scholarly journals Psychosocial Factors in the Experience of Epilepsy: A Qualitative Analysis of Narratives

2021 ◽  
Vol 2021 ◽  
pp. 1-9
Author(s):  
Simona Mlinar ◽  
Zvonka Rener Primec ◽  
Davorina Petek

Introduction. Epilepsy is a complex disease. The consequences of epilepsy are varied and manifested in all aspects of people with epilepsy’s (PWE) lives. The purpose of this study was to define individual experiences of epilepsy, expressed in narratives, and to find the stem of each narrative—a core event in the PWE’s experience of the disease around which they structure their overall narrative. Method. A qualitative, phenomenological research method was used. We conducted semistructured interviews with 22 PWE and analysed the content using a combination of inductive and deductive methods, based on which we determined the stem narratives. Results. The stem narrative of the epilepsy narrative is an important life experience of PWE. We divided the stem narratives into four groups: lifestyle changes, relationship changes, the consequences of the inciting incident, and the limitations of the disease. In our study, we found that the stem narrative was, in all but one case, a secondary (psychosocial) factor resulting from epilepsy, but not its symptom (epileptic seizure). The stem narrative, where aspects of life with epilepsy are exposed, points to a fundamental loss felt by PWE. Conclusion. The narrative of the experience of epilepsy has proven to be an important source of information about the disease and life of PWE and also about the aspects at the forefront of life with epilepsy. The secondary epilepsy factors that we identified in the stem narratives were the greatest burden for PWE in all cases but one.

2013 ◽  
Vol 5 (1) ◽  
Author(s):  
Sh Marzetyadibahbt Al Sayed Mohamad ◽  
Melati Sumari ◽  
Zuria Mahmud

The involvement of adolescents in delinquent behaviors in Malaysia is not a new phenomenon. Although many studies have been conducted to study this issue in the West, there has been little attention given to that in Malaysia. Adolescents’ perceptions, feelings, and beliefs need to be understood and given serious consideration. This qualitative phenomenological research is aimed to understand the life experiences of seven teenage girls who were involved in delinquent behaviors. Seven adolescents who were placed at one rehabilitation school in Malaysia participated in the study. Expressive art activities in group counseling were conducted to allow them sharing their life experience. Triangulation from a variety of sources, i.e., open ended interview, which consists of three series, observation, and analysis of documents were used to gather the data. Overall, the results indicated that family dynamics is a crucial element that contributes to delinquency problems. Several themes related to family dynamics that contribute to delinquent acts among adolescents are parents and siblings involve in crime, close relatives involve in crime, poverties and difficulties in life, lack of parental care, divorce, turmoil and domestic violence, polygamy, and family moral support. Implications of the findings for practitioners are also discussed.   Keywords - Sociology, qualitative phenomenological research, Kuala Lumpur, Malaysia


2004 ◽  
Vol 30 (1) ◽  
Author(s):  
F. Cilliers ◽  
S. Rothmann ◽  
W. H. Struwig

This study explored consultants’ experiences of transference and counter-transference when conducting group relations training from the systems psychodynamic stance. A phenomenological research design was used with semistructured interviews conducted on a purposive sample of 13 organisational development consultants in a financial institution. The data was analysed by means of content analysis. The results showed that consultants have varied receptiveness in terms of receiving projections and managing transference. These differences involve triggers, characteristics and systemic valence. The consultants experienced counter- transference on five different cognitive and emotional levels. Distinguishing between personal and group emotions, receiving projections and managing transference, all contribute to the complexity of organisational consulting. Opsomming Hierdie studie het ondersoek ingestel na konsultante se ervarings van oordrag en teen-oordrag tydens groepverhoudingsopleiding vanuit die sistemiese psigodinamiese posisie. ’n Fenomenologiese navorsingsontwerp is gebruik met semi-gestruktureerde onderhoude gevoer met ’n doelgerigte steekproef van 13 organisasie ontwikkelingskonsultante in ’n finansiële instelling. Die data is ontleed deur middel van inhoudsontleding. Die resultate het aangetoon dat konsultante uiteenlopende ontvanklikheid het wat betref die ontvangs van projeksies en die hantering van oordrag. Hierdie verskille behels snellers, kenmerke en sistemiese valensie. Die konsultante het teen-oordrag ervaar op vyf verskillende kognitiewe and emosionele vlakke. Om onderskeid te tref tussen persoonlike en groep-emosies, die ontvang van projeksies en die hantering van oordrag, dra alles by tot die kompleksiteit van konsultering.


2019 ◽  
Vol 23 (2) ◽  
pp. 36-47
Author(s):  
Nida Arafat ◽  
Muhamad Zen

AbstractThis study wants to find out how the diffusion of innovation occurs in Islamic boarding schools Sabilussalam, how these pesantren students decide to jointly use the Yaumi application. An application that provides Islamic features to support the improvement of a Muslim's worship. This study uses a phenomenological research method. Phenomenological research tries to explain the meaning of a concept or phenomenon in experience which is based on the consciousness of several individuals. In the innovation diffusion theory there are two main points, namely the diffusion elements of innovation and the diffusion decision process of innovation. The results of this study indicate that the process of acceptance and use of the Yaumi application by Sabilussalam students has passed the stages mentioned in the innovation diffusion theory. AbstrakPenelitian ini ingin mengetahui bagaimana difusi inovasi terjadi di pesantren sabilussalam, bagaimana santri-santri pesantren ini memutuskan untuk bersama-sama menggunakan aplikasi Yaumi. Sebuah aplikasi yang menyajikan fitur-fitur Islami untuk mendukung peningkatan ibadah seorang muslim.  Penelitian ini menggunakan metode penelitian fenomenologi. Penelitian fenomenologi mencoba menjelaskan makna konsep atau fenomena dalam pengalaman yang didasari oleh kesadaran  beberapa individu. Dalam teori difusi inovasi terdapat dua poin utama, yaitu elemen difusi inovasi dan proses putusan difusi inovasi. Hasil penelitian ini menunjukkan proses penerimaan dan penggunaan aplikasi Yaumi oleh santri Sabilussalam telah melewati tahap-tahap yang disebutkan dalam teori difusi inovasi.


