Quality of Life After Spinal Cord Injury: The Comparison of the SF-36 Health Survey and Its Spinal Cord Injury-modified Version in Assessing the Health Status of People With Spinal Cord Injury

2007 ◽  
Vol 17 (3) ◽  
pp. 175-179 ◽  
Author(s):  
Halil Unalan ◽  
Berna Celik ◽  
Aynur Sahin ◽  
Nil Caglar ◽  
Selma Esen ◽  
...  
2012 ◽  
Vol 17 (Suppl1) ◽  
pp. 29-37 ◽  
Author(s):  
Maxwell Boakye ◽  
Barbara C. Leigh ◽  
Andrea C. Skelly

Object The aim of this study was to identify the quality of life (QOL) measures commonly used to assess patients with spinal cord injury (SCI) and to summarize studies using common QOL measures that have been validated in SCI populations to compare scores in persons with SCI with those in a control population. Methods A systematic search of PubMed was conducted to identify studies using common QOL measures in persons with SCI and those comparing scores for QOL measures in an SCI population with scores in other populations. The authors sought comparative studies utilizing QOL measures for which validity and reliability analyses had been done. Results Of 28 QOL measures found, validity and reliability studies had been conducted in patients with SCI for 5 measures. Twelve comparative studies compared QOL in SCI patients with QOL in healthy controls or in patients with other disabilities, or with normative data. The 36-Item Short Form Health Survey (SF-36) and the short version of the WHOQOL (WHOQOL-BREF) were the most widely used QOL instruments. Patients with SCI had a decreased QOL as compared with that in healthy controls or normative data, with the most pronounced deficits in the domains of physical functioning and physical role limitations. In 3 studies, patients with tetraplegia had a lower physical domain QOL than did those with paraplegia. Overall, however, the impact of injury level and injury completeness on QOL after SCI remains unclear due to a lack of longitudinal studies. Conclusions The SF-36 and WHOQOL-BREF are validated instruments that should be considered for use in SCI QOL studies. Future analysis of deficits in QOL among patients with SCI would benefit from the development of a QOL instrument specifically targeted to SCI. Longitudinal studies to assess the impact of injury level and injury completeness on SCI QOL are also needed.


2014 ◽  
Vol 12 (2) ◽  
pp. 245-250 ◽  
Author(s):  
Rita Lacerda Aquarone ◽  
Ana Cristina Mancussi e Faro

Studies evaluating the Quality of Life of individuals with spinal cord injury using different research tools demonstrate that the Quality of Life scores are considered low both in national and international studies. The objective of this review was to characterize the international scientific production about the most used scales to assess Quality of Life in patients with spinal cord injury. We examined articles on Quality of Life of patients with spinal cord injury published over the last 5 years and indexed in the National Library of Medicine (PUBMED). During this period, 28 articles met the inclusion criteria. Eleven studies were conducted in the United States, five articles were published in Australia, and four in Canada. Brazil, France, Holland, India, Japan, Norway, Singapore and Switzerland contributed with one study each. The scientific articles were published in 13 high impact factor journals. Seven different instruments to assess Quality of Life were used in the studies: Satisfaction with Life Scale, Short Form (36) Health Survey, The Brief Version of the WHO Quality of Life Questionnaire (WHOQOL-BREF), Comprehensive Quality of Life Scale, Life Situation Questionnaire-Revised, Quality of Well-Being Scale and the SF-12® Health Survey. The articles examined underscore the impact of spinal cord injury in the Quality of Life of patients, demonstrating how this condition impairs their lives, mainly socially, but followed by the physical aspects. Despite the studies have different goals they all acknowledge that further studies are necessary in order to determine the Quality of Life of patients with spinal cord injury. Specific instruments should be chosen or developed and validated in order to fulfill this purpose


2016 ◽  
Vol 30 (2) ◽  
pp. 27-38
Author(s):  
Jarosław Pokaczajło ◽  
Tomasz Tasiemski ◽  
Piotr Urbański

