scholarly journals Photovoice Exploration of Frontline Nurses’ Experiences During the COVID-19 Pandemic

2021 ◽  
pp. 084456212110646
Author(s):  
Ruhina Rana ◽  
Nicole Kozak ◽  
Agnes Black
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Policy Development ◽  
Structural Changes ◽  
Health Care Policy ◽  
Well Being ◽  
Participatory Action ◽  
Group Discussions ◽  
Global Pandemic ◽  
Pandemic Planning

Background The current COVID-19 global pandemic has had a profound impact on the health care system and on the physical and psychological well-being of nurses. Previous pandemics have led to nurses leaving the profession. Therefore, it is important that we hear the voices of nurses who experienced the pandemic on the frontlines to influence future planning and policy development. Purpose The purpose of this study was to explore frontline nurses’ experiences during the COVID-19 pandemic through photos, narratives, and group discussions. Methods Twelve nurses in two groups shared their lived experiences through Photovoice, a participatory action approach. Photos and narratives were collected over five weeks per group. One group at the beginning of the pandemic and the other group six months later. Focus group discussions were held following each group. Results Five themes emerged from the photovoice data: (1) The work of nursing; (2) Miscommunication; (3) Fatigue; (4) Resilience; and (5) Hope for the future. Various subthemes were noted within each theme to delineate the lived experience of frontlines nurses working in the COVID-19 pandemic. Conclusions The voices of nurses and their experiences on the frontlines of the COVID-19 pandemic need to be considered in pandemic planning and integrated into health care policy, guidelines, and structural changes.

Nursing Profession’s Contribution to Person- and People-Centered Primary Health Care

2015 ◽  
Vol 5 (4) ◽  
pp. 197-203
Author(s):  
Yukiko Kusano ◽  
Erica Ehrhardt
Keyword(s):  
Health Care ◽  
Primary Health Care ◽  
Policy Development ◽  
Workforce Planning ◽  
Policy Decision ◽  
Well Being ◽  
World Health ◽  
Integration Of Care ◽  
Primary Health ◽  
Strategic Role

Background: Equity and access to primary health care (PHC) services, particularly nursing services, are key to improving the health and well-being of all people. Nurses, as the largest group of healthcare professionals delivering services wherever people are, have a unique opportunity to put people at the centre of care, making services more effective, efficient and equitable.Objectives: To assess contributions of nurses to person and people-centered PHC. Methods: Analysis of nursing contributions under each of the four sets of the PHC reforms set by the World Health Organization.Results: Evidence and examples of nursing contributions are found in all of the four PHC reform areas. These include: expanding access;addressing problems through prevention; coordination and integration of care; and supporting the development of appropriate, effective and healthy public policies; and linking field-based innovations and policy development to inform evidence-based policy decision making.Conclusions:Nurses have significant contributions in each of the four PHC reform areas. The focus of nursing care on people-centeredness, continuity of care, comprehensiveness and integration of services, which are fundamental to holistic care, is an essential contribution of nurses to people-centered PHC. Nurses’ contributions can be optimised through positive practice environments, appropriate workforce planning and implementation andadequate education and quality control though strong regulatory principles and frameworks. People-centered approaches need to be considered both in health and non-health sectors as part of people-centered society. A strategic role of nurses as partners in services planning and decision-making is one of the key elements to achieve people-centered PHC.

“I’m Just Forgetting and I Don’t Know Why”: Exploring How People Living With HIV-Associated Neurocognitive Disorder View, Manage, and Obtain Support for Their Cognitive Difficulties

2018 ◽  
Vol 28 (6) ◽  
pp. 859-872 ◽  
Author(s):  
Alexander R. Terpstra ◽  
Catherine Worthington ◽  
Francisco Ibáñez-Carrasco ◽  
Kelly K. O’Brien ◽  
Aiko Yamamoto ◽  
...  
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Health Care Professionals ◽  
Management Strategies ◽  
Well Being ◽  
People Living With Hiv ◽  
Neurocognitive Disorder ◽  
Cognitive Difficulties ◽  
Hiv Associated Neurocognitive Disorder ◽  
Living With Hiv

HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed with community members living with HIV, focused on how cognitive difficulties manifested and progressed, impacted well-being, and were discussed with others. We analyzed interview transcripts using a team-based, thematic approach. Participants described concentration, memory, and multitasking difficulties that fluctuated over time, as well as potential risk factors, management strategies, and psychosocial consequences. They reported they seldom discussed cognitive impairment with health care professionals, and that receiving a HAND diagnosis was validating, informative, yet somewhat disconcerting. Conversations between health care professionals and people living with HIV about HAND may provide opportunities for education, assessment, and support.

