Cancer-Related Decision-Making Among Adolescents, Young Adults, Caregivers, and Oncology Providers

2021 ◽  
pp. 104973232110376
Author(s):  
Katie Darabos ◽  
Allison J. Berger ◽  
Lamia P. Barakat ◽  
Lisa A. Schwartz
Keyword(s):  
Decision Making ◽  
Young Adults ◽  
Qualitative Interviews ◽  
Provider Perspectives ◽  
Emotional Processes ◽  
Decision Making Processes ◽  
Oncology Providers ◽  
And Coping ◽  
Collaborative Decision

Decision-making among adolescents and young adults with cancer (AYA) is often complex, ongoing, and multifaceted, involving caregiver and oncology provider perspectives. Engagement in decision-making against the backdrop of normative developmental processes of acquiring autonomy and gaining independence contributes to the complexity of decision-making. Semi-structured qualitative interviews from 11 AYA and caregiver dyads and eight oncology providers examined decision-making processes with specific attention to the role of shared decision-making, cognitive and emotional processes, and coping with the decision-making experience. Five decision-making patterns were identified, with collaborative decision-making and AYA-driven decisions most commonly described. Utilizing hypothesis coding, AYA and caregivers explained how cognitive (i.e., pros/cons) and emotional (i.e., shock and fear of missing out) processes influenced cancer-related decisions. Coping strategies provided clarity and respite when engaged in decision-making. Our findings illuminate important implications for how to best support decision-making among AYA and caregivers, including the role oncology providers can play during decision-making.

GIS as a Communication Process

2005 ◽  
pp. 1-24 ◽  
Author(s):  
Jochen Albrect ◽  
James Pingel
Keyword(s):  
Decision Making ◽  
Structuration Theory ◽  
Communication Process ◽  
Collaborative Decision Making ◽  
Political Constraints ◽  
Community Mapping ◽  
Safety Strategies ◽  
Decision Making Processes ◽  
Collaborative Decision

We examine the role of GIS in communication and decision-making processes by re-interpreting the experiences of the Milwaukee COMPASS Project (Community Mapping, Planning and Analysis for Safety Strategies) in the light of Enhanced Adoptive Structuration Theory. Using numerous practice-derived examples, we conclude that GIS not only facilitates and strengthens communication, but can be used to defuse political constraints to collaborative decision making.

scholarly journals Heart and Mind: Essential Components in Sound Decision-Making

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 364-364
Author(s):  
Michaela Clark ◽  
Julie Hicks Patrick ◽  
Michaela Reardon
Keyword(s):  
Decision Making ◽  
Decision Quality ◽  
Cluster Solution ◽  
Cognitive Resources ◽  
Cluster Membership ◽  
Essential Components ◽  
Decision Making Processes ◽  
Affective Components ◽  
Heart And Mind

Abstract Consumer tasks permit an ecologically-valid context in which to examine the contributions of affective and cognitive resources to decision-making processes and outcomes. Although previous work shows that cognitive factors are important when individuals make decisions (Patrick et al., 2013; Queen et al.), the role of affective components is less clear. We examine these issues in two studies. Study 1 used data from 1000+ adults to inform a cluster analysis examining affective aspects (importance, meaningfulness) of making different types of decisions. A 4-cluster solution resulted. In Study 2, we used affective cluster membership and cognitive performance as predictors of experimental decision-making outcomes among a subset of participants (N = 60). Results of the regression (F(2, 40) = 6.51, p < .01, R2 = .25.) revealed that both the affective clusters (b = .37, p = .01) and cognitive ability (b = -.30, p = .04) uniquely contributed to the variance explained in decision quality. Age did not uniquely contribute. Results are discussed in the context of developing measures that enable us to move the field forward.

scholarly journals Skills-based intervention to enhance collaborative decision-making: systematic adaptation and open trial protocol for veterans with psychosis

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Emily B. H. Treichler ◽  
Borsika A. Rabin ◽  
William D. Spaulding ◽  
Michael L. Thomas ◽  
Michelle P. Salyers ◽  
...  
Keyword(s):  
Decision Making ◽  
Mental Illness ◽  
Service Delivery ◽  
Serious Mental Illness ◽  
Qualitative Interviews ◽  
Skills Training ◽  
Mental Illnesses ◽  
Open Trial ◽  
Collaborative Decision Making ◽  
Collaborative Decision

