scholarly journals The Tango of Problem Formulation: A Patient’s/Researcher’s Reflection on an Action Design Research Journey

10.2196/16916 ◽  
2020 ◽  
Vol 22 (7) ◽  
pp. e16916 ◽  
Author(s):  
Michael B Twomey ◽  
David Sammon ◽  
Tadhg Nagle
Keyword(s):  
Cystic Fibrosis ◽  
Tacit Knowledge ◽  
Design Research ◽  
Life Experience ◽  
Real Life ◽  
Problem Formulation ◽  
Memory Recall ◽  
Action Design Research ◽  
End Point ◽  
Oriented Research

This paper reports on the reflection of the lead researcher, a 48-year-old patient with cystic fibrosis (CF), and aims to portray his real-life experience of a 10-month action design research (ADR) project. Playing a dual role, as both a patient and researcher, the lead researcher reflects deeply on his ADR experience with particular emphasis on the problem formulation stage of creating a simple yet impactful checklist to aid memory recall of CF patients or caregivers during a medical appointment. Using Driscoll’s model of reflection, a real-life unsanitized ADR experience is carefully imparted via a series of 4 vignettes, including 4 key learnings, which highlight the connection between a meticulous considered approach to problem formulation and truly effective outcomes. By providing this rich account of problem formulation within ADR, it is hoped that this reflection will help researchers to better understand the complexity of problem formulation in design-oriented research; to avoid making assumptions and becoming fixated on solutions; and to move instead to an end point where several possible ways of examining a problem have been considered, explored, and understood—an end point where successful end results are reached through grit and determination. This paper advocates for the inclusion and portrayal of the actual realities or ups and downs of this dynamic and evolving stage of ADR, capturing the often-tacit knowledge of problem formulation and begetting a sense of realism and humanity to ADR serving as knowledge contributions in their own right. The lead researcher is the patient and researcher in this ADR project. This is my story!

scholarly journals The Tango of Problem Formulation: A Patient’s/Researcher’s Reflection on an Action Design Research Journey (Preprint)

2019 ◽  
Author(s):  
Michael B Twomey ◽  
David Sammon ◽  
Tadhg Nagle
Keyword(s):  
Cystic Fibrosis ◽  
Tacit Knowledge ◽  
Design Research ◽  
Life Experience ◽  
Real Life ◽  
Problem Formulation ◽  
Memory Recall ◽  
Action Design Research ◽  
End Point ◽  
Oriented Research

UNSTRUCTURED This paper reports on the reflection of the lead researcher, a 48-year-old patient with cystic fibrosis (CF), and aims to portray his real-life experience of a 10-month action design research (ADR) project. Playing a dual role, as both a patient and researcher, the lead researcher reflects deeply on his ADR experience with particular emphasis on the problem formulation stage of creating a simple yet impactful checklist to aid memory recall of CF patients or caregivers during a medical appointment. Using Driscoll’s model of reflection, a real-life unsanitized ADR experience is carefully imparted via a series of 4 vignettes, including 4 key learnings, which highlight the connection between a meticulous considered approach to problem formulation and truly effective outcomes. By providing this rich account of problem formulation within ADR, it is hoped that this reflection will help researchers to better understand the complexity of problem formulation in design-oriented research; to avoid making assumptions and becoming fixated on solutions; and to move instead to an end point where several possible ways of examining a problem have been considered, explored, and understood—an end point where successful end results are reached through grit and determination. This paper advocates for the inclusion and portrayal of the actual realities or ups and downs of this dynamic and evolving stage of ADR, capturing the often-tacit knowledge of problem formulation and begetting a sense of realism and humanity to ADR serving as knowledge contributions in their own right. The lead researcher is the patient and researcher in this ADR project. This is my story!

scholarly journals P203 Real-life experience with levofloxacin solution for inhalation in adult patients with cystic fibrosis

2019 ◽  
Vol 18 ◽  
pp. S114-S115
Author(s):  
R. Di Tria ◽  
E. Clivati ◽  
C. Biglia ◽  
S. Demichelis ◽  
C. Ferrero ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Life Experience ◽  
Real Life ◽  
Adult Patients

scholarly journals Win-Win-Win: Reflections from a Work-Integrated Learning Project in a Non-Profit Organization

