scholarly journals Substance Use Among Adolescents and Young Adults With Type 1 Diabetes: Discussions in Routine Diabetes Care

2020 ◽  
Vol 59 (4-5) ◽  
pp. 388-395
Author(s):  
Samantha P. Bento ◽  
MaryJane S. Campbell ◽  
Olivia Soutullo ◽  
Fran R. Cogen ◽  
Maureen Monaghan
Keyword(s):  
Health Care ◽  
Substance Use ◽  
Type 1 Diabetes ◽  
Young Adults ◽  
Health Care Providers ◽  
Adolescents And Young Adults ◽  
Care Providers ◽  
Diabetes Clinic ◽  
Pediatric Health Care

Pediatric health care providers are in a unique position to discuss the health implications of alcohol, tobacco, and drug use with adolescents and young adults (AYAs) with type 1 diabetes (T1D). This study evaluated the frequency of self-reported substance use and associated demographic and clinical characteristics in a sample of AYAs with T1D and patient-provider discussions of substance use in T1D care. Sixty-four AYAs completed questions about substance use from the Youth Risk Behavior Survey (YRBS). Corresponding diabetes clinic visits were audio-recorded, transcribed, and reviewed to examine substance use discussions. A total of 56.3% of AYAs reported ever engaging in substance use; 40.6% reported substance use within the past 30 days. Five AYAs had discussions about substance use during their most recent diabetes clinic visit. Substance use should be proactively addressed by pediatric health care providers and AYAs should be encouraged to raise questions related to substance use during clinic visits.

scholarly journals Development of an eHealth Program for Parents of Adolescents With Type 1 Diabetes

2017 ◽  
Vol 44 (1) ◽  
pp. 72-82 ◽  
Author(s):  
Robin Whittemore ◽  
Rebekah M. Zincavage ◽  
Sarah S. Jaser ◽  
Margaret Grey ◽  
Julia L. Coleman ◽  
...  
Keyword(s):  
Health Care ◽  
Type 1 Diabetes ◽  
Health Care Providers ◽  
Diabetes Care ◽  
Multiple Time ◽  
Hormonal Changes ◽  
Care Providers ◽  
Personal Time ◽  
Multiple Time Points

Purpose The purpose of this study was to understand the experience of parenting an adolescent with type 1 diabetes (T1DM), to develop a prototype of an eHealth program for parents of adolescents with T1DM, and to evaluate the prototype content and acceptability from the perspective of parents and health care providers. Methods A multiphase method was used generating both qualitative and quantitative data at multiple time points. There were 27 parents of adolescents aged 12 to 18 years with T1DM and 16 health care providers who participated in semistructured interviews to identify parental challenges; 53 parents and 27 providers evaluated the prototype. Thematic content analysis was used to analyze interview transcripts, and descriptive statistics were used to summarize survey data. Results Challenges experienced by parents of adolescents with T1DM included understanding the developmental and hormonal changes of adolescence that affect diabetes care, feeling tension between adolescent independence and parent control, communicating without nagging or conflict, transferring diabetes care responsibility safely, dealing with feelings of stress and distress, and perceiving a lack of resources for T1DM care and insufficient personal time for self-care. In the prototype evaluation, both parents and providers found content to be relevant and provided feedback to guide the development of the full program. Conclusions Parents of adolescents with T1DM and providers expressed a need for parents to have more support in transitioning diabetes care from parent to adolescent. eHealth programs offer an ideal way to address these needs and ultimately can be linked to electronic medical records improving quality and efficiency of health care in this population.

Working Toward an mHealth Platform for Adolescents with Type 1 Diabetes: Focus Groups With Teens, Parents, and Providers

2020 ◽  
Vol 46 (5) ◽  
pp. 444-454
Author(s):  
Manuela Sinisterra ◽  
Katherine Patterson Kelly ◽  
Caitlin Shneider ◽  
Ashley El-Zein ◽  
Ellen Swartwout ◽  
...  
Keyword(s):  
Health Care ◽  
Type 1 Diabetes ◽  
Focus Groups ◽  
Health Care Providers ◽  
Diabetes Management ◽  
Self Management ◽  
Care Providers ◽  
Open Communication ◽  
Management Behaviors

Purpose The purpose of the study was to explore facilitators and barriers to self-management behaviors in adolescents with type 1 diabetes (T1D) to inform the development of an mHealth platform. Methods Eight adolescents with T1D, 9 parents, and 13 health care providers participated in separate focus groups that explored teen self-management behaviors. Results Adolescents and their parents have distinct preferences for handling diabetes management and use of mHealth technologies. Health care providers support the use of new technologies yet acknowledge concern meeting the potential increased volume of communication requests from teens and families. Conclusion Stakeholders agreed that an ideal mHealth platform would facilitate open communication between teens and their care network and easily integrate with other diabetes technologies. Future directions include incorporating additional feedback from stakeholders to build and modify the mHealth platform. The use of mHealth platforms could be integrated into clinical practice to optimize self-management and support communication between educators, providers, and families in between clinic visits.

