Self-Perception in Family Systems: A Diagrammatic Technique

1986 ◽  
Vol 67 (5) ◽  
pp. 299-305 ◽  
Author(s):  
Ronald R. Van Treuren
Keyword(s):  
Clinical Practice ◽  
Family Systems ◽  
Family Members ◽  
Self Perception ◽  
Assessment Technique ◽  
Diagrammatic Technique

The assessment technique described here meets the need for a tool to elicit from family members their own perceptions of their family's internal functioning and organization around a presenting problem. A paradigm of diagrammatic assessment is discussed, and its use is illustrated with an example from the author's clinical practice.

Legitimizing: A Meaningful but Underappreciated and Underutilized Family Systems Nursing Intervention

2021 ◽  
pp. 107484072199551
Author(s):  
Fabie Duhamel
Keyword(s):  
Clinical Practice ◽  
Family Systems ◽  
Family Members ◽  
Nursing Intervention ◽  
Theoretical Background ◽  
Active Listening ◽  
Working Together

Legitimizing is a Family Systems Nursing (FSN) intervention that is more than active listening and validating to comfort individuals and families who experience suffering. Based on a postmodern paradigm, this intervention consists of acknowledging that a person’s ideas/experience make sense, given their context or circumstances. This concept is often mentioned when discussing the theoretical components of FSN, but little has been written about how to apply it in clinical practice. In therapeutic conversations, once family members’ ideas/experience have been “legitimized” by the nurse and by other family members, the greater the chances are of working together to find solutions to their problem. The purpose of this article is to provide an embellished description, theoretical background, and clinical examples of this underappreciated and underutilized FSN intervention.

scholarly journals Enablers and barriers to treatment adherence in heterozygous familial hypercholesterolaemia: a qualitative evidence synthesis

BMJ Open ◽  
2019 ◽  
Vol 9 (7) ◽  
pp. e030290 ◽  
Author(s):  
Fiona J Kinnear ◽  
Elaine Wainwright ◽  
Rachel Perry ◽  
Fiona E Lithander ◽  
Graham Bayly ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Treatment Adherence ◽  
Familial Hypercholesterolaemia ◽  
Family Members ◽  
Personal Control ◽  
Qualitative Studies ◽  
Cochrane Library ◽  
Barriers To Treatment ◽  
Thematic Synthesis ◽  
Heterozygous Familial Hypercholesterolaemia

ObjectivesIndividuals with heterozygous familial hypercholesterolaemia (FH) are at high risk of developing cardiovascular disease (CVD). This risk can be substantially reduced with lifelong pharmacological and lifestyle treatment; however, research suggests adherence is poor. We synthesised the qualitative research to identify enablers and barriers to treatment adherence.DesignThis study conducted a thematic synthesis of qualitative studies.Data sourcesMEDLINE, Embase, PsycINFO via OVID, Cochrane library and CINAHL databases and grey literature sources were searched through September 2018.Eligibility criteriaWe included studies conducted in individuals with FH, and their family members, which reported primary qualitative data regarding their experiences of and beliefs about their condition and its treatment.Data extraction and synthesisQuality assessment was undertaken using the Critical Appraisal Skills Programme for qualitative studies. A thematic synthesis was conducted to uncover descriptive and generate analytical themes. These findings were then used to identify enablers and barriers to treatment adherence for application in clinical practice.Results24 papers reporting the findings of 15 population samples (264 individuals with FH and 13 of their family members) across 8 countries were included. Data captured within 20 descriptive themes were considered in relation to treatment adherence and 6 analytical themes were generated: risk assessment; perceived personal control of health; disease identity; family influence; informed decision-making; and incorporating treatment into daily life. These findings were used to identify seven enablers (eg, ‘commencement of treatment from a young age’) and six barriers (eg, ‘incorrect and/or inadequate knowledge of treatment advice’) to treatment adherence. There were insufficient data to explore if the findings differed between adults and children.ConclusionsThe findings reveal several enablers and barriers to treatment adherence in individuals with FH. These could be used in clinical practice to facilitate optimal adherence to lifelong treatment thereby minimising the risk of CVD in this vulnerable population.PROSPERO registration numberCRD42018085946.

