scholarly journals System Integration and Its Influence on the Quality of Life of Children with Complex Needs

2010 ◽  
Vol 2010 ◽  
pp. 1-12 ◽  
Author(s):  
Sandy Thurston ◽  
Louise Paul ◽  
Chenglin Ye ◽  
Patricia Loney ◽  
Dillon Browne ◽  
...  
Keyword(s):  
Quality Of Life ◽  
System Integration ◽  
Real Life ◽  
Family Needs ◽  
Physical Quality ◽  
Complex Needs ◽  
Problematic Behaviors ◽  
Physical Limitations ◽  
Team Integration

Purpose. To explore the interactions between child and parents psychosocial factors and team integration variables that may explain improvements in physical dimensions of the PEDS QL quality of life of children with complex needs after 2 years.Methods. In this 2-year study, parents were identified by the Children's Treatment Network. Families were eligible if the child was aged 0–19 years, had physical limitations, resided in either Simcoe County or the Region of York, Ontario, and there were multiple other family needs. Regression analysis used to explore associations and interactions;n=110.Results. A child's physical quality of life was affected by interacting factors including child's behavior, parenting, and integrated care. Statistically significant interactions between team integration, processes of care, and child/parent variables highlight the complexity of the rehabilitation approach in real-life situations.Conclusions. Rehabilitation providers working with children with complex needs and their families should also address child and parent problematic behaviors. When this was the case in high integrated teams, the child's physical quality of life improved after two years.

scholarly journals Interactions among Ecological Factors That Explain the Psychosocial Quality of Life of Children with Complex Needs

2010 ◽  
Vol 2010 ◽  
pp. 1-10 ◽  
Author(s):  
Sandy Thurston ◽  
Louise Paul ◽  
Chenglin Ye ◽  
Patricia Loney ◽  
Gina Browne ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Real Life ◽  
Ecological Factors ◽  
Holistic Approach ◽  
Family Impact ◽  
Family Needs ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Complex Needs

Purpose. To explore the associations and interactions among ecological factors and explain the psychosocial quality of life of children with complex needs.Methods. In this cross-sectional survey consenting parents were identified by the Children's Treatment Network. Families were eligible if the child from 0 to 19 years, resided in Simcoe/York, and there were multiple family needs. Regression analysis was used to explore associations and interactions.n=429.Results. Younger children, without conduct disorder, without hostile and punitive parenting and with low adverse family impact demonstrated the highest levels of psychosocial quality of life. Statistically significant interactions between processes of care and parent variables highlight the complexity of real life situations.Conclusions. It is not possible to fully understand the child's psychosocial quality of life in complex needs families by considering only simple associations between ecological factors. A multitude of factors and interactions between these factors are simultaneously present and the care of these families requires a holistic approach.

scholarly journals The Quality of Life of a Multidiagnosis Group of Special Needs Children: Associations and Costs

2010 ◽  
Vol 2010 ◽  
pp. 1-13 ◽  
Author(s):  
Sandy Thurston ◽  
Louise Paul ◽  
Patricia Loney ◽  
Maria Wong ◽  
Gina Browne
Keyword(s):  
Quality Of Life ◽  
Special Needs ◽  
Well Being ◽  
Special Needs Children ◽  
Family Needs ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Complex Needs ◽  
Family Variables

Purpose. To determine the quality of life, associations, and costs of a multidiagnosis group of special needs children.Methods. In this cross-sectional survey families were identified from the Children's Treatment Network, a Canadian multisector program for children with special needs. Families were eligible if the child was aged 2–19 years, resided in Simcoe/York, and if there were multiple child/family needs. Quality of life was measured using the PedsQL (n=429).Results. Quality of life scores were lower in this group compared to published healthy and single disorder groups of children. Quality of life scores decreased with advancing age. Child psychosocial well-being was more strongly associated with child/family variables compared to physical well-being. Health Utilization costs were higher in children with greater physical challenges.Conclusions. Further research is needed in other complex needs child samples to confirm the decrease in quality of life found in these children into adolescence. Investigations into the interactions of child and family variables are needed.

scholarly journals Application of QFD method in toothbrush design for the cervical spinal cord injury handicapped (Tetraplegia)

2018 ◽  
Author(s):  
Hassan Sadeghi Naeini ◽  
Seyyedeh Mitra Rafiee (MA)
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Cervical Spinal Cord ◽  
Spinal Cord Trauma ◽  
Physical Quality ◽  
Cord Injury ◽  
Physical Limitations ◽  
Qfd Method

Background: The spinal cord trauma is a lost physical performance that causes physical limitations in addition to mental, social and economic disadvantages. The mouth and tooth health is known as one of the related issues to the physical quality of life. Providing the conditions of the more independence for these people in brushing teeth can improve the level of mouth and tooth hygiene. The aim of this study is offering proper patterns in designing toothbrush by emphasizing on the tetraplegia handicapped. Methods: The results indicate, by considering the motoric limitations of spinal cord injury handicapped (C5-C7) and re-revaluating the dimensions of their palms, it should use stammer instead of grip. Also, by considering the movement rang among handicaps, the rotation of the brush set in 2 directions, brush fixation in 4 degrees and the angle between the brush and handle has been considered. Results: The results show that the light and sanitary materials should be used in producing. The handle of toothbrush should have a little friction with the user’s hand. The pressure points should be identified and investigated, but a little pressure on hand is necessary due to grip of toothbrush. Conclusion: It seems that in designing a product, the weight, the facility and the used material must be considered. A little pressure on hand is necessary due to grip of toothbrush. Key words: tetraplegia, manual tools, QFD

