scholarly journals Depression and quality of life in mothers of children with pervasive developmental disorders

2010 ◽  
Vol 18 (1) ◽  
pp. 33-40 ◽  
Author(s):  
Maria Ângela Fávero-Nunes ◽  
Manoel Antônio dos Santos
Keyword(s):  
Quality Of Life ◽  
Pervasive Developmental Disorders ◽  
Developmental Disorders ◽  
Family Income ◽  
Positive Association ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Demographic Profile ◽  
Quality Of Life Scale

The aim of this study was to evaluate the prevalence of dysphoria/depressive symptoms in mothers of autistic children and to identify correlations between quality of life and socio-demographic profile. An exploratory, descriptive and cross-sectional study was carried out, involving 20 mothers, by applying a socio-demographic profile questionnaire, the Brazilian version of the Beck Depression Inventory (BDI) and the WHOQOL-Bref quality of life scale. Dysphoria/depression criteria were found in 15% of the mothers. Overall quality of life was evaluated as positive in 70%, however only 40% were satisfied with their health. The Physical domain (mean=69.4) was perceived as the best, and environment domain as the worst (mean=60.8). Quality of life had a positive association with family income and level of education, and a negative association with depression. Considering the results, further research, especially on those variables that were not statistically relevant, is suggested.

scholarly journals Adherence to Therapy, Physical and Mental Quality of Life in Patients with Multiple Sclerosis

2021 ◽  
Vol 11 (7) ◽  
pp. 672
Author(s):  
Alessandra Buja ◽  
Guendalina Graffigna ◽  
Simona F. Mafrici ◽  
Tatjana Baldovin ◽  
Carlo Pinato ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Behavioral Interventions ◽  
Positive Association ◽  
Cross Sectional Study ◽  
Health Index ◽  
Online Questionnaire ◽  
Cross Sectional ◽  
Adherence To Therapy

Ensuring multiple sclerosis (MS) patients’ adherence to therapy is often challenging, but it is crucial to their survival and health-related quality of life (HRQoL). The aim of the present study was to outline connections between adherence, physical and mental HRQoL, levels of psychological readiness to engage in a treatment, levels of social support, anthropometric, socio-demographic and clinical factors in patients suffering from MS. This cross-sectional study involved a sample of 237 Italian MS patients. A survey was conducted with a structured self-administered online questionnaire using validated measures of quality of life, adherence to therapy and anthropometric, socio-demographic, psychological and clinical variables. A path analysis was used to test the overall structure of the associations between the variables. The pathway indicates a positive association between mental health index and a stronger degree of engagement and being or having been in a long-term relationship. Physical health index was positively associated with age, having an occupation, and having a specific form of MS. Having had relapses in the previous year raised the odds of better adherence to therapy, while an increase in Body Mass Index (BMI) reduced them. Our findings could help in the management of MS patients, promoting behavioral interventions that take the psychological and socio-demographic peculiarities of each patient into account with a view to improving their adherence to therapy.

Quality of life of children and adolescents with chronic kidney disease: a cross-sectional study

2018 ◽  
Vol 104 (2) ◽  
pp. 134-140 ◽  
Author(s):  
Anna Francis ◽  
Madeleine S Didsbury ◽  
Anita van Zwieten ◽  
Kerry Chen ◽  
Laura J James ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Children And Adolescents ◽  
Family Income ◽  
Cross Sectional Study ◽  
Kidney Transplants ◽  
Cross Sectional ◽  
Factors Associated

ObjectiveThe aim was to compare quality of life (QoL) among children and adolescents with different stages of chronic kidney disease (CKD) and determine factors associated with changes in QoL.DesignCross-sectional.SettingThe Kids with CKD study involved five of eight paediatric nephrology units in Australia and New Zealand.PatientsThere were 375 children and adolescents (aged 6–18 years) with CKD, on dialysis or transplanted, recruited between 2013 and 2016.Main outcome measuresOverall and domain-specific QoL were measured using the Health Utilities Index 3 score, with a scale from −0.36 (worse than dead) to 1 (perfect health). QoL scores were compared between CKD stages using the Mann-Whitney U test. Factors associated with changes in QoL were assessed using multivariable linear and ordinal logistic regression.ResultsQoL for those with CKD stages 1–2 (n=106, median 0.88, IQR 0.63–0.96) was higher than those on dialysis (n=43, median 0.67, IQR 0.39–0.91, p<0.001), and similar to those with kidney transplants (n=135, median 0.83, IQR 0.59–0.97, p=0.4) or CKD stages 3–5 (n=91, 0.85, IQR 0.60–0.98). Reductions were most frequent in the domains of cognition (50%), pain (42%) and emotion (40%). The risk factors associated with decrements in overall QoL were being on dialysis (decrement of 0.13, 95% CI 0.02 to 0.25, p=0.02), lower family income (decrement of 0.10, 95% CI 0.03 to 0.15, p=0.002) and short stature (decrement of 0.09, 95% CI 0.01 to 0.16, p=0.02).ConclusionsThe overall QoL and domains such as pain and emotion are substantially worse in children on dialysis compared with earlier stage CKD and those with kidney transplants.

