scholarly journals The views of parents concerning the planning of services for rehabilitation of families of children with congenital cardiac disease

2003 ◽  
Vol 13 (1) ◽  
pp. 20-27 ◽  
Author(s):  
Lynne Kendall ◽  
Patricia Sloper ◽  
Robert J. P. Lewin ◽  
Jonathan M. Parsons
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Cardiac Disease ◽  
Health Professionals ◽  
Medical Condition ◽  
Small Study ◽  
Structured Interviews ◽  
Congenital Cardiac Disease ◽  
Growing Body ◽  
Areas Of Concern

Background and purpose:Although much previous research has focused on the medical aspects of congenital cardiac disease, there is a growing body of research which suggests that families may need help and support with the wider issues associated with the medical condition. We have previously ascertained from young people with congenital cardiac disease their views on this subject. The purpose of this study was to obtain the views of their parents about the need for, and shape of, services for rehabilitation.Methods:This was a qualitative study using semi-structured interviews. We interviewed 17 parents in their own home. Interviews were tape-recorded and transcribed.Results:Parents would welcome more help and support from health professionals to enable them to manage more effectively the condition with their children. Particular areas of concern relate to the information they receive about the condition; communication between themselves and health professionals; establishing safe levels of activity; and managing the condition at school.Conclusions:This is a small study of the experiences and views of parents, which provides some important information on ways in which health professionals could address the current lack of services for rehabilitation.

scholarly journals The views of young people with congenital cardiac disease on designing the services for their treatment

2003 ◽  
Vol 13 (1) ◽  
pp. 11-19 ◽  
Author(s):  
Lynne Kendall ◽  
Patricia Sloper ◽  
Robert J. P. Lewin ◽  
Jonathan M. Parsons
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Social Functioning ◽  
Cardiac Disease ◽  
Health Professionals ◽  
Small Study ◽  
Structured Interviews ◽  
Congenital Cardiac Disease

Background and purpose:There is little documented evidence of young people with congenital cardiac disease being consulted as to what help, if any, they really need in relation to their condition. Most research concentrates on the medical aspects of the condition. There are studies of psychological and social functioning, but few have directly sought the opinions of the young people. More recent research has indicated a need for health professionals to develop services to meet both psychosocial and physical needs of young people with congenital cardiac disease. The findings of the recent Kennedy Report support this need. The purpose of this study was to explore the views of young people with a range of congenital cardiac conditions, on what would help them better deal with their condition, and when and how help might be provided.Methods:This was a qualitative study using semi-structured interviews. We interviewed 16 young people in their own home. Interviews were tape-recorded and transcribed. Analysis was conducted using the “Framework” method.Results:Whilst most of the young people interviewed actively manage their condition, they think more support from others would be beneficial. Issues of activity and communication were cited most often as areas requiring more understanding from people they interact with, for example teachers and peers. The discussion focuses on how health professionals might change or develop their practice to help young people better cope with their condition.Conclusions:Most of the young people interviewed in this study had developed their own strategies for coping with their condition. Although this is a small study, the young people provided important suggestions as to how health professionals could better develop current services.

scholarly journals MOTHERS CARING FOR CHILDREN LIVING WITH CEREBRAL PALSY: SUGGESTIONS FOR PSYCHO-SOCIAL SUPPORT

2021 ◽  
Vol 57 (3) ◽  
Author(s):  
Phumudzo Raphulu ◽  
Modjadji Linda Shirindi ◽  
Mankwane Daisy Makofane
Keyword(s):  
Social Support ◽  
Cerebral Palsy ◽  
Data Analysis ◽  
Qualitative Study ◽  
Social Workers ◽  
Health Professionals ◽  
Snowball Sampling ◽  
Structured Interviews ◽  
Children With Cerebral Palsy ◽  
Thematic Data

Caring for children with cerebral palsy presents numerous circumstances which may contribute to mothers’ inability to cope with the demands of meeting their children’s needs. A qualitative study supported by explorative, descriptive and contextual designs was undertaken. Purposive and snowball sampling facilitated the identification of twelve participants who were interviewed through semi-structured interviews. The enquiry was based on the ecosystems approach. Thematic data analysis was followed through Tesch’s eight steps and Guba’s model was used for data verification. The findings highlighted the necessity to enhance the psycho-social functioning of mothers through collaboration of social workers, health professionals and various organisations.

