The Quality of Web Sites' Health Information on Minimal Invasive Repair of Pectus Excavatum Using the DISCERN Instrument

2020 ◽  
Author(s):  
Wietse P. Zuidema ◽  
Maarten J. Graumans ◽  
Jan W. A. Oosterhuis ◽  
Alida F. W. van der Steeg ◽  
Ernest van Heurn
Keyword(s):  
Health Information ◽  
Health Care Providers ◽  
Web Sites ◽  
Pectus Excavatum ◽  
Medical Information ◽  
Treatment Options ◽  
The Internet ◽  
Care Providers ◽  
Related Information

Abstract Introduction The Internet is a frequently used tool for patients with pectus excavatum (PE) to get information about symptoms and treatment options. In addition, it is used by both health care providers as a marketing tool and support group systems. The Internet health information varies in precision, quality, and reliability. The study purpose was to determine the quality of information on the PE Web sites using the DISCERN instrument, including information about operation and potential complications after a Nuss bar procedure. Materials and Methods Four search engines, Google, Yahoo, Ask, and Bing, were used to explore seven key terms concerning PE. Search language was English. The DISCERN quality instrument was used to evaluate the Web sites. Also, information on possible complications was scored per Web site. Results A total of 560 Web sites were assessed in March 2019. Excluded were 139 Web sites. There were 333 duplicates, leaving 88 unique Web sites. Of these, 58.1% were hospital-related information Web sites, 28.4% medical information Web sites, and 3.4% patient forum sites. Interactive multimedia was used on 21.6% of the sites. Pain postoperatively was mentioned on 64.8% of the sites, while only 9.1% mentioned the mortality risk of the surgical correction of PE for Nuss bar placement. The quality of the unique Web sites showed a mean DISCERN score of 42.5 (standard deviation 12.2). Medical information Web sites, encyclopedia, and government-sponsored sites had higher DISCERN scores. Hospital-related information sites, medical companies, and lay persons' sites, had lower total scores. Conclusion The overall quality of PE Web sites is low to moderate, with serious shortcomings.

scholarly journals Searching the Internet for Infertility Information: A Survey of Patient Needs and Preferences (Preprint)

2019 ◽  
Author(s):  
Felicia Brochu ◽  
Stephanie Robins ◽  
Skye A Miner ◽  
Paul H Grunberg ◽  
Peter Chan ◽  
...  
Keyword(s):  
Perceived Stress ◽  
Health Care Providers ◽  
Depressive Symptomatology ◽  
Treatment Options ◽  
The Internet ◽  
Care Providers ◽  
Sources Of Information ◽  
Web Based ◽  
Related Information ◽  
Support Resources

BACKGROUND Given the complexity of infertility diagnoses and treatments and the convenience of the internet for finding health-related information, people undergoing infertility treatments often use Web-based resources to obtain infertility information and support. However, little is known about the types of information and support resources infertility patients search for on the internet and whether these resources meet their needs. OBJECTIVE The aims of this study were to (1) examine what individual factors, namely, demographic characteristics and distress, are associated with searching the internet for different types of infertility-related information and support resources and (2) determine whether Web-based resources meet the needs of patients. METHODS Men and women seeking infertility care responded to a survey assessing use of Web-based resources for accessing infertility-related information and support. The survey further assessed satisfaction with Web-based resources as well as perceived stress and depressive symptomatology. RESULTS A total of 567 participants, including 254 men and 313 women, completed the survey. Most participants (490/558, 87.8%) had searched the internet for infertility information and support. Searchers were more likely to be women (<italic>P</italic>&lt;.001), highly educated (<italic>P</italic>=.04), long-term patients (<italic>P</italic>=.03), and more distressed (<italic>P</italic>=.04). Causes of infertility, treatment options, and scientific literature about infertility were the three most frequently searched topics, whereas ways to discuss treatment with family and friends as well as surrogacy and ways to find peer support were the three least searched topics. Of those who searched the internet, 70.9% (346/488) indicated that their needs were met by Web-based information, whereas 29.1% (142/488) said that their needs were not met. Having unmet needs was related to greater levels of perceived stress (<italic>P</italic>=.005) and depressive symptomatology (<italic>P</italic>=.03). CONCLUSIONS This study provides evidence for the important role of the internet in accessing infertility information and support and for the ability of Web-based resources to meet patients’ needs. However, although distressed patients reported particularly high rates of searching, their needs were not always met, suggesting that they may benefit from alternative sources of information and support or guidance from health care providers when searching the internet.

