scholarly journals NURSES' PERCEPTION ON THE DIFFICULTIES AND INFORMATION NEEDS OF FAMILY MEMBERS CARING FOR A DEPENDENT PERSON

2016 ◽  
Vol 25 (1) ◽  
Author(s):  
Maria José Lumini Landeiro ◽  
Teresa Vieira Martins ◽  
Heloísa Helena Ciqueto Peres

The transition of dependent people from hospital to the home is a situation that generates stress for them and for the family. This descriptive, exploratory study with a qualitative approach aims to identify the perception of nurses about the difficulties that face a family caring for a dependent person, including information needs, and with reference to applicability of use of educational technology. The data were collected through semi-structured interviews with 14 nurses of a hospital and two health centers in the region of Porto, Portugal. The majority of participants were men, with average age of 32.64 years, and an average of 9.86 years' experience of exercise of the profession. The nurses identified needs for information for the development of competencies in the areas of knowledge of instruments related to the self-care of moving, turning and changing place, and the utility of use of educational technology. It is concluded that mastering the areas of knowledge identified would facilitate the construction and application of educational technology for family members caring for a patient

2020 ◽  
Vol 73 (suppl 1) ◽  
Author(s):  
Paula Antunes Bezerra Nacamura ◽  
Sonia da Silva Marcon ◽  
Marcelle Paiano ◽  
Maria Aparecida Salci ◽  
Cremilde Aparecida Trindade Radovanovic ◽  
...  

ABSTRACT Objective: to apprehend the guidelines provided by the interdisciplinary team to the user’s family member at a Centro de Atenção Psicossocial Álcool e Drogas (Psychosocial Care Center for Alcohol and Drugs). Methods: descriptive-exploratory study, with a qualitative approach, carried out in a Psychosocial Care Center for alcohol and drugs in the southern region of Brazil, using the Psychiatric Reform as a conceptual basis. Data collection took place from June to August of 2019 through semi-structured interviews with a multidisciplinary team. The data were organized and operationalized in the IRAMUTEQ® software, and submitted to content analysis, thematic modality. Results: two classes emerged: “Guidelines referring to moments of crisis and the family members’ arrival to the service” and “Difficult factors and strategies to enhance the guidance to family members”. Final Considerations: The guidelines focus on pathology and the service itself. Participants highlighted embracement, the group for families, qualified listening, and cooperation with primary care as ways to enhance the service to families.


Rev Rene ◽  
2015 ◽  
Vol 16 (4) ◽  
pp. 593 ◽  
Author(s):  
Marcos Paulo de Oliveira Lima ◽  
Mônica Cordeiro Ximenes de Oliveira

Objective: to understand the meaning of nursing care for the family of patients in palliative care. Methods: field, descriptive, and exploratory study with qualitative approach conducted in secondary general hospital in the State of Ceará, Brazil. The participants comprised eight family members of patients in palliative care, with the conduction of semi-structured interviews and direct observation. For data analysis, we used the thematic category analysis. Results: data revealed the construction of three thematic categories. The meaning of nursing care for the family of patients in palliative care is anchored in the physical presence of these professionals, the performance of technical procedures, and teamwork. Conclusions: we verified that the nursing care highlighted by families aims at a humanistic care, established in the presence and based on human interaction.


2014 ◽  
Vol 48 (spe2) ◽  
pp. 39-45 ◽  
Author(s):  
Thatiana de Medeiros Vale da Silva ◽  
Maria Áurea dos Santos ◽  
Fabiane de Amorim Almeida

Objective To understand the situations and communications experienced by caregivers of children with tuberculosis (TB) with regard to directly observed therapy (DOT). Method A descriptive exploratory study with a qualitative approach was applied and developed in the ambulatory of Programa Einstein na Comunidade de Paraisópolis (PECP). The data were collected using semi-structured interviews of 13 caregivers of children with TB in DOT. The Collective Subject Discourse (CSD) method was used to analyze the data. Results Seven CSDs were identified and grouped into four categories: "Living in a difficult situation", "Changing the family routine", "Responsibility almost always fall son the mother", and "Adapting to the DOT". Conclusions The difficulties faced by the caregiver of the child at the beginning of DOT significantly changed the familiar routine. The responsibility for its continuity was assigned to the mother, who must adapt to the demands of the treatment and face the situation.


2012 ◽  
Vol 25 (spe2) ◽  
pp. 13-18
Author(s):  
Michelle Freire Baliza ◽  
Regina Szylit Bousso ◽  
Vívian Marina Calixto Damasceno Spineli ◽  
Lucía Silva ◽  
Kátia Poles

OBJECTIVE: To understand the perception of nurses from the Family Health Strategy in relation to palliative care in the home. METHODS: A descriptive, exploratory study with a qualitative approach conducted with nine nurses from the Family Health Strategy of the municipality of Lavras - MG. Semi-structured interviews were conducted and data were subjected to content analysis. RESULTS: The various dimensions of care in the home context were identified, along with the performance and limitations of nurses in the care of the patient and his family at end of life. The capacity to establish a bond, by the proximity to people who receive their care, is a remarkable point of the action of these nurses with patients and families in end of life situations. CONCLUSION: The nurses consider the patient and his family as the unit of care, they have the opportunity to share solidarity, experiences and learning, not only from a professional standpoint, but above all, from a human one.