scholarly journals Family Health Strategies: Profile/quality of life of people with diabetes

2018 ◽  
Vol 71 (6) ◽  
pp. 2899-2906 ◽  
Author(s):  
Claudete Moreschi ◽  
Claudete Rempel ◽  
Daiana Foggiato de Siqueira ◽  
Dirce Stein Backes ◽  
Luis Felipe Pissaia ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Women Elderly ◽  
Family Income ◽  
Family Health ◽  
Cross Sectional Study ◽  
Care Process ◽  
Cross Sectional ◽  
Significant Difference ◽  
Epidemiological Profile

ABSTRACT Objective: To evaluate the quality of life and to analyze the epidemiological profile of people with diabetes treated in Family Health Strategies. Method: A cross-sectional study carried out with 350 people with diabetes. Results: Most people with diabetes are women, elderly, married, white, with low educational level, retired/pensioners, family income of up to two minimum wages. As the time of people with the disease increases, their quality of life decreases. People with complications from diabetes have a lower quality of life, with a statistically significant difference. Conclusion: Knowledge of the sociodemographic characteristics, clinical evaluation and quality of life of people with diabetes can improve the care process provided to this population.

scholarly journals Association between quality of life and severity of menopausal symptoms among Saudi women in Al-Ahsa

2021 ◽  
Vol 11 (12) ◽  
pp. 82
Author(s):  
Ola Mousa ◽  
Fatemah M. Alkhars ◽  
Mashael T. Al Shawaf ◽  
Enas A. Al Omran ◽  
Rawan A. Alkhawajah ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Rating Scale ◽  
Negative Impact ◽  
Positive Association ◽  
Cross Sectional Study ◽  
Menopausal Symptoms ◽  
Reproductive Age ◽  
Cross Sectional ◽  
Saudi Women

Background and objective: Menopause is not an illness. It is a normal physiologic process at the time that marks the end of the menstrual cycles. The severity, frequency, duration, and impact of these menopausal symptoms vary from woman to woman according to their age, and they affect the overall quality of life. The aim of this study is to verify the severity of menopausal symptoms experienced by Saudi women in Al Ahsa, and to identify the association between the severity of menopausal symptoms and their effects on the quality of life of Saudi women.Methods: An analytical cross- sectional study involved 427 women aged 45-60 years old. They were randomly collected by researchers who interviewed them in outpatient clinics and obstetrics and gynecology wards from 6 hospitals by using the Menopause Rating Scale (MRS) questionnaire and the Menopause Specific Quality of Life (MENQOL) questionnaire between February 15, 2021 and May 15, 2021.Results: The average age of participants was between 45-49. The MRS shows that mild symptoms were found in 47.8% of participants, while severe symptoms were 10.6%. The most common symptoms were physical and somatic. The Menopause Specific Quality of Life shows that 52.2% of the participants suffer from mild bothersome, while 7.5% have extremely bothersome. There was a strong positive association between menopause specific quality of life, and menopausal symptoms.Conclusions: There was a positive correlation between menopausal symptoms and the quality of life of women. Menopausal symptoms have a negative impact on the quality of women's lives. Therefore, the policy makers in the ministry of health could strengthen providing health programmes and health services to women in this age group, besides women in the reproductive age. This can be accomplished by including modules related to the special health needs of menopausal women in the primary center's health programs.

scholarly journals Hypertension-related knowledge, medication adherence and health-related quality of life (HRQoL) among hypertensive patients in Islamabad, Pakistan

2021 ◽  
Vol 18 (5) ◽  
pp. 1123-1132
Author(s):  
Muhammad Amer ◽  
Nisar-Ur-Rahman ◽  
Saeed-Ur-Rashid Nazir ◽  
Atif Raza ◽  
Humayun Riaz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Medication Adherence ◽  
Correlation Coefficient ◽  
Positive Association ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Hypertensive Patients ◽  
Adherence To Medication ◽  
Hypertension Knowledge