Cardiovascular Disease (CVD) Decision Aid for Youth with Type 1 Diabetes (T1DM)—Perspectives of Health Care Providers (HCPs) with Pediatric-Onset T1DM

Diabetes ◽  
2018 ◽  
Vol 67 (Supplement 1) ◽  
pp. 698-P
Author(s):  
JODI KRALL ◽  
INGRID LIBMAN ◽  
SAMINA AFREEN ◽  
LINDA M. SIMINERIO
Keyword(s):  
Cardiovascular Disease ◽  
Health Care ◽  
Type 1 Diabetes ◽  
Health Care Providers ◽  
Decision Aid ◽  
Care Providers ◽  
Pediatric Onset

scholarly journals Communication matters: The role of autonomy-supportive communication by health care providers and parents in adolescents with type 1 diabetes

2020 ◽  
Vol 163 ◽  
pp. 108153 ◽  
Author(s):  
Eveline R. Goethals ◽  
Sarah S. Jaser ◽  
Chris Verhaak ◽  
Sofie Prikken ◽  
Kristina Casteels ◽  
...  
Keyword(s):  
Health Care ◽  
Type 1 Diabetes ◽  
Health Care Providers ◽  
Care Providers ◽  
Supportive Communication

The Unmet Need for Discussions Between Health Care Providers and Adolescents and Young Adults

2020 ◽  
Vol 67 (2) ◽  
pp. 262-269 ◽  
Author(s):  
John S. Santelli ◽  
Stephanie A. Grilo ◽  
Jonathan D. Klein ◽  
Yutao Liu ◽  
Hanying Yan ◽  
...  
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Health Care Providers ◽  
Unmet Need ◽  
Adolescents And Young Adults ◽  
Care Providers

scholarly journals A Mobile-Based Mindfulness and Social Support Program for Adolescents and Young Adults With Sarcoma: Development and Pilot Testing (Preprint)

2018 ◽  
Author(s):  
Elizabeth Donovan ◽  
Sarah R Martin ◽  
Laura C Seidman ◽  
Lonnie K Zeltzer ◽  
Tara M Cousineau ◽  
...  
Keyword(s):  
Social Support ◽  
Health Care ◽  
Young Adults ◽  
Health Care Providers ◽  
Social Group ◽  
Support Program ◽  
Adolescents And Young Adults ◽  
Care Providers ◽  
The Social ◽  
Semistructured Interviews

BACKGROUND Approximately 70,000 adolescents and young adults (AYA) are diagnosed with cancer each year in the United States. Sarcomas carry a particularly high symptom burden and are some of the most common cancers among AYA. Recent work has documented significant levels of unmet needs among AYA with cancer, particularly the need for psychosocial support. Mobile technology may be a cost-effective and efficient way to deliver a psychosocial intervention to AYA with cancer and cancer survivors. OBJECTIVE The two aims of this study were to (1) develop a pilot version of a mobile-based mindfulness and social support program and (2) evaluate program usage and acceptability. An exploratory aim was to examine change in psychosocial outcomes. METHODS Thirty-seven AYA with sarcoma or sarcoma survivors, parents, and health care providers participated in the study. Semistructured interviews were conducted with 10 AYA, parents of five of the adolescents, and six health care providers. Themes from the interviews helped to inform the development of a mobile-based mindfulness pilot program and a companion Facebook-based social support group. Twenty AYA consented to participate in a single-arm pre-post evaluation of the program; 17 downloaded the app and joined the Facebook group. Seven of these participants had participated in the semistructured interviews. Six additional health care providers consented to participate in the evaluation stage. RESULTS On average, participants completed 16.9 of the 28 unique sessions and used the mindfulness app for a mean 10.2 (SD 8.2) days during the 28-day evaluation period. The majority of participants (16/17) engaged in the social group and posted at least one reply to the moderator’s prompts. The mean number of responses per person to the moderator of the social group was 15.2 of 31 (49%, range 0%-97%). Both AYA and health care providers responded positively to the Mindfulness for Resilience in Illness program and offered useful recommendations for improvements. Exploratory psychosocial analyses indicated there were no significant differences from pretest to posttest on measures of perceived social support, mindfulness, body image, or psychological functioning. CONCLUSIONS This study offers preliminary support for the feasibility and acceptability of a mobile-based mindfulness and Facebook-based social support program for AYA with sarcoma. The feedback from AYA and health care providers will assist in creating a fully developed intervention. CLINICALTRIAL ClinicalTrials.gov NCT03130751; https://clinicaltrials.gov/ct2/show/NCT03130751

scholarly journals Shared Decision-Making Among Caregivers and Health Care Providers of Youth with Type 1 Diabetes

2014 ◽  
Vol 21 (3) ◽  
pp. 234-243 ◽  
Author(s):  
Jessica M. Valenzuela ◽  
Laura B. Smith ◽  
Jeanette M. Stafford ◽  
Ralph B. D’Agostino ◽  
Jean M. Lawrence ◽  
...  
Keyword(s):  
Health Care ◽  
Decision Making ◽  
Type 1 Diabetes ◽  
Shared Decision Making ◽  
Health Care Providers ◽  
Shared Decision ◽  
Care Providers
Sign in / Sign up

Export Citation Format

Share Document