Bioethics, Adaptive Preferences, and Judging the Quality of a Life with Disability

2021 ◽  
Vol 47 (1) ◽  
pp. 199-220
Author(s):  
Joseph A. Stramondo ◽  

Both mainstream and disability bioethics sometimes contend that the self-assessment of disabled people about their own well-being is distorted by adaptive preferences that are only held because other, better options are unavailable. I will argue that both of the most common ways of understanding adaptive preferences—the autonomy-based account and the well-being account—would reject blanket claims that disabled people’s QOL self-assessment has been distorted, whether those claims come from mainstream bioethicists or from disability bioethicists. However, rejecting these generalizations for a more nuanced view still has dramatic implications for the status quo in both health policy and clinical ethics.

2021 ◽  
Vol 32 (2) ◽  
pp. 95-112
Author(s):  
Nik Shahrizan Nik Mad ◽  
Marzudi Md Yunus ◽  
Muhammad Shamsinor Abdul Azziz

Subjective well-being is the self-assessment of happiness, pleasure, satisfaction and quality of life, measured specifically and holistically. The assessment of subjective well-being is varied based on the area of focus of the researcher. Events that occur over some time also could affect an individual’s evaluation. Various factors assess well-being, such as character, love, wisdom, excitement and experiences leading to a good life. The evaluation of the positive and negative effects also affects the subjects’ emotions and mood during a study. Earlier studies showed that well-being is not merely related to income and ownership, but issues on health, activities, personality, emotions, mood, family, environment and various other factors. Therefore, this article aims to discuss aspects, assessment methods, theories and progress based on articles, books and research related to subjective well-being. This study utilises the literature review approach to collect data on subjective well-being. The finding shows that the level of subjective well-being is diverse and dynamic, and not limited to certain aspects and factors that could affect humans. Keywords: subjective well-being; self-assessment; happiness; life satisfaction; quality of life.


Daedalus ◽  
2012 ◽  
Vol 141 (2) ◽  
pp. 10-30 ◽  
Author(s):  
Michael Greenstone ◽  
Adam Looney

Energy consumption is critical to economic growth and quality of life. America's energy system, however, is malfunctioning. The status quo is characterized by a tilted playing field, where energy choices are based on the visible costs that appear on utility bills and at gas pumps. This system masks the “external” costs arising from those energy choices, including shorter lives, higher health care expenses, a changing climate, and weakened national security. As a result, we pay unnecessarily high costs for energy. New “rules of the road” could level the energy playing field. Drawing from our work for The Hamilton Project, this paper offers four principles for reforming U.S. energy policies in order to increase Americans' well-being.


2017 ◽  
Vol 10 (4) ◽  
pp. 34-45
Author(s):  
O. Razumnikova ◽  
A.A. Yashanina ◽  
N.V. Asanova

It is known that the general, and emotional intelligence reflects a person’s ability to adapt and are predictors of vitality, but it is unknown how these characteristics are combined to assess the current state of health. In this regard, the aim of the study was to investigate the contribution of verbal, spatial and emotional components of intelligence in the self-assessment of the quality of life of students. The study involved students aged 18,7 ± 1,5 years, 66% — women. It was found that the negative expressivity and empathy unhappiness are the main components of emotional intelligence that are negatively correlated with integral indicators of both physical and mental health. Spatial intelligence component has a greater prognostic significance than verbal component for the self-assessment of health status and its high values correspond to fewer symptoms of health disorders. Identified various forms of regression equations to describe the quality of life based on the components of emotional intelligence indicate the possibility of correction of psychological well-being using different contours of emotional regulation of behavior


2017 ◽  
Vol 14 (1) ◽  
pp. 1-36 ◽  
Author(s):  
Gaia Balp

This article outlines potential pros and cons of a future European regulation of proxy advisory firms, as set forth in the Commission’s Proposal for a Directive amending Directive 2007/36/EC. After summarizing criticisms concerning the proxy advisory industry, and findings regarding its de facto influence on investors’ voting conduct both in the US and in the European context, the article adverts to why the power of proxy advisors appears to be overestimated. Uncertainty on the status quo of the industry’s actual impact on key decisions in listed companies, as well as costs associated with a regulation, need to be considered for assessing the suitability of the rules drafted to ensure adequate levels of independence and quality of voting recommendations. While transparency rules may be preferred to stricter legal constraints or requirements in a first stage, possible shortcomings of the Draft Directive exist that may undermine its effectiveness. Analyzing the amendments to the Proposal adopted by the European Parliament, and the Council’s Presidency compromise text, may suggest a preferable approach as regards single rules still making their way through the European legislative process.


