scholarly journals Childhood Disintegrative Disorder (CDD): Symptomatology of the Norwegian Patient Population and Parents’ Experiences of Patient Regression

2021 ◽  
Author(s):  
Martin John Ellis ◽  
Kenneth Larsen ◽  
Sophie Seychelle Havighurst
Keyword(s):  
Social Skills ◽  
Diagnostic Criteria ◽  
Patient Population ◽  
Developmental Disorder ◽  
Normal Development ◽  
Well Being ◽  
Childhood Disintegrative Disorder ◽  
Norwegian Patient ◽  
Parents Experiences

AbstractChildhood Disintegrative Disorder (CDD) is a rare and little researched developmental disorder characterised by regression in language and social skills after a period of seemingly normal development until at least the age of 2 years. The study contacted all parents of CDD patients in Norway to assess patient symptomatology and parents’ experiences of regression via questionnaire or interview. There were 12 participants. Symptomatology was in-line with previous studies, with universal regression in language and social skills and onset predominantly at 2–4 years. Regression was connected to feelings of ‘loss’ and uncertainty over the prognosis for CDD patients. The study supported CDD diagnostic criteria and showed that CDD patient regression has profound implications for parental well-being.

scholarly journals Incidental Finding of Leiomyoma in Mayer-Rokitansky-Kuster-Hauser Syndrome

2021 ◽  
Vol 9 ◽  
pp. 232470962110146
Author(s):  
Oyetokunbo Ibidapo-Obe ◽  
Jerome Okudo ◽  
Oladunni Filani
Keyword(s):  
Developmental Disorder ◽  
Congenital Abnormalities ◽  
Incidental Finding ◽  
Pelvic Mass ◽  
External Genitalia ◽  
Well Being ◽  
African American Female ◽  
Mrkh Syndrome ◽  
Low Probability ◽  
The Right

Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome is a sexual developmental disorder. In this disorder, there is a congenital absence of the uterus and vagina with normal external genitalia. The etiology is not well understood. Variations of this condition exist that may include congenital abnormalities and psychological problems. In this article, we discuss the case of a 47-year-old African American female who presented with acute renal failure, solitary right kidney, and a pelvic mass extending from the pelvis to the right hypochondrium determined to be a fibroid. The patient was managed by a multidisciplinary team, dialyzed, and planned for removal of the mass. While understanding the low probability of having fibroids without a uterus, fibroids should not be excluded from such patients. It is also important to consider the emotional and psychological well-being of such patients.

scholarly journals Social skills and well-being among family caregivers to patients with Alzheimer’s disease

2017 ◽  
Vol 44 (6) ◽  
pp. 159-161
Author(s):  
Flávia Araujo de Amorim ◽  
Mariana de Campos Pereira Giorgion ◽  
Orestes Vicente Forlenza
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Social Skills ◽  
Family Caregivers ◽  
Well Being

scholarly journals Investigating SOcial Competence and Isolation in children with Autism taking part in LEGO-based therapy clubs In School Environments (I-SOCIALISE): study protocol

BMJ Open ◽  
2019 ◽  
Vol 9 (5) ◽  
pp. e030471
Author(s):  
Danielle Varley ◽  
Barry Wright ◽  
Cindy Cooper ◽  
David Marshall ◽  
Katie Biggs ◽  
...  
Keyword(s):  
Social Skills ◽  
Usual Care ◽  
Peer Relationships ◽  
Children With Autism ◽  
Skills Training ◽  
Well Being ◽  
Autism Spectrum ◽  
School Level ◽  
Children With Asd ◽  
The Social

IntroductionSocial skills training interventions for children with autism spectrum disorder (ASD) typically focus on a skills deficit model rather than building on existing skills or encouraging the child to seek their own solutions. LEGO-based therapy is a child-oriented intervention to help improve social interactional skills and reduce isolation. The therapy is designed for school-age children with ASD and uses group-based play in a school setting to encourage peer relationships and social learning. Despite the reported potential benefits of LEGO-based therapy in a prior randomised controlled trial (RCT) and its adoption by many schools, the evidence to support its effectiveness on the social and emotional well-being of children with ASD is limited and includes no assessment of cost-effectiveness.Methods and analysisThis multicentre, pragmatic, cluster RCT will randomise 240 participants (aged 7–15 years) with a clinical diagnosis of ASD to receive usual care or LEGO-based therapy with usual care. Cluster randomisation will be conducted on a school level, randomising each school as opposed to each individual child within a school. All prospective participants will be screened for eligibility before assenting to the study (with parents giving informed consent on behalf of their child). All participants will be followed up at 20 and 52 weeks after randomisation to assess for social, emotional and behavioural changes. The primary outcome measure is the social skills subscale of the Social Skills Improvement System completed by a teacher or teaching assistant associated with participating children at the 20-week follow-up time point.Ethics and disseminationEthics approval has been obtained via the University of York Research Ethics Committee. The results of the trial will be submitted for publication in a peer-reviewed journal and will be disseminated to participating families, education practitioners and the third sector including voluntary and community organisations.Trial registration numberISRCTN64852382; Pre-results.

