Single-event multilevel surgery for crouching cerebral palsy children: Correlations with quality of life and functional mobility

2018 ◽  
Vol 2 (4) ◽  
pp. 148 ◽  
Author(s):  
John Amen ◽  
TamerA El-Sobky ◽  
Mohamed ElGebeily ◽  
DaliaM. E. El.Mikkawy ◽  
AhmedH Yousry
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Functional Mobility ◽  
Single Event ◽  
Multilevel Surgery

scholarly journals What is the functional mobility and quality of life in patients with cerebral palsy following single-event multilevel surgery?

2020 ◽  
Vol 14 (2) ◽  
pp. 139-144 ◽  
Author(s):  
Tomos Aled Edwards ◽  
Robin John Prescott ◽  
Julie Stebbins ◽  
James Wright ◽  
Tim Theologis
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Functional Mobility ◽  
Single Event ◽  
School Work ◽  
Multilevel Surgery ◽  
Long Term Follow Up

Purpose To report functional mobility in patients with diplegic cerebral palsy (CP) at long-term follow-up after single-event multilevel surgery (SEMLS). The secondary aim was to assess the relationship between functional mobility and quality of life (QoL) in patients previously treated with SEMLS. Methods A total of 61 patients with diplegic CP, mean age at surgery 11 years, eight months (sd 2 years, 5 months), were included. A mean of eight years (sd 3 years, 10 months) after SEMLS, patients were contacted and asked to complete the Functional Mobility Scale (FMS) questionnaire over the telephone and given a weblink to complete an online version of the CP QOL Teen. FMS was recorded for all patients and CP QOL Teen for 23 patients (38%). Results Of patients graded Gross Motor Function Classification System (GMFCS) I and II preoperatively, at long-term follow-up the proportion walking independently at home, school/work and in the community was 71% (20/28), 57% (16/28) and 57% (16/28), respectively. Of patients graded GMFCS III preoperatively, at long-term follow-up 82% (27/33) and 76% (25/33) were walking either independently or with an assistive device at home and school/work, respectively, while over community distances 61% (20/33) required a wheelchair. The only significant association between QoL and functional mobility was better ‘feelings about function’ in patients with better home FMS scores (r = 0.55; 95% confidence interval 0.15 to 0.79; p = 0.01). Conclusion The majority of children maintained their preoperative level of functional mobility at long-term follow-up after SEMLS. Level of Evidence IV

Quality of life in youngsters with cerebral palsy after single-event multilevel surgery

2013 ◽  
Vol 17 (4) ◽  
pp. 401-406 ◽  
Author(s):  
E. Himpens ◽  
I. Franki ◽  
D. Geerts ◽  
R. Tack ◽  
R. Van der Looven ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Single Event ◽  
Multilevel Surgery

Health-Related Quality of Life Outcomes Improve After Multilevel Surgery in Ambulatory Children With Cerebral Palsy

2007 ◽  
Vol 27 (6) ◽  
pp. 653-657 ◽  
Author(s):  
Anna V. Cuomo ◽  
Seth C. Gamradt ◽  
Chang O. Kim ◽  
Marinis Pirpiris ◽  
Philip E. Gates ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Health Related Quality ◽  
Life Outcomes ◽  
Quality Of Life Outcomes ◽  
Multilevel Surgery ◽  
Children With Cerebral Palsy ◽  
Related Quality ◽  
Health Related

scholarly journals Quality of life and satisfaction after multilevel surgery in cerebral palsy: Confronting the experience of children and their parents

2014 ◽  
Vol 57 (9-10) ◽  
pp. 640-652 ◽  
Author(s):  
A. Stephan-Carlier ◽  
J. Facione ◽  
E. Speyer ◽  
E. Rumilly ◽  
J. Paysant
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Multilevel Surgery

scholarly journals Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol

BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Catherine Arnaud ◽  
Carine Duffaut ◽  
Jérôme Fauconnier ◽  
Silke Schmidt ◽  
Kate Himmelmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Cerebral Palsy ◽  
Young People ◽  
General Population ◽  
Transition Period ◽  
Well Being ◽  
Personal Factors ◽  
The Impact

Abstract Background Effective inclusion in society for young people with disabilities is increasingly seen as generating opportunities for self-development, and improving well-being. However, significant barriers remain in the vast majority of activities meaningful for young adults. Research argues that various personal (disabilities, health) and environmental (access to the resources needed, accessible environment, discrimination, lack of personal economic independence) factors contribute to limited participation. However, previous studies conducted in young people with cerebral palsy (CP) mainly investigated the transition period to adulthood, and did not fully consider the whole range of impairment severity profiles or environmental barriers. In this study, we will use the follow-up of the SPARCLE cohort and a comparison group from the general population (1) to investigate the impact of the environment on participation and quality of life of young adults with CP, (2) to determine predictors of a successful young adulthood in educational, professional, health and social fields, (3) to compare quality of life and frequency of participation in social, work and recreational activities with the general population, (4) to document on participation and quality of life in those with severe disabilities. Methods The SPARCLE3 study has a combined longitudinal and cross-sectional design. Young adults with CP aged 22 to 27 years in 6 European regions previously enrolled in the SPARCLE cohort or newly recruited will be invited to self-complete a comprehensive set of questionnaires exploring participation (daily life and discretionary activities), health-related quality of life, body function, personal factors (health, personal resources), and contextual factors (availability of needed environmental items, family environment, services provision) during home visits supervised by trained researchers. Proxy-reports or adapted questionnaires will be used for those with the most severe impairments. The recruitment of a large group from the general population (online survey) will enable to identify life areas where the discrepancies between young people with CP and their able-bodied peers are the most significant. Discussion This study will help identify to what extent disabilities and barriers in environment negatively affect participation and quality of life, and how previous valued experiences during childhood or adolescence might modulate these effects.

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