Author(s):  
Khuan Seow ◽  
Nadia Caidi

Canada has an aging population with the fastest growing age groups (80 and 45-64 years old) vulnerable to age-related diseases such as Alzheimer’s disease. Caregiving responsibilities often fall to the family members of the afflicted without much attention and consideration being placed on the information needs of these caregivers. We call for a better understanding of these caregivers' information needs and uses by social policy makers as well as information providers.La population du Canada a tendance à vieillir considérablement, avec la hausse la plus rapide dans les groupes d’âge (80 et 45 à 64 ans). Les personnes âges sont très vulnérables à toute sorte de maladies, telles que la maladie d’Alzheimer. La responsabilité revient souvent aux membres de la famille qui doivent prendre soin des personnes atteintes de cette maladie. Or, nous ne connaissons que peu de chose sur les besoins en information des personnes qui prennent soin de ces malades de l’Alzheimer : qui sont-ils ? Quelles sont leurs sources... 


1984 ◽  
Vol 78 (10) ◽  
pp. 473-478 ◽  
Author(s):  
Arlene Dumas ◽  
Alan D. Sadowsky

The family training program at the Western Blind Rehabilitation Center is an integral part of the rehabilitation process for adventitiously blinded and low vision adults. An exploratory study was conducted to assess which aspects of the training were most outstanding and to inquire how the program affected interpersonal relations and attitudes towards sight loss. Results showed a marked reduction in stated problems immediately after the training and over a three-and-a-half-year period of time. The study demonstrates similar benefits for older family members, those receiving shortened programs, and those who have been living with sight loss for many years.


2014 ◽  
Vol 11 (4) ◽  
pp. 199-202 ◽  
Author(s):  
Carla J. Berg ◽  
Pinpin Zheng ◽  
Michelle C. Kegler

Introduction: Spousal support predicts smoking cessation. China is the world's largest consumer of tobacco, with drastic differences in smoking prevalence among men and women. Thus, understanding marital interactions around husbands’ smoking has implications for cultures with similarly large gender disparities in smoking.Aims: We examined interactions among family members regarding husbands’ smoking in homes with small children in Shanghai.Methods: In Spring 2013, we conducted in-person semi-structured interviews among 13 male smokers and 17 female nonsmokers recruited from an urban and a suburban community in Shanghai.Results/Findings: To encourage husbands’ cessation or reduction, some women reported intervening either directly or indirectly through their children, emphasizing the health consequences for the smoker and the family. Some women reported not conversing about cessation due to concern about conflict, tolerance, or resignation. Women reported that their husbands’ responses to anti-smoking messages from family members included promises to quit in the future or noting the strength of the nicotine addiction and the disadvantages of quitting. Men reported the importance of smoking in work/culture and argued against the research about the harms of smoking.Conclusions: Interventions targeting motivators for cessation among men and to support women in encouraging their husbands’ cessation should be developed.


2021 ◽  
pp. 136749352110399
Author(s):  
Stephanie Allen ◽  
Stephen K Bradley ◽  
Eileen Savage

Parent programmes are often used in the clinical management of children with ADHD. Research into parent programmes has predominantly been concerned with their effectiveness and much less attention has been paid to the impact that they may be having on the family and the inter-relationships between family members. This study explores the perspectives and experiences of parents of children with ADHD, who participated in a parent programme, including its impact on the family unit. A purposive sample of six mothers of children with ADHD who completed a 1-2-3 Magic parent programme in Ireland was invited to take part in this qualitative study. Data were collected by means of individual in-depth, semi-structured interviews and a narrative inquiry approach further informed analysis of the interview data. Two major narrative constructions of experience: ‘parent programme as positive’ and ‘parent programme as negative’ were identified. Outcomes from this study illustrated some unintended consequences caused by the parent programme (i.e. sibling rivalry and conflict arising between family members). Mothers believed that the parent programme was a beneficial intervention, but it was not without its flaws and they felt it was helpful for their family when used in conjunction with other supports and mediations.


2016 ◽  
Vol 4 (1) ◽  
Author(s):  
Aditi Rana

Mental illness is a growing reality of our times. Usually in a typical Indian family, the parents act as the primary caregivers for the child suffering from mental disorder. For adult sufferers, it can also be siblings or offspring, and  at times even spouse or partner. Research on the experiences of families of mentally ill people has been minimal in the Indian context. This study aims to shift the focus from the mentally ill patients to the suffering of the caregivers and families of the patient keeping in mind the interconnected well being of the family in a collectivist culture. Following a qualitative approach, narratives have been taken from the family members of mentally ill (narratives of 8 families with mentally ill person) and also the mental health professionals (two) through semi structured interviews. The findings suggest that the family members suffer from a significant amount of stress accompanied by burden. Also, they feel secluded from the society and experience a lack of assistance to deal with the mentally ill member of the family.


2014 ◽  
Vol 23 (2) ◽  
pp. 460-468 ◽  
Author(s):  
Bruna Caroline Rodrigues ◽  
Verônica de Azevedo Mazza ◽  
Ieda Harumi Higarashi

This exploratory descriptive study, using a qualitative approach, aimed to characterize the social support of nurses in the care of their own children. The participants were ten nurses who were mothers, selected through a snowball method. Data collection occurred from November 2011 to January 2012 through semi-structured interviews and construction of families' genograms and ecomaps. Data were analyzed through Bardin content analysis, leading to the establishment of two categories: (1) Returning to work: the importance of family support and (2) The family and their interactive contexts: types of bonds. The social support network of the family is essential to the lives of these women, who need support, assistance and guidance in directing their activities in everyday overload.


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