scholarly journals Changes to Family Caregiving of Older Adults and Adults with Disabilities during COVID-19

2021 ◽  
Vol 7 ◽  
pp. 233372142110024
Author(s):  
Elizabeth Lightfoot ◽  
Heejung Yun ◽  
Rajean Moone ◽  
Jacob Otis ◽  
Kamal Suleiman ◽  
...  
Keyword(s):  
Older Adults ◽  
At Risk ◽  
Family Caregivers ◽  
Thematic Analysis ◽  
Family Caregiving ◽  
Structured Interviews ◽  
Adults With Disabilities ◽  
Services And Supports ◽  
Inductive Thematic Analysis

The strict restrictions to reduce the spread of COVID-19 have disrupted the lives of many at-risk people and their family caregivers. This study explored how family caregivers perceived that family caregiving had changed during COVID-19 and the strategies they used to cope with these changes. We conducted 52 semi-structured interviews with family caregivers of adults over age 65 or adults with disabilities and analyzed the data through an inductive thematic analysis. Caregivers perceived the largest COVID-19-related caregiving changes to be limited social and physical contacts, changed caregiving tasks, reduced services and supports, and a new focus on vigilance and safety. Caregivers made numerous changes to caregiving, including keeping connected, keeping relatives occupied, getting support and services in new ways, and reducing caregiver stress.

Experience, impact and needs of informal parental caregivers around the communication of a diagnosis of schizophrenia

2022 ◽  
pp. 002076402110689
Author(s):  
Véra Forcheron ◽  
Elodie Sacareau ◽  
Jérôme Bourgeois ◽  
Arnaud Pouchon ◽  
Mircea Polosan ◽  
...  
Keyword(s):  
Access To Care ◽  
Family Caregivers ◽  
Thematic Analysis ◽  
Unmet Needs ◽  
Structured Interviews ◽  
Parental Caregivers ◽  
Information Giving ◽  
Starting Point ◽  
Support Programmes ◽  
Inductive Thematic Analysis

Aims: To qualitatively characterize the experience, impact and needs of informal family caregivers around the communication of a diagnosis of schizophrenia. Methods: In all, 13 informal family caregivers were recruited. All were parents. Semi-structured interviews were used to explore their experience of the diagnosis of schizophrenia, the impacts of the diagnosis and the needs related to the diagnosis around its communication. Interviews were recorded, transcribed, codes generated and mixed deductive–inductive thematic analysis undertaken. Results: Participants described receiving the diagnosis of schizophrenia for their relative as a devastating experience, although some nuanced the experience with a sense of relief of finally naming the disorder and getting access to care. Caregivers’ experience and representations prior to hearing the diagnosis played an important role in the way the ‘news’ was internalized. The communication of the diagnosis constituted a starting point for acceptance of the reality of the illness in participants. Numerous unmet needs around the communication of the diagnosis were reported by participants, including personnalized support, specific explanations about the disorder and guidance on their role as caregiver. Conclusion: A specific attention must be given to the communication of the diagnosis of schizophrenia to the informal family caregivers. Information giving must be early, comprehensive, personalized and embedded into tailored education and support programmes for caregivers to facilitate illness acceptance and adaptation.

scholarly journals Navigating COVID-19 and Long-Term Care: Dementia Caregivers' Challenges and Strengths

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 9-9
Author(s):  
Lauren Mitchell ◽  
Elizabeth Albers ◽  
Robyn Birkeland ◽  
Henry Stabler ◽  
Jinhee Cha ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Thematic Analysis ◽  
Long Term Care ◽  
Well Being ◽  
Intervention Trial ◽  
Structured Interviews ◽  
Dementia Caregivers ◽  
Term Care ◽  
Services And Supports

