  
Rhiannon L. Frowde ◽  
Edward S. Dove ◽  
Graeme T. Laurie
Keyword(s):  
Human Health ◽  
Health Research ◽  
Systems Approach ◽  
Social Value ◽  
Fitness For Purpose ◽  
Research Regulation ◽  
Proper Functioning ◽  
Regulatory Systems ◽  
Normative Basis ◽  
Whole Systems

AbstractThe delivery of good outcomes from human health research is entirely dependent on the proper functioning of the attendant regulatory systems. This article focuses on the processes of regulation themselves, and how these might be better understood, so that regulators and other stakeholders have a strong normative basis upon which to pursue the regulatory objective of achieving outcomes with maximum social value. The argument is made that the concept of ‘processual regulation’—which promotes a whole systems approach to regulation—can assist greatly in the design, implementation, and review of human health research. This moves beyond the current often-fragmented approach to regulation towards a joined-up, reflective, and responsive system that has fitness-for-purpose at its core.

scholarly journals The Forest for the Trees: A Systems Approach to Human Health Research

2007 ◽  
Vol 115 (9) ◽  
pp. 1261-1263 ◽  
Author(s):  
Julia M. Gohlke ◽  
Christopher J. Portier
Keyword(s):  
Human Health ◽  
Health Research ◽  
Systems Approach

scholarly journals A Transdisciplinary Approach to Address Climate Change Adaptation for Human Health and Well-Being in Africa

2021 ◽  
Vol 18 (8) ◽  
pp. 4258
Author(s):  
Caradee Yael Wright ◽  
Candice Eleanor Moore ◽  
Matthew Chersich ◽  
Rebecca Hester ◽  
Patricia Nayna Schwerdtle ◽  
...  
Keyword(s):  
Climate Change ◽  
Human Health ◽  
Climate Change Adaptation ◽  
Systems Approach ◽  
Health Sector ◽  
Well Being ◽  
World Health ◽  
Economic Policies ◽  
Comprehensive Health ◽  
African Context

The health sector response to dealing with the impacts of climate change on human health, whether mitigative or adaptive, is influenced by multiple factors and necessitates creative approaches drawing on resources across multiple sectors. This short communication presents the context in which adaptation to protect human health has been addressed to date and argues for a holistic, transdisciplinary, multisectoral and systems approach going forward. Such a novel health-climate approach requires broad thinking regarding geographies, ecologies and socio-economic policies, and demands that one prioritises services for vulnerable populations at higher risk. Actions to engage more sectors and systems in comprehensive health-climate governance are identified. Much like the World Health Organization’s ‘Health in All Policies’ approach, one should think health governance and climate change together in a transnational framework as a matter not only of health promotion and disease prevention, but of population security. In an African context, there is a need for continued cross-border efforts, through partnerships, blending climate change adaptation and disaster risk reduction, and long-term international financing, to contribute towards meeting sustainable development imperatives.

scholarly journals Beyond categorisation: refining the relationship between subjects and objects in health research regulation

2021 ◽  
pp. 1-29
Author(s):  
Catriona McMillan ◽  
Edward Dove ◽  
Graeme Laurie ◽  
Emily Postan ◽  
Nayha Sethi ◽  
...  
Keyword(s):  
Health Research ◽  
Research Regulation ◽  
The Relationship

Working alongside people with intellectual disabilities who have had difficult experiences: Reflections on trauma-informed care within a service context

2021 ◽  
pp. 174462952098771
Author(s):  
Elisabeth Goad
Keyword(s):  
Intellectual Disabilities ◽  
Systems Approach ◽  
Traumatic Experiences ◽  
Childhood Experiences ◽  
Trauma Informed Care ◽  
Adverse Childhood ◽  
Conference Presentations ◽  
Trauma Informed ◽  
People With Intellectual Disabilities ◽  
Whole Systems

People with intellectual disabilities are more likely to experience adverse childhood experiences than those in the general population. Additionally, the conceptualization of ‘trauma’ is far broader than traditionally understood in order to encompass the far reaching relational nature of people with intellectual disabilities traumatic experiences. This reflective account details the first steps one service took to embrace trauma-informed care as a whole systems approach. The paper is a response to calls following conference presentations about our work, to share the process of the beginning of this journey, it also aims to provide key learning points, practical considerations and questions for reflection in order to support other services to begin their own relationships with trauma-informed care.