scholarly journals Analysis of the relationships between oxidative stress, DNA damage and sperm vitality in a patient population: development of diagnostic criteria

2010 ◽  
Vol 25 (10) ◽  
pp. 2415-2426 ◽  
Author(s):  
R. J. Aitken ◽  
G. N. De Iuliis ◽  
J. M. Finnie ◽  
A. Hedges ◽  
R. I. McLachlan
Keyword(s):  
Oxidative Stress ◽  
Dna Damage ◽  
Diagnostic Criteria ◽  
Patient Population ◽  
Population Development

The State of Interventions for Sibling Conflict and Aggression: A Systematic Review

2015 ◽  
Vol 18 (4) ◽  
pp. 396-406 ◽  
Author(s):  
Corinna Jenkins Tucker ◽  
David Finkelhor
Keyword(s):  
Systematic Review ◽  
Social Skills ◽  
Meta Analysis ◽  
Well Being ◽  
Sibling Relationship ◽  
Control Group ◽  
Sibling Conflict ◽  
Negative Effects ◽  
Online Databases ◽  
Children's Social Skills

Sibling conflict and aggression is often a pervasive part of family life that parents want help managing and can have negative effects on children’s well-being. The purpose of this systematic review is to evaluate current research regarding programs to reduce sibling conflict and aggression and promote positive sibling relationships. Online databases, reference lists, and Google Scholar were searched using key words and inclusion/exclusion criteria were applied. The search located five unique studies of programs focused on school-aged children. Heterogeneity of the studies precluded meta-analysis, but characteristics of the studies were systematically described. Three interventions were aimed at directly improving children’s social skills and two interventions trained parents on mediation techniques to use during sibling conflicts. Overall, of the four studies that included assessment of children’s social skills, the results were positive. Two of the three studies that evaluated sibling relationship quality demonstrated improved sibling interactions compared with the control group. With further research and evidentiary support, these programs have promise to modify sibling behaviors as part of current parenting education programs or as a stand-alone program to address sibling conflict and aggression.

scholarly journals O017 Parents’ experiences of having a child with Down Syndrome and sleep difficulties

2021 ◽  
Vol 2 (Supplement_1) ◽  
pp. A8-A8
Author(s):  
M Miguel ◽  
E Cooke ◽  
J Chawla
Keyword(s):  
Down Syndrome ◽  
Qualitative Study ◽  
Family Dynamics ◽  
Well Being ◽  
Time Function ◽  
Family Quality Of Life ◽  
Specific Information ◽  
Structured Interviews ◽  
Sleep Difficulties ◽  
Parents Experiences

Abstract Introduction This qualitative study that investigates parents’ experiences of having a child with Down Syndrome (DS) and sleep difficulties is a part of a broader mixed-method study entitled Sleep Difficulties in Children with Down Syndrome: An Evaluation of Parent/Carer and Family Quality of Life. Methods We conducted semi-structured interviews with 26 parents (fathers n = 4 and mothers n = 22), and reflexive Thematic Analysis (TA) was operationalised for data analysis. The interviews covered the following key topics: DS diagnosis; timeline of their child’s sleep patterns and difficulties; implications for parental sleep, day-time function, and well-being; family dynamics; and access to supports. Results Most participants described negative experiences at time of diagnosis, including not feeling listened to, and receiving inconsistent, insensitive and inadequate information and/or treatment. Most strikingly, no parents recall receiving sleep specific information. Most participants described their child’s sleep difficulties affecting their own sleep, day-time function and family dynamics, yet they commonly normalised these experiences. Such normalisation was a recurring theme across their experiences of having a child with DS and is contextualised by their accounts of resisting prejudiced attitudes towards their child since diagnosis. Discussion This is the first qualitative study to investigate parents’ experiences of having a child with DS and sleep difficulties. Implications include professional development for health care workers focusing on sleep as a significant comorbidity for these children, and awareness of families’ tendencies to normalise their experiences when delivering care.

