scholarly journals Parental control in different life contexts for paediatric cystic fibrosis patients

2021 ◽  
Vol 39 (1) ◽  
pp. 93-105
Author(s):  
Catiele Paixão ◽  
Patrícia Alvarenga ◽  
Luisa Barros ◽  
Edna Lúcia Souza
Keyword(s):  
Cystic Fibrosis ◽  
Peer Interaction ◽  
Peer Interactions ◽  
Control Strategies ◽  
Parental Control ◽  
Statistical Analyses ◽  
Daily Routine ◽  
Demographic Information ◽  
Childrearing Practices ◽  
The Family

This study aimed to comprehensively describe parental control strategies (appropriate support, critical control or overprotection) in the distinct living contexts of paediatric cystic fibrosis patients (namely daily routine and peer interaction). Fourteen mothers and two fathers of children with cystic fibrosis participated in the study. Children’s ages ranged from 5 to 12 years old (M=7.00; SD=2.25). Participants answered the Interview on Childrearing Practices and The New Friends Vignettes and provided socio-demographic information concerning the family and clinical details about the child’s illness. Descriptive statistical analyses were performed. Appropriate support was the most frequently reported strategy in both contexts, with 83.9% in daily routine and 44.37% in peer interaction. In the daily routine context, reports of critical control were infrequent (15.68%), especially regarding the treatment for cystic fibrosis. In the peer interaction context, reports of overprotection were more frequent (38.48%) than reports of critical control (17.15%). Parents may be more flexible and responsive to children’s difficulties associated with treatments than to other types of disturbing behaviours in their daily routine, while problems in peer interactions tend to evoke overprotective strategies.

Training Graduate Student Clinicians to Use Preschool Peer Interaction Strategies

2009 ◽  
Vol 19 (1) ◽  
pp. 13-18
Author(s):  
Corey L. Herd
Keyword(s):  
Language Development ◽  
Training Program ◽  
Peer Interaction ◽  
Graduate Program ◽  
Peer Interactions ◽  
Graduate Programs ◽  
Communication Disorders ◽  
Learning Opportunities ◽  
Knowledge And Skills ◽  
Direct Training

Abstract Playing with peers is an important part of childhood—what children learn from interacting with one another has enormous impact on both their social and language development. Although many children naturally develop the ability to interact well with peers, some children have difficulty interacting with other children and may miss out on important learning opportunities as a result. Speech-language pathologists (SLPs) can target the peer interactions of young children on their caseload, assuming that they have the knowledge and skills with which to address them. SLP graduate programs have the opportunity to provide future SLPs with both knowledge and skills-based training. This study assessed a graduate program in which three graduate clinicians participated in a preschool program for children with communication disorders; peer interactions were targeted within the program. The students were observed and data was collected regarding their use of peer interaction facilitation strategies in the group sessions both prior to and after they participated in a direct training program regarding the use of such skills. Outcomes indicate that the direct training program resulted in a statistically significant increase in the students' use of different strategies to facilitate peer interactions among the children in the group.

scholarly journals Differences in the perception of parental involvement in homework depending on the level of student motivation

2015 ◽  
Vol 5 (3) ◽  
pp. 313-323
Author(s):  
Bibiana Regueiro ◽  
Susana Rodríguez ◽  
Isabel Piñeiro ◽  
Iris Estévez ◽  
Mar Ferradás ◽  
...  
Keyword(s):  
Intrinsic Motivation ◽  
Family Involvement ◽  
Family Environment ◽  
Student Motivation ◽  
Parental Support ◽  
Parental Control ◽  
School Students ◽  
School Work ◽  
The Family ◽  
Different Levels

The main purpose of this work is to check if the student motivation is an important factor in their perception of family involvement on homework. This is to check the relationships between different levels of intrinsic motivation towards school work of students in secondary and their perceptions of parental support and the type of feedback provided by their parents to homework, including the latter parental support and parental control. The sample consists of 730 (43.4% male; 56.6% female) of Secondary School students (12 to 16). The results show that higher levels of intrinsic motivation are associated with a higher perception of students regarding parental accompaniment to do homework and parental control and support them. We conclude, therefore, that student motivation is a factor of great importance to the involvement of the family environment and, more specifically, for the support and feedback provided by parents regarding homework.