Improving self-management skills: a whole systems approach

2001 ◽  
Vol 10 (11) ◽  
pp. 734-737 ◽  
Author(s):  
Anne Kennedy ◽  
Anne Rogers
Keyword(s):  
Systems Approach ◽  
Self Management ◽  
Management Skills ◽  
Whole Systems

The Social Value of Research and Health Research Priority-Setting

2021 ◽  
Author(s):  
D.M. Wenner
Keyword(s):  
Clinical Research ◽  
Priority Setting ◽  
Health Research ◽  
Human Subjects ◽  
Social Value ◽  
Research Priority ◽  
The Social ◽  
Research Questions ◽  
Social Scientific ◽  
Health Research Priority Setting

This chapter discusses the social value requirement in clinical research and its intersection with health research priority-setting. The social value requirement states that clinical research involving human subjects is only ethical if it has the potential to produce socially valuable knowledge. The chapter discusses various ways to specify both the justification for and the content of the social value requirement. It goes on to consider the implications of various accounts of the content and justification for the requirement for the ethics of health research priority-setting, showing that while some accounts of the requirement are largely silent with respect to how research questions should be prioritized, others entail robust obligations to prioritize research that might benefit particular groups. The chapter also briefly examines potential arguments for something like a social value requirement in other kinds of research, specifically social scientific research.

Building Sustainable WAC Programs: A Whole Systems Approach

2018 ◽  
Vol 29 (1) ◽  
pp. 64-87
Author(s):  
Michelle Cox ◽  
Jeffrey Galin ◽  
Dan Melzer
Keyword(s):  
Systems Approach ◽  
Whole Systems

scholarly journals A Transdisciplinary Complex Adaptive Systems (T-CAS) Approach to Developing a National School-Based Culture of Prevention for Health Improvement: the School Health Research Network (SHRN) in Wales

2018 ◽  
Vol 22 (1) ◽  
pp. 50-61 ◽  
Author(s):  
Simon Murphy ◽  
Hannah Littlecott ◽  
Gillian Hewitt ◽  
Sarah MacDonald ◽  
Joan Roberts ◽  
...  
Keyword(s):  
Complex Adaptive Systems ◽  
Health Research ◽  
Adaptive Systems ◽  
School Health ◽  
Systems Approach ◽  
Research Network ◽  
Health Improvement ◽  
Policy And Practice ◽  
Complex Adaptive ◽  
Culture Of Prevention

AbstractThe paper reflects on a transdisciplinary complex adaptive systems (T-CAS) approach to the development of a school health research network (SHRN) in Wales for a national culture of prevention for health improvement in schools. A T-CAS approach focuses on key stages and activities within a continuous network cycle to facilitate systems level change. The theory highlights the importance of establishing transdisciplinary strategic partnerships to identify and develop opportunities for system reorientation. Investment in and the linking of resources develops the capacity for key social agents to take advantage of disruption points in the re-orientated system, and engagement activities develop the network to facilitate new social interactions and opportunities for transdisciplinary activities. A focus on transdisciplinary action research to co-produce interventions, generate research evidence and inform policy and practice is shown to play an important part in developing new normative processes that act to self-regulate the emerging system. Finally, the provision of reciprocal network benefits provides critical feedback loops that stabilise the emerging adaptive system and promote the network cycle. SHRN is shown to have embedded itself in the system by securing sustainability funding from health and education, a key role in national and regional planning and recruiting every eligible school to the network. It has begun to reorient the system to one of evidence generation (56 research studies co-produced) and opportunities for data-led practice at multiple levels. Further capacity development will be required to capitalise on these. The advantages of a complex systems approach to address barriers to change and the transferability of a T-CAS network approach across settings and cultures are highlighted.

scholarly journals Active residents in care homes: A holistic approach to promoting and encouraging meaningful activity for residents living in care homes: Innovative Practice

Dementia ◽  
2017 ◽  
Vol 18 (5) ◽  
pp. 1942-1947 ◽  
Author(s):  
Raymond Smith ◽  
Julia Wood ◽  
Fiona Jones ◽  
Liezl Anderson ◽  
Michael Hurley
Keyword(s):  
Residential Care ◽  
Systems Approach ◽  
Care Home ◽  
Family Members ◽  
Occupational Therapists ◽  
Holistic Approach ◽  
Care Homes ◽  
Care Home Staff ◽  
Meaningful Activity ◽  
Whole Systems

The active residents in care homes intervention aim to promote meaningful activity among care home residents. Residents, family members and staff from three residential care homes in South London are participating. It is a whole systems approach which involves formal and ‘on the floor’ training to empower care home staff to facilitate activity. Training is delivered by two occupational therapists, a physiotherapist and a rehabilitation assistant. This paper describes the active residents in care homes intervention, the evaluation methods and discusses some preliminary findings.

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