scholarly journals Spiritual Experience in Dementia From the Health Care Provider Perspective: Implications for Intervention

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 465-465
Author(s):  
Jennifer Palmer ◽  
Michelle Hilgeman ◽  
Tracy Balboni ◽  
Sara Paasche-Orlow ◽  
Jennifer Sullivan

Abstract Spiritual care seeks to counter negative outcomes from spiritual distress and is notably needed in dementia. Such care needs disease-appropriate customization. Employing “cognitive apprenticeship” theory’s focus on learning from contrast, we explored spiritual needs salient within dementia as related to other disease states; we aimed to inform future dementia-focused spiritual care design. Accordingly, we conducted semi-structured qualitative interviews with 24 providers who serve older adults inclusive of persons with dementia. We sampled participants purposively by discipline (chaplains, nursing staff, social workers, activities professionals) and religious tradition (for chaplains). Our interview guide inquired about the nature of spiritual needs in dementia and stakeholders’ roles in addressing them. Hybrid inductive/deductive thematic analysis was employed. A thematic structure emerged with two themes: 1) spiritual experience in dementia compared to other medical conditions (sub-themes: the salience of (a) fear; (b) loss of self; (c) dementia’s progressive and incurable nature; (d) dementia’s impact on accessing faith); and 2) the need for spiritual intervention at the mild stage of dementia (sub-themes: (a) awareness in mild dementia and its influence on spiritual distress; (b) a window of opportunity). These findings pointed to possibilities for the “what” of spiritual needs and the “who” and “when” of implementing spiritual care. Implications included the imperative for dementia-specific spiritual assessment tools, interventions targeting fear and loss early in the disease, and stakeholder training. Researchers should study the “how” of dementia-appropriate spiritual care given recipients’ cognitive and linguistic challenges. Conjointly, these efforts could promote the spiritual well-being of persons with dementia worldwide.

2021 ◽  
Author(s):  
Jennifer A Palmer ◽  
Michelle Hilgeman ◽  
Tracy Balboni ◽  
Sara Paasche-Orlow ◽  
Jennifer L Sullivan

Abstract Background and Objectives Spiritual care aims to counter negative outcomes from spiritual distress and is beneficial to persons living with dementia. Such care needs dementia-appropriate customization. We explored the salient spiritual needs in dementia to inform future intervention development. Health care providers are well-situated to observe the nature of spiritual needs across and within medical conditions. Research Design and Methods We conducted semi-structured qualitative interviews with providers. We sampled purposively by discipline (chaplains, nursing staff, social workers, activities professionals) and religious tradition (for chaplains). Our interview guide inquired about, e.g., the nature of spiritual needs in dementia and stakeholders’ roles in addressing them. Inductive / deductive thematic analysis was employed. Results Twenty-four providers participated. The thematic structure consisted of two themes: 1) spiritual experience in dementia differs from that in other medical conditions (sub-themes: fear, profound loss of self, progressive and incurable nature, and impacted ability to access faith); and 2) the need for spiritual intervention at the mild stage of dementia (sub-themes: awareness in mild dementia and its influence on spiritual distress, and a window of opportunity). Discussion and Implications We learned about the potential “what” of spiritual needs and “who” and “when” of implementing spiritual care. Implications included the imperative for dementia-specific spiritual assessment tools, interventions targeting fear and loss of self early in symptom progression, and stakeholder training. Researchers should study additionally the “how” of dementia-appropriate spiritual care. Conjointly, these efforts could promote spiritual well-being in persons living with dementia worldwide.


Author(s):  
Elizabeth Johnston Taylor

Spiritual care is integral to palliative care. Palliative care patients and their family members often use spiritual coping strategies, and spiritual well-being is a commonly high-ranked pursuit for those at the end of life. Appropriate spiritual care, however, must reflect the spiritual needs and preferences of the care recipient. Thus, numerous approaches to spiritual screening, history-taking, and assessment exist. Whereas the spiritual screening is proposed as a skill and expectation that nurses and others can be trained to complete, the spiritual assessment is the domain of the spiritual care expert—typically, a skilled chaplain. These diverse approaches are described here along with some additional observations that can guide the process.