Melanoma Information on the Internet: Often Incomplete—A Public Health Opportunity?

2002 ◽  
Vol 20 (1) ◽  
pp. 134-141 ◽  
Author(s):  
Christopher K. Bichakjian ◽  
Jennifer L. Schwartz ◽  
Timothy S. Wang ◽  
Janette M. Hall ◽  
Timothy M. Johnson ◽  
...  
Keyword(s):  
Health Care Providers ◽  
Web Sites ◽  
Search Engines ◽  
Medical Information ◽  
Kappa Statistic ◽  
General Information ◽  
The Internet ◽  
Kappa Statistics ◽  
Search Term ◽  
Care Providers

PURPOSE: To assess the accuracy and completeness of information regarding melanoma on the Internet, retrieved by use of search engines. METHODS: The first 30 uniform/universal resource locators (URLs) from each of eight search engines using the search term “melanoma” were retrieved for evaluation of accuracy and completeness using a 35-point checklist rating system instrument. Four reviewers independently rated each of 35 sites, and one reviewer rated all 74 assessable sites. Kappa statistics were used to evaluate interrater variability. RESULTS: A total of 74 assessable Web sites were evaluated. The remainder were inaccessible, link pages only, or duplicates. Thirty-five Web sites were each independently rated by four reviewers. The remaining 39 Web sites were each rated by one reviewer. The mean kappa statistic for all variables and all rater pairs for which a kappa could be calculated was 0.824, indicating excellent overall inter-rater reliability. The majority of Web sites failed to include complete information on general information, risk factors, diagnosis, treatment, prevention, and prognosis. Ten Web sites (14%) contained a total of 13 inaccuracies, most relatively minor. CONCLUSION: Medical information retrieved with the search term melanoma was likely to lack complete basic melanoma information and contained inaccuracies in 14% of sites. Health care providers can help patients by recommending comprehensive and accurate Web sites for patient review, by working to create accurate and thorough Web-based health information material, and by educating patients and the public about the variability in completeness and accuracy.

scholarly journals Searching the Internet for Infertility Information: A Survey of Patient Needs and Preferences

10.2196/15132 ◽  
2019 ◽  
Vol 21 (12) ◽  
pp. e15132 ◽  
Author(s):  
Felicia Brochu ◽  
Stephanie Robins ◽  
Skye A Miner ◽  
Paul H Grunberg ◽  
Peter Chan ◽  
...  
Keyword(s):  
Perceived Stress ◽  
Health Care Providers ◽  
Depressive Symptomatology ◽  
Treatment Options ◽  
The Internet ◽  
Care Providers ◽  
Sources Of Information ◽  
Web Based ◽  
Related Information ◽  
Support Resources

