A survey on social media use and expectations in cancer patients.

2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e18183-e18183
Author(s):  
Shamsher Ali ◽  
Mark W. Knestrick ◽  
Lori Aciavatti ◽  
Sijin Wen ◽  
Nilay Arvind Shah

e18183 Background: Social media encompasses a wide variety of web based and mobile technologies. It has become increasingly popular, allowing for rapid communication and dissemination of information. Many believe that social media can be used as a platform for patient education and knowledge sharing. This survey intended to assess patient use of social media and patient expectations for its role at our cancer center. Methods: The study took place at West Virginia University (WVU) Hospital/Mary Babb Randolph Cancer Center, a tertiary care center. This IRB-approved, anonymous, and voluntary survey included twenty-five questions that abstracted patient data which included: age, gender, cancer type, level of education, internet use, information sources for given cancer, use of social media, and the use of WVU cancer website and social media. The survey was distributed by nursing staff to patients who were at least 18 years of age Results: 370 surveys were collected in total. 87.6 % of patients reported using social media, with Facebook as the most commonly used platform at 85.6 %. 70% reported to view or update social media sites daily. All patients reported at least monthly internet use with 61.1 % of patients reported using the internet daily. 32.7% of patients interact with WVU Cancer Centeron social media daily. When asked how patients search for background information or reviews about their provider, 57.8% of patients reported they used our institution’s website. 55.7% of patients believe it would beneficial to contact their cancer provider through social media. Only 22% of patients reported they use social media for medical information. Conclusions: With the increasing use of social media for medical information over the past several years, it is crucial for academic centers and providers to keep up with the growing demand to provide accurate and practical information for patients. Our data suggests our patient population would like to see an increased use of social media from the cancer center and its providers. The information can be used to update our cancer website and social media sites to provide patient-centered cancer information in hopes that patients will have one reliable source for all of their disease related questions and concerns.

Author(s):  
Annisa Lee ◽  
Stephan Hyeonjun Stiller

An estimated 2.62 billion people use social networking sites worldwide. Only recently have studies been carried out to explore the impact of social media in terms of creating new conditions such as cyberbullying, Internet addictions, and suicide contagion, among many other forms of mental health concerns. However, social media can play a role in education and public mental health interventions. Different types of social media include computerized self-help strategies, online psychotherapy and support groups, websites with medical information, forums, blogs, web applications, mobile apps, games, and networking platforms like Facebook, Instagram, Google+, Snapchat, Twitter, Flickr, YouTube, Pinterest, and Reddit. There are generational differences in the degree of familiarity and use of social media for gathering information and seeking education. The challenge for clinicians and public health educators is to try and use social media for betterment of society.


2019 ◽  
Vol 26 (1) ◽  
pp. 107327481984144 ◽  
Author(s):  
Jinhai Huo ◽  
Raj Desai ◽  
Young-Rock Hong ◽  
Kea Turner ◽  
Arch G. Mainous ◽  
...  

The number of social media users has increased substantially in the past decade, creating an opportunity for health-care professionals and patients to leverage social media for health communication. This study examines the recent use and predictors of social media for health communication in a nationally representative sample of US adults over time. We used 2013, 2014, and 2017 National Cancer Institute’s Health Information National Trends Survey to identify respondents’ use of social media for sharing health information or exchanging medical information with a health-care professional. We conducted bivariate analysis using the Pearson χ2 test to assess the association of respondents’ basic demographic characteristics as well as health status and the use of social media for health communication. We performed multivariable logistic regression models to examine factors associated with the use of social media for health communication. We identified 4242 respondents (weighted sample size: 343 465 241 [2-year pooled sample]) who used social media for sharing health information and 4834 respondents (weighted sample size: 354 419 489 [2-year pooled sample]) who used social media for exchanging medical information. Multivariable analyses indicated the proportion of respondents who used social media for sharing health information has decreased (odds ratio [OR], 0.65; 95% confidence interval [CI], 0.49-0.85, P = .002), while the use of social media for exchanging medical information with a health-care professional has increased (OR, 1.88; 95% CI, 1.09-3.26, P = .025). The younger population had significantly higher odds of using social media for health communication. The study found no racial/ethnic disparities in the use of social media for health communication. Use of social media for sharing health information has declined, while exchanging medical information with health-care professionals has increased. Future research is needed to determine how to engage the population in social media–based health interventions, particularly for older adults.


10.2196/16768 ◽  
2020 ◽  
Vol 22 (4) ◽  
pp. e16768 ◽  
Author(s):  
Yan Li ◽  
Shan Ye ◽  
Yidong Zhou ◽  
Feng Mao ◽  
Hailing Guo ◽  
...  