IMPACT OF CYSTIC FIBROSIS ON FAMILY FUNCTIONING

PEDIATRICS ◽  
1964 ◽  
Vol 34 (1) ◽  
pp. 67-71
Author(s):  
Juanita Turk
Keyword(s):  
Cystic Fibrosis ◽  
Family Relationships ◽  
Psychological Functioning ◽  
Sick Child ◽  
The Other ◽  
Family Needs ◽  
Entire Family ◽  
The Social ◽  
The Family ◽  
Family Service Agencies

This study was undertaken to determine whether families of children with cystic fibrosis were experiencing difficulties in meeting family needs and in maintaining normal family relationships. It was found that families were not deprived of the essentials of living, but they were not able to maintain their usual pattern of family relationships. Time and energy precluded carrying on activities with each other and with the children; and there was breakdown in their ability to communicate adequately between themselves and the children regarding important family issues. In order to preserve the family as a functioning unit, someone has to be concerned about the entire family. Of necessity, the family has focused on the sick child, leaving the physician, the nurse, the social worker and/or the social agencies to help the family refocus on its total situation, rather than just a part of it. Traditionally, the mother takes care of the sick child. It is she who takes the child to the doctor's office and is responsible for carrying out his recommendations. In the care of a CF child, she assumes a heavy burden and frequently is fatigued from this responsibility. Because she is so tired and so occupied, she may misunderstand or distort what she is told by the physician, and may not be able to tell her husband or the children what they need to know in order to participate in family activities and in the care of the CF child. This situation can easily lead to misunderstanding and tension within the family. To avoid this, both parents could be encouraged, at some point, to come together to the physician's office for discussion. Such discussions could lead to more consideration and appreciation being given to each other. It might lessen the tendency for each to blame the other for the child's illness and could avoid the feeling voiced by one mother, "I would like to blow him out of his chair so that he would help me and understand what I go through." We also need to realize that the CF child is frequently aware of the demands he makes on the family. If these demands are not discussed freely, then everyone is caught in a "web of silence" revolving around his own feelings of frustration. This creates a burden for everyone, including the CF child, and if not discussed it can impair the psychological functioning of all members. The CF child needs to be encouraged to participate in his own care program and to assume some responsibilities for himself. He should not reach the age of seven being unable to tie his own shoes or dress himself, as has been observed in some CF children. It would seem feasible, therefore, that the CF child should have an awareness of what is wrong with him, and what his abilities and limitations are. The other siblings should also be given as much explanation as possible because they, too, are part of the family and attention and care is being diverted from them. This explanation could make for more understanding on the sibling's part. While it would still be difficult for him to accept some of the decisions made (such as why the parents could not get home from the hospital in order for him to use the family car for a senior prom), he would know that it was the situation that was causing the decrease in attention and care rather than rejection of him by the parents. In order to give these families as much assistance as possible, the community's resources should be utilized. Frequently, the parents are unaware of these or need encouragement to avail themselves of services. The homemaker service or visiting nurse service could free the family from constant care; the local youth program could be helpful to the siblings in the family, and Family Service Agencies could be used for counseling on family problems. In summary, this study points up the need for the total family to have an understanding and awareness of CF and to share such knowledge with one another; that all problems of the family have to be considered and not just those of the CF child; and that help from other professional people should be utilized along with sources of the community.

Caligids-potential pathogens for marine finfish aquaculture in Mexico?

2017 ◽  
Vol 44 (3) ◽  
pp. 433-441
Author(s):  
Francisco Neptalí Morales-Serna ◽  
Juan Manuel Martínez-Brown ◽  
Rosa Maria Medina-Guerrero ◽  
Emma Josefina Fajer-Ávila
Keyword(s):  
Coastal Waters ◽  
Host Location ◽  
Current Knowledge ◽  
Control Strategies ◽  
Sea Lice ◽  
Ecological Studies ◽  
Parasitic Copepods ◽  
The Family ◽  
And Control ◽  
Finfish Aquaculture

Parasitic copepods of the family Caligidae, the so-called sea lice, may be deleterious to marine or brackish finfish aquaculture. To date, biological and ecological studies of sea lice have been mostly restricted to species from cold or temperate regions. In Mexico there are some records of sea lice species on marine fishes; however, the research regarding their biology and ecology has been scarce. It is possible that a high biodiversity of sea lice is distributed in coastal waters of Mexico; therefore, their significance as pathogenic parasites should increase. The purpose of this review is to outline the current knowledge of the life cycle, host location, ecology, effect on fish health, and control strategies of sea lice in order to establish supportive basis for natural resource management and control of parasites and diseases of marine fish cultured in Mexico.

scholarly journals Applicability of a Web-Based, Individualized Exercise Intervention in Patients With Liver Disease, Cystic Fibrosis, Esophageal Cancer, and Psychiatric Disorders: Process Evaluation of 4 Ongoing Clinical Trials (Preprint)

