On-Line with the Friends of Bill W: Social Support and the Net

2000 ◽  
Vol 5 (2) ◽  
pp. 33-44 ◽  
Author(s):  
Nicholas Pleace ◽  
Roger Burrows ◽  
Brian Loader ◽  
Steven Muncer ◽  
Sarah Nettleton

The Internet is now being used as a mechanism for the delivery of social support on a global scale, chiefly through the formation of self-help groups. Most of the research that has been undertaken on these groups has focussed on Usenet and the use of newsgroups for social support. This paper examines the use of an Internet Relay Chat (IRC) ‘room’, by a self-help group composed of problem drinkers. The group had an international membership and advocated the use of social support, rather than intervention by professional services, to help its membership overcome problem drinking. The paper considers the roles that these new forms of Internet mediated self-help and social support might play in changing the relationships of those who participate in them towards traditional health and social care services. The paper also critically examines the extent to which such fora might function as virtual ‘communities’ of care.

Author(s):  
Maonolis Tsiknakis

This chapter provides an overview and discussion of virtual communities in health and social care. The available literature indicates that a virtual community in health or social care can be defined as a group of people using telecommunications with the purposes of delivering health care and education, and/or providing support. Such communities cover a wide range of clinical specialties, technologies and stakeholders. Examples include peer-to-peer networks, virtual health care delivery and E-Science research teams. Virtual communities may empower patients and enhance coordination of care services; however, there is not sufficient systematic evidence of the effectiveness of virtual communities on clinical outcomes. When practitioners utilize virtual community tools to communicate with patients or colleagues they have to maximize sociability and usability of this mode of communication, while addressing concerns for privacy and the fear of de-humanizing practice, and the lack of clarity or relevance of current legislative frameworks. Furthermore, the authors discuss in this context ethical, legal considerations and the current status of research in this domain. Ethical challenges including the concepts of identity and deception, privacy and confidentiality and technical issues, such as sociability and usability are introduced and discussed.


2011 ◽  
pp. 367-386
Author(s):  
Maonolis Tsiknakis

This chapter provides an overview and discussion of virtual communities in health and social care. The available literature indicates that a virtual community in health or social care can be defined as a group of people using telecommunications with the purposes of delivering health care and education, and/or providing support. Such communities cover a wide range of clinical specialties, technologies and stakeholders. Examples include peer-to-peer networks, virtual health care delivery and E-Science research teams. Virtual communities may empower patients and enhance coordination of care services; however, there is not sufficient systematic evidence of the effectiveness of virtual communities on clinical outcomes. When practitioners utilize virtual community tools to communicate with patients or colleagues they have to maximize sociability and usability of this mode of communication, while addressing concerns for privacy and the fear of de-humanizing practice, and the lack of clarity or relevance of current legislative frameworks. Furthermore, the authors discuss in this context ethical, legal considerations and the current status of research in this domain. Ethical challenges including the concepts of identity and deception, privacy and confidentiality and technical issues, such as sociability and usability are introduced and discussed.


1986 ◽  
Vol 17 (2) ◽  
pp. 139-163 ◽  
Author(s):  
David Droge ◽  
Paul Arntson ◽  
Robert Norton

2011 ◽  
Vol 5 (8) ◽  
pp. 1920 ◽  
Author(s):  
Camila Caixeta ◽  
Mônica Morraye ◽  
Wilza Vilella ◽  
Semiramis Rocha