scholarly journals The development of a new measure of quality of life for children with congenital cardiac disease

2006 ◽  
Vol 16 (2) ◽  
pp. 165-172 ◽  
Author(s):  
Susan Macran ◽  
Yvonne Birks ◽  
Jonathan Parsons ◽  
Patricia Sloper ◽  
Geoff Hardman ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young People ◽  
Cardiac Disease ◽  
Clinical Context ◽  
Children And Young People ◽  
The United Kingdom ◽  
Congenital Cardiac Disease ◽  
Reliable Instrument ◽  
Health Related

The purpose of the study was to develop a questionnaire measuring health-related R1 quality of life for children and adolescents with congenital heart disease, the ConQol, that would have both clinical and research applications. We describe here the process of construction of a questionnaire, the piloting and the development of a weighted scoring system, and data on the psychometric performance of the measure in a sample of 640 children and young people recruited via 6 regional centres for paediatric cardiology from across the United Kingdom. The ConQol has two versions, one designed for children aged from 8 to 11 years, and the other for young people aged from 12 to 16 years. Initial findings suggest that it is a valid and reliable instrument, is acceptable to respondents, and is simple to administer in both a research and clinical context.

scholarly journals A simple screening method for determining knowledge of the appropriate levels of activity and risk behaviour in young people with congenital cardiac conditions

2007 ◽  
Vol 17 (2) ◽  
pp. 151-157 ◽  
Author(s):  
Lynne Kendall ◽  
Jonathan M. Parsons ◽  
Patricia Sloper ◽  
Robert J. P. Lewin
Keyword(s):  
Young People ◽  
Cardiac Disease ◽  
Screening Method ◽  
Significant Risk ◽  
Risk Behaviour ◽  
Children And Young People ◽  
Tertiary Centre ◽  
Level Of Activity ◽  
Congenital Cardiac Disease ◽  
Seeking Help

Objective: To assess a novel method for assessing risk and providing advice about activity to children and young people with congenital cardiac disease and their parents. Design and setting: Questionnaire survey in outpatient clinics at a tertiary centre dealing with congenital cardiac disease, and 6 peripheral clinics. Interventions: Children or their parents completed a brief questionnaire. If this indicated a desire for help, or a serious mismatch between advised and real level of activity, they were telephoned by a physiotherapist. Main measures of outcome: Knowledge about appropriate levels of activity, and identification of the number exercising at an unsafe level, the number seeking help, and the type of help required. Results: 253/258 (98.0%) questionnaires were returned, with 119/253 (47.0%) showing incorrect responses in their belief about their advised level of exercise; 17/253 (6.7%) had potentially dangerous overestimation of exercise. Asked if they wanted advice 93/253 (36.8%) said “yes”, 43/253 (17.0%) “maybe”, and 117/253 (46.2%) “no”. Of those contacted by phone to give advice, 72.7% (56/77) required a single contact and 14.3% (11/77) required an intervention that required more intensive contact lasting from 2 up to 12 weeks. Of the cohort, 3.9% (3/77) were taking part in activities that put them at significant risk. Conclusions: There is a significant lack of knowledge about appropriate levels of activity, and a desire for further advice, in children and young people with congenital cardiac disease. A few children may be at very significant risk. These needs can be identified, and clinical risk reduced, using a brief self-completed questionnaire combined with telephone follow-up from a suitably knowledgeable physiotherapist.

scholarly journals Aspects associated with waterpipe smoking in Iranian youths: a qualitative study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Hamid Jafaralilou ◽  
Arman Latifi ◽  
Mehdi Khezeli ◽  
Atefeh Afshari ◽  
Farahnaz Zare
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Social Relations ◽  
Eastern Mediterranean ◽  
Waterpipe Smoking ◽  
Structured Interviews ◽  
Face To Face ◽  
Cultural Aspects ◽  
Mediterranean Countries ◽  
Second Category

