scholarly journals Supporting sustainable occupational lives for partner caregivers of people with dementia

2020 ◽  
Vol 83 (9) ◽  
pp. 595-604
Author(s):  
Audrey Su Lin Yong ◽  
Lee Price ◽  
Fiona Napier ◽  
Kate Matthews

Introduction This qualitative research explores the experience of partner caregivers and how their partner’s dementia impacts on their daily living and occupational lives, with the aim of informing the sustainability of homecare and decreasing the likelihood of formal care. Method Ten participants were recruited through Alzheimer’s Society groups. They were interviewed using the same semi-structured interview process and asked questions about their daily activities and caregiving role. The data was analysed using Braun and Clarke’s thematic analysis process and themes generated using inductive coding and reasoning. Findings Three main themes were identified: (1) losing occupational activities and roles; (2) adapting to a new occupational life and (3) adjusting to a new relationship in the trajectory of their partner’s illness. Conclusion This study highlights the complex occupational challenges experienced by partner caregivers of people with dementia. It suggests that there is a role for occupational therapists in sustaining homecare by working with partner caregivers as ‘expert service users’. Involvement should be provided at critical points of the caregiving journey and include co-creating technology solutions for social inclusion, sustaining adaptive engagement in personal occupations, creating opportunities for restoration and supporting caregivers to preserve their partner’s personhood.

2005 ◽  
Vol 68 (7) ◽  
pp. 307-314 ◽  
Author(s):  
Ruth Cutajar ◽  
Anne Roberts

Various research studies have explored the factors that predispose people with spinal cord injuries to pressure sore development. Two hundred risk factors have been associated with pressure sore occurrence. One of the variables commonly reported to affect pressure sore occurrence is a decreased level of activity (Vidal and Sarrias 1991, Fuhrer et al 1993). This concurs with the philosophy of occupational therapy that a reduction in activity can generate pathology (Miller et al 1988). This research study investigated whether decreased participation in occupational activities (work, leisure and activities of daily living) was related to pressure sore occurrence in paraplegic men. The sample was selected randomly from the occupational therapy discharge files of a rehabilitation facility in Saudi Arabia. The data were collected by means of a telephone questionnaire from a total of 58 men, over a 3-month period. The study showed that there was a large increase in unemployment in paraplegic men following injury (from 10% to 59%) and, as might be expected, manual workers were more vulnerable than office workers. The study found no significant association between pressure sore occurrence and whether or not the individual was employed. However, it showed a statistically significant association between unemployment and pressure sores severe enough to lead to hospitalisation. The study also found a statistically significant association between individuals' independence in activities of daily living and the number of pressure sores that they had reported in the last 2 years. These findings indicate the potential importance of clients remaining occupationally active for their wellbeing and the significant contribution that occupational therapists can make by enabling rehabilitation of occupational activities.


2020 ◽  
pp. 030802262091037
Author(s):  
Alexandra P Andrews ◽  
Karen E Atler ◽  
Jennifer Dickman Portz ◽  
Marieke VanPuymbroeck ◽  
Caroline M Rose ◽  
...  

Introduction Over the past decade, yoga has gained popularity in health care. The benefits of yoga can go beyond the physical to address the psychosocial and emotional. Such gains can be beneficial for people who have had a stroke. As a leading cause of disability, stroke can lead to challenges returning to daily activities. Occupational therapists may use yoga to promote engagement in daily activities after stroke. This study aimed to understand how and why occupational therapists integrate yoga into stroke rehabilitation. Methods This study involved occupational therapists practicing in the United States. Ten occupational therapists using yoga in practice participated in a semi-structured interview. Interview data were transcribed and analyzed using deductive and inductive coding. Themes emerged from the data related to the benefits of using yoga in stroke rehabilitation. Results According to this study, yoga is currently being used as a treatment technique and merged with occupational therapy. Yoga may promote client-centered recovery; bring “context” to therapy; and address physical, emotional, and psychosocial needs following stroke. Conclusion Individuals who have had a stroke may face challenges related to both physical and psychosocial engagement. The use of yoga in occupational therapy may be beneficial after stroke for both physical and psychosocial rehabilitation.


2008 ◽  
Vol 71 (10) ◽  
pp. 448-450 ◽  
Author(s):  
Christopher Dunn ◽  
Alison Seymour

Having a productive occupation is seen as fundamental to an individual's health and wellbeing. Employment provides structure, self-identity, a means to provide for oneself and social inclusion. The Government has made a commitment to invest in supporting people back into the workplace following illness. This opinion piece reflects the authors' interest in how this applies to service users with a forensic history, who face additional barriers to employment. It calls on occupational therapists to share research and practice accounts of vocational rehabilitation within forensic settings in order to contribute to the evidence base for this area of occupational therapy practice.


