Adherence to the Gluten-free Diet and Health-related Quality of Life in an Ethnically Diverse Pediatric Population With Celiac Disease

2018 ◽  
Vol 66 (6) ◽  
pp. 941-948 ◽  
Author(s):  
Diana R. Mager ◽  
Margaret Marcon ◽  
Herbert Brill ◽  
Amanda Liu ◽  
Kristin Radmanovich ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Celiac Disease ◽  
Pediatric Population ◽  
Ethnically Diverse ◽  
Gluten Free Diet ◽  
Gluten Free ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals NUTRITIONAL STATUS AND HEALTH-RELATED QUALITY OF LIFE IN ADULT PATIENTS WITH CELIAC DISEASE

2018 ◽  
Vol 6 ◽  
pp. 952-959
Author(s):  
Yeliz Serin ◽  
Gamze Akbulut
Keyword(s):  
Quality Of Life ◽  
Celiac Disease ◽  
Nutritional Status ◽  
Gluten Free Diet ◽  
Survey Method ◽  
Gluten Free ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Objective: This study evaluated the effect of nutrition on health-related quality of life in adult celiac patients.Material-Methods: A total of 103 individuals (26 males and 77 females) diagnosed with celiac disease by a physician, registered in the Ankara Celiac Society, and between 20 and 50 years old were enrolled in the study. Research data was collected using the face-to-face survey method with the “Celiac Disease in Health-Related Quality of Life Survey” to evaluate participants’ quality of life. Patient nutrient intake was determined using the 24-hour dietary recall method.Results: The mean age of the patients was 37.5±8.89 years and the age at diagnosis was 31.0±11.85 years. The body mass index value was 22.7±3.57 kg/m2. When the nutritional status of the participants was evaluated, the energy received from carbohydrates and protein was less, whereas the energy received from fat was more than the general recommendations. When the total quality of life score was evaluated, the average scores of men were higher than women (146.6±17.51 vs. 123.7±24.78). In addition, the total and subscale quality of life scores varied by gender, comorbid conditions, compliance with a gluten-free diet, and the duration of the gluten-free diet.Conclusions: Celiac is a disease that requires a lifelong gluten-free diet. Most celiac patients have nutritional deficiencies and poor quality of life standards. In order to prevent these deficiencies, commercially prepared foods should be enriched, especially in vitamins and minerals. In addition, increasing awareness of celiac disease in society positively affects the quality of life of individuals.

655 Health-Related Quality of Life in Adolescents With Screening-Detected Celiac Disease: Assessments Before Diagnosis and After One Year With Gluten-Free Diet

2014 ◽  
Vol 146 (5) ◽  
pp. S-114
Author(s):  
Anna Myléus ◽  
Solveig Petersen ◽  
Anneli Carlsson ◽  
Solveig Hammarroth ◽  
Lotta Högberg ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Celiac Disease ◽  
Gluten Free Diet ◽  
Gluten Free ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
One Year

scholarly journals Health-Related Quality of Life in Children and Adolescents with Celiac Disease: From the Perspectives of Children and Parents

2012 ◽  
Vol 2012 ◽  
pp. 1-6 ◽  
Author(s):  
Ing-Marie Byström ◽  
Elisabet Hollén ◽  
Karin Fälth-Magnusson ◽  
AnnaKarin Johansson
Keyword(s):  
Quality Of Life ◽  
Celiac Disease ◽  
Children And Adolescents ◽  
Gluten Free Diet ◽  
Gluten Free ◽  
Health Related Quality ◽  
Children And Parents ◽  
Related Quality ◽  
Health Related

Aim. To examine how celiac children and adolescents on gluten-free diet valued their health-related quality of life, and if age and severity of the disease at onset affected the children’s self-valuation later in life. We also assessed the parents’ valuation of their child’s quality of life.Methods. The DISABKIDS Chronic generic measure, short versions for both children and parents, was used on 160 families with celiac disease. A paediatric gastroenterologist classified manifestations of the disease at onset retrospectively.Results. Age or sex did not influence the outcome. Children diagnosed before the age of five scored higher than children diagnosed later. Children diagnosed more than eight years ago scored higher than more recently diagnosed children, and children who had the classical symptoms of the disease at onset scored higher than those who had atypical symptoms or were asymptomatic. The parents valuated their children’s quality of life as lower than the children did.Conclusion. Health-related quality of life in treated celiac children and adolescents was influenced by age at diagnosis, disease severity at onset, and years on gluten-free diet. The disagreement between child-parent valuations highlights the importance of letting the children themselves be heard about their perceived quality of life.