AbstractIntroduction:Spinal cord injury (SCI) causes dysfunction of many basic functions of a human body (e.g. sensory and motor paralysis) and may result in the occurrence of dangerous health complications (e.g. bedsores) which may contribute to a decrease in the quality of life in individuals with such injuries. In order to adjust to a new situation, persons with SCI have to acquire proper knowledge regarding pathophysiology of SCI, medical and social effects of the injury and, in particular, prevention of post-injury complications. Therefore, this study sought to assess the relationship between knowledge about health status and Health-Related Quality of Life (HRQoL) in individuals with SCI.Material and methods:The study included 100 persons with SCI (22 females and 78 males) who use a wheelchair in their everyday life. The following tools were employed in the study: 1) the test of the knowledge about health status for persons with SCI and 2) the Short Form Health Survey (SF-36) used to assess HRQoL.Results:Statistical analysis revealed a significant correlation between the knowledge about health status and a physical measure (p=0.019) as well as a mental measure (p=0.004) of HRQoL. A highly significant correlation was observed between the knowledge about health status and role limitations due to physical health problems (p=0.001), role limitations due to emotional problems (p=0.002) as well as mental health (p=0.001). Moreover, a significant correlation was noted between the knowledge about health status and general health perceptions (p=0.025) and vitality (p=0.017).Conclusions:The knowledge about health status is a significant variable that determines HRQoL in individuals with SCI. This factor manifests a significant correlation with mental and physical measures of HRQoL.


2020 ◽  
Vol 13 (1) ◽  
pp. 20-25
Author(s):  
Budi Achmad M. Siregar ◽  
Pranajaya Dharma Kadar ◽  
Aga Shahri Putera Ketaren

Introduction : Spinal cord injury is a damaging situation related to severe disability and death after trauma.And the term spinal cord injury refers to damage of the spinal cord resulting from trauma. Spinal injuries treatment is still in debate for some cases, whether using conservative or surgical methods. Material and Methods : The study was a retrospective, unpaired observational analytic study with a crosssectional approach. It was conducted at Haji Adam Malik General Hospital, Medan from January 2016 to December 2018. Clinical outcome of patientswere calculated using SF 36, ODI, and VAS.Data would be tested using the Saphiro-Wilk test. We were using the significance level of 1% (0.01) and the relative significance level of 10% (0.1). Results : Clinical outcomes of patients with spinal cord injuries before posterior instrumentation rated using ODI and VAS were 75.93±6.75 and 4.75±0.98 respectively. Meanwhile, the scores were 10.75±3.29 (ODI) and 1.77±0.72 (VAS) post-operatively. Using SF-36, the scores were 72.9±16.5 (PF); 58±23.1 (PH); 63.1±21.8 (EP); 62.5±12 (ENE); 84.1±14.8 (EMO); 79.6±23.5 (SF); 62±125.3 (PAIN); 49.5±3.4 (GH); and 72±7.8 (HC) pre-operatively. After posterior instrumentation, the scores were 94.5±6.7 (PF); 100±0 (PH); 79.9±32.9 (EP); 88.6±13.7 (ENE); 92.3±1.7 (EMO); 100±0 (SF); 99.9±10.4 (PAIN); 89.3±14.9 (GH); and 92.4±9.7 (HC). Discussion : In this study, patients with thoracal, thoracolumbar and lumbar injuries who underwent surgery experienced significant improvements in quality of life. This is indicated by the significant difference in ODI, VAS, and SF-36 scores before and after surgery. The results of this study were consistent with other studies conducted by Hao et al, which showed that there was an improvement in the quality of life of patients after surgery. Conclusion : There are significant improvements in patient’s quality of life after posterior instrumentation of the spinal cord injury in thoracal, thoracolumbar, and lumbar regions based on the clinical outcomes.


2021 ◽  
Vol 2021 ◽  
pp. 1-11
Author(s):  
Panagiotis Korovessis ◽  
Evangelia Mpountogianni ◽  
Vasileios Syrimpeis ◽  
Maria Andriopoulou ◽  
Alkis Korovesis