2020 ◽  
Vol 10 (1) ◽  
pp. 35-47
Author(s):  
Ahmad Muzaki ◽  
Fitri Arofiati

Latar Belakang: Spiritual menjadi hal yang sangat penting pada pasien kritis di Ruang ICU karena satu-satunya sumber penyembuhan bagi pasien dengan penyakit kiritis adalah spiritualitas mereka. Salah satu tantangan besar perawat saat ini adalah mengintegrasikan konsep dari teknologi body, mind and spirit ke dalam praktek keperawatan. Pemenuhan kebutuhan spiritual pada pasien tidak hanya bermanfaat bagi pasien saja tetapi dapat berdampak terhadap profesionalisme kerja perawat.Tujuan: Literatur review ini bertujuan untuk mengeksplorasi berbagai pendekatan penilaian spiritual dan alat pengkajian spiritual di Ruang ICU.Metode: Studi ini diperoleh dari 2 database yaitu Google Shcolar dan PubMed dengan menggunakan kriteria inklusi dan eksklusi. Kata kunci yang digunakan dalam pencarian literatur ini antara lain: “spiritual assesment and ICU”, “spiritual care + intensive care unit”, “spiritual care and critical illness”, dan “spiritual assesment tools and ICU”.Hasil: Terdapat 5 variabel dalam pengkajian spiritual antara lain : sistem medis dalam perawatan spiritual, komunitas keagamaan yang mendukung spiritualitas hubungan pasien dan dokter, perawatan di akhir kehidupan dan kualitas hidup pada pasien yang mendekati kematian.Kesimpulan: Belum ada Spiritual Assesment Tools yang signifikan untuk mengkaji tingkat spiritual pasien di ICU/ICCU. Kata Kunci: Pengkajian, Spiritual, Intensive Care Unit (ICU)Abstract Background: Spirituality is very important in critical patients in the ICU because the only source of healing for patients with critical illness is their spirituality. One of the big challenges of nurses today is integrating the concepts of body, mind and spirit technology into nursing practice. Meeting the spiritual needs of patients is not only beneficial for patients but can affect the professionalism of nurses' work.Purpose: This review literature aims to explore various approaches to spiritual assessment and spiritual assessment tools in the ICU Room.Method: This study was obtained from 2 databases namely Google Sholar and PubMed using inclusion and exclusion criteria. Keywords used in this literature search include: "spiritual assessment and ICU", "spiritual care + intensive care unit", "spiritual care and critical illness", and "spiritual assessment tools and ICU".Results: There were 5 variables in spiritual assessment including: medical systems in spiritual care, religious communities that support the spirituality of patient and doctor relationships, care at the end of life and quality of life in patients who are near death.Conclusion: There is no significant Spiritual Assessment Tool to assess the spiritual level of patients in ICU / ICCU. Keywords: Assessment, Spiritual, Intensive Care Unit (ICU)


Author(s):  
Robert G. LeFavi ◽  
Marcia H. Wessels

Research continues to confirm that sharing one's life story through the process of life review enhances psychological well-being and increases life satisfaction. Although researchers have outlined techniques and activities that may be used in life review with older adults, little work has focused on the use of life review methods with terminally ill patients. Additionally, researchers have suggested that life review can take on the form of a spiritual assessment; and that such spiritually oriented life reviews may enhance a sense of meaning and foster reconciliation as one approaches dying. In this article, the authors provide a brief review of the research on and the practice of life review. Further, by merging concepts of life review with systematic theology, they offer a sample instrument—using the example of one faith framework—with which pastoral caregivers can better approach the spiritual needs of patients and facilitate a less traumatic death in the terminally ill.


2004 ◽  
Vol 2 (4) ◽  
pp. 371-378 ◽  
Author(s):  
ELIZABETH GRANT ◽  
SCOTT A. MURRAY ◽  
MARILYN KENDALL ◽  
KIRSTY BOYD ◽  
STEPHEN TILLEY ◽  
...  

Objective: Health care professionals and policy makers acknowledge that spiritual needs are important for many patients with life-limiting illnesses. We asked such patients to describe their spiritual needs and how these needs may impinge on their physical, psychological, and social well-being. Patients were also encouraged to explain in what ways their spiritual needs, if they had any, could be addressed.Methods: We conducted two qualitative interviews, 3 months apart, with 20 patients in their last year of life: 13 patients with advanced cancer and 7 with advanced nonmalignant illness. We also interviewed each patient's general practitioner. Sixty-six interviews were tape-recorded, transcribed, and analyzed.Results: Patients' spiritual needs centered around their loss of roles and self-identity and their fear of dying. Many sought to make sense of life in relation to a nonvisible or sacred world. They associated anxiety, sleeplessness, and despair with such issues, which at times resulted in them seeking support from health professionals. Patients were best able to engage their personal resources to meet these needs when affirmed and valued by health professionals.Significance of results: Enabling patients to deal with their spiritual needs through affirmative relationships with health professionals may improve quality of life and reduce use of health resources. Further research to explore the relationship between spiritual distress and health service utilization is indicated.