Consequential Effect of Gluten-Free Diet on Health-Related Quality of Life in Celiac Populace-A Meta-Analysis

2020 ◽  
Vol 8 (3) ◽  
pp. 1025-1036
Author(s):  
Shivani Rustagi ◽  
Saumya Choudhary ◽  
Sheeba Khan ◽  
Tanu Jain
Keyword(s):  
Quality Of Life ◽  
Meta Analysis ◽  
Gluten Free Diet ◽  
Gluten Free ◽  
Health Related Quality ◽  
Component Score ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related

Globally, celiac disease (CD) affects around 1-2% of the population. Gluten elimination becomes the cornerstone treatment and is also being followed by non-celiac as a healthy dietary habit. However, there is lack of sustainable evidence to understand this view. Adherence to gluten-free diet (GFD) rendered a few to reduced quality of life. Hence, a meta-analysis has been performed to determine interaction of GFD and Health-related Quality of Life (HRQoL). NCBI/MEDLINE, PubMed, Cochrane Library, Google Scholar and Science Direct were combed from date of inception to October 30, 2018 for studies assessing the effect of GFD using validated questionnaires on HRQoL a) between healthy controls and celiac patients b) dietary adherence to GFD in celiac subjects. Random effect model was used for meta-analysis. Twenty-five studies comprising 5148 CD subjects fit in the inclusion criteria. GFD had moderate significant association with HRQoL, for PGWB odds ratio’s (OR) 0.613 [95% CI, 0.449-0.837], SF-36 Mental Component Score (MCS) 0.026 [95% CI, 0.011-0.060], Physical Component Score (PCS) 0.066 95% [CI, 0.032-0.138]. Partial adherence to GFD had lower quality of life when compared to strictly adherent patients for OR’s SF-36 MCS 5.080 [95% CI, 1.885- 13.692], PCS 3.204 [95% CI, 1.579- 6.503] and CDQoL 2.439 [95%CI (1.724- 3.450)]. The results implied moderate significant association between GFD and HRQoL and better compliance leads to favourable HRQoL.

scholarly journals The influence of a gluten-free diet on health-related quality of life in individuals with celiac disease

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Fahdah F. Al-sunaid ◽  
Maha M. Al-homidi ◽  
Rawan M. Al-qahtani ◽  
Reema A. Al-ashwal ◽  
Ghada A. Mudhish ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Celiac Disease ◽  
Well Being ◽  
Gluten Free ◽  
Health Related Quality ◽  
Health Domains ◽  
Related Quality ◽  
Health Related

Abstract Background Adherence to a gluten-free diet (GFD) and food insecurity (FI) may influence health-related quality of life (HRQOL) in individuals with celiac disease (CD). This study aimed to investigate the association between adherence to a GFD, FI, and HRQOL in individuals with CD. Methods This cross-sectional study included 97 adults (mean age: 34 ± 9 years) diagnosed with CD. The participants were on a GFD for more than 6 months. Sociodemographic characteristics and medical history were assessed. Adherence to a GFD, FI, and HRQOL were assessed using validated questionnaires. Results Most participants (73%) adhered to a GFD, and 62% were experiencing FI. Individuals with CD faced difficulty in accessing GF foods due to the high cost (90%) and limited availability (79%). The mean overall HRQOL score was 60. Scores on the physical and mental health domains were 69 and 47, respectively. Adherence to a GFD was significantly associated with FI (P = 0.02), while there was no association between adherence to a GFD and HRQOL measures (P > 0.05). Participants facing FI had lower scores in emotional well-being and mental health domains, and overall HRQOL (P < 0.05). Conclusions The findings of the present study demonstrate that FI influences adherence to a GFD, and that FI is associated with HRQOL in terms of both emotional well-being and mental health.

Health-Related Quality-of-Life (HRQoL) in children with celiac disease

2008 ◽  
Vol 40 (10) ◽  
pp. A95-A96
Author(s):  
C. Fundarò ◽  
A. Pantanella ◽  
V. Giorgio ◽  
S. Filoni ◽  
C. Rendelli
Keyword(s):  
Quality Of Life ◽  
Celiac Disease ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related
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