A Framework for Mediating Medical and Social Models of Disability in Instrumental Teaching for Children with Down Syndrome

2019 ◽  
pp. 1321103X1985541
Author(s):  
Beth Pickard

This article reflects upon the potential mediation of medical and social interpretations of disability through informing instrumental tuition with the strengths recognised in the learning profile of children with Down Syndrome. The learning profile is explored and critically discussed, and its reductionist, deficit-based potential identified; before considering the potential value of applying the evidence-based phenotype to musical provision. While a medical model of disability may interpret this learning profile as a list of deficiencies, this paper proposes that an informed, strength-based approach to teaching could empower students and challenge barriers to participation through suitably tailored provision, providing a relevant and constructive learning experience. This framework therefore aligns more closely with a Nordic relational model of disability that mediates the medical and social models, recognising disability as an interaction between impairment and the environment. Three case reports are presented to demonstrate and emphasise the range of personalities and individual differences between musicians with Down Syndrome, but also how this evidence-based approach can be applicable to many students, potentially contextualised within a “Universal Design for Learning” framework. A summary considers how raising awareness of constructive strategies for informed provision could develop confidence amongst practitioners, and thus in turn increase provision of relevant musical opportunities to students with additional learning needs, including Down Syndrome. In a critical conclusion, the notion of “differentiation” as perpetuating a dominant ableist discourse is considered and recommendations made with regard to furthering connections between critical social practices associated with Critical Disability Studies and music education.

2019 ◽  
Vol 6 (2) ◽  
pp. 157-162
Author(s):  
Rena Setiana Primawati ◽  
Sri Susilawati ◽  
Hadyana Sukandar

Music, dance and tooth brushing songs (MUTALAGI) given to children with Down syndrome is a modified dental and oral health education effort that aims to increase knowledge, practice brushing and dental and oral hygiene status. Dental health education using music, dance and songs can provide a deeper message and provide a better learning experience for children with Down syndrome. This study uses a mixed method design with a Sequential Exploratory strategy where researchers use two stages, namely qualitative research to conduct group interviews focused on parents of down syndrome children as the basis for making instruments. Media made by researchers was assessed by 12 experts consists of two music and dance experts, two media experts, two dental health education experts, two child dental health experts and two experts with special needs children. Quantitative research was conducted to test the media for 26 down syndrome children using the one group pretest and posttest approach and tested statistically using the Wilcoxon test, Marginal Homogeneity test and Binomial test.The results showed that music, dance and tooth brushing songs for Down Syndromic children were suitable for use in dental health education, and the results of statistical analysis showed a significant increase in knowledge scores, teeth brushing practices and oral and dental hygiene status before and after treatment, i.e. p 0.001.


2011 ◽  
Vol 18 (1) ◽  
pp. 57-75
Author(s):  
Claire O’Loughlin ◽  
Clare Carroll ◽  
Mari Caulfield

Objective: To establish the value of an early intervention programme designed for families of children with Down Syndrome. Method: The present study adopted a qualitative research design in keeping with the principles of Grounded Theory through the use of a semi-structured interview strategy and coding techniques. Six parents who had completed the programme participated in the study. Main results: The participants collectively viewed the programme as “a learning experience”, and in particular valued the social aspect of the programme. Some parents spoke of perceived barriers which contributed to a potentially negative experience, such as lack of information. Furthermore, the importance of collaboration between parents and professionals echoed throughout the present study. Conclusion: This paper enhances our current understanding of parents’ experiences of early intervention programmes and, in turn, highlights various factors which may positively impact on or detract from caregivers’ experiences of healthcare services.


2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Ahmad Kantar ◽  
Angelo Mazza ◽  
Ezio Bonanomi ◽  
Marta Odoni ◽  
Manuela Seminara ◽  
...  

Abstract Background Down syndrome (DS) is characterized by a series of immune dysregulations, of which interferon hyperreactivity is important, as it is responsible for surging antiviral responses and the possible initiation of an amplified cytokine storm. This biological condition is attributed to immune regulators encoded in chromosome 21. Moreover, DS is also characterized by the coexistence of obesity and cardiovascular and respiratory anomalies, which are risk factors for coronavirus disease (COVID-19) caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Case presentation A total of 55 children were admitted to the pediatric ward in Bergamo, between February and May 2020 for COVID-19. Here, we describe the cases of two children with DS and a confirmed COVID-19 diagnosis who had a severe course. In addition, both cases involved one or more comorbidities, including cardiovascular anomalies, obesity, and/or obstructive sleep apnea. Conclusions Our observations indicate that children with DS are at risk for severe COVID-19 disease course.


2020 ◽  
Vol 29 (1) ◽  
pp. 39-48 ◽  
Author(s):  
Laura E. Gómez ◽  
Miguel A. Verdugo ◽  
Mar Rodríguez ◽  
Lucía Morán ◽  
Víctor B. Arias ◽  
...  

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