Lessons from the family unit in paediatric heart transplantation: can we do better?

2021 ◽  
pp. archdischild-2021-322101
Author(s):  
Hanna J Tadros ◽  
Alana R Rawlinson ◽  
Dipankar Gupta
2021 ◽  
pp. 136749352110399
Author(s):  
Stephanie Allen ◽  
Stephen K Bradley ◽  
Eileen Savage

Parent programmes are often used in the clinical management of children with ADHD. Research into parent programmes has predominantly been concerned with their effectiveness and much less attention has been paid to the impact that they may be having on the family and the inter-relationships between family members. This study explores the perspectives and experiences of parents of children with ADHD, who participated in a parent programme, including its impact on the family unit. A purposive sample of six mothers of children with ADHD who completed a 1-2-3 Magic parent programme in Ireland was invited to take part in this qualitative study. Data were collected by means of individual in-depth, semi-structured interviews and a narrative inquiry approach further informed analysis of the interview data. Two major narrative constructions of experience: ‘parent programme as positive’ and ‘parent programme as negative’ were identified. Outcomes from this study illustrated some unintended consequences caused by the parent programme (i.e. sibling rivalry and conflict arising between family members). Mothers believed that the parent programme was a beneficial intervention, but it was not without its flaws and they felt it was helpful for their family when used in conjunction with other supports and mediations.


2013 ◽  
Vol 21 (2) ◽  
pp. 595-603 ◽  
Author(s):  
Joaquín Salvador Lima-Rodríguez ◽  
Marta Lima-Serrano ◽  
Nerea Jiménez-Picón ◽  
Isabel Domínguez-Sánchez

OBJECTIVE: To ascertain the content validity of the Self-perception of Family Health Status scale. METHOD: A validation study of an instrument with an online Delphi panel using the consensus technique. Eighteen experts in the subject were intentionally selected, with a multidisciplinary origin and representing different professional fields. Each of the proposed items was assessed using a five-point scale, and open-ended questions, to modify or propose items. Descriptive analysis was performed of the sample and the items, applying criteria of validation/elimination. RESULTS: The first round had a response rate of 83.3% and validated 75 of the 96 proposed items; the second had a response rate of 80%, and validated the 21 newly created items, concluding the panel of experts. CONCLUSIONS: We present an instrument to measure self-perception of family health status, from a nursing perspective. This may be an advance in scientific knowledge, to facilitate the assessment of the state of health of the family unit, enabling detection of alterations, and to facilitate interventions to prevent consequences to the family unit and its members. It can be used in clinical care, research or teaching.


1981 ◽  
Vol 59 (9) ◽  
pp. 1666-1676 ◽  
Author(s):  
Gail R. Michener

The development of spatial and social patterns by juvenile Richardson's ground squirrels, from first emergence from the natal burrow to entry into hibernation, is described. Juveniles enter the aboveground population at [Formula: see text] weeks of age. During the next 4 weeks juveniles remain in close spatial proximity to family members with whom they engage in frequent amicable social interactions. Thereafter, juveniles become increasingly independent from the family unit, establishing their own spatially distinct core areas and exhibiting site-dependent dominance toward nonkin. Typically juveniles remain physically closer to and more amicable with littermates and mother than other conspecifics such that they compose kin clusters, the members of which are agonistic toward members of adjacent kin clusters. Daughters are more likely to continue to reside close to kin as adults than are sons. At 9–10 weeks of age juveniles exhibit the majority of spatial and social patterns characteristic of adults, and at 12 weeks they are behaviourally indistinguishable from adults. Similar rapid acquisition of adult patterns occurs in four other species of ground-dwelling sciurids that are also obligate hibernators and that breed immediately following emergence from their first hibernation.


1997 ◽  
Vol 27 (2) ◽  
pp. 301
Author(s):  
P Beverley

The Children, Young Persons, and Their Families Act 1989 ("CYPF Act") recognises that the interests of a child will be generally best served within the family unit. This recognition is subject to the qualification that a child should be removed from that unit whenever there is an unacceptable risk of harm to that child. This analysis will consider one mechanism provided by the Act to facilitate such removal, and the effect of the Court of Appeal decision in R v Kahu.


2020 ◽  
Vol 28 (4) ◽  
pp. 715-747
Author(s):  
Clarie Breen ◽  
Jenny Krutzinna ◽  
Katre Luhamaa ◽  
Marit Skivenes

Abstract This paper examines what set of familial circumstances allow for the justifiable interference with the right to respect for family life under Article 8, echr. We analyse all the Courts’ judgments on adoptions from care to find out what the Court means by a “family unit” and the “child´s best interest”. Our analysis show that the status and respect of the child’s de facto family life is changing. This resonates with a view that children do not only have formal rights, but that they are recognised as individuals within the family unit that states and courts must address directly. Family is both biological parents and child relationships, as well between children and foster parents, and to a more limited extent between siblings themselves. The Court’s understanding of family is in line with the theoretical literature, wherein the concept of family reflects the bonds created by personal, caring relationships and activities.


1996 ◽  
Vol 26 (3) ◽  
pp. 123-134 ◽  
Author(s):  
Amanda Kottler ◽  
Judith Soal

This study attempts to challenge the prevailing understanding of family problems within the field of family therapy. Drawing on post-structuralist approaches to knowledge, truth and power, we suggest that the problems experienced by the families cannot be seen to have an objective existence, or to be internal to the ‘family unit’. Rather, the problem-saturated narratives presented by families are shaped by an investment in socially constructed knowledges which ascribe meaning to experience. A discourse analytic approach is used to explore the dominant narratives of a coloured South African family presenting for family therapy. Discourses of civilization, ideal mothers and families, and therapy are considered to have informed these narratives. An analysis of the implications of these discursive investments, and the contradictions within and between these discourses, is conducted. This analysis suggests the manner in which this family is subjugated and rendered damaged and deficient through an aspiration to unobtainable and contradictory ideals. The study also examines the way in which the truth claims of these discourses are challenged by a therapist adopting a narrative approach to family therapy.


2019 ◽  
Vol 3 (1) ◽  
pp. 90-105
Author(s):  
John Singleton

This article argues that, in The Barracks, John McGahern’s literary production of the domestic familial space charts the fractures and partitions within that supposed unified space to reveal the anaemic passivity and alienating nausea that overcomes individuals within a prescriptive and totalising hegemony. It will discuss McGahern’s decision to withdraw his first novel from publication, and the reformation of the unpublished text into The Barracks. It expressly considers McGahern’s shifting of the spatial setting from the recognisable trope of the country kitchen to a Garda barracks and the impact this has on Elizabeth’s position within the family home, and therefore society. This article argues that the novel’s form addresses the dislocation of non-hegemonic or alternative family structures. McGahern’s staging of the narrative in the unfit and fractured domestic space of the barracks subverts traditional conceptions of ‘home’. This undermines the supposed impenetrable primacy of the family unit and highlights the bad faith and comely delusion of mid-century Ireland.


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