scholarly journals Pediatric Refugee Health Care Delivery in the Community Setting: An Educational Workshop for Multidisciplinary Family-Centered Care During Resettlement

MedEdPORTAL ◽  
2020 ◽  
Vol 16 (1) ◽  
pp. 10988
Author(s):  
Umbereen S. Nehal ◽  
Satoko Kanahara ◽  
Mihoko Tanabe ◽  
Grace Hayner ◽  
Brett D. Nelson
2006 ◽  
Vol 16 (1) ◽  
pp. 47-60 ◽  
Author(s):  
Donna F. Koller ◽  
David B. Nicholas ◽  
Robyn Salter Goldie ◽  
Robin Gearing ◽  
Enid K. Selkirk

2020 ◽  
pp. 019459982095483
Author(s):  
Melissa Ghulam-Smith ◽  
Yeyoon Choi ◽  
Heather Edwards ◽  
Jessica R. Levi

The coronavirus disease 2019 (COVID-19) pandemic has drastically altered health care delivery and utilization. The field of otolaryngology in particular has faced distinct challenges and an increased risk of transmission as day-to-day procedures involve intimate contact with a highly infectious upper respiratory mucosa. While the difficulties for physicians have been thoroughly discussed, the unique challenges of patients have yet to be considered. In this article, we present challenges for patients of otolaryngology that warrant thoughtful consideration and propose solutions to address these challenges to maintain patient-centered care both during and in the aftermath of the COVID-19 pandemic.


2021 ◽  
Vol 10 (3) ◽  
pp. 125-134
Author(s):  
Ismail Cetintas ◽  
Melahat Akgun Kostak ◽  
Remziye Semerci ◽  
Esra Nur Kocaaslan

Aim: This study was conducted to determine the relationship between the perceptions of parents whose children are hospitalized about family-centered care provided in the hospital and their health care satisfaction and the factors affecting them. Methods: This descriptive study was conducted with parents (n=169) of children who were hospitalized in a university hospital in Turkey between May and July 2019. Data were collected with "Child and Family Information Form", "Family-Centered Care Scale" and "PedsQL Health Care Satisfaction Scale". Data were analyzed with descriptive statistics, Mann Whitney U, and Spearman correlation tests. Results: The mean age of the children was 6.86±5.63, 51.5% were male, 56.2% were hospitalized before and 88.2% of parents received information about the care and treatment of their children. There was a positive correlation between the parents’ Family-Centered Care Scale and PedsQL Health Care Satisfaction Scale scores and between the age of the children and age of the mother and the PedsQL Health Care Satisfaction Scale scores, the number of children and Family-Centered Care Scale scores of parents. A statistically significant difference was found between the child's previous hospitalization and median scores of the Family-Centered Care Scale, and between whether parents receive information about the care and treatment of their children and the median scores of the PedsQL Health Care Satisfaction Scale. Conclusion: In this study, as the family-centered care that parents expect was met, their health care satisfaction increased. As the age of children and mothers increased, parents' health care satisfaction increased. Health care satisfaction of parents who received information about treatment and care was found higher. Keywords: family-centered care, patient satisfaction, child, parents


2017 ◽  
Vol 2 (7) ◽  
pp. 56-62 ◽  
Author(s):  
Raquel M. Heacock ◽  
Jill E. Preminger

Family-centered care emphasizes collaboration and open communication between the patient, clinician, and the family. Social support from a frequent communication partner can help to promote initiation of hearing health care services, auditory rehabilitation (AR), or everyday communication management. Research in the caregiving fields has shown different amounts of caregiving burden in adult children compared to spouses, thus the audiologist should recognize that the adult child may be trying to assist their parent in the AR process, while at the same time juggling multiple responsibilities of their own such as a career or raising children. Preliminary investigations of the role of the adult child in the AR process are discussed in order to determine if adult children should be considered differently than spouses in the AR process, primarily due to the fact that many adult children may not live with their parent. The article concludes with 3 recommendations to include communication partners in AR, ranging from invitations to the hearing health care appointment, the physical setup of the room, introducing discussion regarding family-centered care, and the use of tools to promote a structured discussion to include all in the shared decision-making process.


2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 111-111
Author(s):  
Timothy K. Nguyen ◽  
Glenn Bauman ◽  
Christoper J Watling ◽  
Karin Hahn

111 Background: Patient and family-centered care (PFCC) represents an evolution from traditional models of provider-focused and patient-focused care that places a strong emphasis on optimal patient communication, patient autonomy, and shared decision-making within care teams. A shift towards PFCC requires participation across all provider groups. Despite the importance of physician buy-in, research examining physicians’ perspectives on PFCC is lacking. We sought to explore oncologists’ familiarity with the principles of PFCC and perceived barriers to implementing principles of PFCC. Methods: In this qualitative exploratory study, we conducted semi-structured interviews with 18 oncologists (8 radiation, 4 medical, 4 surgical, 2 hematologist-oncologists) at a single Canadian academic cancer institution. Interview data were analyzed using coding principles drawn from grounded theory. Constant comparisons were used to identify recurring themes. Results: We identified 3 dominant themes related to physicians’ interpretations of PFCC: 1) Physicians expressed a limited understanding of the formal principles of PFCC, 2) Physicians identified patient autonomy as essential to PFCC and 3) Disparities between patient and physician objectives exist and result in compromises that may affect the quality of PFCC delivered. Oncologists perceived that spending more time with patients improved PFCC, but also recognized that it would leave less time for other necessary activities. Participants also identified a number of ‘system’ barriers to PFCC, including limited staff and clinical space, excessive case load, a lack of physician support and input into operational decisions, and funding constraints. Many felt that PFCC was challenged by inefficiencies in the system of care delivery, and that progress might lie in reorganization to more clearly match health care staff’s roles and responsibilities to their credentials and skills. Conclusions: Advancing PFCC in our institution will require continued education of physicians regarding the principles of PFCC, acknowledgement and preservation of the PFCC behaviors already in practice and creative solutions to address the system issues that may hamper their abilities to enact PFCC.


2008 ◽  
Vol 27 (1) ◽  
pp. 64-64
Author(s):  
Linda Rector

Most health care professionals who work with neonates in the hospital setting acknowledge the benefits of family-centered care. Textbooks and journal articles that focus on neonatal problems usually include a section on the importance of supporting parents through this stressful time. Strategies for including siblings in the NICU are found in a sidebar or in a few short paragraphs, as afterthoughts in the big picture of family-centered care.


2020 ◽  
Vol 73 (suppl 4) ◽  
Author(s):  
Fernanda Yeza Ferreira ◽  
Mariane Caldeira Xavier ◽  
Paula Rossi Baldini ◽  
Larissa Tassim Luciano Ferreira ◽  
Regina Aparecida Garcia Lima ◽  
...  

ABSTRACT Objectives: to explore the influence of health care practices on the burden of caregiver mothers of children with special health needs. Methods: observational, analytical, cross-sectional, quantitative study. Participation of 100 caregiver mothers, who responded the following instruments: characterization instrument; Burden Interview for Informal Caregivers; Perceptions of Family-Centered Care - Parents version; Evaluation Instrument for Primary Care - Child Version. For statistical analysis, were used the Spearman’s Correlation and univariate and multivariate linear regression analysis. Results: the mean burden score was 47.99. There was a negative correlation between the burden and the domains of collaboration and support of the Perceptions of Family-Centered Care scale. In the multivariate linear regression model, the longitudinality variable maintained a significant relation with the burden (p = 0.023). Conclusions: a shared, longitudinal and integrated care between families and health services can ease the burden of caregiver mothers.


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