Background Given the complexity of infertility diagnoses and treatments and the convenience of the internet for finding health-related information, people undergoing infertility treatments often use Web-based resources to obtain infertility information and support. However, little is known about the types of information and support resources infertility patients search for on the internet and whether these resources meet their needs. Objective The aims of this study were to (1) examine what individual factors, namely, demographic characteristics and distress, are associated with searching the internet for different types of infertility-related information and support resources and (2) determine whether Web-based resources meet the needs of patients. Methods Men and women seeking infertility care responded to a survey assessing use of Web-based resources for accessing infertility-related information and support. The survey further assessed satisfaction with Web-based resources as well as perceived stress and depressive symptomatology. Results A total of 567 participants, including 254 men and 313 women, completed the survey. Most participants (490/558, 87.8%) had searched the internet for infertility information and support. Searchers were more likely to be women (P<.001), highly educated (P=.04), long-term patients (P=.03), and more distressed (P=.04). Causes of infertility, treatment options, and scientific literature about infertility were the three most frequently searched topics, whereas ways to discuss treatment with family and friends as well as surrogacy and ways to find peer support were the three least searched topics. Of those who searched the internet, 70.9% (346/488) indicated that their needs were met by Web-based information, whereas 29.1% (142/488) said that their needs were not met. Having unmet needs was related to greater levels of perceived stress (P=.005) and depressive symptomatology (P=.03). Conclusions This study provides evidence for the important role of the internet in accessing infertility information and support and for the ability of Web-based resources to meet patients’ needs. However, although distressed patients reported particularly high rates of searching, their needs were not always met, suggesting that they may benefit from alternative sources of information and support or guidance from health care providers when searching the internet.

Two Alternatives to Intensive Care

2017 ◽  
Vol 42 (1) ◽  
pp. 3-4
Author(s):  
Alex Fleming ◽  
Keyword(s):  
Health Care ◽  
Intensive Care ◽  
Health Care Providers ◽  
Hospice Care ◽  
Treatment Options ◽  
Care Providers ◽  
Health Care Decisions ◽  
Care Facilities ◽  
The Many

The overall quality of life in palliative and hospice care facilities differs greatly from that in intensive care units. For example, the use of mechanical ventilation and powerful anesthetics and sedatives in the ICU can often leave otherwise informed patients incapacitated and unable to make their own health care decisions. Thus, discussions between patients and families about treatment options can be difficult, and families and surrogates are often left to do this on their own Treatments performed in the ICU are likely to be disproportionate to their needs, adding to suffering and distrust on the part of family members. To avoid this, it is important for health care providers to assess patients early and often and to discuss the proportionality of different treatments with their families and surrogates. Additionally, providers should encourage palliative and hospice care as alternatives to the many costly and likely disproportionate interventions taken in the ICU.

Quality of Health Information on the Internet

2009 ◽  
pp. 443-455
Author(s):  
Kleopatra Alamantariotou
Keyword(s):  
Health Information ◽  
Information Quality ◽  
Relevant Information ◽  
The Internet ◽  
High Quality ◽  
Related Information ◽  
Health Related ◽  
Use Of The Internet ◽  
Effective Use

Recent statistics show that the World Wide Web has now grown to over 100 million sites: a phenomenal expansion in only 15 years (Mulligan 2007). It has been estimated that there are 100,000 sites offering health related information (Wilson 2002). As the amount of health information increases, the public find it increasingly difficult to decide what to accept and what to reject (Burgess 2007). Searching for information on the internet is both deceptively easy and the same time frustratingly difficult (Kiley 2002). The challenge for consumers is to find high quality, relevant information as quickly as possible. There has been ongoing debate about the quality of information aimed at patients and the general public and opinions differ on how it can be improved (Stepperd 1999). The purpose of this chapter is to provide a brief overview of the different perspectives on information quality and to review the main criteria for assessing the quality of health information on the internet. Pointers are provided to enable both clinicians and patients find high quality information sources. An understanding of these issues should help health professionals and patients to make effective use of the internet.

Web-Based Information for Patients and Providers

2020 ◽  
pp. 19-33
Author(s):  
Izabella Lejbkowicz
Keyword(s):  
Health Information ◽  
Web Sites ◽  
Information Technologies ◽  
The Internet ◽  
Online Health Information ◽  
World Population ◽  
Web Based ◽  
Access To Health ◽  
The Impact

The exponential development of Information Technologies revolutionized healthcare. A significant aspect of this revolution is the access to health information in the Internet. The Internet World Stats estimates that 56.8% of the world population used the Internet in March 2019, an increase of 1,066% from 2000. According to The Pew Research Center survey of 2012 81% of Americans used the internet and 72% of them searched for health information. Even though there is a lack in more recent data on the percentage of online health information seekers, it is clear that this trend is on the rise. This chapter focuses on the characteristics of the search for online health information by patients and providers, investigates features related to the quality of health web sites, and discusses the impact of these searches on healthcare.