10.28945/3467 ◽  
2016 ◽  
Author(s):  
Dale C MacKrell
Keyword(s):  
Design Research ◽  
Real Life ◽  
Integrated Learning ◽  
Action Design Research ◽  
Generic Skills ◽  
Non Profit ◽  
Capstone Project ◽  
Education Industry ◽  
Work Integrated Learning ◽  
Research And Design

[The final form of this paper was published in the journal Issues in Informing Science and Information Technology.] This paper reports on the educational aspects of an information systems work-integrated learning (WIL) capstone project for an organization which operates to alleviate homelessness in the Australian non-profit sector. The methodology adopted for the study is Action Design Research (ADR) which draws on action research and design research as a means for framing a project's progress. Reflective insights by the project stakeholders, namely, students, academics, and the non-profit client, reveal a curriculum at work through internal features of the organization; personal features of the participants and features of the external environment. Preliminary findings suggest that students in a WIL project for a non-profit are highly engaged, especially when they become aware of the project’s social value. As well, the improvement of professional skills and emotional intelligence by students is more likely in real-life practice settings than in other less authentic WIL activities, equipping graduates for the workforce with both strong disciplinary and generic skills. Win-win-win synergies through project collaboration represent worthwhile outcomes to education, industry and research.

Real life experience of lumacaftor/ivacafotor in adult Phe508del homozygous cystic fibrosis patients.

2018 ◽  
Author(s):  
Giacomo Domenico Maria Bonizzoni ◽  
Michela Bellocchia ◽  
Cristina Bena ◽  
Elisa Clivati ◽  
Carlotta Biglia ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Life Experience ◽  
Real Life

P195 Real-life experience with CFTR modulators in Latin American cystic fibrosis patients homozygous p.F508

2020 ◽  
Vol 19 ◽  
pp. S111
Author(s):  
A. Teper ◽  
V. Rodriguez ◽  
S. Lubovich ◽  
S. Zaragoza ◽  
F. García Bournisen
Keyword(s):  
Cystic Fibrosis ◽  
Latin American ◽  
Life Experience ◽  
Real Life ◽  
Cftr Modulators

scholarly journals Intravenous fosfomycin for pulmonary exacerbation of cystic fibrosis: Real life experience of a large adult CF centre

2018 ◽  
Vol 50 ◽  
pp. 82-87 ◽  
Author(s):  
G. Spoletini ◽  
M. Kennedy ◽  
L. Flint ◽  
T. Graham ◽  
C. Etherington ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Life Experience ◽  
Real Life ◽  
Pulmonary Exacerbation ◽  
Large Adult

scholarly journals Win-Win-Win: Reflections from a Work-Integrated Learning Project in a Non-Profit Organization

10.28945/3466 ◽  
2016 ◽  
Vol 13 ◽  
pp. 047-061
Author(s):  
Dale C MacKrell
Keyword(s):  
Design Research ◽  
Real Life ◽  
Integrated Learning ◽  
Action Design Research ◽  
Generic Skills ◽  
Non Profit ◽  
Capstone Project ◽  
Education Industry ◽  
Work Integrated Learning ◽  
Research And Design

This paper reports on the educational aspects of an information systems work-integrated learning (WIL) capstone project for an organization which operates to alleviate homelessness in the Australian non-profit sector. The methodology adopted for the study is Action Design Research (ADR) which draws on action research and design research as a means for framing a project's progress. Reflective insights by the project stakeholders, namely, students, academics, and the non-profit client, reveal a curriculum at work through internal features of the organization; personal features of the participants and features of the external environment. Preliminary findings suggest that students in a WIL project for a non-profit are highly engaged, especially when they become aware of the project’s social value. As well, the improvement of professional skills and emotional intelligence by students is more likely in real-life practice settings than in other less authentic WIL activities, equipping graduates for the workforce with both strong disciplinary and generic skills. Win-win-win synergies through project collaboration represent worthwhile outcomes to education, industry and research.

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