Abstract Persons with dementia living in long-term care settings have been especially affected by the COVID-19 pandemic, and their family caregivers have had to cope with numerous additional stressors during this time. We conducted 20 semi-structured interviews and gathered open-ended survey data from N=104 caregivers participating in an ongoing intervention trial at the start of the COVID-19 pandemic. Open-ended questions explored the difficulties caregivers have experienced in caring for and supporting a relative in long-term residential care. Caregivers provided their perspectives about services and supports that have facilitated coping with uncertainty, anxiety, and loss during the pandemic, and identified resources and strengths they have found helpful in caring for their relatives. Thematic analysis was used to identify themes reflecting the key challenges and supports that have emerged for caregivers, and to highlight caregivers' recommendations for promoting their and their relatives' well-being during this crisis.

scholarly journals MOVING TOWARD BEST PRACTICES IN STATE APPROACHES TO SUPPORTING FAMILY CAREGIVERS OF OLDER ADULTS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S386-S386
Author(s):  
Julia Burgdorf ◽  
Jennifer Aufill ◽  
Jennifer L Wolff
Keyword(s):  
Older Adults ◽  
Best Practices ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Local Community ◽  
Service Providers ◽  
Key Informants ◽  
Community Needs ◽  
Services And Supports

Abstract In January 2018, Congress passed the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act to establish a national strategy to acknowledge and assist family caregivers. The success of such an effort will be contingent on knowledge and dissemination of best practices. We conducted a policy project funded by the Milbank Memorial Fund that profiles five geographically and politically diverse states that have pursued novel approaches to supporting family and unpaid caregivers of older adults. We discuss findings from national and state reports, state aging plans, and interviews with 26 key informants. We find that each state (Hawaii, Maine, Minnesota, Tennessee, Washington) sought to strengthen supports for family caregivers as an element of broader community-based long-term services and supports strategies. Supports for family caregivers included financial support for working caregivers, caregiver assessment and care planning, and expanded access to respite care: several states included these services within programs targeted to persons at high risk of institutionalization or Medicaid-entry. Key informants noted the importance of tailoring programs to suit each state’s unique demographic, geographic, and service delivery context, and reported that individual stories, advocacy, and data were critical to placing family caregiving on legislative policy agendas. State leaders highlighted the pivotal role of state aging networks in efforts to supporting caregivers, given these entities’ deep knowledge of local community needs and challenges and established relationships with local service providers. Meaningful change often required a long-term commitment and sustained incrementalism, typically by innovating on a smaller scale before expanding statewide.

“More than just another physical activity program”: exploring the GUM program for at-risk adolescent girls

2021 ◽  
Author(s):  
Nicole Hargreaves ◽  
Tanya Forneris ◽  
Catherine Sabiston ◽  
Stephen Berg ◽  
Kent Kowalski ◽  
...  
Keyword(s):  
Physical Activity ◽  
At Risk ◽  
Adolescent Girls ◽  
Thematic Analysis ◽  
Physical Activity Program ◽  
Structured Interviews ◽  
Activity Program ◽  
Secondary Purpose ◽  
Inductive Thematic Analysis

Abstract Physical activity (PA) levels among adolescent girls continue to steadily decline, especially for those classified as ‘at-risk’. To mitigate these trends, Girls United and on the Move (GUM) was created as a dual-component PA and psychosocial program. The primary purpose of this study was to explore participant experiences within GUM, with a secondary purpose of qualitatively informing future PA programs for ‘at-risk’ adolescent girls. Semi-structured interviews (N = 30) were conducted with a purposeful sample of girls from the GUM program. An inductive thematic analysis was utilized to analyze verbatim transcripts. Two themes were generated from the data: 1) Girls uplifting girls, outlining the importance of a girls-only environment and introducing opportunities for alternative PAs, and 2) finding balance between the physical and psychological, detailing the importance of the dual-component program. These findings provide support for the acceptability of an integrated psychosocial and PA program for at-risk adolescent girls.

