scholarly journals Academic Palliative Care Research in Portugal: Are We on the Right Track?

Healthcare ◽  
2018 ◽  
Vol 6 (3) ◽  
pp. 97 ◽  
Author(s):  
Alexandra Pereira ◽  
Amélia Ferreira ◽  
José Martins
Keyword(s):  
Palliative Care ◽  
Underserved Populations ◽  
Research Priorities ◽  
Care Research ◽  
Academic Production ◽  
Practice Based Research ◽  
Academic Publications ◽  
Number Of Publications ◽  
The Right ◽  
Care Development

Background: The narrow link between practice, education, and research is essential to palliative care development. In Portugal, academic postgraduate publications are the main booster for palliative care research. Methods: This is a bibliometric study that aims to identify Portuguese palliative care postgraduate academic work published in electronic academic repositories between 2000 and 2015. Results: 488 publications were identified. The number of publications has increased, especially in the last five years. The most frequently used method was quantitative, healthcare professionals were the most studied participants, and psychological and psychiatric aspects of care comprised the most current theme. Practice-based priorities are financial costs and benefits of palliative care, awareness and understanding of palliative care, underserved populations, best practices, communication, and palliative care in nonhospital settings. Conclusion: The number of palliative care postgraduate academic publications has increased in Portugal in the past few years. There is academic production in the eight domains of quality palliative care and on the three levels of recommendation for practice-based research priorities. The major research gaps in Portugal are at the system and societal context levels.

Palliative Care Research Priorities Survey

2011 ◽  
Author(s):  
Peter L. Hudson ◽  
Rachel Zordan ◽  
Tom Trauer
Keyword(s):  
Palliative Care ◽  
Research Priorities ◽  
Care Research

scholarly journals International palliative care research priorities: A systematic review

2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Felicity Hasson ◽  
Emma Nicholson ◽  
Deborah Muldrew ◽  
Olufikayo Bamidele ◽  
Sheila Payne ◽  
...  
Keyword(s):  
Systematic Review ◽  
Palliative Care ◽  
Research Priorities ◽  
Care Research

scholarly journals Practice-Based Research Priorities for Palliative Care: Results From a Research-to-Practice Consensus Workshop

2015 ◽  
Vol 105 (11) ◽  
pp. 2237-2244 ◽  
Author(s):  
Karl Pillemer ◽  
Emily K. Chen ◽  
Catherine Riffin ◽  
Holly Prigerson ◽  
M. C. Reid
Keyword(s):  
Palliative Care ◽  
Research Priorities ◽  
Research To Practice ◽  
Practice Based Research

Mapping palliative and end of care research in Australia (2000–2018)

2020 ◽  
Vol 18 (6) ◽  
pp. 713-721
Author(s):  
H. Khalil ◽  
A. Downie ◽  
E. Ristevski
Keyword(s):  
Palliative Care ◽  
Physical Symptoms ◽  
Future Research ◽  
Care Research ◽  
Spirituality And Health ◽  
After Hours Care ◽  
Palliative Care Setting ◽  
Comprehensive Search ◽  
Number Of Publications ◽  
End Of Life Decision

AbstractObjectiveThe objective of this study is to map the existent research undertaken in Australia into broad thematic areas and identify the characteristics of the studies and areas of future research in the literature.MethodsA scoping review methodology was employed to map the current areas of research undertaken in Australia since January 2000 until the end of December 2018 according to years of publications, types of studies, populations studied, research themes, and areas of focus.ResultsOur review identified 1,405 Australian palliative care research publications between January 2000 and December 2018. Nearly 40% of the studies were quantitative (39%) and a third were qualitative studies (31%). The remainder of the studies were reviews, mixed methods, quality improvement projects, and others. One-third (30%) of the research was done with carers' participants followed by nurses (22%) and doctors and physicians (18%). The most frequently reported diagnosis in the studies was cancer with 42% of the publication total. The most frequently explored theme was physical symptoms (such as pain, breathlessness, nausea, delirium, and dyspnea) with a total of 16% of all articles followed by communication (15%). There was a large gap to the next most frequently explored theme with service delivery (9%) and coordination of care (8%). Assessment of patients (7%), end-of-life decision-making (6%), and rural/regional (6%) all produced a similar number of publications. Very few studies addressed topics such as quality of life, E-Health, after-hours care, spirituality, and health economics. Moreover, there were only 15 (1%) studies focused on the last days of life.Significance of the resultsThe current review presented a comprehensive search of the literature across almost two decades in Australia in the palliative care setting. It has covered a breadth of research topics and highlighted urgent areas for further research.

scholarly journals International Palliative Care Research Priorities: A Systematic Review

2020 ◽  
Author(s):  
Felicity Hasson ◽  
Emma Nicholson ◽  
Deborah Muldrew ◽  
Olufikayo Bamidele ◽  
Sheila Payne ◽  
...  
Keyword(s):  
Systematic Review ◽  
Palliative Care ◽  
Research Agenda ◽  
Data Extraction ◽  
Grey Literature ◽  
Research Priorities ◽  
Education Inequality ◽  
Care Research ◽  
Priority Areas ◽  
Living Well

