Examining the expectations of healing care environment of hospitalized children with cancer based on Watson's theory of human caring

Author(s):  
Meltem Gürcan ◽  
Sevcan Atay Turan
Author(s):  
Gomolemo Mahakwe ◽  
Ensa Johnson ◽  
Katarina Karlsson ◽  
Stefan Nilsson

Anxiety has been identified as one of the most severe and long-lasting symptoms experienced by hospitalized children with cancer. Self-reports are especially important for documenting emotional and abstract concepts, such as anxiety. Children may not always be able to communicate their symptoms due to language difficulties, a lack of developmental language skills, or the severity of their illness. Instruments with sufficient psychometric quality and pictorial support may address this communication challenge. The purpose of this review was to systematically search the published literature and identify validated and reliable self-report instruments available for children aged 5–18 years to use in the assessment of their anxiety to ensure they receive appropriate anxiety-relief intervention in hospital. What validated self-report instruments can children with cancer use to self-report anxiety in the hospital setting? Which of these instruments offer pictorial support? Eight instruments were identified, but most of the instruments lacked pictorial support. The Visual Analogue Scale (VAS) and Pediatric Quality of Life (PedsQL™) 3.0 Brain Tumor Module and Cancer Module proved to be useful in hospitalized children with cancer, as they provide pictorial support. It is recommended that faces or symbols be used along with the VAS, as pictures are easily understood by younger children. Future studies could include the adaptation of existing instruments in digital e-health tools.


2022 ◽  
Vol 75 (1) ◽  
Author(s):  
Carla Braz Evangelista ◽  
Maria Emília Limeira Lopes ◽  
Solange Fátima Geraldo da Costa ◽  
Patrícia Serpa de Souza Batista ◽  
Marcella Costa Souto Duarte ◽  
...  

ABSTRACT Objectives: to analyze nurses’ role in assisting patients in palliative care, with emphasis on the spiritual dimension, in the light of Theory of Human Caring. Methods: this is an exploratory, qualitative study, carried out in a hospital in João Pessoa, Paraíba, between August and December 2019, with 10 nurses. For data collection, semi-structured interviews were used. For analysis, we opted for content analysis. Results: the spiritual dimension of care is contemplated by several religious and spiritual practices. These are respected and encouraged by nurses, although there is difficulty in providing care for the spiritual dimension. Final Considerations: nurses have attitudes consistent with Jean Watson’s Theory and apply the Caritas Process elements during assistance to patients’ spiritual dimension in palliative care.


2020 ◽  
Vol 10 (11) ◽  
pp. 969-976
Author(s):  
Chani Traube ◽  
Lynne Rosenberg ◽  
Francesca Thau ◽  
Linda M. Gerber ◽  
Elizabeth A. Mauer ◽  
...  

2009 ◽  
Vol 17 (1) ◽  
pp. 88-93 ◽  
Author(s):  
Wiliam Wegner ◽  
Eva Neri Rubim Pedro

This study aims to present and discuss part of the findings of a research carried out at a teaching hospital. It is a qualitative descriptive-exploratory and interventionist study with nine lay caregiver women accompanying hospitalized children with cancer. Data were collected through the focal group technique, organized in the QSR Nvivo software and analyzed through thematic analysis. Results originated during the discussion on participants' health conceptions indicate the need to (re)think the rights of patients' companions and provide instruments to several social, political and institutional stakeholders in order to (re)plan health actions that can be developed during professionals' education and qualification in the context of health care, which can be the focus of discussion within diverse contexts of society.


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