scholarly journals Using Facebook for Improving the Psychological Well-Being of Individuals Experiencing Homelessness: Experimental and Longitudinal Study

2018 ◽  
Vol 5 (4) ◽  
pp. e59 ◽  
Author(s):  
Fran Calvo ◽  
Xavier Carbonell
Keyword(s):  
Social Skills ◽  
Longitudinal Study ◽  
Self Efficacy ◽  
Repeated Measures ◽  
Satisfaction With Life ◽  
Well Being ◽  
Self Esteem ◽  
Psychological Well Being ◽  
Mixed Analysis ◽  
Office Software

Background Web-based social networks are a powerful communicative element and their use is increasingly widespread. Persons living in extreme social exclusion such as individuals experiencing homelessness can benefit from the positive elements of communication and relationship associated with social networking sites. Objective This study aimed to suggest the comparison of a Facebook training course and an office software course and their effect on psychological well-being in a group of individuals experiencing homelessness. Methods An experimental and longitudinal study was designed. Individuals experiencing homelessness were randomly assigned to either the Facebook group or the office software group, and their social skills, self-esteem, self-efficacy, and satisfaction with life were measured on 4 occasions: pretest, at the end of the training course, 1 month later, and 3 months later. A mixed analysis of variance of repeated measures (2×4) was performed. Results A total of 92 individuals experiencing homelessness participated in the study. The number of cases in which the 4 measurements were completed was 71 (35 in the intervention group and 36 in the control group). The mixed analysis of variance of repeated measures and the multiple regression analysis indicated a significant increase of the 4 analyzed parameters, with greater significance in the areas of social skills and self-esteem. The critical levels associated to the interaction Time×Program were significant in all variables and levels. Therefore, the scores in the 4 analyzed constructs were not equal according to the program carried out throughout the work. The effect size associated to the interaction Time×Program in the social skills scores was large (η2=0.32); in the self-esteem and self-efficacy scores, it was medium, (η2=0.13); and in the satisfaction with life scores, it was small (η2=0.09). The results of the adjustment of the different models of multiple linear regression indicate that the number of hours devoted weekly to the use of Facebook was a predictor of the increase in the scores of social skills (B=3.43, r2=.405) and self-esteem (B=.382). Age (B=.175) and self-efficacy (B=.09) were also variables, which with independence and in equal conditions, predicted self-esteem (r2=.29). Finally, self-esteem (B=.69) was also a predictor variable of the increase of satisfaction with life (r2=.195). Conclusions These findings suggest that Facebook could be a key element in homeless psychological well-being and socialization.

scholarly journals Parents’ Experiences of Weighted Blankets’ Impact on Children with Attention-Deficit/Hyperactivity Disorder (ADHD) and Sleep Problems—A Qualitative Study

2021 ◽  
Vol 18 (24) ◽  
pp. 12959
Author(s):  
Ingrid Larsson ◽  
Katarina Aili ◽  
Jens M. Nygren ◽  
Håkan Jarbin ◽  
Petra Svedberg
Keyword(s):  
Attention Deficit Hyperactivity Disorder ◽  
Everyday Life ◽  
Attention Deficit ◽  
Sleep Problems ◽  
Well Being ◽  
Sleep Onset Latency ◽  
Children With Adhd ◽  
Hyperactivity Disorder ◽  
The Impact ◽  
Parents Experiences

Sleep disturbances are common among children with attention-deficit/hyperactivity disorder (ADHD). While pharmacological treatment has increased dramatically, parents often prefer non-pharmacological interventions. Research on experiences of weighted blankets and their effect in sleep improvement is scarce. The aim of this study was to explore parents’ experiences of weighted blankets for children with ADHD and sleep problems, and the impact on their children’s sleep. The explorative design was based on qualitative content analysis. Interviews were conducted with a purposeful sample of 24 parents of children with ADHD and sleep problems, after completing a sleep intervention with weighted blankets for 16 weeks. Parents reported that children sleeping with weighted blankets: (1) achieved satisfactory sleep, including improved sleep onset latency, sleep continuity, and sleep routines; (2) achieved overall well-being, including improved relaxation and reduced anxiety; and (3) mastered everyday life, including improved balance in life, family function, and participation in school and leisure activities. This study brings forward novel aspects of the effects of improved sleep among children with ADHD. The findings contribute to the understanding of potential positive effects of an intervention with weighted blankets critical for clinical practice to improve sleep, well-being, and everyday life of children with ADHD and their families.

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