scholarly journals Factors Leading to the Success of Social Participation Promotion Programs for People with Intellectual Disability: A Protocol for A Systematic Review

2020 ◽  
Author(s):  
Andrés Aparicio ◽  
Paulina Arango ◽  
Rosario Espinoza ◽  
Vicente Villate ◽  
Marcela Tenorio
Keyword(s):  
Systematic Review ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Social Participation ◽  
Social Inclusion ◽  
Positive Impact ◽  
Meta Analysis ◽  
Grey Literature ◽  
Before And After ◽  
People With Intellectual Disabilities

Abstract Background People with intellectual disabilities have been historically excluded from decision-making processes. Previous literature indicates that social participation may be an effective tool to increase social inclusion, but no systematic review of interventions focused on social participation of people with intellectual disabilities have been conducted. This study aims to identify and organize the factors associated with social participation interventions having a positive impact on social inclusion of people with intellectual disabilities; and to provide a set of best of practices for future interventions. Methods/design This systematic review of the literature will follow the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) recommendations. The databases Web of Science, EBSCO, Scopus, LILACS and PubMed will be searched for articles between January 1 st , 2004 and December 31 st , 2019; a grey literature search will also be conducted. Randomized control trials, nonrandomized control trials, and controlled before and after studies will be included. If necessary, noncontrolled before and after studies will also be included. Observational or qualitative studies will be excluded. The primary outcome is success of intervention. Secondary outcomes include measures of social participation. Two reviewers will independently screen articles, extract relevant data and assess the quality of the studies. Discussion This systematic review will add to our understanding of successful social participation interventions for people with intellectual disability. It will allow us to identify and organize which factors lead to an increase in social participation and help us define a set of best practices to be followed by future interventions. Systematic review registration This protocol is submitted to the PROSPERO registry of the University of York (reference number: 189093).

scholarly journals Factors leading to effective social participation promotion interventions for people with intellectual disability: a protocol for a systematic review

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Andrés Aparicio ◽  
Paulina Arango ◽  
Rosario Espinoza ◽  
Vicente Villate ◽  
Marcela Tenorio
Keyword(s):  
Systematic Review ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Social Participation ◽  
Meta Analysis ◽  
Grey Literature ◽  
Well Being ◽  
Controlled Trials ◽  
Decision Making Processes ◽  
People With Intellectual Disabilities

Abstract Background People with intellectual disabilities have been historically excluded from decision-making processes. Previous literature indicates that increasing social participation may be an effective way to address this exclusion, but no systematic review of interventions designed to increase social participation of people with intellectual disabilities have been conducted. This study aims to identify and organize the factors associated with interventions that increase the social participation of people with intellectual disabilities and to provide a set of best of practices for future interventions. Methods/design The databases Web of Science, Scopus, LILACS, and PubMed will be searched for articles from January 2004 onwards; grey literature search will be identified through searching additional databases (such as Google Scholar and EBSCO databases). Randomized controlled trials, nonrandomized controlled trials, and controlled pre–post studies will be included. Noncontrolled pre–post studies will also be included. Observational or qualitative studies will be excluded. The primary outcomes are measures of social participation. Secondary outcomes include measures of well-being, stigma, knowledge about rights, and advocacy processes. Two reviewers will independently screen articles, extract relevant data, and assess the quality of the studies. We will provide a meta-analysis of included studies if possible, or a quantitative narrative synthesis otherwise. Discussion This systematic review will add to our understanding of effective social participation interventions for people with intellectual disability. It will allow us to identify and organize which factors lead to an increase in social participation and help us define a set of best practices to be followed by future interventions. Systematic review registration PROSPERO CRD42020189093

scholarly journals ‘It’s our everyday life’ – The perspectives of persons with intellectual disabilities in Norway

2018 ◽  
Vol 24 (2) ◽  
pp. 143-157
Author(s):  
Aud Elisabeth Witsø ◽  
Brit Hauger
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Everyday Life ◽  
Community Participation ◽  
Social Participation ◽  
Policy Development ◽  
Social Inclusion ◽  
Support Staff ◽  
Working Together ◽  
People With Intellectual Disabilities