Abstract Background Waterpipe is one of the oldest methods of tobacco smoking, which has become the public health challenge, especially in the Eastern Mediterranean countries such as Iran. This study aimed to investigate the waterpipe smoking (WPS) in the young people of Kermanshah in 2020, using a qualitative method. Methods This was a qualitative study conducted with the approach of content analysis. Participants were young waterpipe user aged 17 to 25 years selected by purposeful sampling method in Kermanshah city, located in the west of Iran. Data were collected through semi-structured interviews in face-to-face and audio-recorded methods based on an interview guideline during June to August 2020. Then researchers transcribed verbatim and analyzed the content of the interviews thematically. Results In this study, 23 young people who were waterpipe users at the time of the study participated. The results showed that social aspects in three sub-categories were involved in WPS including “socio-cultural aspects”, “socio-environmental aspects”, and “social relations”. Individual aspects of waterpipe use as second category also consisted of two sub-categories including “motivational aspects” and “lack of psycho-protective aspects”. Conclusions It seems that the implementation of the policy of reducing access to waterpipe in public environments is effective in reducing waterpipe consumption. It is suggested that educational and interventions, based on targeted models and theories be implemented in order to increase young people’s belief and perception on dangers of WPS, and to improve their self-efficacy to smoking cessation.

Common dedication to facilitating good dying experiences: Qualitative study of end-of-life care professionals’ attitudes towards voluntary assisted dying

2019 ◽  
Vol 33 (6) ◽  
pp. 562-569 ◽  
Author(s):  
Sarah-May Blaschke ◽  
Penelope Schofield ◽  
Keryn Taylor ◽  
Anna Ugalde
Keyword(s):  
Qualitative Study ◽  
End Of Life ◽  
Health Professionals ◽  
End Of Life Care ◽  
Policy Development ◽  
Sampling Strategy ◽  
Assisted Dying ◽  
Life Care ◽  
Structured Interviews ◽  
Moral Philosophies

Background: Debate about appropriate and ethically acceptable end-of-life choices is ongoing, which includes discussion about the legalization of voluntary assisted dying. Given health professionals’ role in caring for patients at the end life, their stance towards assisting a person with dying can have implications for policy development and implementation in jurisdictions where law changes are being considered. Aim: To explore end-of-life care professionals’ attitudes towards voluntary assisted dying 6 months prior to vote on legalization. Design: Qualitative study using textual data collected through semi-structured interviews. Purposive sampling strategy used to collect a broad representation of perspectives. Audio-recorded interviews were transcribed verbatim and subjected to qualitative descriptive analysis techniques. Participants: A total of 16 health professionals with experience in caring for people with life-limiting illness. Results: Participants reported two overarching positions grounded in differing moral philosophies with compelling arguments both for and against legalization of voluntary assisted dying. A third and common line of argument emerged from areas of shared concern and uncertainty about the practical consequences of introducing voluntary assisted dying. While a diversity of opinion was evident, all participants advocated for more public education and funding into end-of-life care services to make high-quality care equitable and widely available. Conclusion: Common dedication to reducing suffering and facilitating good dying experiences exists among experts despite their divergent views on voluntary assisted dying. Ongoing engagement with stakeholders is needed for practical resolution in the interest of developing health policy for best patient care.

Mapping mental health professionals’ perspectives and practices regarding the implementation of Digital Mental Health: a qualitative study (Preprint)

2021 ◽  
Author(s):  
Cristina Mendes-Santos ◽  
Francisco Nunes ◽  
Elisabete Weiderpass ◽  
Rui Santana ◽  
Gerhard Andersson
Keyword(s):  
Mental Health ◽  
Qualitative Study ◽  
Mental Health Professionals ◽  
Health Professionals ◽  
Mental Healthcare ◽  
Cost Effective ◽  
Clinical Settings ◽  
Structured Interviews ◽  
Intervention Delivery ◽  
Training Programmes

BACKGROUND Despite Digital Mental Health’s potential to provide cost-effective mental healthcare, its adoption in clinical settings is limited and little is known about the perspectives and practices of mental health professionals regarding its implementation or the factors influencing such perspectives and practices. OBJECTIVE The current study aimed at characterizing in-depth the perspectives and practices of mental health professionals regarding the implementation of Digital Mental Health and exploring the factors impacting such perspectives and practices. METHODS A qualitative study using in-depth semi-structured interviews with Portuguese mental health professionals (N=13) - psychologists and psychiatrists – was conducted. Transcribed interviews were thematically analysed. RESULTS Mental health professionals deemed important or engaged in the following practices during the implementation of Digital Mental Health: i) Indication evaluation; ii) Therapeutic contract negotiation; iii) Digital psychological assessment; iv) Technology setup and management; and v) Intervention delivery and follow-up. Low threshold accessibility and professionals' perceived duty to provide support to their clients facilitated the implementation of Digital Mental Health. Conversely, the lack of structured intervention frameworks; the unavailability of usable, validated, and affordable technology; and the absence of structured training programmes, inhibited Digital Mental Health’s implementation by mental health professionals. CONCLUSIONS The publication of practice frameworks, the development of evidence-based technology, and the delivery of structured training seem key to expedite implementation and encourage the sustained adoption of Digital Mental Health by mental health professionals.