Abstract Background Collaborative decision-making is an innovative decision-making approach that assigns equal power and responsibility to patients and providers. Most veterans with serious mental illnesses like schizophrenia want a greater role in treatment decisions, but there are no interventions targeted for this population. A skills-based intervention is promising because it is well-aligned with the recovery model, uses similar mechanisms as other evidence-based interventions in this population, and generalizes across decisional contexts while empowering veterans to decide when to initiate collaborative decision-making. Collaborative Decision Skills Training (CDST) was developed in a civilian serious mental illness sample and may fill this gap but needs to undergo a systematic adaptation process to ensure fit for veterans. Methods In aim 1, the IM Adapt systematic process will be used to adapt CDST for veterans with serious mental illness. Veterans and Veteran’s Affairs (VA) staff will join an Adaptation Resource Team and complete qualitative interviews to identify how elements of CDST or service delivery may need to be adapted to optimize its effectiveness or viability for veterans and the VA context. During aim 2, an open trial will be conducted with veterans in a VA Psychosocial Rehabilitation and Recovery Center (PRRC) to assess additional adaptations, feasibility, and initial evidence of effectiveness. Discussion This study will be the first to evaluate a collaborative decision-making intervention among veterans with serious mental illness. It will also contribute to the field’s understanding of perceptions of collaborative decision-making among veterans with serious mental illness and VA clinicians, and result in a service delivery manual that may be used to understand adaptation needs generally in VA PRRCs. Trial registration ClinicalTrials.gov Identifier: NCT04324944

‘My mother thought upper secondary school was OK, but then my sibling said no’ - Young People's Perceptions of the Involvement of Parents and Siblings in their Future Choices

2016 ◽  
Vol 21 (1) ◽  
pp. 65-76 ◽  
Author(s):  
Sanna Aaltonen
Keyword(s):  
Decision Making ◽  
Young People ◽  
Vocational Education ◽  
Future Expectations ◽  
Older Brothers ◽  
Upper Secondary ◽  
Decision Making Processes ◽  
Support Programmes ◽  
People’S Perceptions

This paper seeks to contribute to the research on the role of the family in the educational decision-making of young people by highlighting two overlooked areas of study: vocational education and the role of siblings. It explores young, mainly working-class Finnish 15- to 17-year-olds’ future expectations and decision-making processes concerning the choice between the academic and vocational tracks by drawing on interviews with the young participants of targeted support programmes and their parents. The aim of the paper is to shed light both on how parents try to influence their children's post-school choices and on young people's perceptions of the influence that parents and older brothers and sisters had on their aspirations towards vocational education. The paper demonstrates how horizons for action and educational choices are influenced by family traditions and advice, but that the pieces of advice dispensed by parents and siblings are not necessarily in congruence with each other. The familial suggestions work as a point of reference which is acknowledged and reflected on in the young people's process of mapping and recognising their own preferences. The paper suggests that while the goals of parents and older siblings would not necessarily be upward mobility, but rather to help young people to make a decent choice within a sector corresponding to their own, it is important to acknowledge their influence as a resource valued by many young people.

scholarly journals Youth-Centered Maternity Care: A Binational Qualitative Comparison of the Experiences and Perspectives of Latina Adolescents and Healthcare Providers

2020 ◽  
Author(s):  
Martha J. Decker ◽  
Noelle Pineda ◽  
Abigail Gutmann-Gonzalez ◽  
Claire D. Brindis
Keyword(s):  
Decision Making ◽  
Maternity Care ◽  
Quality Care ◽  
Qualitative Interviews ◽  
Healthcare Providers ◽  
Qualitative Comparison ◽  
Latina Adolescents ◽  
Provider Perspectives ◽  
Centered Care ◽  
Delivery Options