2003 ◽  
Vol 66 (2) ◽  
pp. 46-54 ◽  
Author(s):  
Leah Shimitras ◽  
Ellie Fossey ◽  
Carol Harvey

Time use provides one means to study the lifestyles and community participation of people with disabilities. Previous clinical studies suggest that people with a mental illness experience difficulty in using their time meaningfully. This study examines the time use of 229 adults diagnosed with schizophrenia from an epidemiological survey in London, England. Twenty-four hour time budgets were collected and time use was calculated for 10 major categories of occupations. Few of the participants were engaged in work, active leisure, education or volunteer occupations, their predominant occupations being sleeping, personal care and passive leisure. The women spent significantly more time in domestic occupations and less time in passive leisure occupations than the men. The younger participants spent significantly more time in social occupations than the other age-groups. The older participants, and those attending day centres, spent most time in passive leisure. These findings indicate that many people diagnosed with schizophrenia are not engaged in occupations that support active lifestyles or social inclusion, highlighting the need to improve their opportunities to participate in mainstream social, active and productive occupations. Occupational therapists must work with service users and agencies beyond the mental health system to enable service users' participation in such occupations. Barriers to participation also require further exploration to address these occupational needs better.


2019 ◽  
Vol 7 (16) ◽  
pp. 1-218 ◽  
Author(s):  
Bryony Beresford ◽  
Rachel Mann ◽  
Gillian Parker ◽  
Mona Kanaan ◽  
Rita Faria ◽  
...  

Background Reablement is an intensive, time-limited intervention for people at risk of needing social care or an increased intensity of care. Differing from home care, it seeks to restore functioning and self-care skills. In England, it is a core element of intermediate care. The existing evidence base is limited. Objectives To describe reablement services in England and develop a service model typology; to conduct a mixed-methods comparative evaluation of service models investigating outcomes, factors that have an impact on outcomes, costs and cost-effectiveness, and user and practitioner experiences; and to investigate specialist reablement services/practices for people with dementia. Methods Work package (WP) 1, which took place in 2015, surveyed reablement services in England. Data were collected on organisational characteristics, service delivery and practice, and service costs and caseload. WP2 was an observational study of three reablement services, each representing a different service model. Data were collected on health (EuroQol-5 Dimensions, five-level version) and social care related (Adult Social Care Outcomes Toolkit – self-completed) quality of life, practitioner (Barthel Index of Activities of Daily Living) and self-reported (Nottingham Extended Activities of Daily Living scale) functioning, individual and service characteristics, and resource use. They were collected on entry into reablement (n = 186), at discharge (n = 128) and, for those reaching the point on the study timeline, at 6 months post discharge (n = 64). Interviews with staff and service users explored experiences of delivering or receiving reablement and its perceived impacts. In WP3, staff in eight reablement services were interviewed to investigate their experiences of reabling people with dementia. Results A total of 201 services in 139 local authorities took part in the survey. Services varied in their organisational base, their relationship with other intermediate care services, their use of outsourced providers, their skill mix and the scope of their reablement input. These characteristics influenced aspects of service delivery and practice. The average cost per case was £1728. Lower than expected sample sizes meant that a comparison of service models in WP2 was not possible. The findings are preliminary. At discharge (T1), significant improvements in mean score on outcome measures, except self-reported functioning, were observed. Further improvements were observed at 6 months post discharge (T2), but these were significant for self-reported functioning only. There was some evidence that individual (e.g. engagement, mental health) and service (e.g. service structure) characteristics were associated with outcomes and resource use at T1. Staff’s views on factors affecting outcomes typically aligned with, or offered possible explanations for, these associations. However, it was not possible to establish the significance of these findings in terms of practice or commissioning decisions. Service users expressed satisfaction with reablement and identified two core impacts: regained independence and, during reablement, companionship. Staff participating in WP3 believed that people with dementia can benefit from reablement, but objectives may differ and expectations for regained independence may be inappropriate. Furthermore, staff believed that flexibility in practice (e.g. duration of home visits) should be incorporated into delivery models and adequate provision made for specialist training of staff. Conclusions The study contributes to our understanding of reablement, and what the impacts are on outcomes and costs. Staff believe that reablement can be appropriate for people with dementia. Findings will be of interest to commissioners and service managers. Future research should further investigate the factors that have an impact on outcomes, and reabling people with dementia. Funding The National Institute for Health Research Health Services and Delivery Research programme.


2020 ◽  
Vol 18 (3) ◽  
pp. 263-274
Author(s):  
Zeinab Fathipour-Azar ◽  
◽  
Malahat Akbarfahimi ◽  
Farzad Rabiei ◽  
◽  
...  