scholarly journals Podrška i pomoć obiteljima djece s teškoćama u razvoju

2017 ◽  
Vol 53 (1) ◽  
pp. 22-34
Author(s):  
Mia Lakatoš ◽  
Lucija Vejmelka
Keyword(s):  
Social Support ◽  
Young People ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Daily Activities ◽  
Therapy Dogs ◽  
Structured Interviews ◽  
Children And Young People ◽  
Lack Of Information ◽  
Emotional Social Support

Therapy dogs, which play a central role in animal-assisted therapy, are trained to support daily activities and promote development of children and young people with disabilities. This qualitative study involved semi structured interviews in September 2016 with seven parents of children with disabilities who use therapy dogs. The interview, which was designed specifically for the purposes of this study, collected data on the types of social support and assistance that the therapy dogs provided, as well as the challenges that the use of such dogs presented. Thematic analysis of the interviews showed that therapy dogs provide instrumental and emotional social support as well as other types of assistance to families, and that the greatest challenges to using such dogs are taking care of them and dealing with lack of information about therapy dogs among users and the general public.

scholarly journals The Experiences of Iranian Nurses in Critical Events and Natural Disasters: A Qualitative Study

2021 ◽  
Author(s):  
Ali Hasanpour Dehkordi ◽  
Shahriar Salehi Tali ◽  
Reza Ganeigheshlagh
Keyword(s):  
Qualitative Study ◽  
Natural Disasters ◽  
Health Professionals ◽  
Medical Staff ◽  
Healthcare Providers ◽  
Main Theme ◽  
Critical Events ◽  
Structured Interviews ◽  
Psychological Disturbance ◽  
Hermeneutic Approach

Medical staff and healthcare providers are always involved in earthquakes; therefore, the aim of this study was to explore the experience of nurses in dealing with critical events and natural disasters. A qualitative study was conducted by semi-structured interviews with 12 medical staff. Data were analyzed by qualitative analysis hermeneutic approach. Four categories were developed as follows: “confusion,” “coercion,” “psychological disturbance,” and “wasting of resources.” The categories led to the development of the main theme of “miss management.” Earthquakes are considered serious challenges for nurses and health professionals involved in such disasters. It will culminate in dire consequences including physical, mental, and psychological damage as well as high mortality rate among people and healthcare providers.

scholarly journals The Healthcare Staffs’ Perception of Parents’ Participation in Critical Incidents at the PICU, a Qualitative Study

2021 ◽  
Vol 11 (3) ◽  
pp. 680-689
Author(s):  
Julia Hansson ◽  
Amanda Hörnfeldt ◽  
Gunilla Björling ◽  
Janet Mattsson
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Qualitative Study ◽  
Health Professionals ◽  
Qualitative Method ◽  
Structured Interviews ◽  
Parental Presence ◽  
Lower Priority ◽  
Positive Effects ◽  
Critical Situations

Background: Internationally, there are very few guidelines regarding how near relations can be taken care of on a children’s intensive care unit. Despite knowledge about the positive effects of parental presence, staff frequently reject parents out of insecurity. This study aimed to investigate health professionals’ understanding of letting parents be present throughout critical situations. A qualitative method with semi-structured interviews was used to answer the aim of his study. Nine persons participated in the study, both physicians and nurses. The result showed that health professionals’ main view is that parents’ presence is positive. However, their presence often has lower priority than the medical focus of the child and the health professionals’ concern of failure. Conclusion: Health professionals have the power to decide if parents can be present in critical situations. Only when a parent demands to be present does that demand beat the decisions made by health professionals. Lack of resources within the team and fear of parents becoming a disturbance or a distraction are cited as the primary reasons not to let parents be present.

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