Social support needs: Discordance between home hospice nurses and former family caregivers

2013 ◽  
Author(s):  
Maija Reblin ◽  
Kristin Cloyes ◽  
Joan Carpenter ◽  
Pat Berry ◽  
Margaret Clayton ◽  
...  
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Support Needs ◽  
Hospice Nurses

scholarly journals Social support needs: Discordance between home hospice nurses and former family caregivers

2014 ◽  
Vol 13 (3) ◽  
pp. 465-472 ◽  
Author(s):  
Maija Reblin ◽  
Kristin G. Cloyes ◽  
Joan Carpenter ◽  
Patricia H. Berry ◽  
Margaret F. Clayton ◽  
...  
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Hospice Care ◽  
Support Needs ◽  
Group Discussions ◽  
Hospice Nurses ◽  
Support Provision ◽  
Caregiver Needs ◽  
Home Hospice Care ◽  
Perception Of Support

AbstractObjective:The two goals of our study were to (1) identify which of five types of social support (Informational, Esteem, Emotional, Tangible, Belonging) are most cited by hospice nurses and family caregivers and (2) determine the match in perception of support needs.Method:As part of a larger multiphase project, focus groups were conducted with former family caregivers and hospice nurses to discuss their experiences of home hospice care and to gather their opinions on the important issues involved in that care. Transcripts of focus group discussions were coded for support type (Informational, Esteem, Emotional, Tangible, Belonging) based on definitions from the literature. Nurse and caregiver data were compared to assess for potential match.Results:Analysis of coded data suggested that nurses see different types of support to be needed in equal measure across their caseloads, while caregivers expressed priorities for some types of support. Illustrative examples of each type of support are provided and discussed.Significance of Results:Because matching support provided with the type of support desired has been linked to improved physical and psychological outcomes, it is important to focus on this match in healthcare populations particularly vulnerable to psychological stress, including family caregivers of home hospice patients. This research has implications for interventions to match support provision to caregiver needs, or for education for home hospice providers to ensure that they are not only sensitive to the possibility of a broad range of needs but also to the necessity to tailor care to those needs.

Abstract TP373: Advancing Stroke Recovery Through Social and Emotional Support

Stroke ◽  
2017 ◽  
Vol 48 (suppl_1) ◽  
Author(s):  
Mary Amatangelo ◽  
Janet Prvu Bettger ◽  
Karen J Collins ◽  
Barry Jackson ◽  
Elaine Miller ◽  
...  
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Well Being ◽  
Stroke Survivor ◽  
Support Needs ◽  
Stroke Survivors ◽  
Caregiver Depression ◽  
Post Stroke ◽  
Post Stroke Depression ◽  
Health And Well Being

Background: Post-stroke disability often disrupts family roles and responsibilities. Role reversal, in combination with the disabilities, is emotionally taxing and physically fatiguing for both the stroke survivor and the family caregiver. Depression can result and when left undermanaged can lead to poor health outcomes. Research has shown social support is an important factor in recovery, post-stroke and caregiver depression. Studies have indicated high levels of social support are associated with faster functional recovery and more extensive recovery in stroke survivors. Also, that social support is independently associated with the presence and severity of post stroke depression and that positive social interaction is a significant contributor to variance in initial post stroke depression. Purpose: The purpose of this critical review was to examine the research literature on the relationships of social support and coping strategies with health-related outcomes among stroke survivors and their family caregivers. Methods: Twenty-five articles published between 2000 and 2016, identified by key terms related to stroke survivor and caregiver emotional and adjustment support needs, social support, depression and effective interventions, were reviewed. Results: We found overwhelming evidence that attention to stroke survivor and caregiver social network can advance recovery and improve the health and well being of both stroke survivors and caregivers. Knowledge gaps and focus on emotional and adjustment support needs are not being adequately met by community-based health services. This points to an important need for changes in practice to acclimate stroke survivors and their family caregivers to their new life roles, but also the need for more rigorous studies. Conclusions: In addition to more research, there is a critical need for changes in facilitating transitions of care to meet the emotional and adjustment needs in the stroke population. Encouraging health professionals to screen for social network presence and size and promoting support-seeking behavior may help advance recovery and improve the health and well being of stroke survivors and family caregivers.

Social Support Needs of Family Caregivers of Psychiatric Patients From Three Age Groups

1991 ◽  
Vol 40 (4) ◽  
pp. 208???213 ◽  
Author(s):  
JANE S. NORBECK ◽  
LINDA CHAFTEZ ◽  
HOLLY SKODOL-WILSON ◽  
SANDRA J. WEISS
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Psychiatric Patients ◽  
Age Groups ◽  
Support Needs

Matching Treatment to the Social Support Needs of Alcoholics

1995 ◽  
Author(s):  
R. Longabaugh ◽  
P. W. Wirtz ◽  
M. C. Beattie ◽  
N. Noel ◽  
R. Stout
Keyword(s):  
Social Support ◽  
Support Needs ◽  
The Social

Perceived social support in Chinese family caregivers of patients with dementia

2021 ◽  
Author(s):  
Jufang Li ◽  
Gexin Gao ◽  
Yawei Zeng ◽  
Yuping Wu ◽  
Xiaoling Zhu ◽  
...  
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Perceived Social Support ◽  
Chinese Family

Social support and well-being in dementia family caregivers: The mediating role of self-efficacy

2009 ◽  
Vol 13 (5) ◽  
pp. 761-768 ◽  
Author(s):  
Alma Au ◽  
Man-Kin Lai ◽  
Kam-Mei Lau ◽  
Pey-Chyou Pan ◽  
Linda Lam ◽  
...  
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Self Efficacy ◽  
Well Being ◽  
Mediating Role

scholarly journals Unmet support needs of early-onset dementia family caregivers: a mixed-design study

BMC Nursing ◽  
2014 ◽  
Vol 13 (1) ◽  
Author(s):  
Francine Ducharme ◽  
Marie-Jeanne Kergoat ◽  
Renée Coulombe ◽  
Louise Lévesque ◽  
Pascal Antoine ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Early Onset ◽  
Support Needs ◽  
Mixed Design ◽  
Design Study ◽  
Early Onset Dementia
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