Purpose. To study postoperative Health-Related Quality of Life (HRQOL) after instrumented fusion for fresh subaxial cervical trauma and the effect of spinal cord injury (SCI). Methods. From a total of 65 patients, 17 (26%) patients suffered on admission from SCI. Twenty-five patients underwent anterior, 25 posterior, and 15 circumferential cervical surgery for a single cervical injury. Sagittal roentgenographic parameters were measured in 65 age-matched asymptomatic controls and in patients on admission, eight months postoperatively and at final follow-up (lower C2-C7 curvature, cervical sagittal vertical axis (cSVA), spinocranial angle (SCA), T1-slope, neck tilt (NT), thorax inlet angle (TIA), cervical tilt (CT), cranial tilt (CrT), and occiput–C2 angle (C0-C2)). In the last evaluation, SCI patients were compared with their counterparts without SCI using national validated HRQOL instruments (SF-36 and neck disability index (NDI)). Results. Fusion included an average of 3 vertebrae (range 2-4 vertebrae). All 65 patients were followed for an average of 5.5 years, (range 3-7 years) postoperatively. In the last evaluation, 10 (15.4%) patients with incomplete SCI improved postoperatively at 1-2 grades. At the last observation, patients with SCI showed poorer HRQOL scores than their counterparts without SCI. In particular, each SF-36 domain score was correlated with SCA, T1-slope, cSVA, and CT. At baseline, patients showed higher NT, CrT, and C0-C2 angle than controls. Eight months postoperatively, cSVA, NT, TIA, and cranial tilt (CrT) were increased in patients. In the last observation, there was difference in the sagittal roentgenographic parameters between patients with SCI compared to those without SCI. Patients aged ≥55 years had postoperatively increased cSVA, NT, and CrT compared to their younger counterparts. Conclusion. At the final observation, HRQOL scores were lower in patients with SCI than in their non-SCI counterparts, obviously because of the associated neurologic impairment. SF-36 scores correlated with several sagittal roentgenographic parameters. These correlations should be taken in consideration by spine surgeons when performing cervical spine surgery for fresh cervical spine injuries.


2021 ◽  
Vol 49 (4) ◽  
pp. 030006052110045
Author(s):  
Min-Chao Zhao ◽  
Kai Yang ◽  
Bao-Hui Yang ◽  
Shuai Guo ◽  
Ya-Ping Wang ◽  
...  

Objective To investigate the effect of psychological intervention on the prognosis of patients with C4 dislocation and spinal cord injury. Methods We investigated target patients admitted between 2010 and 2018. Patients’ mental state, quality of life and neurological function at different time points were evaluated to examine the relationship between psychological intervention and recovery and prognosis of acute and critical spinal cord injury. Results All patients showed improvements in clinical symptoms, neurological function and quality of life. Psychological intervention significantly improved Zung Self-Rating Anxiety Scale score, Zung Self-Rating Depression Scale score and SF-36 Mental Component Summary score within 3 months. Japanese Orthopaedic Association neurological function score and SF-36 Physical Component Summary score were significantly improved after 1-year follow-up. Psychological intervention did not improve 2-year survival. Conclusion Timely and professional psychological intervention can eliminate the psychological disorders of C4 dislocation patients with spinal cord injury. This has a positive effect on their quality of life and prognosis.


Spinal Cord ◽  
2021 ◽  
Author(s):  
Florian Möller ◽  
Rüdiger Rupp ◽  
Norbert Weidner ◽  
Christoph Gutenbrunner ◽  
Yorck B. Kalke ◽  
...  

Abstract Study design Multicenter observational study. Objective To describe the long-term outcome of functional independence and quality of life (QoL) for individuals with traumatic and ischemic SCI beyond the first year after injury. Setting A multicenter study in Germany. Methods Participants of the European multicenter study about spinal cord injury (EMSCI) of three German SCI centers were included and followed over time by the German spinal cord injury cohort study (GerSCI). Individuals’ most recent spinal cord independence measure (SCIM) scores assessed by a clinician were followed up by a self-report (SCIM-SR) and correlated to selected items of the WHO short survey of quality of life (WHO-QoL-BREF). Results Data for 359 individuals were obtained. The average time passed the last clinical SCIM examination was 81.47 (SD 51.70) months. In total, 187 of the 359 received questionnaires contained a completely evaluable SCIM-SR. SCIM scores remained stable with the exception of reported management of bladder and bowel resulting in a slight decrease of SCIM-SR of −2.45 points (SD 16.81). SCIM-SR scores showed a significant correlation with the selected items of the WHO-QoL-BREF (p < 0.01) with moderate to strong influence. Conclusion SCIM score stability over time suggests a successful transfer of acquired independence skills obtained during primary rehabilitation into the community setting paralleled by positively related QoL measurements but bladder and bowel management may need special attention.


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