Quality of Life (QOL) of Balinese Women Working in Spa Tourism Industry

2015 ◽  
Vol 1 (1) ◽  
pp. 13
Author(s):  
Putu Sucita Yanthy ◽  
Luh Gede Leli Kusuma Dewi ◽  
W. Citra Juwitasari
Keyword(s):  
Quality Of Life ◽  
Tourism Industry ◽  
Family Needs ◽  
Interesting Phenomenon ◽  
Tourist Destinations ◽  
Foreign Countries ◽  
The Family ◽  
Two Factors ◽  
Material Factor

Bali is one of spa tourist destinations having various categories of spas and spa treatments, and the most important is the spa therapists. Spa development becomes an interesting phenomenon to be studied when it is associated with an involvement of Balinese women as spa therapists in foreign countries. The world’s demand for Balinese spa therapists has become the motivation of women to work in this area. The work and life of Balinese spa therapists while they are working in foreign countries serve as parameters to know their quality of life, and these parameters are also the main focus of this study. Through in-depth interviews and questionnaires distributed to 20 therapists it was found out that 85 percent of them have revealed an improvement in their quality of life that is influenced by two factors: the material and intimacy factors. The material factor in question refers to the economic improvement of the family as they could earn enough income to cover their family needs. The intimacy factor in question refers to closeness and a sense of solidarity fostered while they are working abroad and the relationship within the family. This study concludes that the most important part of the development of spa in Bali is its female Balinese spa therapists due to the image that Balinese women working as spa therapists are loyal, hard-working and honest making them in demand among tourists who are seeking spa treatments. Being a spa therapist can improve their quality of life, which means that subjectively both material and intimacy factors are the aspects that affect the quality of life of the Balinese spa therapists.

Long-Term Effectiveness of Fingolimod for Multiple Sclerosis in a Real-World Clinical Setting

2021 ◽  
pp. 1-6
Author(s):  
Cihat Uzunköprü ◽  
Yesim Beckmann ◽  
Sabiha Türe
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Real Life ◽  
Life Assessment ◽  
Health Related Quality ◽  
Serious Adverse Events ◽  
Related Quality ◽  
Health Related

<b><i>Introduction:</i></b> The primary aim of the present study was to evaluate the long-term efficacy of fingolimod in patients with multiple sclerosis (MS); secondary aims were to describe the safety of fingolimod with the evaluation of treatment satisfaction and impact on the quality of life in real life. <b><i>Methods:</i></b> We collected clinical, demographical, neuroradiological, and treatment data, including pre- and posttreatment status health-related quality of life from 286 MS patients consecutively treated with fingolimod. Clinical assessment was based on the Expanded Disability Status Scale (EDSS), and quality of life assessment was performed with MS-related quality of life inventory (MSQOLI). The data were recorded at baseline and every 6 months for 2 years. <b><i>Results:</i></b> One hundred and fourteen males and 172 females were enrolled. The annualized relapse rate and EDSS showed a statistically significant reduction during the observation period (<i>p</i> &#x3c; 0.001). The patients also demonstrated substantial improvements in magnetic resonance imaging (MRI) outcomes (<i>p</i> &#x3c; 0.001). Health-related quality of life scores improved significantly between baseline and 24-month visit (<i>p</i> &#x3c; 0.001). No serious adverse events occurred. <b><i>Conclusion:</i></b> In our cohort, fingolimod treatment was associated with reduced relapse, MRI activity, and improved EDSS and MSQOLI scores. Additionally, fingolimod has been able to maintain its effectiveness over a considerable long period of treatment.

scholarly journals Self-reported use of vitamin D supplements is associated with higher physical quality of life scores in multiple sclerosis

2021 ◽  
Vol 49 ◽  
pp. 102760
Author(s):  
Steve Simpson-Yap ◽  
Pia Jelinek ◽  
Tracey Weiland ◽  
Nupur Nag ◽  
Sandra Neate ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Vitamin D ◽  
Physical Quality ◽  
Vitamin D Supplements

scholarly journals Guided Self-help Teletherapy for Behavioural Difficulties in Children with Epilepsy

2021 ◽  
Author(s):  
Sophie Bennett ◽  
Isobel Heyman ◽  
Sophia Varadkar ◽  
Anna Coughtrey ◽  
Fahreen Walji ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Unmet Need ◽  
Hospital Setting ◽  
Physical And Mental Health ◽  
Paediatric Hospital ◽  
Complex Needs ◽  
Self Help ◽  
Behavioural Difficulties

AbstractBehavioural difficulties impact greatly upon quality of life for children with chronic illness and their families but are often not identified or adequately treated, possibly due to the separation of physical and mental health services. This case study describes the content and outcomes of guided self-help teletherapy for behavioural difficulties in a child with epilepsy and complex needs using an evidence-based behavioural parenting protocol delivered within a paediatric hospital setting. Behavioural difficulties and progress towards the family’s self-identified goals were monitored at each session. Validated measures of mental health and quality of life in children were completed before and after intervention and satisfaction was measured at the end of treatment. Measures demonstrated clear progress towards the family’s goals and reduction in weekly ratings of behavioural difficulties. This case demonstrates that a guided self-help teletherapy approach delivered from within the paediatric setting may be one way of meeting unmet need.

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