Neoadjuvent Radiotherapy: Health Education and Quality of Life for Patients with Rectal Cancer

Background:Health education is pointed out as the front line in non-pharmacological approaches in fibromyalgia.Objectives:To develop an interdisciplinary educational program to promote the health of individuals with fibromyalgia in Brazil.Methods:This is a qualitative study, through a focus group, carried out in a Basic Health Unit in the city of São Paulo, SP. The guiding questions were about the needs and demands exposed by patients with fibromyalgia and health professionals who work in primary health care. 12 individuals with fibromyalgia and 10 health professionals participated. The data were analyzed using the content analysis method proposed by Bardin, specifically the thematic content analysis.Results:Amigos de Fibro (Fibro Friends) should be conducted through lectures, dynamics and conversation circles. The educational program must include 15 meetings with weekly frequency. The meetings are: 1st to present the program and socialization activities. 2nd: Doctor presents the concepts of fibromyalgia. 3rd: Nurse informs about practices and environments that favor self-care. 4th: Social Worker shows the importance of support. 5th: Physiotherapist shows the main body practices and physical activity. 6th: Nutritionist presents an adequate and healthy diet. 7: Psychologist shows mental health practices. 8th: Pharmacist informs about medicines. 9, 11 and 13: participants perform activities at home. 10: Naturologist presents integrative and complementary practices. 12th: Occupational Therapist encourages methods to save energy. Day 14: Speech therapist helps in the quality of sleep. 15: closing activity.Conclusion:Amigos de Fibro is a program that presents interdisciplinary educational information for individuals with fibromyalgia, being considered a trend of care for the future. The next step is to conduct a clinical trial to verify the effect of this intervention and then implement it in the health service in Brazil. Fibro Friends was created from the conjunct action of patients and healthcare professionals, it can be an effective educational tool to be implemented at primary health attention centers, promoting the self-care, life quality and the promotion of health in individuals with Fibromyalgia. Fibro Friends is an excellent tool for patient education and counseling in Brazil.References:[1]Antunes M, Ferreira A, Oliveira D, Júnior JN, Bertolini S, Marques AP. There is association between the level of physical activity and quality of life of women with fibromyalgia?. Annals of rheumatic diseases. 2019;78(2)650-1. http://dx.doi.org/10.1136/annrheumdis-2019-eular.2835.[2]García-Ríos MC, Navarro-Ledesma S, Tapia-Haro RM, Toledano-Moreno S, Casas-Barragán A, Correa-Rodríguez M et al. Effectiveness of health education in patients with fibromyalgia: a systematic review. European Journal of Physical and Rehabilitation Medicine. 2019;55(2):301-13. https://doi.org/10.23736/S1973-9087.19.05524-2.[3]Oliveira DV, Ferreira AAM, Oliveira DCD, Leme DEDC, Antunes MD, Nascimento Júnior JRAD. Association of the practice of physical activity and of health status on the quality of life of women with fibromyalgia. Journal of Physical Education. 2019;30(1): e3027. https://doi.org/10.4025/jphyseduc.v30i1.3027.[4]Stuifbergen AK, Blozis SA, Becker H, Phillips L, Timmerman G, Kullberg V, et al. A randomized controlled trial of a wellness intervention for women with fibromyalgia syndrome. Clinical Rehabilitation. 2010;24(4):305-18. https://doi.org/10.1177/0269215509343247.Acknowledgements:This study was financed in part by the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - Brasil (CAPES) - Finance Code 001.Disclosure of Interests:None declared

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WeChat ‐assisted health education improves care ability, reduces care burden and improves quality of life of parents of infants after enterostomy

Journal of Paediatrics and Child Health ◽

10.1111/jpc.15399 ◽

2021 ◽

Author(s):

Xiao‐Tan Gao ◽

Ke‐Chu Huang ◽

Xu Cui ◽

Chao‐Ming Zhou

Keyword(s):

Quality Of Life ◽

Health Education ◽

Care Burden

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Discussion of “Effects of radiation and surgery on function and quality of life in rectal cancer patients”

The American Journal of Surgery ◽

10.1016/j.amjsurg.2017.11.061 ◽

2018 ◽

Vol 215 (5) ◽

pp. 867

Author(s):

Amir Bastawrous

Keyword(s):

Quality Of Life ◽

Rectal Cancer ◽

Cancer Patients ◽

Effects Of Radiation

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Delayed Surgery after Neoadjuvant Treatment for Rectal Cancer Does Not Lead to Impaired Quality of Life, Worry for Cancer, or Regret

Cancers ◽

10.3390/cancers13040742 ◽

2021 ◽

Vol 13 (4) ◽

pp. 742

Author(s):

Vincent Maurice Meyer ◽

Richtje R Meuzelaar ◽

Yvonne Schoenaker ◽

Jan-Willem de Groot ◽

Edwin de Boer ◽

...

