scholarly journals ‘Desire to Die’ in palliative care patients—legal framework and recommendations of the national evidence-based guideline on palliative care in Germany

2021 ◽  
Vol 10 (1) ◽  
pp. 26-26
Author(s):  
Kerstin Kremeike ◽  
◽  
Anne Pralong ◽  
Kathleen Boström ◽  
Claudia Bausewein ◽  
...  
Keyword(s):  
Palliative Care ◽  
Legal Framework ◽  
Evidence Based ◽  
Desire To Die ◽  
Evidence Based Guideline

Individualised advance care planning in children with life-limiting conditions

2017 ◽  
Vol 103 (5) ◽  
pp. 480-485 ◽  
Author(s):  
Erik A H Loeffen ◽  
Wim J E Tissing ◽  
Meggi A Schuiling-Otten ◽  
Chris C de Kruiff ◽  
Leontien C M Kremer ◽  
...  
Keyword(s):  
Palliative Care ◽  
Advance Care Planning ◽  
Evidence Based ◽  
Care Planning ◽  
User Friendliness ◽  
Current Form ◽  
Paediatric Palliative Care ◽  
Essential Components ◽  
Advance Care ◽  
Evidence Based Guideline

IntroductionIn 2013, the Pediatric Association of the Netherlands launched an evidence-based guideline ‘Palliative care for children’. To promote implementation in daily practice and hereby improve quality of paediatric palliative care, we aimed to develop a functional individualised paediatric palliative care plan (IPPCP) that covers physical, psychological, spiritual and social functioning, with great emphasis on the guideline’s recommendations, advance care planning and patients’ and parents’ preferences and desires.MethodsA Dutch working group (28 individuals) with a strong multidisciplinary character developed a draft IPPCP, which was piloted retrospectively and prospectively. In the pilots we completed, the IPPCPs for patients who were recently diagnosed with a life-threatening or life-limiting condition and evaluated completeness, usability and user-friendliness.ResultsThe final IPPCP comprised five domains: (1) IPPCP data, (2) basics, (3) social, (4) psychosocial and spiritual and (5) physical care. Each domain covered various components. In both pilots, the IPPCP was considered a comprehensive document that covered all areas of paediatric palliative care and was experienced as an improvement to the present situation. However, the current form was regarded to lack user-friendliness.ConclusionWe propose a set of essential components of a comprehensive IPPCP for paediatric palliative care with extra attention for advance care planning and anticipatory action. Patients’ and parents’ preferences and desires are included next to the recommendations of the evidence-based guideline ‘Palliative care for children’.

Reducing Hypoglycemia through Increased Knowledge of an Evidence-Based Guideline

Diabetes ◽  
2018 ◽  
Vol 67 (Supplement 1) ◽  
pp. 47-LB
Author(s):  
THAYER A. CLARK ◽  
LEIGH BAK
Keyword(s):  
Evidence Based ◽  
Evidence Based Guideline

scholarly journals Applying evidence-based symptomatic treatments from other clinical disciplines to palliative care

2021 ◽  
pp. 026921632199698
Author(s):  
Slavica Kochovska ◽  
Meera R Agar ◽  
Jane L Phillips ◽  
Jennifer Tieman ◽  
Caitlin Sheehan ◽  
...  
Keyword(s):  
Palliative Care ◽  
Evidence Based
Sign in / Sign up

Export Citation Format

Share Document