P12.06 Unmet needs and wish for support of informal caregivers of primary brain tumour patients

2021 ◽  
Vol 23 (Supplement_2) ◽  
pp. ii31-ii32
Author(s):  
L Pointon ◽  
R Grant ◽  
S Peoples ◽  
S Erridge ◽  
P Sherwood ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Disease Progression ◽  
Family Caregivers ◽  
Brain Tumour ◽  
Unmet Needs ◽  
Emotional Health ◽  
Informal Caregivers ◽  
Family Members ◽  
Primary Brain Tumour ◽  
Caregiver Needs

Abstract BACKGROUND Most primary brain tumour patients rely on informal caregivers (i.e. family members or friends) for practical and emotional support. While caregiving can be rewarding, it also commonly leads to significant burden. In developing support for caregivers, it is vital to distinguish between caregivers’ unmet needs, and their actual wish for support to resolve unmet needs. We aimed to 1) identify the presence and magnitude of unmet needs; 2) examine associations between unmet needs and desire for support; 3) evaluate perceived usefulness of caregiver needs screening in clinical practice. MATERIAL AND METHODS Family caregivers of patients with primary brain tumours were recruited and asked to complete an adapted version of the Caregiver Needs Screen (CNS). This covered the level of distress resulting from 33 common issues in neuro-oncology caregiving (scale 0–10), and wish for information or support for any issue (yes/no). In addition, participants were asked to rank (0–7) their experience of using the CNS based on items covering ‘ease of us’, ‘usefulness’ and ‘satisfaction’. Descriptive and correlational analyses were applied. RESULTS Caregivers (N=79) reported between 1–33 unmet needs (M=17.20, sd=7.98) but did not always wish for support for each need (range 0–28, M=4.71, sd=6.63). Most distressing items were patient’s fatigue (M=5.58), recognising signs of disease progression (M=5.23), changes in patients’ thinking or behaviour (M=5.04), patient distress or sadness (M=4.68), and changes in caregivers’ own emotional health (M=4.44). A weak correlation was found between the total number of unmet needs and the desire for support (r=0.296, p=0.014). Caregivers most often desired support with recognising disease progression (N=24), managing medications and side-effects (N=18), and least often with managing spiritual issues (N=0), communication with (grand)children (N=2) and communication with family members and friends (N=3). Caregivers evaluated the CNS tool positively (mean item scores ranging 4.19–6.21 out of 7). CONCLUSION Family caregivers of brain tumour patients experience distress resulting from many neuro-oncology specific needs, but this is not directly related to a wish for support or information. Caregiver needs screening could be useful to tailor support or information to suit caregivers’ preferences in clinical practice.

scholarly journals IMPACT OF FAMILY FUNCTION ON THE RELATIONSHIP BETWEEN SELF-PERCEPTION OF AGING AND STRESS IN MIDLIFE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S459-S459
Author(s):  
Hyun-E Yeom ◽  
Eunyoung Park ◽  
Misook Jung
Keyword(s):  
Strong Predictor ◽  
Family Members ◽  
Subjective Health ◽  
Transitional Period ◽  
Self Perception ◽  
Subjective Health Status ◽  
Cross Sectional ◽  
Convenience Sample ◽  
Family Function ◽  
The Impact

Abstract Midlife is a transitional period with considerable stress related to health changes and interpersonal responsibilities. Understanding how self-perception of aging and family function affect stress is essential to improve quality of life in midlife and beyond. The purpose of this study was to examine the association among self-perception of aging, family function, and stress with a specific focus on the interaction between self-perception of aging and family function, which affect stress in midlife Koreans. This is a cross-sectional study. Data on a convenience sample of 249 midlife Koreans (age mean= 50.6, 50.1% male) were collected through a self-administered survey and analyzed using the PROCESS macro for SPSS. Self-perception of aging was significantly related to family function (r= -.121, p=.045), and family function was related to stress (r= -.402, p<.000). Self-perception of aging was a significant predictor for stress (β= -.130, p=.008) after adjusting for age, gender, subjective health status, and chronic health problems. A significant interaction between family function and self-perception of aging on stress was found (β= -.261, p=.006), indicating that the influence of self-perception of aging on stress was different depending on family function. Self-perception of aging was a strong predictor of stress in individuals who reported poorer support from family members, but not in those who reported better support. Our findings emphasize the importance of supportive family function, which could regulate the impact of self-perception of aging on stress in midlife. Developing psycho-cognitive interventions to improve self-perception of aging and supportive interaction between family members is warranted.

scholarly journals Clinical practice guidelines adherence, knowledge and awareness in rare and complex connective tissue diseases across Europe: results from the first ERN ReCONNET survey

RMD Open ◽  
2020 ◽  
Vol 6 (2) ◽  
pp. e001344
Author(s):  
Rosaria Talarico ◽  
Diana Marinello ◽  
Stefano Bombardieri ◽  
Gerd Burmester ◽  
Joao Fonseca ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Connective Tissue ◽  
Clinical Practice Guidelines ◽  
Practice Guidelines ◽  
Healthcare Professionals ◽  
Musculoskeletal Diseases ◽  
Family Members ◽  
Disease Patient ◽  
Connective Tissue Diseases ◽  
Reference Network