Background The internet allows patients to easily look for health information. However, how Chinese patients with breast cancer use the internet has rarely been investigated, and there is a scarcity of information about the influence of internet use on survival. Objective This observational study aimed to investigate the details of online medical information searching by Chinese patients with breast cancer and to determine whether internet use has any survival benefits. Methods Patients who were diagnosed with invasive breast cancer at Peking Union Medical College Hospital between January 2014 and December 2015 were enrolled. We obtained information on their internet-searching behavior and gathered data from the patients’ medical and follow-up records. The associations between internet use and other clinic-pathological factors were analyzed. A Cox proportional-hazards model and the Kaplan-Meier method were used for disease-free survival (DFS) analyses. Results A total of 973 patients with invasive breast cancer who underwent definitive surgery took part in the study. Among them, 477 cases (49.0%) performed web-based breast cancer information searching before the initial treatment. A multivariate logistic regression analysis suggested that web-based breast cancer information searching was significantly associated with younger age (odds ratio [OR] 0.95, 95% CI 0.94-0.97, P<.001), higher education level (OR 1.37, 95% CI 1.01–1.86, P=.04), and breast conserving surgery (OR 1.35, 95% CI 1.04-1.77, P=.03). Baidu (73.4%, 350/477) and WeChat (66.7%, 318/477) were the two most popular online information sources for breast cancer; however, only 44.9% (214/477) felt satisfied with the online information. In contrast to the nonweb searching group, the web-using patients who were satisfied with online information showed significantly improved DFS (hazard ratio 0.26; 95% CI 0.08-0.88, P=.03). Conclusions The patients who were most likely to search the internet for breast cancer information were younger and well-educated, and they were more likely to have breast conserving therapy. Web-using patients who were satisfied with the internet information showed significantly improved DFS. Patients should browse credible websites offering accurate and updated information, and website developers should provide high-quality and easy-to-understand information to better meet the needs of patients with breast cancer.


2020 ◽  
Author(s):  
Rita Murri ◽  
Francesco Vladimiro Segala ◽  
Pierluigi Del Vecchio ◽  
Antonella Cingolani ◽  
Eleonora Taddei ◽  
...  

AbstractIn the face of the rapid evolution of the COVID-19 pandemic, healthcare professionals on the frontline are in urgent need of frequent updates in the accomplishment of their practice. Hence, clinicians started to search for prompt, valid information on sources parallel to academic journals publications. Aim of this work is to investigate the extent of this phenomenon.We administered an anonymous online cross-sectional survey to 645 Italian clinicians. 369 questionnaires were returned. 19,5% (n=72) of respondents were younger than 30 years-old; 49,3% (n=182) worked in Infectious Diseases, Internal Medicine or Respiratory Medicine departments, 11.5% (n=42) in Intensive Care Unit and 7.4% (n=27) were general practitioner. 70% (n=261) of respondents reported that their use of social media to seek medical information increased during the pandemic. 39.3% (n = 145) consistently consulted Facebook groups and 53.1% (n = 196) Whatsapp chats. 47% (n = 174) of respondents reported that information shared on social media had a consistent impact on their daily practice. In the present study, we found no difference in social media usage between age groups or medical specialties.Given the urgent need for scientific update in face of the present health emergency, these findings may help understanding how clinicians access new evidences and implement them in their daily practice.


Author(s):  
Simone Smala ◽  
Saleh Al-Shehri

Social networking media are becoming more widespread as educational learning sites. For this reason, it is important to investigate how concerns about identity management can interfere with or influence the planned learning processes. This chapter engages initially with current research that investigates the use of social media with a particular focus on issues of identity management. It then provides a close analysis of identity management among student users of dedicated Facebook pages in tertiary education settings, as part of a larger study into contextual language learning and the educational potential of mobile technologies and social media. The study concludes that issues around publically sharing information with classmates (whom you might or might not “befriend” on social media sites), and the exposure that comes with sharing one’s background and potentially contentious political views are probably experienced by students worldwide.


Author(s):  
Christina Navas ◽  
Vivian Tisi ◽  
Tamala Close

This chapter will provide the reader with information on the importance of grassroots organization in addressing social justice issues for speech-language pathologists (SLP). The authors provide background information on the use of social media to promote social justice efforts. The chapter also identifies and discusses the development and implementation of two online platforms that have been effective in raising awareness about the importance of diversity, advocacy, and social justice issues in the field of speech-language pathology. It provides the reader with important information on the issues and problems in the field of SLP that led to the development of the two online platforms and the processes involved with developing them. Finally, the chapter concludes with a description of previous and current goals and outcomes, along with future endeavors of both platforms and recommendations for others who are interested in using social media as a tool to transform professional environments to facilitate justice within the discipline and society.


