Caregiving for Family Members with Chronic Illness

Author(s):  
Louis D. Burgio ◽  
Joseph E. Gaugler
2008 ◽  
Vol 26 (3) ◽  
pp. 267-281 ◽  
Author(s):  
Rena Feigin ◽  
Zion Barnetz ◽  
Barnetz Davidson-Arad

1995 ◽  
Vol 41 (2) ◽  
pp. 133-150 ◽  
Author(s):  
Lore K. Wright ◽  
Joanne V. Hickey ◽  
Kathleen C. Buckwalter ◽  
Elizabeth C. Clipp

Does chronic illness in older people provide potentials for human development? To date, this question has not been adequately addressed by dynamic theorists of human development. In this article, two illness trajectories, Alzheimer's disease and stroke, are examined to illustrate emerging changes in human development over each course of illness and the increasing importance of attachment behavior among ill elders and their family members. It is argued that the phenomenon of attachment links ailing older people to their environment, and that attachment is vital if human development is to continue.


2016 ◽  
Vol 3 (4) ◽  
Author(s):  
Garima Singh ◽  
Anubhuti Dubey

The present piece of work attempts to fill this knowledge gap by capturing different shades of caregiving experiences of family members who were engaged in caregiving for their chronically ill family members or relatives. Maximum studies of caregiving indulge in caregivers of mentally ill. This study intends to apprehend how family caregivers in chronic illness perspective create implication of their caring role in the Indian setup.


2019 ◽  
Vol 36 (11) ◽  
pp. 980-992 ◽  
Author(s):  
Frances R. Nedjat-Haiem ◽  
Tamara J. Cadet ◽  
Anup Amatya ◽  
Beti Thompson ◽  
Shiraz I. Mishra

Background: End-of-life (EOL) care for Latinos with chronic illness is a critically important problem. Latinos with chronic illness suffer worse health outcomes and poorer quality of care due to various issues occurring in care delivery systems. Latinos are less likely than non-Hispanic whites to prepare an advance directive (AD) for health-care decision-making that impacts treatment decisions for when EOL is near. Advance care planning (ACP) interventions tailored specifically for Latinos have rarely been implemented. Objective: The primary aim examines whether a motivational interviewing (MI) intervention increased rates of AD documentation among older Latinos. The secondary aim was to examine whether MI improved communication with providers and family members. Methods: We pilot tested a randomized controlled trial with older Latinos >50 years with one or more chronic illnesses, including cancer. Participants were randomly assigned to usual care (UC) receiving ACP education alone versus treatment (TX), which received ACP education, plus MI counseling including interactive decisional support, emotional support, and barrier navigation. Results: Results of logistic regression indicate TX group participants were significantly more likely to document an AD than UC, however were less ready to talk with health-care providers or family members. Those reporting navigational barriers for talking about dying is difficult showed a significant negative relationship for AD completion even with significant intervention effects. Conclusion: When using MI to motivate individuals toward ACP EOL conversations other factors are important to consider. Further research is needed, especially among Latinos to understand best practices for ACP education and counseling for EOL care.


PLoS ONE ◽  
2020 ◽  
Vol 15 (12) ◽  
pp. e0243022
Author(s):  
Simegnew Kibret ◽  
Diriba Teshome ◽  
Efrem Fenta ◽  
Metages Hunie ◽  
Tadese Tamire

Background The World Health Organization declared the outbreak of COVID-19 as a pandemic on 11 March 2020. Healthcare workers are directly involved in the prevention, diagnosis, treatment, and care of patients with COVID-19.This study aims to assess the prevalence of anxiety and its associated factors towards the COVID-19 outbreak among healthcare workers in a Hospital of Ethiopia. Methods A Hospital-based survey study was conducted on a total of 305 Healthcare workers in a Hospital of Ethiopia. Bivariable and multivariable logistic regression were used to analyze data between independent variables with anxiety. Variables with a p-value of <0.2 were transformed into multivariate analysis. Crude and adjusted odds ratios with 95% CI, p-values of <0.05 were used to show the strength of association and level of significance. Results The prevalence of CVID-19 anxiety was 63%. In multivariate logistic regression, age of 30–39 (AOR, 3.05; 95% CI, (1.70, 5.47) and age of ≥40 (AOR, 11.32; 95% CI (3.37, 37.98), being married (AOR, 3.56; 95% CI, (2.30, 6.38), having chronic illness (AOR, 3.43; 95% CI, (1.59,7.43), having suspected COVID-19 family members (AOR, 5.20; 95% CI, (2.11, 12.78), and not having an access to PPEs (AOR, 2.55; 95% CI, (1.43, 4.56) were statistically significantly associated with anxiety. Conclusion Being married, having a chronic illness, having suspected COVID-19 family members, not having access to PPEs, and age greater than or equal to 30 years were identified as risk factors for anxiety of Healthcare Workers towards COVID-19.


2020 ◽  
Vol 26 (2) ◽  
pp. 111-125
Author(s):  
Sonja J. Meiers ◽  
Sandra K. Eggenberger ◽  
Norma K. Krumwiede ◽  
Brant Deppa

Measures of family members’ experiences of integrating chronic conditions (CC) or chronic illnesses (CI) into family life are needed to optimize family care. This article reports development and psychometric testing of the Family Integration Experience Scale: Chronic Illness (FIES:CI), a measure of family member perceptions of integrating CC or CI into evolving family life. Family Systems Nursing (FSN), the Reintegration Within Families in the Context of Chronic Illness Model, and measurement theory guided the study. Participants were those ( N = 328) managing a CC or CI. Concurrent validity ( r = +.629; p < .001) and discriminant validity, F(1, 155) = 7.09; p < .05, were demonstrated. Exploratory factor analysis revealed a two-dimensional model explaining 63.8% variance. Scale internal reliability was α = .70 and .785, and factor reliabilities were α = .798 (Factor 1) and α = .847 (Factor 2). Test–retest item and subscale correlations, while accounting for intra-family correlation, were acceptable. The FIES:CI contributes a valuable new measure of family integration in the context of CC or CI with preliminary validity and reliability as tested in these samples.


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