IntroductionThe European Reference Network (ERN) ReCONNET is the ERN aimed at improving the management of rare and complex connective tissue and musculoskeletal diseases (rCTDs) across the European Union (EU). In the mission of ERN ReCONNET, clinical practice guidelines (CPGs) play a crucial role, representing a valid tool towards the harmonisation of the management of rCTDs while improving effectiveness and quality of care delivered to patients.MethodsERN ReCONNET developed two surveys to map the adherence to rCTDs CPGs among healthcare providers and to assess the knowledge and awareness of CPGs for their diseases among patients, family members and caregivers.ResultsThe results of the surveys highlighted that healthcare professionals find it useful to apply CPGs in clinical practice (93%), while 62% of them experience difficulties and barriers in the application in their centres. Healthcare professionals also highlighted the need to develop CPGs for all rCTDs and to implement the use of the existing CPGs in clinical practice. On the other hand, patients, families and caregivers are relatively aware of the purpose of CPGs (51%) and 62% of them were aware of the existence of CPGs for their disease. Patient-friendly versions of CPGs and patients’ lifestyle guidelines should be systematically developed contributing to the empowerment of patients in the disease management.ConclusionERN ReCONNET is addressing the main issues identified in the results of the survey, promoting practical actions for the local adaptation of CPGs across Europe, improving their routine clinical use and increasing the awareness on CPGs among rCTDs patients, family members and caregivers.

The emotion: A crucial component in the care of critically ill patients

2016 ◽  
Vol 25 (3) ◽  
pp. 346-358 ◽  
Author(s):  
Maria Sagrario Acebedo-Urdiales ◽  
Maria Jiménez-Herrera ◽  
Carme Ferré-Grau ◽  
Isabel Font-Jiménez ◽  
Alba Roca-Biosca ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Clinical Practice ◽  
Phenomenological Study ◽  
Good Practice ◽  
Family Members ◽  
Three Dimensions ◽  
Nursing Ethics ◽  
Nursing Clinical Practice ◽  
Emotion Memory

Background: The acquisition of experience is a major concern for nurses in intensive care units. Although the emotional component of the clinical practice of these nurses has been widely studied, greater examination is required to determine how this component influences their learning and practical experience. Objective: To discover the relationships between emotion, memory and learning and the impacts on nursing clinical practice. Research design: This is a qualitative phenomenological study. The data were collected from open, in-depth interviews. A total of 22 intensive care unit nurses participated in this research between January 2012 and December 2014. Ethical considerations: The School of Nursing Ethics Committee approved the study, which complied with ethical principles and required informed consent. Findings: We found a clear relationship between emotion, memory and the acquisition of experience. This relationship grouped three dimensions: (1) satisfaction, to relieve the patient’s pain or discomfort, give confidence and a sense of security to the patient, enable the presence of family members into the intensive care unit and provide family members with a realistic view of the patient’s situation; (2) error experience, which nurses feel when a patient dies, when they fail to accompany a patient in his or her decision to abandon the struggle to live or when they fail to lend support to the patient’s family; and (3) the feel bad–feel good paradox, which occurs when a mistake in the patient’s care or handling of his or her family is repaired. Conclusion: Emotion is a capacity that impacts on nurses’ experience and influences improvements in clinical practice. Recalling stories of satisfaction helps to reinforce good practice, while recalling stories of errors helps to identify difficulties in the profession and recognise new forms of action. The articulation of emotional competencies may support the development of nursing ethics in the intensive care unit to protect and defend their patients and improve their relationships with families in order to maximise the potential for patient care.

scholarly journals Are we there yet?

2018 ◽  
Vol 24 (4) ◽  
pp. 235-236 ◽  
Author(s):  
Gráinne Fadden
Keyword(s):  
Clinical Practice ◽  
Peer Support ◽  
Family Members ◽  
Family Work ◽  
Implementation Challenges ◽  
And Training ◽  
Support Model

SUMMARYBurbach describes the content of a phased approach to delivering family work in psychosis. Clinicians would find it helpful to have guidance on how to address the challenges they face in clinical practice, such as engaging all family members in the process and how to deal with confidentiality conflicts. Implementation challenges are also likely to affect their ability to deliver this intervention. It may also be useful to consider the role that family members can play in co-production and training, and in delivering support to other families through a carer peer support model.DECLARATION OF INTERESTNone.

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