scholarly journals A study of two generic health-related quality of life questionnaires—Nottingham Health Profile and Short-Form 36 Health Survey—and of coping in patients with sensory hyperreactivity

2013 ◽  
Vol 11 (1) ◽  
pp. 182 ◽  
Author(s):  
Marja-Leena Kristofferzon ◽  
Ewa Ternesten-Hasséus
2001 ◽  
Vol 89 (3) ◽  
pp. 707-717 ◽  
Author(s):  
E. M. TenVergert ◽  
K. M. Vermeulen ◽  
A. Geertsma ◽  
P. J. van Enckevort ◽  
W. J. de Boer ◽  
...  

Whether lung transplantation improves Health-related Quality of Life in patients with emphysema and other end-stage lung diseases before and after lung transplantation was examined. Berween 1992 and 1999, 23 patients with emphysema and 19 patients with other indications completed self-administered questionnaires before lung transplantation, and at 4, 7, 13, and 25 mo. after transplantation. The questionnaire included the Nottingham Health Profile, the State-Trait Anxiety Inventory, the Self-rating Depression Scale, the Index of Well-being, the self-report Karnofsky Index, and four respiratory-specific questions. Neither before nor after transplantation were significant differences found on most dimensions of Health-related Quality of Life between patients with emphysema and other indications. Before transplantation, both groups report major restrictions on the dimensions Energy and Mobility of the Nottingham Health Profile, low experienced well-being, depressive symptoms, and high dyspnea. About 4 mo. after transplantation, most Health-related Quality of Life measures improved significantly in both groups. These improvements were maintained in the following 21 mo.


2018 ◽  
Vol 4 ◽  
pp. 233372141878281 ◽  
Author(s):  
Esmeralda Valdivieso-Mora ◽  
Mirjana Ivanisevic ◽  
Leslie A. Shaw ◽  
Mauricio Garnier-Villarreal ◽  
Zachary D. Green ◽  
...  

2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Thy Thy Vanem ◽  
Svend Rand-Hendriksen ◽  
Cathrine Brunborg ◽  
Odd Ragnar Geiran ◽  
Cecilie Røe

Abstract Background Marfan syndrome, a rare hereditary connective tissue disorder caused by mutations in fibrillin-1, can affect many organ systems, especially the cardiovascular system. Previous research has paid less attention to health-related quality of life and prospective studies on this topic are needed. The aim of this study was to assess changes in health-related quality of life after 10 years in a Norwegian Marfan syndrome cohort. Methods Forty-seven Marfan syndrome patients ≥ 18 years were investigated for all organ manifestations in the 1996 Ghent nosology and completed the self-reported questionnaire, Short-Form-36 Health Survey, at baseline in 2003–2004 and at follow-up in 2014–2015. Paired sample t tests were performed to compare means and multiple regression analyses were performed with age, sex, new cardiovascular and new non-cardiovascular pathology as predictors. Results At 10-year follow-up: a significant decline was found in the physical domain. The mental domain was unchanged. Older age predicted a larger decline in physical health-related quality of life. None of the chosen Marfan-related variables predicted changes in any of the subscales of the Short-Form 36 Health Survey or in the physical or the mental domain. Conclusion Knowledge of decline in the physical domain, not related to organ affections, may be important in the follow-up of Marfan syndrome patients.


2021 ◽  
Vol 13 (23) ◽  
pp. 13370
Author(s):  
Andreas Ihle ◽  
Bruna R. Gouveia ◽  
Élvio R. Gouveia ◽  
Boris Cheval ◽  
Marcelo de Maio Nascimento ◽  
...  

The present cross-sectional study aimed to investigate the relationship between different dimensions of physical activity (PA) (i.e., work, sport, leisure) and health-related quality of life (HRQoL) (i.e., overall, physical component, mental component) in an adult lifespan sample of 381 active individuals (age range: 18–88 years; 38.8% men), while controlling for important covariates in terms of sex, age, education, and health profile regarding medical history. HRQoL was assessed using the 12-item Short-Form Health Survey (SF-12). Usual (i.e., previous 12 months) PA was assessed during face-to-face interviews using the Baecke questionnaire. Hierarchical regression analyses showed in Step 1 that the three PA dimensions work, sport, and leisure (entered simultaneously) together predicted 8%, 10%, and 4% of the variance in SF-12 total score, SF-12 physical component, and SF-12 mental component, respectively. In the final model, adjusting for sex, age, education, and health profile regarding medical history, sport emerged as the only PA dimension predicting SF-12 total score and the SF-12 physical component. In conclusion, health-policy targets at the community level should include the promotion of lifelong engagement in PA, especially sport, to allow the sustainability of HRQoL across the lifespan of our society.


2018 ◽  
Vol 31 (7-8) ◽  
pp. 399
Author(s):  
Pedro Coelho ◽  
Lara Noronha Ferreira ◽  
Clara Vital ◽  
José Fragata

Introduction: Aortic valve replacement surgery is done to increase patients’ life expectancy and improve their health-related quality of life. Several published studies have found improvement in health-related quality of life after this procedure, but none have involved patients in Portugal. This study sought to evaluate patients’ health-related quality of life after the implantation of aortic prostheses and compare these values with preoperative health-related quality of life and the general Portuguese population’s health-related quality of life.Material and Methods: A retrospective study was done with elective patients who underwent implantation of an aortic prosthesis between August 2011 and April 2016. Health-related quality of life was evaluated using the Short Form 36 Health Survey and Short Form 6 Health Survey questionnaires in the preoperative period and 3, 6 and 12 months post-surgery. Descriptive and inferential analyses were conducted to process the data and compare preoperative health-related quality of life with postoperative values and the Portuguese population’s norms.Results: The sample included 506 patients with an average age of 70.6 years. The majority are male (53.6%). The postoperative results show a statistically significant improvement compared to preoperative health-related quality of life in all eight dimensions of the Short Form 36 Health Survey. When contrasted with the general Portuguese population, patients’ health-related quality of life is lower in the preoperative period, improving postoperatively and reaching higher than average health-related quality of life levels in some subgroups of patients and in various dimensions. An analysis of the Short Form 6 Health Survey results revealed that the patients undergoing this surgery have a higher level of preoperative problems compared with the general population, but these patients’ values approach those of the general population by the end of one year post-surgery.Discussion: This is the first study in Portugal that compares health-related quality of life using a validated scale, before and after the aortic prosthesis implantation surgery. The results demonstrate a significant improvement in all dimensions, which is not consistently observed in other published studies. Conclusion: The results confirm that the implantation of aortic prostheses improves patients’ health-related quality of life, over time bringing it close to the general population’s levels.


1992 ◽  
Vol 70 (2) ◽  
pp. 608-610 ◽  
Author(s):  
G. I. J. M. Kempen

Researchers concluded that Item 2 of the Short-form General Health Survey of the Medical Outcomes Study can be used as a single-item measure of health-related quality of life. This conclusion is tested again on a random sample of elderly people in the Netherlands. Although it can be concluded that the psychometric properties of the short form are satisfactory, the use of the single item as a measure of health-related quality of life is discussed.


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