2013 ◽  
Vol 2013 ◽  
pp. 1-4 ◽  
Author(s):  
Nick Erskine ◽  
Vivien Daley ◽  
Sue Stevenson ◽  
Bronwen Rhodes ◽  
Lutz Beckert

Background. A magnitude 7.1 earthquake hit Canterbury in September 2010. This earthquake and associated aftershocks took the lives of 185 people and drastically changed residents’ living, working, and social conditions.Aim. To explore the impact of the earthquakes on smoking status and levels of tobacco consumption in the residents of Christchurch.Methods. Semistructured interviews were carried out in two city malls and the central bus exchange 15 months after the first earthquake. A total of 1001 people were interviewed.Results. In August 2010, prior to any earthquake, 409 (41%) participants had never smoked, 273 (27%) were currently smoking, and 316 (32%) were ex-smokers. Since the September 2010 earthquake, 76 (24%) of the 316 ex-smokers had smoked at least one cigarette and 29 (38.2%) had smoked more than 100 cigarettes. Of the 273 participants who were current smokers in August 2010, 93 (34.1%) had increased consumption following the earthquake, 94 (34.4%) had not changed, and 86 (31.5%) had decreased their consumption. 53 (57%) of the 93 people whose consumption increased reported that the earthquake and subsequent lifestyle changes as a reason to increase smoking.Conclusion. 24% of ex-smokers resumed smoking following the earthquake, resulting in increased smoking prevalence. Tobacco consumption levels increased in around one-third of current smokers.


2018 ◽  
Vol 30 (1) ◽  
pp. 32-38 ◽  
Author(s):  
Ahlam Al-Natour ◽  
Samar Mohammad Al-Ostaz ◽  
Edith J. Morris

Introduction: Marital violence increases during times of war. This study aims to describe the lived experience of marital violence toward Syrian refugee women during the current war in Syria. Design: A descriptive phenomenological research methodology was used to conduct semistructured interviews with 16 purposively selected Syrian refugee women residing in displacement centers in Jordan. Colaizzi’s steps of data analysis were used. Results: Four themes identified were identified: (1) Loss, insecurity, and suffering; (2) Shame and humiliation; (3) Justifying and enduring marital violence; and (4) Ways of coping with marital violence. Conclusion: The Syrian War conflict changed women’s lifeway and created a context for marital violence. Study findings suggests addressing marital violence during wartime and allocating resources to provide care and support of victims of violence in the displaced countries.


2016 ◽  
Vol 22 (6) ◽  
pp. 539 ◽  
Author(s):  
Elizabeth Lucas ◽  
Elizabeth Halcomb ◽  
Sandra McCarthy

As the burden of chronic and complex disease grows, there is an emphasis on programs that enhance the quality of care within primary care. The Connecting Care in the Community (CCC) program is an example of the implementation of care integration. This qualitative study sought to explore the experiences general practice staff face in managing clients with chronic and complex care issues, and their perceptions of the contribution of the CCC program to this care. Seventeen general practice staff from 11 practices throughout the Illawarra/Shoalhaven region participated in semistructured interviews. Five main themes emerged: (1) awareness of the CCC program; (2) varying program exposure and value placed on the program; (3) practice ‘busyness’ and role confusion; (4) communication and information sharing; and (5) the need for staff education and knowledge of local resources. If policymakers and healthcare organisations can gain a better understanding of the experiences of general practice staff, they will be able to design and implement programs that best meet the needs of the providers that they are attempting to integrate.


2015 ◽  
Vol 11 (3) ◽  
pp. 141-156
Author(s):  
Joanna Gee ◽  
Del Loewenthal ◽  
Julia Cayne

Purpose – The purpose of this paper is to outline research which aimed to explore psychotherapists’ experience of working with despair, in the UK prison setting, through a qualitative phenomenological approach. Within the forensic psychological literature, despair is considered a pathology, associated with suicide and self-harm, resulting from the prisoners histories and the coercive prison setting. In turn, therapeutic writings outline the importance of therapy in the prison setting with despair in providing coping skills, containment and learning opportunities for the prisoners involved. Design/methodology/approach – Within the study, ten psychotherapists were interviewed as to their experience of working with clients in despair in the prison setting. The data were analysed via the phenomenological research method Empirical Phenomenological Analysis (EPA), and a secondary analysis through reverie. Findings – Through the analysis by EPA, despair emerged in the prison setting as a destabilising phenomenon to which there was no protocol for working with it. Participants also described the prisoners’ despair and the despairing prison setting, touching on their own sense of vulnerability and despair. However, drawing on the secondary analysis by reverie, the researcher also became aware of how the phenomenon of despair emerged not simply through the said, but also through the intersubjective. Originality/value – It was therefore through the secondary analysis by reverie that the importance of the attendance to aspects of intersubjectivity in prison research emerged. This paper contributes to the therapeutic writings on despair in the prison setting, alongside holding implications for qualitative research in the prison setting.


Sign in / Sign up

Export Citation Format

Share Document