Preferred place of death for patients with terminal illness: A literature review

Family Communication in the Crisis of a Child's Fatal Illness: A Literature Review and Analysis

OMEGA - Journal of Death and Dying ◽

10.2190/lxvn-cqh4-5vla-a2pj ◽

1972 ◽

Vol 3 (3) ◽

pp. 187-201 ◽

Cited By ~ 27

Author(s):

Lynda Share

Keyword(s):

Literature Review ◽

Family Communication ◽

Behavioral Response ◽

Terminal Illness ◽

Disease Diagnosis ◽

Open Approach ◽

Diagnosis And Prognosis ◽

Fatal Illness

When faced with the tragedy of losing a child to a terminal illness, communication is a crucial factor in alleviating stresses and anxieties experienced by the child and his family. Two opposing modes of communication have been advocated-the protective approach in which the ill child is shielded from knowledge of the disease diagnosis and prognosis-and the open approach, which encourages provision of an environment in which the child feels free to express concerns and ask questions about his condition. This paper is devoted to an examination of family communication about the crisis of the dying child from these two perspectives. The rationale for the protective and open approaches is discussed in terms of the sources of the child's anxiety, his conception of death, and his observed behavioral response to the illness.

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Adults with terminal illness: a literature review of their needs and wishes for food

Journal of Advanced Nursing ◽

10.1046/j.1365-2648.2000.01580.x ◽

2000 ◽

Vol 32 (5) ◽

pp. 1101-1107 ◽

Cited By ~ 26

Author(s):

Nic Hughes ◽

Richard D. Neal

Keyword(s):

Literature Review ◽

Terminal Illness

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The experience of providing end-of-life care to a relative with advanced dementia: An integrative literature review

Palliative & Supportive Care ◽

10.1017/s1478951512000831 ◽

2012 ◽

Vol 11 (2) ◽

pp. 155-168 ◽

Cited By ~ 29

Author(s):

Shelley C. Peacock

Keyword(s):

Literature Review ◽

End Of Life ◽

Family Caregivers ◽

End Of Life Care ◽

Terminal Illness ◽

Life Care ◽

Advanced Dementia ◽

Symptoms Of Depression ◽

People With Dementia ◽

End Stage

AbstractThe number of people with dementia is growing at an alarming rate. An abundance of research over the past two decades has examined the complex aspects of caring for a relative with dementia. However, far less research has been conducted specific to the experiences of family caregivers providing end-of-life care, which is perplexing, as dementia is a terminal illness. This article presents what is known and highlights the gaps in the literature relevant to the experiences of family caregivers of persons with dementia at the end of life. A thorough search of the Cumulative Index to Nursing and Allied Health Literature (CINAHL) and PubMed databases from 1960 to 2011 was conducted. Ten studies were identified that specifically addressed the experience of family caregivers providing end-of-life care to a relative with advanced dementia. Common themes of these studies included: 1) the experience of grief, 2) guilt and burden with decision making, 3) how symptoms of depression may or may not be resolved with death of the care receiver, 4) how caregivers respond to the end-stage of dementia, and 5) expressed needs of family caregivers. It is evident from this literature review that much remains to be done to conceptualize the experience of end-of-life caregiving in dementia.

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Place of death among older people in Finland and Norway

Scandinavian Journal of Public Health ◽

10.1177/1403494820944073 ◽

2020 ◽

Vol 48 (8) ◽

pp. 817-824

Author(s):

Leena Forma ◽

Mari Aaltonen ◽

Jani Raitanen ◽

Kjartan S. Anthun ◽

Jorid Kalseth

Keyword(s):

Nursing Homes ◽

Older People ◽

End Of Life ◽

End Of Life Care ◽

Terminal Illness ◽

Multinomial Logistic Regression ◽

Place Of Death ◽

Life Care ◽

Health Centres ◽

Life Trajectory

Aims: This study aimed to find out how place of death varied between countries with different health and social service systems. This was done by investigating typical groups (concerning age, sex and end-of-life trajectory) of older people dying in different places in Finland and Norway. Methods: The data were derived from national registers. All those who died in Finland or Norway at the age of ⩾70 years in 2011 were included. Place of death was analysed by age, sex, end-of-life trajectory and degree of urbanisation of the municipality of residence. Two-proportion z-tests were performed to test the differences between the countries. Multinomial logistic regression analyses were performed separately for both countries to find the factors associated with place of death. Results: The data consisted of 68,433 individuals. Deaths occurred most commonly in health centres in Finland and in nursing homes in Norway. Deaths in hospital were more common in Norway than they were in Finland. In both countries, deaths in hospital were more common among younger people and men. Deaths in nursing homes were commonest among frail older people, while most of those who had a terminal illness died in health centres in Finland and in nursing homes in Norway. Conclusions: Both Finland and Norway have a relatively low share of hospital deaths among older people. Both countries have developed alternatives to end-of-life care in hospital, allowing for spending the last days or weeks of life closer to home. In Finland, health centres play a key role in end-of-life care, while in Norway nursing homes serve this role.

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Effect of Computerized Auditory Training on Speech Perception of Adults With Hearing Impairment

Perspectives on Aural Rehabilitation and Its Instrumentation ◽

10.1044/arri20.3.91 ◽

2013 ◽

Vol 20 (3) ◽

pp. 91-106 ◽

Cited By ~ 6

Author(s):

Rachel Pizarek ◽

Valeriy Shafiro ◽

Patricia McCarthy

Keyword(s):

Hearing Loss ◽

Speech Perception ◽

Literature Review ◽

Low Cost ◽

Experimental Designs ◽

Auditory Training ◽

Hearing Impairments ◽

Communicative Disorders ◽

And Training

Computerized auditory training (CAT) is a convenient, low-cost approach to improving communication of individuals with hearing loss or other communicative disorders. A number of CAT programs are being marketed to patients and audiologists. The present literature review is an examination of evidence for the effectiveness of CAT in improving speech perception in adults with hearing impairments. Six current CAT programs, used in 9 published studies, were reviewed. In all 9 studies, some benefit of CAT for speech perception was demonstrated. Although these results are encouraging, the overall quality of available evidence remains low, and many programs currently on the market have not yet been evaluated. Thus, caution is needed when selecting CAT programs for specific patients. It is hoped that future researchers will (a) examine a greater number of CAT programs using more rigorous experimental designs, (b) determine which program features and training regimens are most effective, and (c) indicate which patients may benefit from CAT the most.

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Taking Care of Children After Traumatic Brain Injury

Perspectives on School-Based Issues ◽

10.1044/sbi13.3.79 ◽

2012 ◽

Vol 13 (3) ◽

pp. 79-86 ◽

Cited By ~ 1

Author(s):

Julie Haarbauer-Krupa

Keyword(s):

Traumatic Brain Injury ◽

Brain Injury ◽

Literature Review ◽

School Setting ◽

Leadership Role ◽

Speech Language Pathologists ◽

Educational Information ◽

Taking Care

AbstractPurpose: The purpose of this article is to inform speech-language pathologists in the schools about issues related to the care of children with traumatic brain injury.Method: Literature review of characteristics, outcomes and issues related to the needs serving children.Results: Due to acquired changes in cognition, children with traumatic brain injury have unique needs in a school setting.Conclusions: Speech-Language Pathologists in the school can take a leadership role with taking care of children after a traumatic brain injury and coordination of medical and educational information.

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