Parents’ perceptions of raising children with autism spectrum disorders in the United States and Arab countries: A comparative review

Autism ◽  
2019 ◽  
Vol 23 (7) ◽  
pp. 1645-1654 ◽  
Author(s):  
Jamal M Al Khateeb ◽  
Louise Kaczmarek ◽  
Muna S Al Hadidi

Four databases were searched to identify studies published by Arab researchers on parents’ perceptions of autism spectrum disorder and studies conducted by US researchers and published in systematic reviews of this topic. The electronic search resulted in 14 studies published by Arab researchers and 55 studies published by US researchers. The results showed that autism spectrum disorder has many of the same effects on Arab and American families. Six major areas were identified in the results. Financial difficulties associated with raising children with autism spectrum disorder were mentioned more in Arab studies than in US studies. Arab studies had more emphasis on gender than US studies. The results related to quality of life of parents of children with autism spectrum disorder in Arab studies were equivocal. US studies included comparisons with families without a child with autism spectrum disorder, and addressed factors that were associated with quality of life indicators. More health, educational, and social services were available in United States than in Arab countries, but some frustration was reported by US parents in obtaining appropriate services in some studies. A higher percentage of Arab studies mentioned the role of religious faith than US studies. Finally, social stigma was evidenced in both cultures, but not much research was available.

2019 ◽  
Vol 13 (2) ◽  
pp. 284-297 ◽  
Author(s):  
Aliya Naheed ◽  
Md. Saimul Islam ◽  
Saima Wazed Hossain ◽  
Helal Uddin Ahmed ◽  
M. M. Jalal Uddin ◽  
...  

2016 ◽  
Vol 6 (1) ◽  
pp. 102-107
Author(s):  
A. Ślifirczyk ◽  
E. Krajewska - Kułak ◽  
A. Brayer ◽  
M. Sobolewski ◽  
E. Maciorkowska

Purpose: To assess the health-related quality of life (HRQL) in parents of children with autism spectrum disorder (ASD). Materials and methods: The sample consisted of 83 families with children with ASD, including 30 families from Poland, 25 from Belarus, and 28 from France. Parental HRQL was surveyed with the World Health Organization Quality of Life–BREF (WHOQOL–BREF) and KINDLR questionnaires. Results: This study showed that Polish parents reported the lowest quality of life according to the WHOQOL–BREF. Parents from Belarus reported slightly worse HRQL than parents from France, though other aspects of quality of life (e.g, social sphere, somatic sphere) did not differ significantly between these parents. Parents from Poland also reported lower HQOL according to the KINDLR questionnaire, while parents from Belarus had a higher HQRL in the mental, physical, and self-esteem domains compared to parents from Poland and France. Conclusion: Parents from Poland with children with ASD reported lower HRQL both on the WHOQOL–BREF and KINDL R questionnaires compared to parents from Belarus and France.


2020 ◽  
Vol 58 (5) ◽  
pp. 393-408
Author(s):  
Laura E. Gómez ◽  
M. Lucía Morán ◽  
M. Ángeles Alcedo ◽  
Víctor B. Arias ◽  
Miguel-Ángel Verdugo

Abstract Despite the advances on the assessment of quality of life, this concept is barely studied and is riddled with important limitations for those with autism spectrum disorder (ASD). This article is aimed at validating a questionnaire to assess quality of life of children with ASD and intellectual disability (ID). Based on the KidsLife Scale, geared toward people with ID, the most reliable items for those with ASD were selected. Study participants were 420 persons, from 4 to 21 years old. Results indicated that the KidsLife-ASD Scale measured eight intercorrelated domains, had good reliability, and exhibited adequate evidences of validity. KidsLife-ASD emerges as a helpful tool to guide person-centered planning addressed at improving quality of life.


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