Do learning organizations learn? Higher education institutions and pandemic response strategies

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Michael T. Miller
Keyword(s):  
Higher Education ◽  
Organizational Behavior ◽  
Structural Changes ◽  
Higher Education Institutions ◽  
Well Being ◽  
Content Type ◽  
Institutional Leadership ◽  
Response Strategies ◽  
Global Pandemic ◽  
The Usa

Purpose This study was designed to address the problem of how higher education institutions, as organizations designed to promote learning, responded to the COVID pandemic and the suspension of in-person instruction. The purpose of this paper was specifically to explore how institutions go about learning from the pandemic to better prepare themselves for the future that they will face. Design/methodology/approach A researcher-developed survey instrument was distributed electronically to 300 faculty leaders at randomly selected universities in the USA. With three follow-up e-mail requests, the survey had a 31% usable response rate. Findings Survey results indicated that institutional leadership did not make strong use of shared governance in responding to the COVID pandemic in creating operational response strategies. Further, institutions did not alter their policies or make structural changes to be more adept in facing the challenges of a global pandemic and its impact on the financial well-being of the institutions. Although institutions did make changes to their attitudes about students, these were not developmental changes but rather behavioral modification expectations. Originality/value This study drew upon data collected after the first three months of the global COVID pandemic, providing an important first-look at organizational behavior in response to a largely unplanned global event.

scholarly journals Older people’s involvement in healthcare education: views and experiences of older experts by experience

2020 ◽  
Vol 24 (2) ◽  
pp. 125-135
Author(s):  
Juliana Thompson ◽  
Sue Tiplady ◽  
Glenda Cook
Keyword(s):  
Health Care ◽  
Older People ◽  
Lived Experience ◽  
Professional Education ◽  
Teaching Strategy ◽  
Well Being ◽  
Health Care Education ◽  
Content Type ◽  
Care Education ◽  
Professional Health

Purpose “Experts by experience' (EBE) involvement in professional health-care education programmes contributes to developing students” caring skills by supporting students’ understanding of the lived experience and reality of service-users’ situations. Also, involvement in health-care education is a beneficial experience for EBEs themselves. This study aims to explore specifically older people’s experiences and perceptions of their involvement of EBE in gerontological education to generate insight into their understanding of this experience. Design/methodology/approach In this qualitative study, EBEs contributing to delivery of health-care professional education programmes at a UK university took part in focus groups (n = 14) to discuss their views and experiences of involvement in EBE teaching. Data were analysed using open coding. Findings Four themes emerged from the data, suggesting that older EBEs’ involvement in education may be beneficial for their well-being. The four themes were “contributing to improved care”, “having a purpose”, “being included” and “feeling appreciated”. Practical implications Findings support the requirement for nurse educators to develop EBE programmes that involve older people as not only a teaching strategy for students but also a method of promoting the health and well-being of the older EBEs. Originality/value There is limited research regarding specifically older EBEs’ experiences of involvement in gerontological education. This is an important area of study because involvement in education may constitute a means of engaging in social, community and voluntary activities for older people, which recent UK health policies advocate as methods of promoting and facilitating healthy ageing.

From surviving to thriving: how does that happen

2015 ◽  
Vol 10 (5) ◽  
pp. 337-348 ◽  
Author(s):  
Mark Bertram ◽  
Sarah McDonald
Keyword(s):  
Lived Experience ◽  
Peer Support ◽  
Policy Development ◽  
Well Being ◽  
Service Users ◽  
Content Type ◽  
Employment Education ◽  
Vocational Goals ◽  
The Impact

Purpose – The purpose of this paper is to explore what helped seven people in contact with secondary mental health services achieve their vocational goals, such as: employment, education, training and volunteering. Design/methodology/approach – The authors used the practice of co-operative inquiry – staff and peer supporters co-designed an evaluation of vocational and peer support work with service users. Findings – Service users experienced invalidating living conditions that caused serious distress. These life struggles included: isolation, trauma events and stigma. The impact involved distressing emotions such as: despair, fear, pain and confusion. In contrast, when service users experienced supportive validating conditions (trusting relationships, engaging in valued activity and peer support) they reported being able to learn, change and grow – finding their own way forward, to improve well-being and quality of life. Research limitations/implications – Qualitative analysis from in-depth interviews revealed a range of consistent themes that enabled the authors to visually represent these and “begin” developing a model of change – grounded in lived experience. Further research is required to develop this model. Originality/value – The development of a model of change grounded in an invalidation/validation framework offers a different approach – in terms of how people are perceived and treated. This has relevance for Government policy development, clinical commissioning groups and practitioners.

scholarly journals Finding the Way Forward: The Lived Experience of People With Stroke After Participation in a Complex Psychosocial Intervention