This study illuminates how adults with intellectual disabilities understand and describe their everyday life and its shortcomings when it comes to equal rights in the context of Norwegian community living. An inclusive research design, including nine persons with mild intellectual disability, two university researchers and two intellectual disability nurses from the municipality, was undertaken. An inductive thematic analysis of data identified three key themes: everyday life – context, rhythm and structure, social participation and staff – an ambiguous part of everyday life. Results show that service provision had institutional qualities; participants experienced lack of information and reduced possibilities for social inclusion and community participation like everyone else. More attention on the role of policy development, support staff and leadership, in relation to facilitating an everyday life with more user involvement, social inclusion and community participation of people needing support, is essential. Participatory, appreciative, action and reflection in workshops for persons with intellectual disabilities and support staff represent a promising approach to promote the voices and interests of persons with intellectual disabilities. This article tells you about the everyday life of people with intellectual disabilities living in Norway. Nine people with intellectual disabilities worked together with two university researchers and two intellectual disability nurses in the community, in workshops. The people with intellectual disabilities liked to have their own apartment and going to work every day. They said that they wanted more social participation with friends and more participation in activities in the community, just like everyone else. They wanted to be treated with more respect by their staff. All participants in the project saw great value in working together and some of them are working together in a new project about involvement in the improvement of support services for people with intellectual disabilities.

scholarly journals Effect of deinstitutionalisation for adults with intellectual disabilities on costs: a systematic review

BMJ Open ◽  
2019 ◽  
Vol 9 (9) ◽  
pp. e025736
Author(s):  
Peter May ◽  
Richard Lombard Vance ◽  
Esther Murphy ◽  
Mary-Ann O'Donovan ◽  
Naoise Webb ◽  
...  
Keyword(s):  
Systematic Review ◽  
Cost Effectiveness ◽  
Intellectual Disabilities ◽  
Grey Literature ◽  
Cost Utility ◽  
Secondary Outcome ◽  
Medical Illness ◽  
Complex Needs ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities

ObjectiveTo review systematically the evidence on the costs and cost-effectiveness of deinstitutionalisation for adults with intellectual disabilities.DesignSystematic review.PopulationAdults (aged 18 years and over) with intellectual disabilities.InterventionDeinstitutionalisation, that is, the move from institutional to community settings.Primary and secondary outcome measuresStudies were eligible if evaluating within any cost-consequence framework (eg, cost-effectiveness analysis, cost–utility analysis) or resource use typically considered to fall within the societal viewpoint (eg, cost to payers, service-users, families and informal care costs).SearchWe searched MEDLINE, PsycINFO, CENTRAL, CINAHL, EconLit, Embase and Scopus to September 2017 and supplemented this with grey literature searches and handsearching of the references of the eligible studies. We assessed study quality using the Critical Appraisals Skills Programme suite of tools, excluding those judged to be of poor methodological quality.ResultsTwo studies were included; both were cohort studies from the payer perspective of people leaving long-stay National Health Service hospitals in the UK between 1984 and 1992. One study found that deinstitutionalisation reduced costs, one study found an increase in costs.ConclusionA wide-ranging literature review found limited evidence on costs associated with deinstitutionalisation for people with intellectual disabilities. From two studies included in the review, the results were conflicting. Significant gaps in the evidence base were observable, particularly with respect to priority populations in contemporary policy: older people with intellectual disabilities and serious medical illness, and younger people with very complex needs and challenging behaviours.PROSPERO registration numberCRD42018077406

scholarly journals Respiratory-associated deaths in people with intellectual disabilities: a systematic review and meta-analysis

BMJ Open ◽  
2021 ◽  
Vol 11 (7) ◽  
pp. e043658
Author(s):  
Maria Truesdale ◽  
Craig Melville ◽  
Fiona Barlow ◽  
Kirsty Dunn ◽  
Angela Henderson ◽  
...  
Keyword(s):  
Systematic Review ◽  
Intellectual Disabilities ◽  
Meta Analysis ◽  
Analysis Data ◽  
Quality Healthcare ◽  
Premature Deaths ◽  
Statistical Heterogeneity ◽  
Health Initiatives ◽  
People With Intellectual Disabilities ◽  
Associated Risk Factors