Abstract Background Although there is growing recognition of the importance of person-centered maternity care, the needs and perspectives of pregnant adolescents are rarely considered. The purpose of this study was to compare the maternity care experiences of Mexican-origin adolescents in Guanajuato, Mexico and Fresno, California from both youth and healthcare provider perspectives. Methods Qualitative interviews and focus groups were conducted with a total of 89 respondents, including pregnant and parenting adolescents as well as providers between December 2016 and July 2017. Adolescents also completed a short demographic survey prior to participation. Transcripts in English and Spanish were coded and thematically analyzed using Dedoose software. Results were compared by location and between youth and providers. Results Four themes emerged regarding patient-provider interactions: the need for communication and clear explanations, respectful versus judgmental providers, engaging youth in decision-making, and a focus on the age of the youth and their partners. While youth had similar perspectives and priorities in both locations, youth in Mexico reported more negative healthcare experiences than youth in California. Perspectives varied between the youth and providers, with providers in both California and Mexico identifying several structural challenges in providing quality care to adolescents. In California, challenges to supporting immigrant Latina adolescents and their families included language and translation issues as well as barriers to care due to immigration status and documentation. In both locations, providers also mentioned high patient caseloads and their own concerns about the youth’s life choices. Conclusion Youth-centered care requires more effective and respectful patient-provider communication, where adolescents are engaged in their healthcare decision-making and delivery options. Changes in patient-provider interactions can help improve the maternity care experiences and outcomes of Latina adolescents. Healthcare systems and providers need to reconfigure their approaches to focus on the needs and priorities of adolescents.

scholarly journals The voice of dwellers – developing a place brand by listening to its residents

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Ulla Hakala
Keyword(s):  
Decision Making ◽  
Conceptual Development ◽  
Place Branding ◽  
Research Area ◽  
Content Type ◽  
Case Examples ◽  
Face To Face ◽  
Decision Making Processes ◽  
E Mail

Purpose Listening to the customers has long been a key phrase and success element in product branding. This paper aims to highlight the importance of listening to residents during the branding of a place. The study explores ways of listening to residents to ensure they are heard and also discusses the challenges and benefits related to place branding flowing from having residents participate in decision-making processes. Design/methodology/approach Listening to residents and offering opportunities to participate requires place branders to fully attend to, comprehend and respond to residents’ comments, requests, ideas and feedback. This study reports on how two Nordic cities – Turku and Helsinki – listen to their residents. The data used comprise face-to-face interviews, telephone and e-mail conversations and documentary material. Findings Residents should not be considered as one homogeneous target; participation options and channels should be adapted to the demographics and geographic issues of the different regions and resident groups. Research limitations/implications The role of residents and the importance of listening are crucial features in the emerging concept of inclusive place branding (Kavaratzis et al., 2017); its future conceptual development could benefit from the case examples at hand. Practical implications City authorities should listen to residents and provide them with opportunities to actively contribute to decision-making. Other cities could learn from the examples introduced in the paper. Originality/value This paper documents two Nordic examples of cities putting into practice a policy of listening to the residents, a previously neglected research area.

scholarly journals Rational and irrational processes in decision making: An economic perspective

2019 ◽  
Vol 1 (1) ◽  
pp. 51-57
Author(s):  
Maria Liana Lacatus
Keyword(s):  
Decision Making ◽  
Imperfect Information ◽  
Final Section ◽  
Daily Life ◽  
Decision Making Process ◽  
Economic Perspective ◽  
Short Introduction ◽  
Decision Making Processes ◽  
Economic Understanding

The paper presents important issues of decision making processes with an emphasis on rational and irrational components of these processes. After a short introduction outlining the need for a deeper understanding of rational and non-rational factors that affect the decisions people make, the rationality of people decisions in daily life is questioned and the role of non-rational factors such as intuition are analyzed. The economic understanding of the decision making process is presented and principles of rational decision-making are explained. Different methods used and recommended by economists in order to make decisions are presented and applied in different life situations in order to demonstrate their value in daily life. Special emphasis is put on factors such as imperfect information, illusion of control, or risk aversion that may affect the rationality of the decision making processes. In the final section of the paper the concept of bounded rationality is introduced and explained along with new theories in economics that are challenging the classic economic perspective on the decision making process

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