Identifying potential barriers to sperm cryopreservation among Pakistani male cancer patients.

2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e18223-e18223 ◽  
Author(s):  
Nida Latif ◽  
Natasha Ali
Keyword(s):  
Cancer Patients ◽  
Health Care Providers ◽  
Treatment Options ◽  
Female Gender ◽  
Care Providers ◽  
Sperm Cryopreservation ◽  
Structured Interviews ◽  
Potential Barriers ◽  
American Society

e18223 Background: Cancer survivor rates have increased over the past few decades leading to a growing interest in research related to quality of life. The American society of clinical oncology’s updated guidelines of 2013 recommend that health care providers discuss the possibility of infertility with patients and present fertility preservation options to those who express interest. We attempted to explore the unique barriers that might prevent adult male cancer patients from accessing sperm cryopreservation in Pakistan Methods: We conducted semi-structured interviews of male cancer patients aged 18-45 years, diagnosed with cancer of any stage or type. The interviews were audio-recorded in Urdu and translated to English, following which they were transcribed ad verbatim. The topics included quality of information received regarding the risk of infertility following chemotherapy, future reproductive choices and barriers to sperm cryopreservation Results: Out of the 25 patients interviewed, there were n = 10 cases of Leukemia, n = 3 of Lymphoma, n = 2 cases each of colorectal carcinoma and Multiple Myeloma, n = 1 case each of Neuroblastoma and Osteosarcoma, and solitary cases involving the lung, breast, thymus, brain, jaw and testis. Only n = 4 patients knew about the potential for infertility due to cancer chemotherapy, all of whom were also aware of the option of sperm cryopreservation. Two patients had their sperm preserved prior to the initiation of chemotherapy. Perceived treatment related expenses appeared to be the biggest barrier to sperm cryopreservation for n = 9 patients (36%). This was followed by lack of information which was cited by n = 8 patients (32%) and religious reasons (n = 2 patients, 8.3%). Other barriers were identified as family wishes, female gender of the doctor and patient’s preferences. Four patients stated there are no barriers. Conclusions: There is a significant lack of awareness among male cancer patients regarding threat to fertility following cancer treatment. It is imperative that physicians inform them of this and discuss treatment options, along with addressing potential barriers.

scholarly journals Review of Health Information Systems in Oman

2007 ◽  
Vol 12 (2) ◽  
pp. 101 ◽  
Author(s):  
Mohammed Elhadi ◽  
Ahmed Al-Hosni ◽  
Khaled Day ◽  
Adbullah Al-Hamadani ◽  
Abdulrahman Al-Toqi ◽  
...  
Keyword(s):  
Health Care ◽  
Information Systems ◽  
Health Information ◽  
Health Care Providers ◽  
Quality Of Health Care ◽  
Health Information Systems ◽  
Care Providers ◽  
Major Health ◽  
Global Quality

This paper is a review of Oman's major Health Information Systems (HISs) and their enabling technologies. The work assesses the scope, functionality, security, and interoperability of the used systems. The review aids in achieving the objectives of HIS systems of improving the global quality of health care, attaining increased coordination between health care providers and consumers, promoting the use of guidelines and policies, and improving the speed of simultaneous access and distribution of medicalrecords and other resources. This paper, which can be considered as a building block towards the development of a nation-wide health care system, studies existing systems and identifies their functions and structures.  

scholarly journals Health Information Seeking Behaviors on Social Media During the COVID-19 Pandemic Among American Social Networking Site Users: Survey Study (Preprint)

2021 ◽  
Author(s):  
Stephen Neely ◽  
Christina Eldredge ◽  
Ron Sanders
Keyword(s):  
Public Health ◽  
Social Media ◽  
Health Information ◽  
Health Care Providers ◽  
Health Professionals ◽  
Information Seeking ◽  
Care Providers ◽  
Related Information ◽  
Public Health Officials ◽  
Health Consumers