2017 ◽  
Author(s):  
Daniel Pfirrmann ◽  
Nils Haller ◽  
Yvonne Huber ◽  
Patrick Jung ◽  
Klaus Lieb ◽  
...  
Keyword(s):  
Physical Activity ◽  
Cystic Fibrosis ◽  
Clinical Trials ◽  
Liver Disease ◽  
Activity Level ◽  
Daily Routine ◽  
Intervention Period ◽  
Web Based ◽  
Significant Change ◽  
Disease Specific

BACKGROUND In the primary and secondary prevention of civilization diseases, regular physical activity is recommended in international guidelines to improve disease-related symptoms, delay the progression of the disease, or to enhance postoperative outcomes. In the preoperative context, there has been a paradigm shift in favor of using preconditioning concepts before surgery. Web-based interventions seem an innovative and effective tool for delivering general information, individualized exercise recommendations, and peer support. OBJECTIVE Our first objective was to assess feasibility of our Web-based interventional concept and analyze similarities and differences in a sustained exercise implementation in different diseases. The second objective was to investigate the overall participants’ satisfaction with our Web-based concept. METHODS A total of 4 clinical trials are still being carried out, including patients with esophageal carcinoma scheduled for oncologic esophagectomy (internet-based perioperative exercise program, iPEP, study), nonalcoholic fatty liver disease (hepatic inflammation and physical performance in patients with nonalcoholic steatohepatitis, HELP, study), depression (exercise for depression, EXDEP, study), and cystic fibrosis (cystic fibrosis online mentoring for microbiome, exercise, and diet, COMMED, study). During the intervention period, the study population had access to the website with disease-specific content and a disease-specific discussion forum. All participants received weekly, individual tailored exercise recommendations from the sports therapist. The main outcome was the using behavior, which was obtained by investigating the log-in rate and duration. RESULTS A total of 20 participants (5 from each trial) were analyzed. During the intervention period, a regular contact and a consequent implementation of exercise prescription were easily achieved in all substudies. Across the 4 substudies, there was a significant decrease in log-in rates (P<.001) and log-in durations (P<.001) over time. A detailed view of the different studies shows a significant decrease in log-in rates and log-in durations in the HELP study (P=.004; P=.002) and iPEP study (P=.02; P=.001), whereas the EXDEP study (P=.58; P=.38) and COMMED study (P=.87; P=.56) showed no significant change over the 8-week intervention period. There was no significant change in physical activity within all studies (P=.31). Only in the HELP study, the physical activity level increased steadily over the period analyzed (P=.045). Overall, 17 participants (85%, 17/20) felt secure and were not scared of injury, with no major differences in the subtrials. CONCLUSIONS The universal use of the Web-based intervention appears to be applicable across the heterogonous collectives of our study patients with regard to age and disease. Although the development of physical activity shows only moderate improvements, flexible communication and tailored support could be easily integrated into patients’ daily routine. CLINICALTRIAL iPEP study: ClinicalTrials.gov NCT02478996; https://clinicaltrials.gov/ct2/show/NCT02478996 (Archived by WebCite at http://www.webcitation.org/6zL1UmHaW); HELP study: ClinicalTrials.gov NCT02526732; http://www.webcitation.org/6zJjX7d6K (Archived by WebCite at http://www.webcitation.org/6Nch4ldcL); EXDEP study: ClinicalTrials.gov NCT02874833; https://clinicaltrials.gov/ct2/show/NCT02874833 (Archived by WebCite at http://www.webcitation.org/6zJjj7FuA)

scholarly journals The sibling as a factor of parental control over the use of gadgets by children

2021 ◽  
Vol 119 ◽  
pp. 05001
Author(s):  
Nadezhda Sivrikova ◽  
Elena Nemudraya ◽  
Natalya Gilyazeva ◽  
Ekaterina Gnatyshina ◽  
Elena Moiseeva
Keyword(s):  
Young Children ◽  
Parental Control ◽  
Digital Technologies ◽  
Second Child ◽  
Digital Devices ◽  
Frequency Of Use ◽  
The Family ◽  
Mathematical Processing ◽  
The Impact ◽  
Parental Strategies