State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers

2014 ◽  
Author(s):  
Susan C. Reinhard Reinhard ◽  
Ari Houser Houser ◽  
Enid Kassner Kassner ◽  
Robert Mollica Mollica ◽  
Kathleen Ujuari Ujuari ◽  
...  
Keyword(s):  
Older Adults ◽  
Family Caregivers ◽  
Physical Disabilities ◽  
Services And Supports ◽  
People With Physical Disabilities

The Socialization of Unpaid Family Caregivers: A Scoping Review

2021 ◽  
pp. 016402752110050
Author(s):  
Kirstie McAllum ◽  
Mary Louisa Simpson ◽  
Christine Unson ◽  
Stephanie Fox ◽  
Kelley Kilpatrick
Keyword(s):  
Older Adults ◽  
Family Caregivers ◽  
Scoping Review ◽  
Family Caregiving ◽  
Family Processes ◽  
Future Research ◽  
Socialization Process ◽  
Role Negotiation ◽  
Role Learning ◽  
Socialization Agents

As unpaid family caregiving of older adults becomes increasingly prevalent, it is imperative to understand how family caregivers are socialized and how they understand the caregiving role. This PRISMA-ScR-based scoping review examines the published literature between 1995–2019 on the socialization of potential and current unpaid family caregivers of older adults. Of 4,599 publications identified, 47 were included. Three perspectives of socialization were identified: (1) role acculturation; (2) role negotiation and identification; and (3) specialized role learning. The findings show how socialization involves different contexts (e.g., cultures), imperatives for action (e.g., circumstances), socialization agents (e.g., family), processes (e.g., modeling), and internal (e.g., normalization) and external (e.g., identification) consequences for caregivers. Future research could fruitfully explore how caregivers manage key turning points within the socialization process, disengage from the caregiving role, and negotiate the socialization and individualization processes within diverse cultural and funding contexts.

scholarly journals Integrating sport and exercise medicine clinics into the National Health Service: a qualitative study

2020 ◽  
Vol 6 (1) ◽  
pp. e000888
Author(s):  
Dane Vishnubala ◽  
Katherine Rose Marino ◽  
Margaret Kathryn Pratten ◽  
Andy Pringle ◽  
Steffan Arthur Griffin ◽  
...  
Keyword(s):  
National Health Service ◽  
Health Service ◽  
National Health ◽  
Thematic Analysis ◽  
Heavy Exercise ◽  
Structured Interviews ◽  
Ultrasound Education ◽  
Exercise Medicine ◽  
Sport And Exercise ◽  
Inductive Thematic Analysis

ObjectivesTo explore the services National Health Service (NHS)-based sport and exercise medicine (SEM) clinics can offer, and the barriers to creating and integrating SEM services into the NHS.MethodsSemi-structured interviews were undertaken to collect data from identified ‘stakeholders’. Stakeholders were identified as individuals who had experience and knowledge of the speciality of SEM and the NHS. An inductive thematic analysis approach was taken to analyse the data.ResultsN=15 stakeholder interviews. The management of musculoskeletal (MSK) injuries (both acute and chronic) and concussion were highlighted as the two key services that SEM clinics can offer that would most benefit the NHS. MSK ultrasound was also mentioned by all stakeholders as a critical service that SEM clinics should provide. While exercise medicine is an integral part of SEM, SEM clinics should perhaps not have a heavy exercise medicine focus. The key barriers to setting up SEM clinics were stated to be convincing NHS management, conflict with other specialities and a lack of awareness of the speciality.ConclusionThe management of acute MSK injuries and concussion should be the cornerstone of SEM services, ideally with the ability to provide MSK ultrasound. Education of others on the speciality of SEM, confirming consistent ‘unique selling points’ of SEM clinics and promoting how SEM can add value to the NHS is vital. If the successful integration of SEM into the NHS is not widely achieved, we risk the NHS not receiving all the benefits that SEM can provide to the healthcare system.

scholarly journals Telehealth sounds a bit challenging, but it has potential: participant and physiotherapist experiences of gym-based exercise intervention for Achilles tendinopathy monitored via telehealth