Abstract Background: There has been increasing evidence and debate on palliative care research priorities and the international research agenda. To date, however, there is a lack of synthesis of this evidence, examining commonalities, differences, and gaps. To identify and synthesize literature on international palliative care research priorities originating from Western countries mapped to a quality assessment framework.Methods: A systematic review of several academic and grey databases were searched from January 2008- June 2019 for studies eliciting research priorities in palliative care in English. Two researchers independently reviewed, critically appraised, and conducted data extraction and synthesis.Results: The search yielded 10,235 articles (academic databases, n = 4108; grey literature, n = 6127), of which ten were included for appraisal and review. Priority areas were identified: service models; continuity of care; training and education; inequality; communication; living well and independently; and recognising family/carer needs and the importance of families. Methodological approaches and process of reporting varied. There was little representation of patient and caregiver driven agendas. The priorities were mapped to the Donabedian framework for assessing quality reflecting structure, process and outcomes and key priority areas.Conclusions: Limited evidence exists pertaining to research priorities across palliative care. Whilst a broad range of topics were elicited, approaches and samples varied questioning the credibility of findings. The voice of the care provider dominated, calling for more inclusive means to capture the patient and family voice. The findings of this study may serve as a template to understand the commonalities of research, identify gaps, and extend the palliative care research agenda.

Palliative care research – priorities and the way forward

2008 ◽  
Vol 44 (8) ◽  
pp. 1175-1179 ◽  
Author(s):  
Stein Kaasa ◽  
Lukas Radbruch
Keyword(s):  
Palliative Care ◽  
Research Priorities ◽  
Care Research ◽  
The Way

scholarly journals International Palliative Care Research Priorities: A Systematic Review

2019 ◽  
Author(s):  
Felicity Hasson ◽  
Emma Nicholson ◽  
Deborah Muldrew ◽  
Olufikayo Bamidele ◽  
Sheila Payne ◽  
...  
Keyword(s):  
Systematic Review ◽  
Palliative Care ◽  
Research Agenda ◽  
Data Extraction ◽  
Research Priorities ◽  
Education Inequality ◽  
Care Research ◽  
Living Well ◽  
Care Training ◽  
The Voice

Abstract Background : There has been increasing evidence and debate on palliative care research priorities and the international research agenda. To date, however, there is a lack of synthesis of this evidence, examining commonalities, differences, and gaps. To identify and synthesize literature on international palliative care research priorities mapped to a quality assessment framework.Methods: A systematic review of several academic and grey databases were searched from January 2008- June 2019 for studies eliciting research priorities in palliative care in English. Two researchers independently reviewed, critically appraised, and conducted data extraction and synthesis.Results: The search yielded 10,325 of which ten were included for appraisal and review.Priority areas were identified: service models; continuity of care; training and education; inequality; communication; living well and independently; and recognising family/carer needs and the importance of families. Methodological approaches and process of reporting varied. There was little representation of patient and caregiver driven agendas. The priorities were mapped to the Donabedian framework for assessing quality reflecting structure, process and outcomes and key priority areas. Conclusions : Limited evidence exists pertaining to research priorities across palliative care. Whilst a broad range of topics were elicited, approaches and samples varied questioning the credibility of findings. The voice of the care provider dominated, calling for more inclusive means to capture the patient and family voice. The findings of this study may serve as a template to understand the commonalities of research, identify gaps, and extend the palliative care research agenda.

scholarly journals Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation

2020 ◽  
pp. 026921632095681
Author(s):  
Halle Johnson ◽  
Margaret Ogden ◽  
Lisa Jane Brighton ◽  
Simon Noah Etkind ◽  
Adejoke O Oluyase ◽  
...  
Keyword(s):  
Palliative Care ◽  
Public Involvement ◽  
Qualitative Evaluation ◽  
Patient And Public Involvement ◽  
Relationship Building ◽  
High Quality Research ◽  
Care Research ◽  
Rehabilitation Research ◽  
More Care ◽  
The Right

Background: Public involvement is increasingly considered a prerequisite for high-quality research. However, involvement in palliative care is impeded by limited evidence on the best approaches for populations affected by life-limiting illness. Aim: To evaluate a strategy for public involvement in palliative care and rehabilitation research, to identify successful approaches and areas for improvement. Design: Co-produced qualitative evaluation using focus groups and interviews. Thematic analysis undertaken by research team comprising public contributors and researchers. Setting/participants: Researchers and public members from a palliative care and rehabilitation research institute, UK. Results: Seven public members and 19 researchers participated. Building and maintaining relationships, taking a flexible approach and finding the ‘right’ people were important for successful public involvement. Relationship building created a safe environment for discussing sensitive topics, although public members felt greater consideration of emotional support was needed. Flexibility supported involvement alongside unpredictable circumstances of chronic and life-limiting illness, and was facilitated by responsive communication, and opportunities for in-person and virtual involvement at a project- and institution-level. However, more opportunities for two-way feedback throughout projects was suggested. Finding the ‘right’ people was crucial given the diverse population served by palliative care, and participants suggested more care needed to be taken to identify public members with experience relevant to specific projects. Conclusion: Within palliative care research, it is important for involvement to focus on building and maintaining relationships, working flexibly, and identifying those with relevant experience. Taking a strategic approach and developing adequate infrastructure and networks can facilitate public involvement within this field.

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