2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
A Liinamo ◽  
K Matinheikki-Kokko ◽  
I Gobina ◽  
A Villeruša

Abstract In the future, health promotion would require developed strategies that lead to stronger cross-sectoral cooperation. Cross-sectoral cooperation enables the integration of fragmented resources and competencies, which benefit service solutions for urban health. Healthy Boost “Urban Labs for Better Health for All in the Baltic Sea Region”, funded by the EU Interreg Baltic Sea Region -program, aims to develop the Model for cross-sectoral cooperation, which will be tested in the cities of the Baltic Sea Region during 2020-21. The self-assessment tool for cross-sectoral cooperation was developed, and the self-assessment among the nine cities in seven countries from the Baltic Sea Region was conducted in 2019. The results indicated to what extent the staff (n = 329) in the cities have recognized the cross-sectoral cooperation for health and wellbeing as strategically crucial in their policies, communication, and in the design of their organizational functions. The daily practices were evaluated in terms of how systematically cities have implemented cross-sector actions for health and wellbeing. The biggest challenges for cooperating across sectors for the cities were coordination and systematic identification of the community needs for health promotion. The cooperative actions were less systematic than expected in the strategic approach. The variation among respondents' assessments was high within the cities that lead to a conclusion about existing gaps in coordination, communication, and leadership of cross-sectoral work within the cities. The Likert type self-assessment measurement was statistically reliable in both strategic and operational dimensions of cooperation. Key messages Evaluation and measurements are needed to identify cross-sectoral actions to health and well-being. The evidence-based Model developed in the Healthy Boost project will guide partners towards systematic cross-sectoral cooperation processes.


Author(s):  
Sebastião Cavalcanti Neto ◽  
Ivan Travassos ◽  
Cleverson Molinari Mello

The present article intends to identify the levels of satisfaction of the Faculdade do Litoral Paranaense ISEPE, in order to assess the results in relation to the five Dimensions structured in the Self-assessment being the Tangible Dimensions of Confidence, Responsibility, Security and Empathy. With that it adapted the model SERVQUAL developed by Parasuraman, Zeithaml and Berry (2006) and with the scale of Likert establishing a structured questionnaire in order to establish a direct communication with the academics and users. The general objective of this work is to adapt this model to be used in the Institutional Self-Assessment process of the Faculdade do Litoral Paranaense - ISEPE Guaratuba, seeking to verify the feasibility of the use of these models. After the results obtained and analyzed during the research, it is necessary to appreciate the management of the Institution with the objective of improving the quality of the services provided by the Institution, which are included in the dimensions surveyed.


2021 ◽  
Author(s):  
Soleil Hernandez ◽  
Raymond Mumme ◽  
Laurence Court ◽  
Daniel El Basha ◽  
Skylar Gay ◽  
...  

Purpose: Motivated by perceived dissatisfaction within our lab’s changed working environment brought about by the COVID-19 pandemic, we performed a self-assessment of our lab culture through anonymous surveys and live sessions. Methods: In Survey 1, we asked each lab member to identify and rank up to 10 values that are important for a healthy lab environment. They were then asked to rate how well the lab embodied those values at two time points: before the COVID-19 pandemic while working onsite, and at the time of the survey while working remotely (10 months into the pandemic). In a series of live group sessions, we reviewed relevant literature and the survey results to finalize ten themes. We then reflected on each theme and proposed action items to address any deficiencies. Finally, we conducted Survey 2 after the self-assessment to judge the group's finalized themes, implemented changes, and overall satisfaction with the assessment process. Results: Themes identified were attitude, accountability, teamwork/collaboration, communication, diversity/inclusion, emotional intelligence, integrity, training, well-being, and adaptability in crisis-management. All lab members liked the self-assessment process and felt their voices were heard. On average, there was a 1 2 % increase in satisfaction across all themes from the start to end of the lab assessment. Conclusion: We successfully assessed the culture of our lab and subsequently improved lab member satisfaction. The success of this team project suggests that other scientific labs could benefit from similar interactive self-assessments.


Author(s):  
M. Frelih ◽  
A. Fedorova

The article is devoted to the study of factors that have a negative impact on the well-being of employees in the workplace. Special attention is paid to the problem of presenteeism on the example of a large metallurgical enterprise. A review of foreign and domestic publications allows concluding that until now specialists do not have reliable and valid tools for studying the presenteeism phenomenon in organizations. The purpose of the research presented in the paper is to examine influence of the factors of the intra-organizational environment on the personnel well-being and assess the level of presenteeism at the enterprise. Empirical data were obtained by conducting a sociological survey of various categories of workers, as well as assessing the impact of presenteeism on the economic indicators of the studied enterprise. For the subsequent in-depth study of health problems in the workplace, the authors have developed a research tool based on the use of a digital service, which allows monitoring the self-feeling of employees by the self-assessment method, which determines the level of physical and psychosocial well-being of staff.


2019 ◽  
Vol 36 (11-12) ◽  
pp. 3773-3795
Author(s):  
Nahema El Ghaziri ◽  
Joëlle Darwiche ◽  
Jean-Philippe Antonietti

The aim of this study is to investigate the longitudinal influence of self-esteem on romantic and coparental relationship quality. The data were drawn from the German Family Panel, pairfam. Parents ( n couples = 2,364) were assessed three times over 4 years. The results indicated that romantic and coparental quality decreased over time, while self-esteem remained stable. The self-esteem of both parents predicted initial romantic and coparental quality. Additionally, mothers’ self-esteem reduced the decline in romantic quality. Finally, romantic quality mediated the relationship between parents’ self-esteem and coparental quality. These results suggest that self-esteem might be a resource for the parental couple and even for the family unit, as romantic and coparental quality are key elements for the well-being of both parent and child.


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