BACKGROUND In recent years, medical journals have emphasized the increasingly critical role that social media plays in the dissemination of public health information and disease prevention guidelines. However, platforms such as Facebook and Twitter continue to pose unique challenges for clinical health care providers and public health officials alike. In order to effectively communicate during public health emergencies, such as the COVID-19 pandemic, it is increasingly critical for health care providers and public health officials to understand how patients gather health-related information on the internet and adjudicate the merits of such information. OBJECTIVE With that goal in mind, we conducted a survey of 1003 US-based adults to better understand how health consumers have used social media to learn and stay informed about the COVID-19 pandemic, the extent to which they have relied on credible scientific information sources, and how they have gone about fact-checking pandemic-related information. METHODS A web-based survey was conducted with a sample that was purchased through an industry-leading market research provider. The results were reported with a 95% confidence level and a margin of error of 3. Participants included 1003 US-based adults (aged ≥18 years). Participants were selected via a stratified quota sampling approach to ensure that the sample was representative of the US population. Balanced quotas were determined (by region of the country) for gender, age, race, and ethnicity. RESULTS The results showed a heavy reliance on social media during the COVID-19 pandemic; more than three-quarters of respondents (762/1003, 76%) reported that they have relied on social media at least “a little,” and 59.2% (594/1003) of respondents indicated that they read information about COVID-19 on social media at least once per week. According to the findings, most social media users (638/1003, 63.6%) were unlikely to fact-check what they see on the internet with a health professional, despite the high levels of mistrust in the accuracy of COVID-19–related information on social media. We also found a greater likelihood of undergoing vaccination among those following more credible scientific sources on social media during the pandemic (<i>χ</i><sup>2</sup><sub>16</sub>=50.790; <i>φ</i>=0.258; <i>P</i><.001). CONCLUSIONS The findings suggest that health professionals will need to be both strategic and proactive when engaging with health consumers on social media if they hope to counteract the deleterious effects of misinformation and disinformation. Effective training, institutional support, and proactive collaboration can help health professionals adapt to the evolving patterns of health information seeking.

scholarly journals Perception of Patients on Usage of Smartphones by Health Care Professionals during Clinic Hours

2021 ◽  
Vol 4 (6) ◽  
Author(s):  
Samuel O Bolarinde ◽  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Health Care Professionals ◽  
Medical Information ◽  
Clinical Information ◽  
Care Providers ◽  
Chi Square ◽  
Related Information ◽  
Health Related ◽  
Self Administered Questionnaire

Background of the study: Smartphones medically related applications are quickly becoming one of the main tools for accessing clinical information among health care professionals. Aim of Study: This study assessed the perception of patients on usage of smartphones by health care professionals during clinic hours. Methodology: The study recruited 185 patients. Data on demographic characteristics and perception of patients on the use of smartphones for medical information were obtained using a self-administered questionnaire. Data were summarized using a descriptive statistics and inferential statistics of Chi square. Alpha level was set at 0.005 Results: 76 Males, 109 Females participated in this study. 67.6% (125) own a smartphones. 34.6% (64) have seen health care professionals using smartphones during clinic hours, 28.1% (18) had their health care providers explain to them reasons for using smartphone. 34.1% (63) agreed it was unprofessional for health care provider to use smartphone during clinic, 33.5% (62) disagreed, 32.4% (60) were undecided. No association observed between respondents’ age (χ2= 12.00, p= 0.606), educational qualification (χ2= 8.501, p= 0.075) and responses to the statement that use of smartphones by health care professional was unprofessional. Conclusion: Although one third of the respondents agreed that usage of smartphones by healthcare professionals in the clinic while attending to patients was unprofessional however, usage of smartphone for health related information by health care professionals during clinic hours should be with caution to avoid losing the confidence repose in them by their patients.

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