The Role of Primary Caregiver Denial in Inpatient Placement During Home Hospice Care

2000 ◽  
Vol 15 (1) ◽  
pp. 15-33
Author(s):  
Dona J. Reese
2019 ◽  
Vol 25 (2) ◽  
pp. 190-218 ◽  
Author(s):  
Jacquelyn J. Benson ◽  
Debra Parker Oliver ◽  
George Demiris ◽  
Karla Washington

End-of-life caregiving is a highly stressful experience often fraught with conflict and tension. However, little is known about the ways family conflict manifests for informal caregivers of home hospice patients (IHCs). Framed by relational dialectics theory, the purpose of this study was to provide nurses and other health care professionals with an empirical understanding of how IHCs experience family conflict and tensions associated with caregiving. A second aim was to determine what strategies IHCs use to manage these family conflicts. Data used in this qualitative secondary analysis were originally collected as part of a randomized clinical trial of an IHC support intervention. Based on thematic analysis of data from 25 IHCs who reported family conflict, a conceptual model of caregiver resilience was developed from the themes and categories that emerged during the coding stage. Autonomy was identified as a central tension. IHCs used several strategies to address family conflict including communication, formal support, and emotional self-care.


2019 ◽  
Vol 36 (12) ◽  
pp. 1068-1075 ◽  
Author(s):  
Yang-Ching Chen ◽  
Hsiao-Yun Hu ◽  
Hsien-Yu Fan ◽  
Wei-Shih Kao ◽  
Hsiang-Yin Chen ◽  
...  

The effect of hospice care on place of death among centenarians remained unexplored. Using data obtained from National Health Insurance Research Database (2002-2010), we compared the differences in place and cause of death between centenarians and noncentenarians. These data were stratified into centenarian (n = 2495) and noncentenarian (n = 820 563) death. Data in place and cause of death and hospice care interventions were retrieved. Poisson regression models were used to evaluate factors associated with the centenarians’ place of death. Time series models were used to predict the number of centenarian deaths until 2025. Most (63.8%) of the centenarians died at their own homes, followed by 30.5% who died in hospital. Hospice home care was involved in only 0.3% of the centenarian deaths but in 1.8% of the noncentenarian deaths. The leading causes of death among centenarians were respiratory diseases (16.6%), circulatory diseases (15.2%), and pneumonia (14.8%). Among the centenarians, those who died of circulatory disease, old age, and respiratory diseases were more likely to die at their own homes. We forecasted the number of annual centenarian deaths to reach 800 in 2025. Therefore, an increase in the provision of advanced care planning and earlier home hospice care intervention may enable centenarians to die at their own residence.


2017 ◽  
Vol 35 (4) ◽  
pp. 684-689 ◽  
Author(s):  
Ariel Shalev ◽  
Veerawat Phongtankuel ◽  
Katherine Lampa ◽  
M. C. Reid ◽  
Brian M. Eiss ◽  
...  

2003 ◽  
Vol 49 (1) ◽  
pp. 77-88
Author(s):  
MASAKO SUGIMOTO ◽  
JUNKO TAKAISHI ◽  
NAOKO ARAGA ◽  
YOSHIKO S. LEIBOWITZ ◽  
KAYOKO KAWAHARA

Author(s):  
Alan Baron ◽  
John Hassard ◽  
Fiona Cheetham ◽  
Sudi Sharifi

This chapter looks ‘outside’ the Hospice at issues of the organization’s image. The authors talked to staff, volunteers, and members of the general public, as well as to a number of key stakeholders in the local healthcare community, in order to gauge their views on the host organization. The analysis examines the problems associated with the image of hospices and discusses attempts of staff and volunteers to ‘dispel the myths’ about the nature of hospice care work—a form of labour which potentially runs the risk of being characterized as ‘dirty work’. The chapter then examines how the Hospice is seen in the eyes of other healthcare professionals and discusses the choice of palliative medicine as a career for junior medics. Finally it discusses a degree of ‘confusion’ that staff and volunteers claim exists in the minds of GPs and consultants in specialist cancer hospitals about the role of hospices.


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