2014 ◽  
Vol 9 (1) ◽  
pp. 42 ◽  
Author(s):  
Maria Melssen

Objective – To determine if the behaviours of students studying in the library are primarily study or non-study related, the extent to which these behaviours occur simultaneously, what types of study and non-study behaviours are most common, and if the time of day or use of social media have an effect on those behaviours. Design – Observational study. Setting – Two university libraries in New York. Subjects – A total of 730 university students. Methods – Two librarians at 2 separate university libraries observed and recorded the behaviours of 730 students. Observations were conducted over the course of several weeks during the Fall of 2011 in the designated study or quiet areas, reference room, and at computer terminals of the libraries. Observations were made by walking past the students or by observing them from a corner of the room for between 3 to 10 seconds per student. Student activities were recorded using a coding chart. The librarians also collected data on the perceived age, gender, and ethnicity of the students and whether the students were using a computer at the time of observation. If students displayed more than one behaviour during a single observation, such as talking on the phone while searching the library’s online catalogue, the first behaviour observed or the behaviour that was perceived by the observer to be the dominant behaviour was coded behaviour 1.The second behaviour was coded behaviour 2. Main Results – The behaviours of 730 students were observed and recorded. Two librarians at separate universities were responsible for data collection. Kappa statistical analysis was performed and inter-rater reliability was determined to be in agreement. Data was analyzed quantitatively using SPSS software. Over 90% of students observed were perceived to be under 25 years of age and 56% were women. The majority were perceived to be white (62%). Of the 730 observations, 59% (430) were study related and 37% (300) were non-study related. The most common study related behaviours included reading school-related print materials (18.8%) and typing/working on a document (12.3%). The most common non-study related behaviours included Facebook/social media (11.4%) and website/games (9.3%). The least common study related behaviour was using the school website (1.2%) and the least common non-study related behaviour was “other on the phone” (0.1%). Second behaviours were observed in 95 of the 730 students observed. Listening to music was the most common second behaviour (35.8%) and educational website was the least common (1.1%). Most study observations were made on Mondays and most non-study observations were made on Thursdays and Fridays. Throughout the entire day, study related behaviours were observed between 62-67% of the time regardless of the time of day. Students working on computers were more likely to be observed in engaging in non-study related behaviour (73%) than those not working on a computer (44%). Conclusion – Students display a variety of study and non-study behaviours throughout the day with the majority of the behaviours being study related. Students also blend study and non-study activities together, as evident in their switching between study and non-study related behaviours in a single observation and their ability to multitask. Data gathered from this study provides evidence that students view the library as not only a place for study but also a place for socialization. Several limitations of this study are acknowledged by the authors. First, behaviours that appear to be non-study related, such as watching videos on YouTube, could be study related. Many faculty members utilize social media tools such as Facebook, Twitter, and YouTube to support their course content. A student observed watching YouTube videos could be watching a professor’s lecture, not a video for entertainment purposes only. This lack of knowing definitively why students are utilizing social media while in the library may have led the authors to mistake non-study behaviour for study behaviour. An additional limitation is the short duration of time spent observing the students as well as the proximity of the observer to the student. Observations lasting longer than 3 to 10 seconds and made at a closer range to the students could provide more accurate data regarding what type of behaviours students engage in and for how much time. In addition to the before mentioned limitations, the authors acknowledge that they had no way of knowing if the individuals being observed were actual students: the assumed students could have been faculty, staff, or visitors to the university. Due to the study’s limitations, further research is needed to determine in greater detail what students are doing while they are studying in the library. This data would allow librarians to justify the need to provide both study and non-study space to meet the diverse needs of students. Conducting a cohort study would allow researchers to observe student behaviour longitudinally. It would minimize the limitations of short-term student observation as well as the proximity of the observer to the student. Research on the use of mobile technologies by students, such as smart phones, to access study related material while they are in the library would also yield valuable data regarding student study behaviours.


2020 ◽  
Author(s):  
Anggi Cecilia Safaningrum ◽  
A. R. Setiawan

This study examined the use of WhatsApp Messenger as a tutorial platform for Arabic language lifelong learning (A3L) at the Velsuf Institute. An exploratory research design was adopted and the purposive sampling technique was used in selecting participants for the study. Specifically, the study comprises 40 Velsuf Institute A3L learners. The WhatsApp Messenger was used as a tutorial delivery tool for the learners. Two research questions were raised and analyzed qualitatively. The result of the analysis indicated that WhatsApp Messenger could be used as tutorial delivery tool for A3L following the prescribed steps and procedures. Twelve Arabic lessons were learned which include contents for learners, quizzes, feedbacks and learner supports. Based on the findings, it was recommended that researchers need to extensively respond to the growing need of a body of research in this area, especially building models and strategies that work for the use of social media for the improvement of A3L delivery. Additionally, the A3L facilitators should be equipped with the skills of using mobile technologies, particularly the social media for A3L enhancement.


2021 ◽  
Author(s):  
Sylvia Kesewaa Ofori ◽  
Emmanuel Akowuah ◽  
Doyinsola Babatunde ◽  
Logan Cowan ◽  
Frank Baiden

Background: Information and Communication Technologies (ICTs) have improved the delivery of healthcare worldwide especially in disease control, patient management, and health data analysis. However, access to infrastructure like computers and knowledge of ICT is a major problem to various digital health initiatives among health professionals. Objective: The aim of the present study was, to assess healthcare workers' basic computer skills and use of social media and identify specific deficiencies that require training to help them function effectively. Methods: We conducted a cross-sectional study among 51 healthcare workers in seven health centers in a region in Ghana over three months using a self-administered pre-tested questionnaire. Results: Half of the participants had adequate basic computer skills, of which 60.87% were women (P=0.0205). Only 15.69%, who were all males, of participants used computer software at least once a month. Most participants also used Facebook and WhatsApp. Conclusion: Health professionals in the health centers need to be trained on basic computer skills and, information technology should be incorporated into the health systems for efficient health delivery.


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