Religions ◽  
2020 ◽  
Vol 11 (10) ◽  
pp. 536
Author(s):  
Holly Nelson-Becker ◽  
Tess Moeke-Maxwell

The contemporary world is endowed with increasingly diverse spiritual and cultural perspectives, yet little is known about the spiritual concerns and spiritual resilience of Māori from Aotearoa New Zealand at the end of life. A context is provided for the value of spiritual assessment and identification of spiritual needs or concerns. Spiritual concerns and the desire to attain a state of ka ea (fulfillment, gratitude, or peace) may point to interventions, helping activities, or referrals that guide treatment. We reflect on qualitative findings from the 2017–2020 Pae Herenga study of 61 caregiving families, their helping professionals, and religious/spiritual leaders. We explore essential spiritual values and practices that support kaumātua (older tribal people) who have a life-limiting illness in achieving a sense of satisfaction and fulfilment at the end of life. Three themes emerged: the relational is spiritual, the need to live into the future, and value of spiritual end-of-life care. While some scholars have lamented the lack of culturally appropriate rapid assessment instruments, we suggest that a more open-ended assessment guide is better suited to understand key elements of spiritual diversity and spiritual concerns, particularly the spiritual strengths and resources that lead to well-being and even thriving at life’s end. Finally, learning about spiritual diversity can assist others to reconnect to lost meanings and regain a more holistic and centred view of life.


1995 ◽  
Vol 4 (1) ◽  
pp. 77-81 ◽  
Author(s):  
C Clark ◽  
T Heidenreich

BACKGROUND: Spiritual well-being is the center of a healthy lifestyle and enables holistic integration of one's inner resources. However, the professional education process does not adequately provide socialization of nurses in the provision of spiritual care. Few studies exist that adequately address the spiritual aspect of nursing care. PURPOSE: To identify factors that contribute to providing spiritual care for patients in intensive care units. METHODS: A descriptive research design was used for this replication study conducted on a convenience sample of 63 patients in the critical care unit of a large midwestern military hospital. A trained interviewer asked each participant three open-ended questions regarding events that had created hope or meaning, created negative feeling, and could have contributed to hope or meaning. The interview took place 1 to 2 days after discharge from the intensive care unit. Predominant patterns were determined by content analysis. RESULTS: Three themes were identified as integral to the spiritual well-being of critical care patients: care providers, family/friends, and religion/faith. Nursing interventions identified for the three themes include establishing trusting relationships, providing in-depth spiritual assessment, conveying technical competence, and acting as facilitator among family, clergy, and other providers. CONCLUSIONS: We conclude that the key nursing interventions derived from this study include listening to patients' concerns and maintaining and conveying technical competence.


Religions ◽  
2018 ◽  
Vol 9 (10) ◽  
pp. 312
Author(s):  
Kerem Toker ◽  
Fadime Çınar

Background: The determination and fulfillment of the spiritual needs of the individual in times of crisis can be realized by the health care professionals having the knowledge and skills to provide individual-specific care. This research was conducted to determine the perceptions of health professionals about spirituality and spiritual care. Methods: The study of 197 health professionals working in a state hospital was performed. This study is a descriptive study which was conducted between December 2017 and January 2018. Data in the form of an “Introductory Information Form” and “Spirituality and Spiritual Care Grading Scale” was collected. In the analysis of the data, the Mann–Whitney U test, Kruskal–Wallis tests, frequency as percentage, and scale scores as mean and standard deviation were used. Results: It was determined that 45.7% of the health professionals were trained in spiritual care, but that they were unable to meet their patients’ spiritual care needs due to the intensive work environment and personnel insufficiency. The total score averaged by the health professionals on the spirituality and spiritual care grading scales was 52.13 ± 10.13. Conclusions: The findings of the research show that health professionals are inadequate in spiritual care initiatives and that their knowledge levels are not at the desired level. With in-service trainings and efforts to address these deficiencies, spiritual care initiatives can be made part of the recovery process.


Religions ◽  
2020 ◽  
Vol 11 (10) ◽  
pp. 529
Author(s):  
Lindsy Desmet ◽  
Jessie Dezutter ◽  
Anna Vandenhoeck ◽  
Annemie Dillen

A hospital admission presents various challenges for a patient which often result in high or intense spiritual needs. To provide the best possible care for older adults during hospitalization, it is essential to assess patients’ spiritual needs. However, little research has been done into the spiritual needs of geriatric patients. This article seeks insight into what is known in the literature on the spiritual needs of geriatric patients. This integrative review presents a summary of the articles on this topic. To select eligible studies, the PRISMA Flow Diagram was used. This resulted in ten articles that have been reviewed. Results show (1) a wide interest in researching spiritual needs, using different research designs. In addition, (2) four subcategories of spiritual needs can be distinguished: (a) the need to be connected with others or with God/the transcendent/the divine, (b) religious needs, (c) the need to find meaning in life, and (d) the need to maintain one’s identity. Moreover, results show that (3) assessing spiritual needs is required to provide the best possible spiritual care, and that (4) there are four reasons for unmet spiritual needs. Further research is needed on the definition of spiritual needs and to investigate older patients’ spiritual needs and the relation with their well-being, mental health and religious coping mechanisms, in order to provide the best spiritual care.


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