Purpose: To determine knowledge regarding hypertension, adherence to medication and HealthRelated Quality of Life (HRQoL), and their associations in hypertensive patients in Pakistan. Methods: A cross-sectional study was conducted among 384 hypertensive patients attending a tertiary health care public sector hospital in Islamabad, Pakistan. Data were collected using knowledge questionnaire regarding hypertension, Morisky Medication Adherence Scale, and EuroQol (EQ-5D) scale. Results: The mean systolic and diastolic blood pressures of the 384 patients were 140.39 ± 15.485 and 88.74 ± 10.683 mmHg, respectively. The coefficient of correlation between knowledge regarding hypertension and adherence was 0.638 (p < 0.001), showing a positive association. The correlation coefficient between knowledge and HRQoL was 0.709 (p < 0.001), suggesting a good association. The correlation coefficient between adherence to medication and HRQoL was 0.545 (p < 0.001), which indicated a positive correlation. Conclusion: These results indicate that there are statistically significant associations between hypertension knowledge and HRQoL, hypertension knowledge and medication adherence, and between adherence and HRQoL in the hypertensive patients studied.

Asthma and quality of life in adolescents in Manisa, Turkey

2011 ◽  
Vol 23 (3) ◽  
Author(s):  
Saliha Altıparmak ◽  
Osman Altıparmak ◽  
Hatice Yıldırım Sarı
Keyword(s):  
Quality Of Life ◽  
Primary Schools ◽  
International Study ◽  
Cross Sectional Study ◽  
Western Society ◽  
Cross Sectional ◽  
Geographical Regions ◽  
Quality Of Life Scale ◽  
The City

Abstract Background: The aim of this study was to determine the prevalence of asthma and the association between asthma and quality of life in sixth, seventh, and eighth graders in the city of Manisa. Method: The population of this cross-sectional study includes the sixth, seventh, and eighth grades of primary schools located in the city of Manisa (n=59, 135). The study sample included 763 students from nine schools with different socioeconomic features selected by the Directorate of National Education. Data were collected under the supervision of the researcher with a socio-demographic questionnaire, International Study of Asthma and Allergy in Childhood (ISAAC) questionnaire and Kiddo-KINDL, a quality of life scale. Descriptive statistics, Student’s t-test and χ2-test were used for the evaluation of the data. Results: In total, 83 children (10.9%) were diagnosed with asthma by doctors and 82 children (10.7%) had wheezing or asthmatic attacks in the past 12 months. The children with life-long asthma had significantly lower scores for quality of life than those without asthma (p<0.05). Conclusion: The prevalence of asthma is different in different geographical regions in Turkey. Our results are similar to the results of Western society and asthma has a negative effect on the quality of life of children.

Long-term quality of life in children treated for posterior fossa brain tumors

2013 ◽  
Vol 12 (3) ◽  
pp. 235-240 ◽  
Author(s):  
Abhaya V. Kulkarni ◽  
Janine Piscione ◽  
Iffat Shams ◽  
Eric Bouffet
Keyword(s):  
Quality Of Life ◽  
Brain Tumors ◽  
Posterior Fossa ◽  
Family Income ◽  
Treatment Success ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Important Indicator

Object In the face of increasing survival, quality of life (QOL) has become an important indicator of treatment success in children with posterior fossa brain tumors (PFBTs). The authors' objective was to assess the long-term QOL in survivors of PFBT. Methods The authors conducted a cross-sectional study of children who, between birth and age 18 years at diagnosis, had previously been treated at their institution for a PFBT. At the time of assessment for this study, children were between 5 and 19 years old and had received standard treatment for PFBT ending at least 6 months before the assessment. The QOL was measured with the Pediatric Quality of Life Inventory (PedsQL) generic score scales and the Health Utilities Index Mark 3 (HUI3). Multivariate analyses were used to assess several variables (patient related, treatment related, and socioeconomic) for association with QOL. Results A total of 62 children participated in the study (median age at assessment 11.9 years, interquartile range [IQR] 7.8–14.8, and median age at tumor diagnosis of 4.9 years, IQR 2.5–6.9). Median time since active treatment for their PFBT was 5.2 years (IQR 2.4–10.1). Tumor types included cerebellar pilocytic astrocytoma (45.2%), medulloblastoma (30.6%), ependymoma (11.3%), and brainstem astrocytoma (11.3%). Adjuvant therapy included chemotherapy (40.3%) or radiotherapy (14.5% focal and 21.0% craniospinal radiotherapy). Permanent treatment for hydrocephalus was required in 38.7% of the patients. Tumors recurred in 11.3%, requiring repeat treatment in these patients. The median HUI3 utility score was 0.91 (IQR 0.71–1.00) and the median PedsQL total score was 78.3 (IQR 64.1–92.4). Only the following variables were significantly associated with decreased QOL in multivariable model testing (all p < 0.05): need for permanent hydrocephalus treatment, large ventricle size, decreased family functioning, and lower family income. Conclusions As a group, long-term survivors of pediatric PFBT appear to have QOL indicators that are similar to those of the general population, although a reasonable minority of patients experience poor outcomes. Although several confounding variables likely remain in this retrospective study, important associations with QOL include the presence of hydrocephalus and socioeconomic factors. The study sample size, however, was limited and the presence of other important factors cannot be excluded.