The study aimed to examine the impact on parental strategies of regulating children’s digital gadgets from having a second child in the family. Ninety-three mothers took part in the survey. Twenty women had two children, one woman – three children, the others women – on one child. Parents evaluated the frequency of use of digital devices by each child and then filled out several checklists. The mathematical processing of data is represented by the analysis of сrosstabs (Cramer’s V Test and Somer’s D Test). The results of the study show that the use of digital devices is widespread among young children. At the same time, with the presence of senior siblings, the age of admission of the child to digital devices decreases. Thus, young children are exposed to digital technologies. Most parents seek to regulate the time and content children use. However, their rules were less stringent for the second child in the family. Parents should pay more attention to this.

scholarly journals Leafhoppers and cixiids in phytoplasma-infected carrot fields: Species composition and potential phytoplasma vectors

2010 ◽  
Vol 25 (4) ◽  
pp. 311-318 ◽  
Author(s):  
Tanja Drobnjakovic ◽  
Pantelija Peric ◽  
Dejan Marcic ◽  
Luca Picciau ◽  
Alberto Alma ◽  
...  
Keyword(s):  
Control Strategies ◽  
Species Level ◽  
Effective Control ◽  
Correct Identification ◽  
Vegetable Crops ◽  
Vegetative Period ◽  
Aster Yellows ◽  
Scaphoideus Titanus ◽  
The Family ◽  
Pcr Rflp

The first molecular analysis of samples collected in southern Backa (Serbia) confirmed the presence of aster yellows (16SrI) and stolbur phytoplasmas (16SrXII) in insects belonging to the family Cicadellidae, as well as in carrot plants where the insects were collected. A correct identification of the phytoplasmas and their vectors is essential to arrange effective control strategies to prevent diseases associated with phytoplasmas from spreading to carrots and other vegetable crops. In order to enhance knowledge about insect vectors of aster yellows and stolbur phytoplasmas in Serbia, Cicadellidae and Cixiidae (Homoptera Auchenorrhyncha), the most common vectors of these phytoplasmas, were monitored in southern Backa during 2008. Adults leaf- and planthoppers were collected and identified at species level using standard entomological methods, and tested for phytoplasma presence by means of PCR/RFLP. A total of 13 insect species of Cicadellidae were identified, as follows: a) three species of the subfamily Agallinae: Anaceratagallia ribauti (Ossiannilsson), Anaceratagallia venosa (Fourcroy), and Anaceratagallia laevis (Ribaut); b) seven species of the subfamily Deltocephalinae: Psammotettix confinis (Dahlbom), Psammotettix striatus (Linnaues) Psammottettix alienus (Dahlbom), Macrosteles sexnotatus (Fall?n), Ophiola decumana (Kontkanen), Errastunus ocellaris Fall?n, and Scaphoideus titanus Ball; c) three species of the subfamily Typhlocibinae: Eupteryx atropunctata (Goeze), Eupteryx mellissae Curtis, Zyginidia pullula (Boheman). Female specimens of the genus Euscelis (Deltocephalinae) were also collected, as well as one species of Reptalus quinquecostatus (Dufour) of the family Cixiidae. Stolbur phytoplasmas were detected in A. laevis, A. ribauti, A. venosa, P. striatus, P. confinis and P. alienus. The species: A. laevis, O. decumana, and P. confinis were AY-infected (subgroup 16SrI-A), while subgroup 16SrI-C was found only in one specimen of P. confinis. Since some aster yellows- and stolbur-infected species of the genera Psammotettix and Anaceratagallia (especially P. confinis and A. laevis) were regularly and commonly found in the infected carrot fields during the whole vegetative period, they could play a significant role in transmitting and spreading these pathogens in natural environment.

La diagnosi e la gestione del prolasso rettale

2020 ◽  
Vol 39 (7) ◽  
pp. 453-457
Author(s):  
Silvia Ventresca ◽  
Micol Bacchini ◽  
Giulia Graziani ◽  
Federico Marchetti
Keyword(s):  
Cystic Fibrosis ◽  
Natural History ◽  
Spina Bifida ◽  
Rectal Prolapse ◽  
Newborn Screening ◽  
Complete Resolution ◽  
Toilet Training ◽  
Rare Occurrence ◽  
The Family ◽  
History Of

Rectal prolapse is an overall rare occurrence in children in the first 4 years of age. It typically tends to relapse. In the majority of cases it is not possible to highlight a single cause that determines prolapse, even if it is more frequent in children who suffer from constipation. In about 1 in 10 cases there is an underlying predisposing anatomical-neurological condition (in particular neurological: myelomenigocele, spina bifida occulta). A predisposing cause that must always be considered and excluded is cystic fibrosis, even in the age of newborn screening. Rectal prolapse management is conservative in most cases. Behavioural measures (correct toilet training, good hydration, diet rich in fibres) and the use of the macrogol laxative are fundamental. The prolapse that does not resolve spontaneously must be reduced manually by instructing the family on the technique to be used. In 90% of cases the natural history of rectal prolapse is favourable, with complete resolution within the first 4 years of age. After this age, it occurs more rarely. Surgery is rarely indicated. The current techniques that have a large consensus are sclerotherapy and laparoscopic rectopexy. The paper reports the management of recurrent rectal prolapse in a 3-year-old boy.