Keyword(s):

Quality Of Life ◽

Rectal Cancer ◽

Neoadjuvant Treatment ◽

Response Assessment ◽

Assessment Protocol ◽

Delayed Surgery ◽

Surgery Group ◽

Repeated Response ◽

Immediate Surgery

Non operative management of complete clinical responders after neoadjuvant treatment for rectal cancer enjoys an increasing popularity because of the increased functional outcome results. Even a near complete response can evolve in a cCR, and therefore further delaying response assessment is accepted. However, up to 40% of patients will develop a regrowth and will eventually require delayed surgery. It is presently unknown if and to what extent quality of life of these patients is affected, compared to patients who undergo immediate surgery. Between January 2015-May 2020, 200 patients were treated with neoadjuvant therapy of whom 94 received TME surgery. Fifty-one (59%) of 87 alive patients returned the questionnaires: 33 patients who underwent immediate and 18 patients who underwent delayed surgery. Quality of life was measured through the QLQ-C30, QLQ-CR29, and Cancer Worry Scale questionnaires. Regret to participate in repeated response assessment protocol was assessed through the Decision Regret Scale. Exploratory factor analysis (EFA) and a ‘known groups comparison’ was performed to assess QLQ questionnaires validity in this sample. Higher mean physical function scores (89.2 vs. 77.6, p = 0.03) were observed in the immediate surgery group, which lost significance after correction for operation type (p = 0.25). Arousal for men was higher in the delayed surgery group (20.0 vs. 57.1, p = 0.02). There were no differences between surgical groups for the other questionnaire items. Worry for cancer was lower in the delayed surgery group (10.8 vs. 14.0, p = 0.21). Regret was very low (12–16%). EFA reproduced most QLQ C-30 and CR29 subscales with good internal consistency. Quality of life is not impaired in patients undergoing delayed TME surgery after neoadjuvant treatment for rectal cancer. Moreover, there is very low regret and no increase in worry for cancer. Therefore, from a quality of life perspective, this study supports a repeated response assessment strategy after CRTx for rectal carcinoma to identify all complete responders.

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WeChat ‐assisted pre‐operative health education improves the quality of life of parents of children with ventricular septal defects: A prospective randomised controlled study

Journal of Paediatrics and Child Health ◽

10.1111/jpc.15307 ◽

2021 ◽

Author(s):

Qi‐Liang Zhang ◽

Ning Xu ◽

Shu‐Ting Huang ◽

Hua Cao ◽

Qiang Chen

Keyword(s):

Quality Of Life ◽

Health Education ◽

Controlled Study ◽

Ventricular Septal Defects ◽

Septal Defects ◽

Randomised Controlled Study ◽

Randomised Controlled

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Quality of Life Among Disease-Free Survivors of Rectal Cancer

Journal of Clinical Oncology ◽

10.1200/jco.2004.03.137 ◽

2004 ◽

Vol 22 (2) ◽

pp. 354-360 ◽

Cited By ~ 153

Author(s):

Philippe Rauch ◽

Joelle Miny ◽

Thierry Conroy ◽

Lionel Neyton ◽

Francis Guillemin

Keyword(s):

Quality Of Life ◽

Rectal Cancer ◽

Cancer Survivors ◽

German Population ◽

European Organization ◽

Eortc Qlq C30 ◽

Eortc Qlq ◽

The Impact ◽

Disease Free

Purpose To identify factors affecting the quality of life (QoL) of disease-free survivors of rectal cancer. Patients and Methods One hundred twenty-one patients in complete remission more than 2 years after diagnosis were asked to complete three QoL questionnaires: the European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30; its colorectal module, QLQ-CR38; and the Duke generic instrument. Results Patients reported less pain (P = .002) than did controls drawn from the general population. EORTC QLQ-C30 physical scores were also higher among rectal cancer survivors than in the general Norwegian or German population (P = .0005 and P = .002, respectively). Unexpectedly, stoma patients reported better social functioning than did nonstoma patients (P = .005), with less anxiety (P = .008) and higher self-esteem (P = .0002). In the present authors' experience, the QLQ-CR38 does not discriminate between these groups. Residual abdominal or pelvic pain and constipation had the most negative influence on QoL. Conclusion QoL is high among rectal cancer survivors, including stoma patients. Simultaneous use of several QoL questionnaires appears to have value in follow-up and in monitoring the effects of therapy. The impact of residual pain and constipation on long-term QoL should be considered when establishing a treatment regimen.

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