scholarly journals Association Between Health-Related Quality of Life and Physical Functioning in Antiretroviral-Naive HIV-Infected Patients

2018 ◽  
Vol 12 (1) ◽  
pp. 117-125 ◽  
Author(s):  
Ana Paula Lédo ◽  
Indira Rodriguez-Prieto ◽  
Liliane Lins ◽  
Mansueto Gomes Neto ◽  
Carlos Brites
Keyword(s):  
Quality Of Life ◽  
Family Income ◽  
Cross Sectional Study ◽  
Health Related Quality ◽  
Functional Profile ◽  
Cross Sectional ◽  
Function Test ◽  
Related Quality ◽  
Health Related

Background: Poor functional status can significantly affect Health-Related Quality of Life (HRQoL) of HIV patients. However, there is scarce information on the functional profile of such patients before starting antiretroviral therapy (ART). Objective: To estimate the association between health-related quality of life and physical functioning in Antiretroviral-Naive HIV-infected patients. Methods: We conducted a cross-sectional study with HIV-infected patients older than 18 years, and naïve to antiretroviral therapy. The patients were evaluated for functional profile by pulmonary function (forced vital capacity, forced expiratory volume at one second, and Tiffeneau index), handgrip strength, and six-minute walk test in a cross-sectional study. HRQoL was evaluated by the 36-Item Short-Form Health Survey and its Physical (PCS) and Mental (MCS) Component Summaries. Multiple linear regression analyses were used to evaluate the association of predictor variables with PCS and MCS scores. Results: We found lower HRQoL among females patients, with far below average impairment of mental health component. Both male and female patients presented lower 6MWD function test values. Patients with dynapenia were older than patients without it, presented lower PCS mean score, lower family income, poor 6 MWD function test, lower FVC, and lower FEV1 t. Multivariable logistic regression analyses showed that Grip Strength, age and family income were predictor variables for Physical component of HRQoL. Female gender and smoking habit were predictive for the mental component of HRQoL. Conclusion: HRQoL in HIV, drug-naïve patients is predicted by level of dynapenia, smoking, income and gender. Therefore, lifestyle changes and active exercising can help to improve HRQoL in such patients.

scholarly journals Premenstrual symptoms as predictor of quality of life in reproductive-aged women of Rawalakot, Azad Kashmir: A cross sectional study

2020 ◽  
pp. 1-12
Author(s):  
Asia Mushtaq ◽  
Shamsa Arif ◽  
Fazaila Sabih
Keyword(s):  
Quality Of Life ◽  
Cross Sectional Study ◽  
World Health ◽  
Sectional Study ◽  
Cross Sectional ◽  
Premenstrual Symptoms ◽  
Quality Of Life Scale ◽  
Azad Kashmir ◽  
Reproductive Aged Women

Abstract Objective: To determine the predictive role of premenstrual symptoms in reproductive-aged women’s quality of life. Methods: The cross-sectional study was conducted in Rawalakot, Azad Kashmir, from September 2017 to January 2018, and comprised married women aged 20-45 years. Urdu versions of Greene Climacteric Symptoms Scale and World Health Prganisation Quality of Life scale were used. Data was analysed using SPSS 23. Results: Of the 300 women with a mean age of 32.59±7.12 years, 245(81.7%) had a regular menstrual cycle. There was significant negative relationship between premenstrual symptoms and all domains of quality of life (p<0.05). Somatic symptoms were predominantly affecting the quality of life in more negative manners compared to other symptoms (p<0.05). Conclusion: Premenstrual symptoms disturb the daily activities of reproductive-aged women and adversely affect their educational, occupational and psychosocial functioning. Key Words: Premenstrual symptoms, Quality of life, Reproductive-aged women. Continuous...

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