A systematic review of transition readiness and transfer satisfaction measures for adolescents with chronic illness

2014 ◽  
Vol 26 (2) ◽  
pp. 159-174 ◽  
Author(s):  
Jennifer Stinson ◽  
Sara Ahola Kohut ◽  
Lynn Spiegel ◽  
Meghan White ◽  
Navreet Gill ◽  
...  
Keyword(s):  
Health Care ◽  
Transitional Care ◽  
Chronic Illnesses ◽  
Future Research ◽  
Adult Health ◽  
Transition Readiness ◽  
Cosmin Checklist ◽  
Validated Questionnaire ◽  
Satisfaction Measures ◽  
Adult Health Care

Abstract Background: The transition from pediatric to adult health care can be challenging for adolescents with chronic illnesses. As a result, many adolescents are unable to transfer to adult health care successfully. Adequate measurement of transition readiness and transfer satisfaction with disease management is necessary in order to determine areas to target for intervention towards improving transfer outcomes. Objectives: This study aims to systematically review and critically appraise research on transition readiness and transfer satisfaction measures for adolescents with chronic illnesses as well as to assess the psychometric quality of these measures. Methods: Electronic searches were conducted in MEDLINE, EMBASE, CINAHL, PsychINFO, ERIC, and ISI Web of Knowledge for transition readiness and transfer satisfaction measures for adolescents with chronic health conditions. Two reviewers independently selected articles for review and assessed methodological quality. Results: In all, eight readiness and six satisfaction measures met the inclusion criteria, for a total of 14 studies, which were included in the final analysis. None of these measures have well-established evidence of reliability and validity. Most of the measures were developed ad hoc by the study investigators, with minimal to no evidence of reliability and/or validity using the Cohen criteria and COSMIN checklist. Conclusion: This research indicates a major gap in our knowledge of transitional care in this population, because there is currently no well-validated questionnaire that measures readiness for transfer to adult health care. Future research must focus on the development of well-validated transition readiness questionnaires, the validation of existing measures, and reaching consensus on outcomes of successful transfer.

Family management affecting transition readiness and quality of life of Chinese children and young people with chronic diseases

2018 ◽  
Vol 22 (3) ◽  
pp. 470-485 ◽  
Author(s):  
Nan Sheng ◽  
Jiali Ma ◽  
Wenwen Ding ◽  
Ying Zhang
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Young People ◽  
Self Management ◽  
Family Management ◽  
Adult Health ◽  
Children And Young People ◽  
Transition Readiness ◽  
Adult Health Care

Transition from pediatric to adult health care is a key milestone for children and young people (CYP) with chronic conditions. Family management (FM) and self-management are two important concepts during the process. This study aimed to explore the relationships between FM, self-management and transition readiness, and quality of life (QoL), and identify the potential CYP or family factors influencing the relationships. Data about FM, self-management and transition readiness, QoL, and various contextual factors were collected from 268 caregiver–child pairs. Structural equation modeling was used to examine the relationships between all variables. Results revealed that the easy aspects of FM mediated the relationships between the challenging aspects of FM, self-management and transition readiness, and QoL of CYP. Self-management and transition readiness mediated the relationship between the easy aspects of FM and QoL. Contextual factors indirectly influenced CYP’s transition readiness and QoL through different aspects of FM. The results imply that to ensure the smooth transition from pediatric to adult health care and improve the CYP’s QoL, strengthening CYP’s independence and self-management competencies, combined with the support of the easy aspects of FM, seem to be useful strategies to increase CYP’s readiness for transfer.

A Scoping Review of Telehealth-Assisted Case Management for Chronic Illnesses

2021 ◽  
pp. 019394592110089
Author(s):  
Jee Young Joo ◽  
Megan F. Liu
Keyword(s):  
Health Care ◽  
Case Management ◽  
Scoping Review ◽  
Access To Health Care ◽  
Health Care Services ◽  
Care Delivery ◽  
Management Practice ◽  
Empirical Studies ◽  
Chronic Illnesses ◽  
Future Research

This scoping review aimed to examine telehealth-assisted case management for chronic illnesses and assess its overall impact on health care delivery. Guided by the PRISMA statement, this review included 36 empirical studies published between 2011 and 2020. This study identified three weaknesses and four strengths of telehealth-assisted case management. While the weaknesses were negative feelings about telehealth, challenges faced by patients in learning and using telehealth devices, and increased workload for case managers, the strengths included efficient and timely care, increased access to health care services, support for patients’ satisfaction, and cost savings. Future research can be designed and conducted for overcoming the weaknesses of telehealth-assisted case management. Additionally, the strengths identified by this review need to be translated from research into case management practice for chronic illness care. This review not only describes the value of such care strategy, but also provides implications for future nursing practice and research.

Young Adult Health Care Survey

2001 ◽  
Author(s):  
Christina Bethell ◽  
Jonathan Klein ◽  
Colleen Peck
Keyword(s):  
Health Care ◽  
Young Adult ◽  
Adult Health ◽  
Health Care Survey ◽  
Care Survey ◽  
Young Adult Health ◽  
Adult Health Care
Sign in / Sign up

Export Citation Format

Share Document