Objectives: People with Heart Failure (HF) encounter many limitations while performing their daily activities. These limitations can have adverse effects on their quality of life and self-satisfaction. Hence, to assess problems in the Activities of Daily Living (ADL) and plan effective interventions, we should properly identify people’s challenges in performing daily activities. This study aimed to recognize the ADL challenges in people with HF and their effects on ADL. Methods: Twelve people with HF (aged 38 to 65 years) recruited from Rajai Hospital participated in this study using a purposeful sampling method. They were interviewed up to data saturation. Each semi-structured interview session lasted for 20-45 minutes (average 32.5 minutes). The obtained data were analyzed using a qualitative content analysis approach. Results: The challenges of the participants with performing ADL were summarized under two themes: “obstacles preventing normal functioning” and “disturbances in doing daily living activities as a burden”. The first theme consisted of “interference of previous experience in performance” and “challenges during the performance”. The second theme consisted of “personal laborious activities” and “interruption of activities performance related to family roles and outdoor tasks”. Discussion: Patients with HF have serious challenges with performing ADLs which are crucial for their living. Therefore, identifying their barriers and needs will play a major role in designing compensatory, educational, and coping programs based on the limited activities and the interrupted parameters in ADL performance.


Author(s):  
Kathy de Domingo

Physical and occupational therapists commonly provide services that incorporate prosthetic and orthotic devices such as crutches, canes, reachers, and ankle–foot orthoses to support mobility and activities of daily living (ADLs). Likewise, speech-language pathologists provide services incorporating prosthetic devices to support communication such as an electrolarynx, microcomputers, and mobile devices and apps with voice output capability. Assistive technology for cognition (ATC) includes the use of personal digital assistants (PDAs), tablets, and smart phones — cognitive prostheses — to compensate for cognitive challenges following acquired brain injury (ABI). Whereas funding sources for devices and services that support/compensate for mobility, ADLs, and communication challenges are generally well established, funding for ATC devices and services is relatively new to the field of speech-language pathology. This article explores the funding aspect of ATC devices and services.


2014 ◽  
Vol 2014 ◽  
pp. 1-11 ◽  
Author(s):  
Sue Jordan ◽  
Marie Gabe ◽  
Louise Newson ◽  
Sherrill Snelgrove ◽  
Gerwyn Panes ◽  
...  

Objectives. People with dementia are susceptible to adverse effects of medicines. However, they are not always closely monitored. We explored (1) feasibility and (2) clinical impact of nurse-led medication monitoring.Design. Feasibility “before-and-after” intervention study.Setting. Three care homes in Wales.Participants. Eleven service users diagnosed with dementia, taking at least one antipsychotic, antidepressant, or antiepileptic medicine.Intervention. West Wales Adverse Drug Reaction (ADR) Profile for Mental Health Medicines.Outcome Measures. (1) Feasibility: recruitment, retention, and implementation. (2) Clinical impact: previously undocumented problems identified and ameliorated, as recorded in participants’ records before and after introduction of the profile, and one month later.Results. Nurses recruited and retained 11 of 29 eligible service users. The profile took 20–25 minutes to implement, caused no harm, and supplemented usual care. Initially, the profile identified previously undocumented problems for all participants (mean 12.7 (SD 4.7)). One month later, some problems had been ameliorated (mean 4.9 (3.6)). Clinical gains included new prescriptions to manage pain (2 participants), psoriasis (1), Parkinsonian symptoms (1), rash (1), dose reduction of benzodiazepines (1), new care plans for oral hygiene, skin problems, and constipation.Conclusions. Participants benefited from structured nurse-led medication monitoring. Clinical trials of our ADR Profile are feasible and necessary.


Author(s):  
Julieta Camino ◽  
Naoko Kishita ◽  
Allan Bregola ◽  
Judy Rubinsztein ◽  
Mizanur Khondoker ◽  
...  

2021 ◽  
Vol 7 ◽  
pp. 233372142110135
Author(s):  
Lillian Hung ◽  
Allison Hudson ◽  
Mario Gregorio ◽  
Lynn Jackson ◽  
Jim Mann ◽  
...  

Aims: This scoping review explores key strategies of creating inclusive dementia-friendly communities that support people with dementia and their informal caregiver. Background: Social exclusion is commonly reported by people with dementia. Dementia-friendly community has emerged as an idea with potential to contribute to cultivating social inclusion. Methods: This scoping review follows the Joanna Briggs Institute scoping review methodology and took place between April and September 2020. The review included a three-step search strategy: (1) identifying keywords from CINAHL and AgeLine; (2) conducting a second search using all identified keywords and index terms across selected databases (CINAHL, AgeLine, MEDLINE, PsycINFO, Web of Science, ProQuest, and Google); and (3) hand-searching the reference lists of all included articles and reports for additional studies. Results: Twenty-nine papers were included in the review. Content analysis identified strategies for creating dementia-friendly communities: (a) active involvement of people with dementia and caregivers (b) inclusive environmental design; (c) public education to reduce stigma and raise awareness; and (d) customized strategies informed by theory. Conclusion: This scoping review provides an overview of current evidence on strategies supporting dementia-friendly communities for social inclusion. Future efforts should apply implementation science theories to inform strategies for education, practice, policy and future research.


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