2019 ◽  
Vol 29 (12) ◽  
pp. 1711-1724 ◽  
Author(s):  
Gabriele Kitzmüller ◽  
Margrete Mangset ◽  
Anne S. Evju ◽  
Sanne Angel ◽  
Lena Aadal ◽  
...  
Keyword(s):  
Health Care ◽  
Everyday Life ◽  
Lived Experience ◽  
Health Care Professional ◽  
Psychosocial Intervention ◽  
Meaning Making ◽  
Well Being ◽  
Adjustment Process ◽  
Stroke Patients ◽  
Post Stroke

Stroke patients’ well-being is threatened after stroke. A psychosocial intervention was developed for Norwegian stroke patients living in the community. Eight individual sessions between people with stroke and a trained health care professional were conducted 1 to 6 months post-stroke with one group of participants and 6 to 12 months post-stroke with another group. Subsequently, 19 of these stroke patients were interviewed to gain an in-depth understanding of their lived experience of the influence of the intervention on their adjustment process. Interview texts were analyzed using Ricoeur’s interpretation theory. Two participants did not personally find the intervention useful. The remaining participants greatly appreciated dialogues with the empathetic intervention personnel, feeling free to discuss their fears and worries. The intervention raised these participants’ awareness of their needs and resources. They were guided to resume their everyday life and adopt a future-oriented attitude. The intervention facilitated their meaning-making endeavors and post-stroke adjustment.

scholarly journals Engaging Youth in Placemaking: Modified Behavior Mapping

2020 ◽  
Vol 17 (18) ◽  
pp. 6527
Author(s):  
Sarah Little
Keyword(s):  
Lived Experience ◽  
Quantitative Research ◽  
Quantitative Method ◽  
Stem Learning ◽  
Participatory Action ◽  
Group Discussions ◽  
Use Of Space ◽  
Agents Of Change ◽  
Trained Facilitator ◽  
Youth Friendly

Typically excluded from conversations about place, youth are becoming recognized as agents of change in placemaking. This article explores adapting a quantitative research method, behavior mapping, into a more youth-friendly qualitative participatory action research (PAR) method for placemaking projects, namely modified behavior mapping (MBM). The goal of MBM is to instigate placemaking conversations with youth with an understanding of an aspect of the lived experience of place and existing behavior. Sites are divided into observation zones, and youth are led through the zones by a trained facilitator. Like the quantitative method, MBM requires a list of behaviors of interest and a basemap. Behaviors are organized into groups on an observation sheet in a youth-friendly checklist format. A new checklist is printed for each observation zone. Basemaps can be an aerial photo or a downloaded map; however, creating a basemap by taking measurements will create science, technology, engineering, and math (STEM) learning opportunities. While in the observation zone, youth check the behaviors observed. Unlike the quantitative method, MBM does not require strict data collection protocols or a statistical analysis which makes the method more youth-friendly. Instead, MBM affords an opportunity for youth to reflect on their use of space and on others’ use of space. Results are disseminated through focus group discussions in order to create design programs or designs of place.

Citizen Participation in the Reform of Health Care Policy: A Case Example

1996 ◽  
Vol 9 (2) ◽  
pp. 31-35 ◽  
Author(s):  
Dianne MacFarlane
Keyword(s):  
Health Care ◽  
Citizen Participation ◽  
Policy Development ◽  
Health Care Policy ◽  
Policy Reform ◽  
Care Policy ◽  
Term Care ◽  
Policy Development Process ◽  
Hard Evidence ◽  
The 1960S

The trend toward greater citizen participation in health care policy reform has its roots in the consumerism of the 1960s. This era witnessed the beginning of a dispersion of power in health care and an increase in the number and variety of stakeholders involved in the policy development process. Using the reform of Ontario's long-term care policy as a case example, this paper offers observations about the benefits and challenges of participative policy-making. Despite the challenges and the paucity of hard evidence pointing to benefits, the author concludes that broad citizen participation in health care policy reform is a desirable goal. However, the capacity for genuine collaboration remains underdeveloped and requires more systematic refinement.

Historical Perspectives of U.S. Health Care Policy Development under the Presidential Leadership

2002 ◽  
Vol 5 (2) ◽  
pp. 121-141
Author(s):  
Chanho Choi
Keyword(s):  
Health Care ◽  
Policy Development ◽  
Local Governments ◽  
Health Care Policy ◽  
Presidential Leadership ◽  
Policy Formulation ◽  
Federal State ◽  
Care Policy ◽  
Historical Perspectives ◽  
State And Local

This study aimes to understand the process of historical changes of U.S. health care policy for the past 200 years, and is primarily concerned with presidential leadership to influence health care policy formulation after 1970s. With this aim in view, first of all, this paper examines the shift of governmental roles on health care policy formulation over time, and what are the major ways in which presidents have been involved in the formation of health care policy? Based upon this investigation, this paper shows that the relationship among federal, state, and local governments has undergone dramatic change, and presidential roles are essential in developing an understanding of both future prospects for health care policy changes and past decisions.

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