Family reactions and relations and alcohol and tobacco consumption by rural teenagers / Relaciones y reacciones familiares y consumo de alcohol y tabaco en adolescentes en población rural

2008 ◽  
Vol 8 (2) ◽  
Author(s):  
Daniel Lloret ◽  
Mª Carmen Segura ◽  
Elena Carratalá
Keyword(s):  
Drug Use ◽  
Parental Attitudes ◽  
Parental Control ◽  
Tobacco Consumption ◽  
Family Influence ◽  
The Family ◽  
Factores De Riesgo ◽  
Risk Protection ◽  
Family Variables ◽  
Relationship Of

Existe un amplio consenso en considerar a la familia como el principal agente modulador del riesgo/protección del consumo de drogas en edades tempranas. La influencia de la familia en la transmisión de valores y adquisición de conductas es indiscutible, y por lo tanto es objeto de numerosas intervenciones preventivas. Objetivo: En la presente investigación se analiza la relación de tres variables de índole familiar y el consumo de alcohol y tabaco en los hijos, estas son: el control parental, la actitud parental ante el consumo de alcohol, y la disponibilidad de dinero. Método: Estudiantes de 3er y 4º curso de ESO respondieron a una batería de tests sobre factores de riesgo y consumo de drogas. Se identificaron dos grupos: consumidores de alcohol y tabaco (n=70) y noconsumidores (n=46). La media de edad es de 14,17. Resultados: Los resultados muestran una clara relación entre consumo y actitud parental.Los jóvenes que reportaron no consumir, percibían actitudes parentales más contrarias al abuso de alcohol. De igual manera se constata una relación directa entre disponibilidad económica y consumo de alcohol y tabaco. No obstante, no se encontraron diferencias entre ambos grupos en la percepción del control parental.AbstractConsidering the family as the main modulating agent of risk / protection of drug use at younger ages is supported by a broad consensus.The family influence in the transmission of values and develop of new behaviors is undeniable, and therefore the family is the target of many preventive interventions. Objective: This paper analyzes the relationship of three family variables and alcohol and tobacco consumption by the offspring; the variables are: parental control, parental attitudes towards alcohol consumption, and money availability. Method: Students of 3rd and 4th year of ESO answered to a battery of tests on risk factors and drug use. Two groups were identified: consumers of alcohol and tobacco (n = 70) and non-users (n = 46). The average age is 14.17. Results: Results showa clear relation between consumption and parental attitudes. Teenagers that informed no consumption perceived higher attitudes against alcohol abuse. Similarly, there was found a direct relationship between economic availability and consumption of alcohol and tobacco. However, no differences were found between groups in the perception of parental control.

Telehealth spirometry for children with cystic fibrosis

2019 ◽  
Vol 105 (12) ◽  
pp. 1203-1205
Author(s):  
Karla Logie ◽  
Liam Welsh ◽  
Sarath C Ranganathan
Keyword(s):  
Cystic Fibrosis ◽  
Home Monitoring ◽  
American Thoracic Society ◽  
Computer Hardware ◽  
Hospital Visit ◽  
European Respiratory Society ◽  
Time Saving ◽  
Median Distance ◽  
Home Based ◽  
The Family

AimWe assessed the feasibility of telehealth spirometry assessments for children with cystic fibrosis (CF) living in a regional setting.MethodPatients with acceptable computer hardware at home were provided with a SpiroUSB (Vyaire) spirometer. Spirometry was performed during ‘home admissions’ or for ongoing home monitoring in children living outside metropolitan Melbourne. At the end of the session, the family forwarded the data to the Royal Children’s Hospital, Melbourne.ResultsTwenty-two patients aged 7 to 17 years participated, with spirometry successful in 55 of 59 (93%) attempted sessions according to American Thoracic Society/European Respiratory Society criteria. The median distance between the subject’s home and the hospital was 238 km (range 62–537 km) which equated to a travel time saving of 5 hours and 34 min per hospital visit.ConclusionHome-based telehealth spirometry is feasible in children with CF and can support the CF team during home-based admissions and for ongoing outpatient monitoring.

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