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
F. Hasani ◽  
P. Malliaras ◽  
T. Haines ◽  
S. E. Munteanu ◽  
J. White ◽  
...  
Keyword(s):  
Focus Group ◽  
Thematic Analysis ◽  
Exercise Intervention ◽  
Achilles Tendinopathy ◽  
Interpretive Description ◽  
Structured Interviews ◽  
Potential Participant ◽  
Delivery Of Care ◽  
Exercise Interventions ◽  
Inductive Thematic Analysis

Abstract Background Although telehealth is becoming more popular for delivery of care for individuals with musculoskeletal pain, to our knowledge telehealth has not been used to manage Achilles tendinopathy. This research aimed to explore the experience of participants and physiotherapists with gym-based exercise interventions for Achilles tendinopathy monitored via videoconference. Methods A qualitative, interpretive description design was performed using semi-structured interviews (8 participants) and a focus group (7 physiotherapists). Participants and physiotherapists were interviewed about their experiences of the use of telehealth during a gym-based exercise intervention incorporating different calf load parameters for Achilles tendinopathy. We employed an inductive thematic analysis approach to analyse the data. Results Three themes identified from both participants and physiotherapists included i) acceptability of telehealth; ii) enablers to adherence with telehealth; and iii) barriers to adherence with telehealth. Two extra themes arose from participants regarding adherence with gym-based exercise, including enablers to adherence with the exercise intervention, and barriers to adherence with the exercise intervention. Both participants and physiotherapists expressed overall satisfaction and acceptability of telehealth monitoring of gym-based exercise. Conclusion Gym-based exercise intervention for Achilles tendinopathy involving weekly telehealth monitoring was acceptable to both participants and physiotherapists. Potential enablers and barriers were identified that may improve adherence to this type of intervention.

Problematic caregiving activities among family carers of older adults with disabilities

2021 ◽  
Author(s):  
Oladele Atoyebi ◽  
Maude Beaudoin ◽  
François Routhier ◽  
Claudine Auger ◽  
Louise Demers ◽  
...  
Keyword(s):  
Older Adults ◽  
Mixed Methods ◽  
Thematic Analysis ◽  
Family Carers ◽  
Mixed Methods Approach ◽  
Adults With Disabilities ◽  
Sequential Mixed Methods

Family carers of older adults with disability often both experience stress that may affect their ability to provide care, and find some caregiving activities differentially challenging. The objectives of this research are to identify the caregiving activities that are most problematic to carers and to explore the reasons why carers found these activities challenging. Participants were past or current carers aged 19 years and older. Using an explanatory sequential mixed-methods approach, data were collected through a survey and open-ended interviews. Thematic analysis revealed that an activity was likely to be more problematic if it had to be coordinated with other caregiving needs or where a care recipient’s disability was severe.

The Importance of Religiosity to the Well-Being of African American Older Adults Living With Dementia

2018 ◽  
Vol 39 (5) ◽  
pp. 509-518 ◽  
Author(s):  
Fayron Epps ◽  
Ishan C. Williams
Keyword(s):  
Older Adults ◽  
Health Promotion ◽  
Family Caregivers ◽  
Family Involvement ◽  
Health Care Providers ◽  
Well Being ◽  
Religious Practices ◽  
Care Providers ◽  
Religious Activities ◽  
Structured Interviews

This study was a post hoc analysis of a larger qualitative descriptive study exploring family involvement in health promotion activities for African Americans living with dementia where participants identified religious practices as meaningful health promotion activities. The purpose of this study was to explore ways in which religiosity may influence the well-being of older adults living with dementia. Semi-structured interviews were conducted among a sample of 22 family caregivers and 15 older adults living with dementia ( N = 37). Three themes emerged: Engagement, Promotion of Faith and Spiritual Connectedness, and Maintenance of Religious Practices. It is imperative for family caregivers to understand the important contributions of religious activities and beliefs to the well-being of their family member. This information might be of use for faith communities, policy makers, and health care providers in the provision of optimal person-centered care and the promotion of quality of life for persons living with dementia.

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