ObjectiveTo review and synthesise evidence on rates of respiratory-associated deaths and associated risk factors in the intellectual disability population.DesignSystematic review and meta-analysis.Data sourcesEmbase, CINAHL, ISI Web of Science (all databases including Medline) and PsychINFO were searched for studies published between 1st January 1985 and 27th April 2020 and examined study and outcome quality. Reference lists and Google Scholar were also hand searched.ResultsWe identified 2295 studies, 17 were included in the narrative synthesis and 10 studies (11 cohorts) in the meta-analysis. Data from 90 302 people with intellectual disabilities and 13 808 deaths from all causes in people with intellectual disabilities were extracted. Significantly higher rates of respiratory-associated deaths were found among people with intellectual disabilities (standardised mortality ratio(SMR): 10.86 (95% CI: 5.32 to 22.18, p<0.001) compared with those in the general population, lesser rates for adults with ID (SMR: 6.53 (95% CI: 4.29 to 9.96, p<0.001); and relatively high rates from pneumonia 26.65 (95% CI: 5.63 to 126.24, p<0.001). The overall statistical heterogeneity was I2=99.0%.ConclusionPremature deaths due to respiratory disorders are potentially avoidable with improved public health initiatives and equitable access to quality healthcare. Further research should focus on developing prognostic guidance and validated tools for clinical practice to mitigate risks of respiratory-associated deaths.PROSPERO registration numberCRD42020180479.

People With Intellectual Disabilities in Iceland: A Bourdieuean Interpretation of Self-Advocacy

2009 ◽  
Vol 47 (6) ◽  
pp. 436-446 ◽  
Author(s):  
Kristín Björnsdóttir ◽  
IngólfurÁsgeir Jóhannesson
Keyword(s):  
Qualitative Research ◽  
Young Adults ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Social Status ◽  
Social Participation ◽  
Social Strategies ◽  
Self Advocacy ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities

Abstract There are many barriers to social participation in Iceland for people with intellectual disabilities. This article builds on qualitative research with young adults with intellectual disabilities. The purpose of this article is to develop an approach where the struggles over the meaning of social participation of people with intellectual disabilities are seen as social strategies. In the article, the authors suggest that people with intellectual disabilities are carving out a space where intellectual disability is gaining higher social status. They also posit that people with intellectual disabilities use several social strategies in the emerging field of self-advocacy for the purpose of improving their social position. Thus, the article contributes to a new social understanding of disability and how people with disabilities gain authority over their lives and experiences.

scholarly journals Sedentary behaviour levels in adults with an intellectual disability: a systematic review and meta-analysis

2021 ◽  
Vol 4 ◽  
pp. 69
Author(s):  
Louise Lynch ◽  
Mary McCarron ◽  
Philip McCallion ◽  
Eilish Burke
Keyword(s):  
Systematic Review ◽  
Intellectual Disability ◽  
Sedentary Behaviour ◽  
Screen Time ◽  
Data Extraction ◽  
Meta Analysis ◽  
Grey Literature ◽  
Extraction Process ◽  
Assessment Tools ◽  
High Prevalence

Background: Sedentary behaviour (SB), which is characterised by low levels of energy expenditure, has been linked to increased cardio-metabolic risks, obesity and mortality, as well as cancer risk. No firm guidelines are established on safe levels of SB. Adults with an intellectual disability (ID) have poorer health than their counterparts in the general population with higher rates of multi-morbidity, inactivity, and obesity. The reasons for this health disparity are unclear however it is known that SB and overall inactivity contribute to poorer health. There is no clear picture of the levels of SB among individuals with ID therefore SB levels in this vulnerable population need to be examined. The aim of this systematic review is to investigate the prevalence of sedentary behaviour in adults with an ID.   Methods: The PRISMA-P framework was applied to identify high quality articles. An extensive search was carried out in four databases and grey literature sources . In total, 1,972 articles were retrieved of which 48 articles went forward for full review after duplicate removal and screening by title and abstract. The National Institute of Health’s quality assessment tools were used to assess article quality. Two reviewers independently assessed each article. An excel spreadsheet was created to guide the data extraction process. The final review included 25 articles. A meta-analysis was completed using REVMAN.   Results: Different SB assessment types were identified in studies. These included steps, time, questionnaires, and screen time. Studies were heterogeneous. Observed daily steps per individual ranged from 44 to above 30,000, with an average of approximately 6,500 steps. Mean daily time spent in SBs was more than 60% of available time, with observed screen time of more than 3 hours.  Conclusion: There is a high prevalence of SB in adults with an intellectual disability.   [Registration no: Index CRD42020177225].

scholarly journals Exercise interventions to improve balance for young people with intellectual disabilities: a systematic review and meta‐analysis

2018 ◽  
Vol 61 (4) ◽  
pp. 406-418 ◽  
Author(s):  
Christophe Maïano ◽  
Olivier Hue ◽  
Alexandre J S Morin ◽  
Geneviève Lepage ◽  
Danielle Tracey ◽  
...  
Keyword(s):  
Systematic Review ◽  
Young People ◽  
Intellectual Disabilities ◽  
Meta Analysis ◽  
Exercise Interventions ◽  
People With Intellectual Disabilities
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