ABSTRACTObjective: to identify and categorize social support reported by people living with aids, given that aids today is characterized as a chronic disease, for which social supports are essential. Method: qualitative study with eight people living with aids, users of reference service in a small city in the state of Minas Gerais, Brazil. In data analysis, initial and focused coding was used. The study was approved by the Research Ethics Committee of the UNIFRAN (0018/2010). Results: the family, especially mothers, and health professionals were the main source of emotional support. Spouses, friends and institutions were sources of emotional and instrumental support. Internet, support and self-help groups offered informative support. Social security benefits and public policies were identified as instrumental support. Spirituality and religion appeared as emotional and informational support. Self-help was characterized as reinforcement support. Conclusion: the identification of sources of support is important to facilitate the establishment of strategies for integration of individuals into society, minimizing risks of social exclusion and health damage. Descriptors: social support; acquired immunodeficiency syndrome; health promotion.RESUMOObjetivo: identificar e categorizar os apoios sociais relatados por pessoas vivendo com aids, considerando que a aids hoje se caracteriza por ser uma doença crônica, para a qual os apoios sociais são essenciais. Método: estudo qualitativo com oito pessoas vivendo com aids, usuários de serviço de referência em um município de pequeno porte no interior do Estado de Minas Gerais, Brasil . Para análise das entrevistas foi utilizada a codificação inicial e focalizada. O estudo foi aprovado pelo Comitê de Ética da UNIFRAN (0018/2010). Resultados: a família, especialmente as mães, e profissionais de saúde foram as principais fontes de apoio emocional. Cônjuges, amigos e instituições constituíram fontes de apoio emocional e instrumental. Internet, grupos de adesão e autoajuda ofereceram apoio informativo. Benefícios previdenciários e políticas governamentais foram identificados como apoio instrumental. A espiritualidade e a religião apareceram como apoio emocional e informativo. Autoajuda foi caracterizada como apoio de reforço. Conclusão: a identificação das fontes de apoio é importante para facilitar o estabelecimento de estratégias de integração desses indivíduos na sociedade, minimizando riscos de exclusão social e danos à saúde. Descritores: Apoio social; síndrome da imunodeficiência adquirida; promoção de saúde.RESUMENObjetivo: identificar y clasificar el apoyo social reportado por las personas que viven con sida, teniendo em cuenta que hoy en día el sida se caracteriza por una enfermedad crónica, por lo que los apoyos sociales son esenciales. Método: estudio cualitativo de ocho personas que viven con el SIDA, usuarias del servicio de referencia en una pequeña ciudad en el estado de Minas Gerais, Brasil. Para el análisis de las entrevistas se utilizó la codificación inicial y centralizada. El estudio fue aprobado por el Comité de Ética de Unifran (0018/2010). Resultados: la familia, especialmente las madres y profesionales de la salud fueron la principal fuente de apoyo emocional. Los cónyuges, amigos e instituciones constituyeron fuentes de apoyo emocional e instrumental. Internet, grupos de adhesión y autoayuda ofrecieron apoyo informativo. Beneficios de seguridad social y las políticas gubernamentales fueron identificados como apoyo instrumental. Espiritualidad y religión aparecieron como apoyo emocional e informativo. La autoayuda se caracterizó como apoyo de refuerzo. Conclusión: la identificación de las fuentes de apoyo es importante para facilitar el establecimiento de estrategias para la integración de estos individuos en la sociedad, minimizando los riesgos de exclusión social y daños a la salud. Descriptores: apoyo social; síndrome de inmunodeficiencia adquirida; promoción de la salud.


2014 ◽  
Vol 35 (3) ◽  
pp. 29-35 ◽  
Author(s):  
Adriano Brischiliari ◽  
Jacqueline Botura Bessa ◽  
Maria Angélica Pagliarini Waidman ◽  
Sonia Silva Marcon

The aim of this study was to understand how family members of people with mental disorders conceive the performance of self-help groups (SG). This qualitative study was conducted with eleven family members who participate in a SG of the Maringaense Mental Health Association. Data were collected from April to June 2010 during group meetings, in an adjoining room, by means of semi-structured interviews, which were then subjected to content analysis. Two categories emerged: "The group compensates for deficiencies in care", which points out deficiencies arising from the formal care services and the benefits of SG for family members and, "Idealized care", which reveals the expectations of the family in relation to mental health care. It was concluded that family members would like activities of the SG to be incorporated by mental health care services and for family care to become a part of the care plan.


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