scholarly journals Reflecting on experiences of care: an exploratory qualitative descriptive study of the perspectives of stroke survivors, families and staff

BMJ Open ◽  
2021 ◽  
Vol 11 (12) ◽  
pp. e047559
Author(s):  
Caroline Bulsara ◽  
Rosemary Saunders ◽  
Laura Emery ◽  
Christopher Etherton-Beer
Keyword(s):  
Well Being ◽  
Stroke Survivors ◽  
Semistructured Interview ◽  
Rehabilitation Unit ◽  
Rehabilitation Care ◽  
Home Based ◽  
Qualitative Descriptive ◽  
Staff Experiences ◽  
Staff Engagement

ObjectiveThe aim of this study was to identify barriers and enablers from the perspectives of stroke survivors, carers and staff to understand the experiences of care.DesignThe study used a qualitative descriptive methodology and employed semistructured interview technique.SettingA metropolitan stroke rehabilitation unit in Western Australia providing rehabilitation services for inpatients and outpatients.ParticipantsOverall, 10 participants (four staff, four stroke survivors and two primary carers) were interviewed. Transcripts were analysed using thematic analysis.ResultsExperiences of care focused on lack of time, urgency to regain mobility, postshock recovery, uncertainty about the future and the importance of accepting help once home. There was a degree of mismatch between staff experiences of the reality of what can be provided and the experiences and expectations of stroke survivors and families. However, the benefits of a specialised rehabilitation unit were found to contribute to a positive patient experience overall. The specialised unit demonstrated that services must optimise staff time with patients and carers in the poststroke rehabilitation journey to ensure benefits for the long-term well-being for both.ConclusionSeeking patient, family and staff experiences of care can provide valuable insights into facilitating better patient, family and staff engagement for preparation for home-based rehabilitation for stroke survivors and their caregivers. Further research with a larger sample across diverse hospital settings would provide even greater insight into strategies to best address the reality of rehabilitation care and readiness of patients when returning home to the community.

Excessive Shear Force at the Digits May Contribute to Unstable Grip Following Stroke

2009 ◽  
Author(s):  
Na Jin Seo ◽  
Derek G. Kamper
Keyword(s):  
Upper Extremity ◽  
Daily Living ◽  
The United States ◽  
Functional Independence ◽  
Stroke Survivors ◽  
Functional Importance ◽  
Rehabilitation Unit ◽  
Sensory Impairments ◽  
Hand Grasp

Stroke is a leading cause of long-term disability in the United States and the third most frequent cause of death, following diseases of the heart and cancer [1]. Of the more than 700,000 Americans who experience a stroke each year [1], two-thirds survive [2]. Currently there are more than five million stroke survivors in the U.S. [1], many of whom have long-term motor and sensory impairments, especially in the arm and hand [3]. Studies report that 69% of patients who were admitted to a rehabilitation unit following stroke have mild to severe upper extremity dysfunction [4], and only 14% to 16% of stroke survivors with initial upper extremity hemiparesis regained near-complete motor function [3,4]. Chronic deficits following stroke are especially prevalent in the hand and therefore diminish the capacity to grasp [5]. Hand grasp has great functional importance for performing activities of daily living. The impairment in grasping significantly lowers stroke survivors’ functional independence.

Older people’s long-term care experiences during the COVID-19 pandemic in Ghana: a qualitative descriptive study

2021 ◽  
Author(s):  
Kofi Awuviry-Newton ◽  
Jacob Oppong Nkansah ◽  
Abraham Newton ◽  
Kwamina Abekah-Carter
Keyword(s):  
Long Term Care ◽  
Well Being ◽  
Descriptive Study ◽  
Structured Interviews ◽  
Term Care ◽  
Care Policies ◽  
Qualitative Descriptive ◽  
Descriptive Approach ◽  
Southern Ghana

This study explores older people’s long-term care experiences during the COVID-19 pandemic in Ghana. A qualitative descriptive approach employing semi-structured interviews was used to collect data from 15 older people from Southern Ghana. Analysis of interview data resulted in five interrelated themes: (1) sources and type of long-term care; (2) older people’s satisfaction with the long-term care received; (3) changes in their long-term care; (4) feelings of neglect regarding long-term care; and (5) older people’s resilience in long-term care. The sustainability of long-term care depends on the state’s ability to devise innovative long-term care policies and programmes to promote older people’s and their carers’ well-being.

Correlates of well-being among caregivers of long-term community-dwelling stroke survivors

2016 ◽  
Vol 39 (4) ◽  
pp. 326-330 ◽  
Author(s):  
Rachel Dankner ◽  
Yaacov G. Bachner ◽  
Gary Ginsberg ◽  
Arnona Ziv ◽  
Hadar Ben David ◽  
...  
Keyword(s):  
Well Being ◽  
Community Dwelling ◽  
Stroke Survivors

Sleep disordered breathing in chronic stroke survivors. A study of the long term follow-up of the SCOPES cohort using home based polysomnography

2005 ◽  
Vol 12 (6) ◽  
pp. 632-637 ◽  
Author(s):  
Dominique A Cadilhac ◽  
Rachel D Thorpe ◽  
Dora C Pearce ◽  
Maree Barnes ◽  
Peter D Rochford ◽  
...  
Keyword(s):  
Sleep Disordered Breathing ◽  
Chronic Stroke ◽  
Stroke Survivors ◽  
Home Based ◽  
Long Term Follow Up ◽  
Disordered Breathing

Improving Feeding Outcomes in the NICU: Moving From Volume-Driven to Infant-Driven Feeding

2010 ◽  
Vol 19 (3) ◽  
pp. 68-74 ◽  
Author(s):  
Catherine S. Shaker
Keyword(s):  
Intensive Care Unit ◽  
Dynamic Systems ◽  
Neonatal Intensive Care ◽  
Well Being ◽  
Dynamic Systems Theory ◽  
Feeding Problems ◽  
Care Giving ◽  
Extremely Preterm ◽  
Extremely Preterm Infants

Current research on feeding outcomes after discharge from the neonatal intensive care unit (NICU) suggests a need to critically look at the early underpinnings of persistent feeding problems in extremely preterm infants. Concepts of dynamic systems theory and sensitive care-giving are used to describe the specialized needs of this fragile population related to the emergence of safe and successful feeding and swallowing. Focusing on the infant as a co-regulatory partner and embracing a framework of an infant-driven, versus volume-driven, feeding approach are highlighted as best supporting the preterm infant's developmental strivings and long-term well-being.

Intraindividual Variability and Stability of Affect and Well-Being

GeroPsych ◽  
2013 ◽  
Vol 26 (3) ◽  
pp. 185-199 ◽  
Author(s):  
Christina Röcke ◽  
Annette Brose
Keyword(s):  
Age Differences ◽  
Well Being ◽  
Subjective Well Being ◽  
Emotional Experiences ◽  
Short Term ◽  
Regulatory Processes ◽  
Functional Implications ◽  
Methodological Approaches ◽  
Underlying Processes

Whereas subjective well-being remains relatively stable across adulthood, emotional experiences show remarkable short-term variability, with younger and older adults differing in both amount and correlates. Repeatedly assessed affect data captures both the dynamics and stability as well as stabilization that may indicate emotion-regulatory processes. The article reviews (1) research approaches to intraindividual affect variability, (2) functional implications of affect variability, and (3) age differences in affect variability. Based on this review, we discuss how the broader literature on emotional aging can be better integrated with theories and concepts of intraindividual affect variability by using appropriate methodological approaches. Finally, we show how a better understanding of affect variability and its underlying processes could contribute to the long-term stabilization of well-being in old age.

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